Skip to comments.Prayer Request: Daughter of knittnmom
Posted on 06/01/2009 8:30:04 AM PDT by knittnmom
My daughter, who posts as Ellendra, has had continuing health problems. Dizziness and brain fog started in October 2008 and continues to get worse. She's seen a neurologist, who had eegs, an ekg, and an mri done, which showed nothing. A throid test came back very high, so she's now on meds for that, but there's been no improvement yet.
We suspect Lyme Disease, but tests so far have come back mostly negative. She's now seeing an integrative medicine specialist in another state, and we're waiting for results of about 20 different tests. Meanwhile, she keeps getting worse. Sometimes, her typing looks like a cat walked across the keyboard. Sometimes the dizziness causes her to fall, and she's gotten some bumps and bruises as a result.
She's seeing a different neurologist in July, one who specializes in MS, as that may also be a suspect.
We'd appreciate prayer. Thanks.
We’d appreciate your prayers. Thanks.
Prayers on the way!
Prayers up for Ellendra...I hope they’re able to get her fully healed.
Gosh,Wonder what it could be.We will pray,God bless,Fatima
prayers for ellendra.
Any speech problems? Blurring vision? Trouble swallowing? Drooping eyelid? Weakness in arms, legs? Difficulty breathing?
If any of the above, check for myasthenia gravis.
Frequently mis-diagnosed. It’s treatable but by the time doctors figure it out, the patient has usually gone through hell. My mother nearly died from it. The ER doc told me she was “getting old”. Once she got treatment, she’s pretty much back to her old self... we can hardly keep up with her.
Good luck... don’t give up. Doctors know a lot, but not everything.
(Have the docs ruled out Meniere’s Disease?)
Notre père, qui êtes aux cieux!
Que votre nom soit sanctificié. Que votre règne vienne.
Que votre volonté soit faite, sur la terre comme au ciel.
Donnez-nous aujourd'hui notre poindre ce jour.
Pardonnez-nous nos offenses, comme nous pardonnons aussi a ceux, qui nous ont offensés,
et ne nous soumetez pas à la tentation, mais délivrez-nous du mal.
Car c'est à toi qu'appartiènne, le régne, la puissance et la gloire, pour les siècles des siècles.
Je vous salue, Marie, pleine de grâces,
le Seigneur est avec vous, vous êtes bénie entre toutes les femmes,
et Jésus le fruit de vos entrailles est béni.
Sainte Marie, Mère de Dieu, priez pour nous pauvres pécheurs,
maintenant, et à l'heure de notre mort. Ainsi-soit-il.
Garde la Foi, mes amis! Nous nous sommes les sauveurs de la République! Maintenant et Toujours!
(Keep the Faith, my friends! We are the saviors of the Republic! Now and Forever!)
Father, we hold up ‘Ellendra’ to You.
We pray that You will heal her in mind and body. May this illness pass from her. + We ask this through Christ Your Son, Our Lord, Amen +
Speech problems, yes. Weakness in arms and legs, yes. She hasn’t mentioned blurred vision, trouble swallowing, and her eyelids look normal. Thanks.
A friend of mine suffered beyond belief with a degenerative issue and ultimately learned it was her parathyroid. A doc in Tampa took care of it and her symptoms have been relieved. Just a thought.
Thanks - we’ll ask her current doctor about that.
I join in earnest prayer for your daughter!
Prayers up. The brain fog with thyroid disease takes a while to go away. It also takes months to get the dosage at the right levels. I’m one year out after a total thyroidectomy and my levels are still messed up.
My friend was in such rough shape that she had to lie down in the back seat in terrible pain when being driven to doctors. Appears parathyroid issues are very common, but difficult for docs to diagnose.
Prayers for God’s blessings on all.
Prayers going up for your daughter and you, knittmom, for complete healing of these problems!
Did she have her carotid artery checked by ultrasound? I have a dear friend who was also having similar symptoms and doctors couldn’t find anything either...they checked the carotid and found it was blocked 80+%!! She is due for surgery in a few weeks to removed the blockage (can’t do the ‘roto-rooter’ type stuff for some reason or other) but she is very glad they finally found a diagnosis and that it wasn’t ‘all in her head’!
Well, in a way it was all in her head, but still!
Prayers being said for your daugher.
Prayers up! May Our Almighty Father guide her physicians that they can identify what is wrong, and help them to heal her and make her whole. I ask this in Jesus’ Holy Name, Amen.
:-) I don’t think her carotid has been checked. Would it be that badly blocked in a 28 year old?
Prayers for Ellendra.
A co-workers son had blasto in his head.They were able to remove it with surgery and now he is fine. It was like moss on his brain and they scraped it off.
Blastomicosis (excuse spelling)
Prayers for Ellendra and all your family.
May God’s love enfold you during this time of trouble.
Romans 8:22 For we know that the whole creation groaneth and travaileth in pain together until now.
But we also know that we have an unmovable Rock, and a Great Physician to lean on. May He comfort you and Ellendra, and provide great healing.
Romans 8:38-39 For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, Nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
May HE who stilled the raging waters on the Sea of Galilee by a simple few words, "Peace, be still" - provide peace and healing for you both.
Wow - never heard of that one before!
Wouldn’t hurt to have them check for MG. You don’t have to have all symptoms.
Hope they find out what it is.
Sorry, that would be double vision, not necessarily blurry vision. The double vision is an early symptom, then goes away.
Thanks - we’ll discuss it with her current physician. The new physician is testing her for at least 7 suspected conditions. Without looking at the report, I don’t recall what all of them are.
Prayers for her health.
Has she been checked for Hashimoto’s Thyroiditis? Also, thyroid medications like Synthroid/Levothyroxine take a week or more to “kick in”, so if it hasn’t been that long and her thyroid is indeed the problem, give it a little time.
Prayers for her health and that the doctors can diagnose correctly and start treating her as soon as possible.
Thanks. It’s been just about a week with the thyroid meds - it’s nice to have a time estimate. The doctor’s office said it would take “some time” for the effects to be noticed. She was started on a very low dosage, with a small increase each week.
We also had Wisconsin university bring some scientists and students to study an area just west of Eagle River and they got it also. People for years have lost dogs to this illness.
Two of my daughter's have that, and the symptoms that you are describing sound like something you would experience if you did indeed have complications from Chiar 1.
My daughters’ are considered to be asymptomatic. They are not experiencing any symptoms from it. The chiari 1 was discovered through MRI'S. They both have scoliosis, hence the orthopedists request for MRI’s.
Chiari 1 is when the skull is not large enough to contain all of the brain. My oldest daughter has borderline Chiar 1. She has what you would consider to be overcrowding in her skull. Her cerebellum is kind of pushed up against her brain stem. My middle daughter has part of her cerebellum growing down into her neck, down to C2.
So far the neuro is willing to let things be until symptoms appear. Than there is a surgery for it.
Has your daughter been to a neurosurgeon yet?
My prayers for a speedy recovery for Ellendra!
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