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I have cirrhosis of the liver

Posted on 07/03/2012 8:29:13 PM PDT by fourth and three

I lurk here a lot but don't really post. I just thought I would post here to see if anybody is familiar with all this.

I learned about 3 months ago that I have cirrhosis of the liver, probably caused by alcohol use. I never thought I drank that much -- maybe 4 or 5 beers a night -- but I had such a habit for many years.

I had no warning of such a problem, and only learned about it when my abdomen started becoming oddly swollen, and uncomfortable. Finally, when I was looking like a pregnant woman (literally}, I was sent for an ultrasound and ascites associated with cirrhosis was diagnosed. This came like a bolt out of the blue. When you get ascites, the prognosis is rather grim, with an expectation of 3 years to live without a liver transplant.

I don't feel like I'm dying, but I've been drained of about 2 1/2 gallons of fluid twice since then, and take diuretics and drastically limit salt intake. I want to work but I constantly feel weak, and I am not sure how honestly I should talk with an employer about my condition.

I also have a six year old girl who doesn't understand why daddy feels so weak all the time.

Just wondering if anyone knows about this condition and might have information that is valuable to anyone who has this disease.


TOPICS: Health/Medicine
KEYWORDS: alphalipoicacid; cirrhosis; liver; milkthistle
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1 posted on 07/03/2012 8:29:17 PM PDT by fourth and three
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To: fourth and three

I don’t know about that condition but I am very sorry to read of your trouble.

May God bless you and family.


2 posted on 07/03/2012 8:33:19 PM PDT by TheConservativeParty ("War." Andrew Breitbart)
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To: fourth and three

Any chance of recovery? I know the liver has a high rate of regeneration.


3 posted on 07/03/2012 8:33:51 PM PDT by Jonty30 (What Islam and secularism have in common is that they are both death cults.)
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To: fourth and three

I don’t know but I’ll keep you and your family in my prayers.


4 posted on 07/03/2012 8:33:51 PM PDT by dragonblustar (At least Judas had the good sense to look for a tall tree afterwards.)
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To: fourth and three

I don’t have any advice for you, but prayed for you, and your daughter. I am sorry you are going through this.


5 posted on 07/03/2012 8:34:29 PM PDT by Persevero (Homeschooling for Excellence since 1992)
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To: fourth and three

Jesus, have mercy. What can we do, but ask? We pray for fourth and three.


6 posted on 07/03/2012 8:36:11 PM PDT by ecomcon
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To: fourth and three

My dad had it and refused any surgery. If the transplant is an option in the future def have it. Of course stop the drinking. Dad also drank a lot of beer. The cirrosis was diagnosed 10 or 15 years after he quit drinking. I’m very sorry you have this but they can do wonders with transplants nowadays.


7 posted on 07/03/2012 8:37:18 PM PDT by Williams (No Obama)
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To: fourth and three

That’s one of the tougher diseases to get. You will be in my prayers.

I think a liver transplant might be an option for you, if you can get it done before obammycare starts.


8 posted on 07/03/2012 8:38:23 PM PDT by basil (Second Amendment Sisters.org)
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To: fourth and three

I heard the liver is one body organ that actually will regenerate itself. I’m not a doctor, but I heard they coul go in and cut off the diseased part of the liver and the liver will actually grow back. I heard Herman Cain talk about this. He had cancer in his liver and the doctors cut that part of the liver off and today he has a full, healthy liver again..... Ask your doctor about that.

For now, obiviously, no alcohol for you.

Gods blessing on you my FRiend.


9 posted on 07/03/2012 8:39:31 PM PDT by GR_Jr. (Vote Obama out now.....deal with Romney later.)
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To: fourth and three

Stop drinking ***NOW***!

No ifs ands or buts.

Do ~EXACTLY~ what the doc tells you.

It’s really simple if you do what they tell you, you’ve got better than a 50/50 chance of survival.

If you don’t, you die.

Soon.


10 posted on 07/03/2012 8:40:08 PM PDT by shibumi (Cover it with gas and set it on fire.)
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To: fourth and three
Bummer, stop any further consumption immediately. Some people are more prone to liver damage from alcohol than others. My BL is such and he required a transplant. He was on death's door when he received his but doing great now. Almost back to his old self. There are other causes and it's rampant around here; must be about a dozen people that I know that have all stages. An uncle just passed away from it and a cousin is close to death now. Another distant cousin ( female ) has had two liver transplants. Some drank, some never.

Medical researchers are making progress every day and the longer you hang in there, the more likely there be a fix soon. Depending upon what stage you're at, don't waste any time getting on a recipient list.

God watch over you in the meantime!

11 posted on 07/03/2012 8:40:21 PM PDT by Errant
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To: fourth and three
I work in the same office building as our local alcohol and drug abuse council. One of the counselors had been a heavy drinker in his past, but had quit. When he was in his 50's his liver began to fail and he started getting the symptoms you describe. He had fluid drained numerous times, but was ultimately unable to find a liver for transplant and ended up dying after a couple of years.

Hopefully you are on a list for a transplant at this point.

I'm putting a note on my fridge to pray for you as often as I see that note. I pray not only that you'll get a transplant, but most importantly, that you have a saving knowledge of our Lord and Savior, Jesus Christ.

God Bless you and your family!

12 posted on 07/03/2012 8:43:30 PM PDT by mrpotatohead
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To: fourth and three

my understanding is it takes two things to get your condition. First you need a genetic predisposition. Then you need to drink. Using tylenol speeds up the process. There are lots of people who drink heavily and live to their 70s and never develop liver problems. They don’t have the genetic component so they don’t have to worry.


13 posted on 07/03/2012 8:43:45 PM PDT by mamelukesabre
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To: Williams

I have a family member that had a liver TX over 9 years ago and is still going strong. Get on the TX list ASAP. Prayers for you and your family.


14 posted on 07/03/2012 8:44:17 PM PDT by Coldwater Creek (He who dwells in the shelter of the Most High will rest in the shadow of the Almighty Psalm 91:)
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To: ecomcon

Prayers for you and your daughter. I gave up drinking and pot smoking after becoming a christian 3 months ago.I was 25 yrs with the habit,have health problems but live for the Lord now.May God bless you.


15 posted on 07/03/2012 8:44:20 PM PDT by ohiobushman (Only in N.Y.C can u buy beer by the case,liquor by the gallon,but be a criminal buying a soda!)
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To: neverdem

I noticed you post health/medicine related articles.

Perhaps you could comment on this situation?


16 posted on 07/03/2012 8:44:36 PM PDT by Innovative (None are so blind that will not see.)
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To: fourth and three

Prayers up for you and your family. Any of us here could succumb to this disease.


17 posted on 07/03/2012 8:45:06 PM PDT by wjcsux ("In a time of universal deceit, telling the truth becomes a revolutionary act." - George Orwell)
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To: fourth and three

Best wishes sent to you.


18 posted on 07/03/2012 8:45:27 PM PDT by ConservativeStatement (Obama "acted stupidly.")
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To: fourth and three

God of mercy, we bless You in the name of Your Son, Jesus Christ, who ministered to all who come to Him. Give Your strength to N., Your servant, bound by the chains of addiction. Enfold himlher in Your love and restore himlher to the freedom of God’s children. Lord, look with compassion on all those who have lost their health and freedom. Restore to them the assurance of Your unfailing mercy, and strengthen them in the work of recovery. To those who care for them, grant patient understanding and a love that perseveres. We ask this through Christ our Lord. Amen.


19 posted on 07/03/2012 8:46:41 PM PDT by vladimir998
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To: fourth and three

Look up and research milk thistle supplement. A family friend was diagnosed with cirrosis a few years ago, he takes milk thistle now every day and his liver enzymes have went down, it has a positive effect, but is no miracle cure. Check it out, see if it may work for you.


20 posted on 07/03/2012 8:47:24 PM PDT by ohiobuckeye1997
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To: fourth and three

Dr Bert Berkson, MD, is perhaps the world’s leading expert on liver disease and treatments to regenerate the liver w/o going the transplant route.

http://drberkson.com

Treatment
Dr. Berkson and his patients are partners in the healing process. He creates a holistic program for each patient that combines conventional medicine, vitamin and herbal supplements, nutrition, healthy lifestyle practices, and antioxidants like Alpha Lipoic Acid (administered at Integrative Medical Center). Click here to learn more about Alpha Lipoic Acid, a natural substance produced by our bodies that Dr. Berkson has worked with since 1977.

Many of our patients travel from around the country or other countries; therefore demand for appointments is high and we are not scheduling new patients for general health appointments.

Dr. Berkson commonly sees patients with the following:
• Cirrhosis
• Chronic Obstructive Pulmonary Disease (COPD)
• Diabetes mellitus
• Hepatitis C
• Lupus
• Multiple Sclerosis (MS)
• Rheumatoid Arthritis

Dr. Berkson tailors his treatment for each individual and can only offer medical advice to patients who have come to the office for an appointment. He cannot give medical advice over the phone. Please contact us to make an appointment at (575) 524-3720.

The above is posted from his website.


21 posted on 07/03/2012 8:47:54 PM PDT by GGpaX4DumpedTea (I am a Tea Party descendant...steeped in the Constitutional Republic given to us by the Founders.)
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To: fourth and three

You need to read up about Hepatic encephalopathy as well as becoming aware of the symptoms from your ammonia levels increasing. The swelling of your abdomen is caused by ascites. You can also expect problems with your platelet levels because of compromised spleen function.

Get yourself to a specialist ASAP.

I will pray for you.


22 posted on 07/03/2012 8:49:30 PM PDT by lastchance ("Nisi credideritis, non intelligetis" St. Augustine)
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To: ohiobushman

Good News!


23 posted on 07/03/2012 8:50:01 PM PDT by Coldwater Creek (He who dwells in the shelter of the Most High will rest in the shadow of the Almighty Psalm 91:)
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To: fourth and three

My grandfather had it. Though I do not know all the ins and outs of the disease, he was very ill. There were days when he felt up to mowing lawns and days he did not. Some of the medications he was on made things even worse.

The fortunate thing is they were able to find a doner for him. After the transplant he was able to return to a normal life.

That is ultimately going to be your only out. Financially there are grants you can get from some private companies to help with expenses. There are several databases to get on for a donor.

Also the Southern Baptist church has helped many people needing transplants and major surgery financially. There are also some Catholic organizations that will assist with these types of expenses. They may also be able to help get you on some of the lists for donors. Most local hospitals will give you a list of organizations that can help you with these types of expenses as well.

I wish you the very best with your illness. These things are never easy most especially with small children. Tomorrow I will call and see if I can get more specifics for you.


24 posted on 07/03/2012 8:50:40 PM PDT by formosa (Formosa)
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To: fourth and three

I am very sorry to hear about your health condition. It must have been devastating news.

But don’t give up! — do what you can and need to do and also talk to doctors at university medical centers, see if there are treatments that help or at least slow down the progression, keep you from getting complications, etc., explore whether you could get on a liver transplant list, and so on.

Regarding your work, I think you need to discuss it with your boss, so they understand, rather than assume you just don’t feel like working as hard. I don’t know what kind of job you have, in some jobs they may let you do some work from home. Also I don’t know how much sick leave you have, if any, to maybe take a day sick leave and work 4 days.

God bless you and give you strength to pursue options that may help you.


25 posted on 07/03/2012 8:51:52 PM PDT by Innovative (None are so blind that will not see.)
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To: fourth and three

Prayers for you and your family. We do have a family friend that was diagnosed with something similar to you (after years of hard liquor consumption). He was placed on the transplant list BUT denied such a transplant because they checked for alcohol (he was positive). Now... he was diagnosed about five years ago. He is still very much alive but he does get flare ups. Again... prayers for you. Fight this condition with everything you have.


26 posted on 07/03/2012 8:52:22 PM PDT by momtothree
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To: fourth and three
Google liver regeneration. Some say the liver can largely rebuild itself with proper care.
27 posted on 07/03/2012 8:53:09 PM PDT by AZLiberty (No tag today.)
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To: fourth and three

My brother in law got a liver transplant a few weeks ago.

To qualify for transplant, or too simply live longer, you must stop drinking.

Carr Shelby lived over 20 years with a transplanted heart, into his 80s.


28 posted on 07/03/2012 8:53:27 PM PDT by truth_seeker
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To: ohiobushman

Excellent!


29 posted on 07/03/2012 8:56:11 PM PDT by Carthego delenda est
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To: fourth and three

Sounds brutal in terms of the disease.

In terms of work you’re probably going to have to think outside of the box.

If your detail oriented you can probably find internet marketing or other jobs that involve placing ads on craigslist or other internet sites on Craigslist.com, elance.com or vWorker among lots of other things.

The pay won’t be great, but you’ll be able to contribute, pay some bills and if you can only work an hour here or an hour there, if you manage client expectations you might be able to generate some revenue.

The most important thing is to be good to yourself and get well.


30 posted on 07/03/2012 8:57:15 PM PDT by rwilson99 (Please tell me how the words "shall not perish and have everlasting life" would NOT apply to Mary.)
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To: fourth and three

My heart goes out to you. Hope you kick this thing to the curb!


31 posted on 07/03/2012 8:58:00 PM PDT by reagan_fanatic (Worst. President. Ever.)
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To: fourth and three

Some potentially helpful info about ascites:

scroll down about a third down the page:

http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/hepatology/complications-of-cirrhosis-ascites/


32 posted on 07/03/2012 8:59:36 PM PDT by Innovative (None are so blind that will not see.)
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To: fourth and three

May God hold you close during this time.

I can’t help but think there are so many reasons to drink these days.

But the best reason to stop is your wonderful daughter. She’ll need you in these trying times.

Wish I could help with info, but I can only offer prayer.


33 posted on 07/03/2012 8:59:48 PM PDT by Mortrey (Impeach President Soros)
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To: fourth and three

Consider supplements such as alpha lipoic acid and milk thistle (active ingredient is silymarin) http://www.earthclinic.com/CURES/liver_damage.html


34 posted on 07/03/2012 9:01:27 PM PDT by TheCPA
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To: fourth and three
Buried a brother-in-law last September with a similar condition.

I'll pray. It's grim.

/johnny

35 posted on 07/03/2012 9:03:01 PM PDT by JRandomFreeper (Gone Galt)
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To: vladimir998

Amen, in Jesus name. Amen


36 posted on 07/03/2012 9:05:33 PM PDT by Lily4Jesus ( Jesus is LORD)
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To: vladimir998

Amen, in Jesus name. Amen


37 posted on 07/03/2012 9:05:44 PM PDT by Lily4Jesus ( Jesus is LORD)
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To: fourth and three; Sirius Lee; lilycicero; MaryLou1; glock rocks; JPG; Monkey Face; RIghtwardHo; ...

Prayers up!


38 posted on 07/03/2012 9:09:03 PM PDT by narses
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To: narses

Will pray for you and your family.


39 posted on 07/03/2012 9:12:39 PM PDT by Mmogamer (I refudiate the lamestream media, leftists and their prevaricutions.)
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To: fourth and three

My heart goes out to you. Thank you for your honesty and courage in opening up about your condition. You do have a lot to live for with a six year old daughter. She will always need you regardless of the bad decisions that may have brought you to this point.

I am a cardiac nurse and have had this conversation with many patients facing their life as you are now. You now have a choice to make about the path of your life from this point forward. Your body is frail and only your strength of will can change it. The medical team can assist, but in the end, only you can change the outcome. Accept the past and change the future.
Cirrosis of the liver has a poor prognosis because the patient is usually not willing to make changes in lifestyle that can improve their health. It is difficult but you alone must decide whether you are willing to participate in healing your liver or continue on an ugly path of liver failure.
Educate yourself on liver functions and health. You can make changes that will allow the liver to heal. Become the captain of the team of doctors and nurses with the goal of being alive for your daughter and fulfilling your purpose. Even if you fall to extend your time you can extend your legacy.
Choose to become who you were meant to be and maybe you can extend the time you get to be that man.


40 posted on 07/03/2012 9:13:59 PM PDT by myprecious
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To: fourth and three

My heart goes out to you. Thank you for your honesty and courage in opening up about your condition. You do have a lot to live for with a six year old daughter. She will always need you regardless of the bad decisions that may have brought you to this point.

I am a cardiac nurse and have had this conversation with many patients facing their life as you are now. You now have a choice to make about the path of your life from this point forward. Your body is frail and only your strength of will can change it. The medical team can assist, but in the end, only you can change the outcome. Accept the past and change the future.
Cirrosis of the liver has a poor prognosis because the patient is usually not willing to make changes in lifestyle that can improve their health. It is difficult but you alone must decide whether you are willing to participate in healing your liver or continue on an ugly path of liver failure.
Educate yourself on liver functions and health. You can make changes that will allow the liver to heal. Become the captain of the team of doctors and nurses with the goal of being alive for your daughter and fulfilling your purpose. Even if you fall to extend your time you can extend your legacy.
Choose to become who you were meant to be and maybe you can extend the time you get to be that man.


41 posted on 07/03/2012 9:14:26 PM PDT by myprecious
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To: fourth and three

Avoid using pain relievers tha contain aspirin or especially NSAIDs. Limit yourself to acetamenophen only, and even that carries some risk so keep it to a bare minimum. Alternative therapies using SAMe and/or Milk Thistle may be helpful, please research the matter thoroughly and consult yoir doctor before actually pursuing either of these.

SAMe has proven benefit for liver function, numerous clinical studies bear this out. It also has several other beneficial effects. It stabilizes or even enhances mood, and it’s helpful with inflammatory joint and connective tissue disorders. It’s available over the counter in the vitamin and supplement section of Walmart as far as an affordable source. More options at stores such as GNC.

Beyond these, I hope you’ve found the strength to discontinue the use of alcohol.


42 posted on 07/03/2012 9:14:48 PM PDT by RegulatorCountry
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To: ohiobuckeye1997

Yes, I was going to suggest silymarin,(Milk Thistle) too. It’s great for the liver.


43 posted on 07/03/2012 9:15:55 PM PDT by vickixxxx
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To: fourth and three

Milk Thistle seed, schizandra, bupleurum.

You can help yourself a lot, and quite affordably.


44 posted on 07/03/2012 9:16:00 PM PDT by gaijin
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To: fourth and three

Do not drink another drop. And look into Milk Thistle Supplements- cheap at Walmart.


45 posted on 07/03/2012 9:19:53 PM PDT by rem_mitchell
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To: ohiobuckeye1997
Look up and research milk thistle supplement.

...and add some Burdock root..

You can grow it yourself in 5 gallon plastic pots from seeds....the root will spiral around and is easy to remove...otherwise growing Burdock in the garden the root keeps on going down and is a major task to remove.

(above ground it looks like a thistle.)

46 posted on 07/03/2012 9:20:47 PM PDT by spokeshave (The only people better off today than 4 years ago are the Prisoners at Guantanamo.)
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To: fourth and three

First of all I am so sorry you have to go through this, my thoughts and prayers go out to you and your little girl
My suggestion to you is to start looking at family members and friends who might be potential donors. The liver is an amazing organ, a person only has to give half their liver to you and in a span of a few months it regrows back to its normal size, same would happen to you. So that is what I would start doing first, the sooner the better, that way you can get the transplant done while you are still physically strong enough to do the operation. You don’t want to do it when your so weak it will be difficult for you to tolerate the surgery.
Your in my thoughts and prayers, God Bless


47 posted on 07/03/2012 9:23:58 PM PDT by Sarah Barracuda
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To: fourth and three

“An important antioxidant, glutathione, or GSH, cannot be used as a supplement because this substance cannot directly enter the cells threatened by oxidative stress. However, researchers are using a precursor compound, the molecule S–adenosylmethionine (SAMe), which can enter the cells and then break down to form the helpful antioxidant. When SAMe was given to patients with alcoholic cirrhosis in a clinical trial, they were significantly less likely to die or require a liver transplant within the next 2 years, compared with patients who had received an inactive substance (that is, a placebo) (19). Moreover, the study detected virtually no harmful side effects of SAMe treatment. Thus, this approach appears to hold promise for the treatment of patients with ALD (20)”

http://pubs.niaaa.nih.gov/publications/aa64/aa64.htm


48 posted on 07/03/2012 9:30:09 PM PDT by RegulatorCountry
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To: fourth and three
Stop eating vegetable oils, get lots of saturated fat. Dietary factors and alcoholic cirrhosis.

You should also be taking glycine. The Study Of Therapeutical Effects And Mechanism Of Glycine On Hepatic Fibrosis And Cirrhosis In Rats

He might be a little out there, but you should read Ray Peat.

These are all things you can do in parallel with the doctors. Good Luck!

49 posted on 07/03/2012 9:34:20 PM PDT by MetaThought
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To: fourth and three
I am not a medical professional or researcher. I have done quite a bit of Internet research on the problem though.

The liver illness results from the continuous irritation as a result of processing the alcohol. The liver is capable of taking quite a bit of abuse processing all kinds of materials in the diet. However the continual abuse causes the new growth in the liver to be somewhat a form of scar tissue that does not allow for normal fluid movement through the liver. Develop enough of that material and you have Cirrhosis, and there are various stages. Your symptoms indicate that it is pretty advanced if you are having the swelling and fluid retention. At some point a transplant may be the only option.

However, there are a few things you can try to do to possibly improve the situation. These are pretty safe and not radical in any way. Look at using a few supplements. "Google around" a bit for more information on these as they are not part of the general medical advice. Look at Curcumin as something the has wide ranging benefits for reducing inflammation and possibly reverse early stage Cirrhosis. A couple of cups of Green Tea every day may also help along the same lines. Include a couple of grams of the Fish Oil with the higher values for the EPA and DHA. Take a daily dose of 5,000 IU of Vitamin D. Also Google up information on Bruce Ames + Alpha Lipoic Acid + NAC + Milk Thistle + Liver. I have found some very interesting information available at the website of Science Daily. They provide the press releases that announce the study results. At the Science Daily site there is a search feature that you can use to look at study results for the last ten years. Search there for Liver, then Cirrhosis, then Curcumin, then Green Tea.

One other bit of general diet advice is to suggest that you look at the work of Gary Taubes. The general idea is that the high quantities of grains and sugars in the diet cause a somewhat general form of inflamation, causing much of the obesiety problem in the US. They also increase the daily continuous liver stress factors. I believe that Taubes is really on to something worthwhile.

And finally, I do wish you good luck in dealing with the Cirrhosis. The human body is a pretty amazing system that is still poorly understood in how it functions. There is quite a bit of new information being discovered weekly. Most of the MDs were trained to burn it or cut it to solve the problem. That is really not a great way to go for treatment, unless absolutely necessary, when dealing with the liver. I believe there are some other routes to try before doing that.

50 posted on 07/03/2012 9:34:48 PM PDT by aaCharley (Health, Cirrhosis , Curcumin, Liver)
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