Skip to comments.I need some help for my nine year-old nephew diagnosed with an aggressive cancer.
Posted on 05/02/2012 10:02:21 PM PDT by proud American in Canada
My nine year-old nephew has been diagnosed with Adrenocortical carcinoma. My sister lives near Madison, Wisconsin, and is seeing a doctor there for him. He is on mitotane and probably some other drugs I'm not aware of.
Apparently the prognosis is not good, like a one-in-five chance of making it through five years. A friend of mine mentioned the Children's Hospital in Philadelphia; apparently one of the best pediatric cancer specialists works there.
My sister is doing everything, and I mean everything. Supplements, massage, Reiki therapy, in addition to everything the doctors recommend. She also has him enrolled in clinical trials.
Now, I learned today that the doctors have made three massive mistakes--mistakenly diagnosing him when he was a toddler (and had pubic hair, muscles, and was beating up his older brother). In 2005 my sister and her husband were told they had tested him for Cushing's disease (?), or some other disease, when they had not. Then the doctors took an ex-ray in 2010 and missed the tumor (the size of a cantaloupe when they took it out a month ago; it's now metatasized into his lungs, although the last round of chemo seems to have shrunk the nodules a bit.
They're going to continue chemo, etc., as long as progress is made, otherwise; they're going to let him enjoy what time he has with his friends and family.
As a trained lawyer, I am sorry, but these mistakes over the years are lawsuit material. However, that is for another day. Not now. Now, the goal is to make him one of the 20% who live.
I know there so many Freepers who are smart and educated and I'm hoping there are some doctors or researchers, people out there who understand this.
I live in another country and am extremely emotional about this; it's affecting my work and sleep, although that is not important.
When I called my dad to say goodnight tonight (he lives right next door to them), I suddenly thought: Free Republic! I must ask for their advice!
In any case, if anyone has any advice or knowledge about this, I would really appreciate hearing from you.
I'm about to commit one of the cardinal sins of FR, posting and kind of running. It's really late here and I have to go to work, but I know I won't have time tomorrow. I'll stay up for another half hour or so and then check in tomorrow.
In any case, I would appreciate your prayers.
*posting while tears are running down my face*
Theres a combination of herbs called Essiac with an extremely long history of - curing - even the worst cancers, at even the last minute (though earlier use is better). It was discovered by a nurse named Rene Caisse (Essiac is Caisse backwards) in her work with the Canadian natives in the early part of last century. They had used it for cancer for centuries.
I have seen this work a number of times to heal cancer within my own family and friends. I cant say it works every time, but it apparently works most of the time.
The main way it is debunked is by studying it with the wrong combination of herbs, or using herbs that are too old. So source is important, even though anyone can make it. I used:
Its run by a registered nurse who has dedicated her practice to making this available in the freshest form. You can either buy the herb package and cook it yourself (easy to do, just dont use aluminum and store it in dark bottles in the refrigerator). Or, you can buy the bottled tea pre-made.
It helps to avoid an acidic diet while taking it, but Essiac has worked under the worst conditions.
Best wishes and prayers to you and yours.
MD Anderson is on the cutting edge of many cancer treatments. Below is the link for the Adrenal disease treatments at MD Anderson.
proud American, you will get many prayers for your nephew and good advice too.
It is a great idea to ask here for any help you need.
I’ve done it for other, far less important things, and I’ve always gotten good help & advice.
Thank you both! :)
btw, notpoliticallycorewrecked, for some reason your screen names is reminding me of Ezra Levant’s show tonight (on Sun News, known here as ‘Fox News North’, because it`s conservative.) They interviewed some of those losers at “Occupy Toronto”—I guess now that the spring is here they plan more hijinks all over North America. :)
I noticed they were all well-fed, had iPods or cell phones; and not one that the host interviewed (David Menzies, I think is his name, replacing Ezra) either had a job or was looking for a job. LOL! They are wrecked, just making life difficult for everyone else who’s paying their tab.
Thank you both again.
His name is James, James Helmuth; named after his grandfather James Kosmond, who was an awesome trial lawyer in Chicago before he got hill.
thank you for asking.
Thank you—I will call St. Jude tomorrow. :)
Thank you all so much!
“Theres a combination of herbs called Essiac with an extremely long history of - curing - even the worst cancers, at even the last minute (though earlier use is better). It was discovered by a nurse named Rene Caisse (Essiac is Caisse backwards) in her work with the Canadian natives in the early part of last century. They had used it for cancer for centuries.”
You’re right! You’re reminding me of a friend I used to have when I first moved to Canada—she had breast cancer and used this Essiac—she was cancer free. I’d forgotten about that! Thank you, Talisker! I’ll send my sister a bottle tomorrow.
The Mayo clinic in Rochester,MN is only a three hour drive from Madison,WI. The level of care is best I have ever known. Had my son in the children’s wing of the hospital(St. Mary’s) for several days. Can’t recommend the Mayo organization enough. There is a reason that kings,queens, and world leaders go to Rochester.
Prayers offered up. Jesus told us that the little ones on earth are always under the care of their guardian angels in heaven. Please try to hold that thought in mind as we pray for your nephew to get well.
It apparently takes at least ten days of ingesting the extract to finally pass through the blood-brain barrier.
For the initial colon cancer study, I calculated it would take more than 20 200 mg capsules for the dose that knocked out the most cells.
MD Anderson is the best cancer treatment in the nation...I would second this recommendation.
Thank you, cowboy. :)
I had the pleasure of living in Texas for a while when I was younger, and traveling through the Eastern south—there are no nicer people than Southerners. *Sheepishly hopes you’re from the South; if not, I love the West, too! Lived in Colorado for ten years and loved—it broke my heart to move up here. :)
ST. JUDE’S Memphis, Tn. If anthing can be done, they are the best in the world.
So sad about your young nephew.
Sounds like his mom has an ear for some ‘alternative’ remedies.
Not a physician - read a lot.
*Cancer Treatment Centers Of America - get there!
Have sister call and chat with them. Only 5 or so around the country. Seem to deal with aggresive or impossible cancers.
*Google Dr. RALPH MOSS. He is the ‘Go To’ person for info. For years he has kept up with all cancer therapies, and has reports on their efficacy. He may still offer talking on phone with him - think he charges, but not expensive.
I used to get e-mail reports once a week from him.
*As for supplements, I would be taking ‘MycoPhyto Complex,’ capsules, by Advanced Bionutritionals. Boosts the immune system. Activates Natural Killer (NK) cells. There’s other brands, but this is the one we can speak for, after stopping advancing symptoms of colds or flu - time after time. We also are thinking of possible cancer prevention, by keeping the immune system boosted. . Believe this is our 3rd year using. Our young grandkids open the capsules, and stir into apple juice! The 5 year old will stop and say “I need my Mycho Phyto!” and get it done!
*Another supplement would be ‘Flora Floressence.’ An herbal tea. Drink cold. Whatever the label says regarding amount daily, once there is cancer, Dr. Julian Whitaker of Newport Beach, - largest read newsletter - would have us add one more dose daily. Maybe it’s adding one more ounce, and one more dose. It’s not a drug - cannot hurt!
These products are not cheap, but - - -
To order MycoPhyto: 800-791-3395.
Company is in Atlanta. Product comes fast.
I think many are ordering - believe I may have talked about it before on FR! Sure people know about it from elsewhere.
Flora Floresence may be in discount vitamin stores. Regular health food stores, or go on-line and Google ‘Vita Cost.’ It’s a discount place/catalog - used it for years.
Google ‘Flora’ for products.
That’s plenty of info to take in. Suggest telling your sister to add one thing at a time, for a week or less, so nephew - or anyone! - is not overwhelmed!
Try to quiet all your emotions and your everyday thoughts, don’t have any particular expectations, and then ask God for what you can do to help your nephew or his family. You will be surprised by the answers you get.
God bless you.
Maybe Cancer Treatment Centers of America. St Jude’s.
Glenn Beck had a man named John Kanzius on his radio show last week. I didn’t hear it but my husband told me about it. His story sounded pretty amazing and his organization is called Kanzius Cancer Research Foundation. Website http://www.kanziuscancerresearch.com. I don’t know exactly where they are at this time with the treatment but it would be worth a look.
Lots of prayers for your nephew and all his family.