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Joey 6 yo son follow up - kidneys
1/22/2012 | schwingdoc

Posted on 01/23/2012 12:35:43 AM PST by schwingdoc

Hello everyone. I am so truly humbled and sincerely lifted by eveyone's responses. What a new world of connectivety we have. Real prayers and teams of warriors whom I've never met, have come from everywhere, based only on a few common grounds, besides logging in to the same (wonderful) website. (Thank you Freeper!!) 1. We love and fear God. 2. We love and hold our children so close to our hearts. 3. We look to grow our faith based on God's constant interactions in our lives. 4. Our hope in humanity is elevated by the notable responses of sincere prayers and thoughts from strangers whom immediately become family with a single thread reply.

Joey was hospitalized from Wed to Sunday at Childrens for kidney biospsy and start therapy. (Seattle) For you docs: he has an IgA mediaited proliferative mesangial glomerulonephritis resulting in nephrotic syndrome. The good news however, according to the wonderful nephrologist, Dr Okamuro, (I love you)' "the biospy looked much better than I ever expected."

There is a spectrum of findings on histology (biopsy of kidney tissue): 1(good) to - 4(bad) 1. Mild proliferative mesangial inflammation 2. Moderate to severe proliferative measangial inflammation 3. Severe inflammation with some crescent formation (scarring) 4. Significant diffuse, widespread cresents and diffuse scarring.

Joey's biospy went well clincally. Tolerated the anaeasthesia well, no complications, The staff and nurses at COH in Seattle are God's personal angels. The next day (we had terrible a terible week of city stopping snow) the atttending Dr Okamuro came in on his own time to read the biopsy himself. As he said: "I am pleasantly surprised to see no crescent cells". Based on the amount of nephrotic syndrome (6800mg protein / 24 hours),low albumin (2.0), protein / Cr ratio of > 11 - and significant clincal edema (swelling) he expected to see a worse biospy.

As it turned out the biopsy had lots of inflammation as expected, but less chronic scarring (crescents) than expected. (essentially a stage 2 of 4, whereas his urine tests suggested worse). This bodes well for long term healing and recovery. This was a miracle in my opinion. 6 -7 weeks of nephrotic syndrome and a biopsy showing no crescents tells me divine intervention for healing.

So he healed quickly from the biopsy and they started high dose pulse therapy iv steroids and and immunosuppressant called mycophenolate mofetil (MMF). We are now home. The doc believes that this is curable based on the favorable biopsy and assuming good response and tolerance to the meds, which can run 1 -2 years.

All things equal, I am so thrilled compared where I was the day I posted the original thread. I saw no hope, and you all instilled hope, prayed and manifested hope via the "unexpected" favorable biopsy. How can I ever thank you? How do we not stay on our knees worshipping and praying to our God 24/7? In so many ways we are not worthy.

Now we wait and see how he does with meds and hopefully watch as the urine tests and kidney function improves. We have to navigate the lanmines of sideeffects from the immuinosuppressants, but now hope springs eternal.

Its has been agonizing to see my little man who was cut, and athletic and strong and focused, be reduced to a sick patient with protein wasting, muscle loss, shortness of breath, and emotional changes from the steroids. Still the door to complete healing has been opened, and I very much would like to help escort him through with the prayers from my friends and my new found family here, and the healing power of Christ our Lord.

Here is my favorite little guy, giving you all back a little thank you:



TOPICS: Health/Medicine; Religion; Society
KEYWORDS: joey; kidney; prayers; schwingdoc
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1 posted on 01/23/2012 12:35:58 AM PST by schwingdoc
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To: schwingdoc

Oh, he is so beautiful!

More prayers on the way!


2 posted on 01/23/2012 12:42:27 AM PST by Explorer89 (And now, let the wild rumpus start!!)
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To: schwingdoc; Texas Termite; .30Carbine; 68 grunt; 8mmMauser; admiralsn; Aggie Mama; al_c; ...

Oh My Word!!!! And to think I was about to turn the laptop off!!

THANK YOU LORD JESUS!! Please PLEASE continue to heal Joey...please Lord, let him come home soon. Thank you for already having Your Hand in Joey’s life. In Your Name, AMEN!

What a wonderful post, what a wonderful son you have! Thank you! We WILL continue to pray for his body, for you, for the medical team...


3 posted on 01/23/2012 12:45:09 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
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To: schwingdoc

Do NOT know why, but I was drawn back to the computer only to find ‘good’ news and the best smile I have seen in days. Best wishes and continued prayers for your little one.


4 posted on 01/23/2012 12:45:48 AM PST by Just mythoughts (Luke 17:32 Remember Lot's wife.)
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To: Just mythoughts

You too, huh? :)


5 posted on 01/23/2012 12:46:27 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
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To: schwingdoc

So very glad to see this good news. 8D

Handsome lad.

Prayers continue.


6 posted on 01/23/2012 12:47:38 AM PST by amom
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To: Brad's Gramma
You too, huh? :)

Yes, and darn it I am having trouble drying up the tears over this 'good' news, most especially after seeing that beautiful smile.

7 posted on 01/23/2012 12:48:59 AM PST by Just mythoughts (Luke 17:32 Remember Lot's wife.)
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To: Just mythoughts

Yeah... ;)

Such a precious boy he is.


8 posted on 01/23/2012 12:49:52 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
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To: schwingdoc

Prayers up, that Joey be healed and made whole!


9 posted on 01/23/2012 12:51:54 AM PST by Smokin' Joe (How often God must weep at humans' folly. Stand fast. God knows what He is doing)
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To: schwingdoc; afraidfortherepublic; mojo114; seenenuf; LucyT; Miss Didi; Think free or die; ...

Thank you, Lord, for hearing our prayers for Joey.
I will keep Joey and your family in my prayers.


10 posted on 01/23/2012 12:54:09 AM PST by Cincinna ( *** NOBAMA 2012 ***)
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To: Brad's Gramma; schwingdoc

Wonderful news, thank you for sharing both the news and that great pic. He looks so good. God bless and heal!


11 posted on 01/23/2012 12:59:42 AM PST by hocndoc (WingRight.org: Have mustard seed & I'm not afraid to use it. 2 men inherited a Bush economy.)
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To: schwingdoc; Brad's Gramma

Prayers of thanksgiving for this blessing. Thank you Schwingdoc for sharing the good news. Thank you Joey’s doctors for selfless attendance over Joey. Thank you Joey for being you. Thank you God!

Prayers for Joey’s continued improvement.


12 posted on 01/23/2012 1:01:39 AM PST by bd476
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To: hocndoc

Sure does help, doesn’t it, to have a PICTURE of who we’re praying for? ESPECIALLY when it’s a “little people” pic. :)

This reminds me of another prayer thread...long time ago.

Hope all’s well with you, hocndoc!


13 posted on 01/23/2012 1:06:32 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
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To: schwingdoc

Oh my, tears but grateful tears, my FRiend.

And indeed, how many and unexpected are the blessings in our lives.

Prayers lifting, for you all to continue to grow in strength and faith as Joey heals.

May God bless.
Tatt


14 posted on 01/23/2012 1:11:20 AM PST by thesearethetimes... ("Courage, is fear that has said its prayers." Dorothy Bernard)
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To: schwingdoc

Continuing prayers for Joey. What a cute kid.


15 posted on 01/23/2012 1:12:14 AM PST by RebelTex
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To: Cincinna

Thanks so much for your ping!


16 posted on 01/23/2012 1:17:49 AM PST by Lauren BaRecall (I declare for Santorum)
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To: schwingdoc

A really big hug for Joey, Schwingdoc and thank you for the update.

Dear Lord,

Thank You for watching over Joey and his medical needs.

We praise You Lord and give You all the glory.

In Jesus’ Holy Name.
Amen.


17 posted on 01/23/2012 1:18:04 AM PST by Cindy
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To: schwingdoc; Brad's Gramma


Prayers for your complete recovery, Joey.
Prayers for your family and your doctors. (Click)


18 posted on 01/23/2012 1:29:16 AM PST by Kathy in Alaska
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To: schwingdoc
Oh what a beautiful boy he is! I'm so glad to see his sweet picture with the “thank you” note. That's really cute. :-)

I'm new to the thread, so I appreciate getting caught up to the story to date. Thank God that everything is better than previously thought, and Joey is on the mend.

You're right, God's always with each and everyone of us, and we'd be stunned to realize just how intensely He listens to our every word, sigh, and heartbeat.

I'll be sure to keep your little guy in my prayers, and please continue to keep us updated. :-)

God bless you and Joey.

19 posted on 01/23/2012 1:33:08 AM PST by Lauren BaRecall (I declare for Santorum)
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To: schwingdoc

God bless you Schwingdoc. I will keep this beautiful young son of yours in my prayers, that he will continue to make amazing progress!


20 posted on 01/23/2012 2:04:26 AM PST by kelly4c
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To: schwingdoc

Hey Joey..know this..your father protects you. Give him a big smile and a great big hug.


21 posted on 01/23/2012 2:45:32 AM PST by bushpilot1
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To: Brad's Gramma

BTTT


22 posted on 01/23/2012 2:52:26 AM PST by E.G.C. (Edward's Soft Rock Playlist: On Youtube: http://www.youtube.com/my_playlists?p=A7A56731DE671E6A)
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To: schwingdoc; Tax-chick; Yehuda

Fantastic news! Prayers for his continued improvement, easy time with his medications, and a complete healing from heaven.

He is a very handsome boy with a beautiful countenance. How many grandmas does Joey have? What I mean is, he is so precious he looks like every granny in town would want to claim him and then proceed to smother him with love and kisses wherever he goes, lol. :)


23 posted on 01/23/2012 3:03:04 AM PST by Ezekiel (The Obama-nation began with the Inauguration of Desolation.)
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To: schwingdoc

So glad to hear it for all of you. Get better Joey.


24 posted on 01/23/2012 3:20:22 AM PST by doodad
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To: schwingdoc

Hi Joey,
I am sure you will be reading this thread at some point.
So glad to see ya smiling. You have been in my thoughts and prayers since your folks filled us in.
Keep smiling, my young FReeper FRiend.


25 posted on 01/23/2012 3:20:26 AM PST by mware (By all that you hold dear on this good earth, I bid you stand, Men of the West)
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To: schwingdoc

Thank you God. What a handsome young man.


26 posted on 01/23/2012 3:27:40 AM PST by Duchess47 ("One day I will leave this world and dream myself to Reality" Crazy Horse)
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To: schwingdoc

He has a plan!


27 posted on 01/23/2012 3:28:54 AM PST by grame (May you know more of the love of God Almighty this day!)
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To: Ezekiel; schwingdoc

What a lovely boy! Thanks for the ping, Ezekiel ... I’m so pleased to know of young Joel’s progress.


28 posted on 01/23/2012 3:30:50 AM PST by Tax-chick (Be the one who gets it done (instead of a useless drone)!)
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To: schwingdoc

I’m a new addition to Joey’s list. Prayers up!


29 posted on 01/23/2012 3:31:46 AM PST by kitkat (Obama, rope and chains)
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To: schwingdoc

CUTIE !


30 posted on 01/23/2012 3:45:45 AM PST by Reagan69 (I supported Sarah Palin and all I got was a lousy DVD !)
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To: schwingdoc

GLORY AND PRAISE BE TO GOD IN CHRIST JESUS!!!

What a wonderful blessing, THANK YOU for your update. Joey’s been in our prayers since you posted, and what a joyous relief to see his beautiful, sweet smile!


31 posted on 01/23/2012 3:56:18 AM PST by oprahstheantichrist (The MSM is a demonic stronghold, PLEASE pray accordingly - 2 Corinthians 10:3-5)
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To: schwingdoc

Thank you, great, gracious, wonderful, LORD!

Glad to hear all is well.


32 posted on 01/23/2012 4:14:09 AM PST by parthian shot
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To: schwingdoc

How wonderful to see him smiling. Thanks for the update. Please continue to keep us posted on the progress.


33 posted on 01/23/2012 4:19:49 AM PST by aruanan
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To: schwingdoc

Prayers up, Joey! Great news!


34 posted on 01/23/2012 4:24:59 AM PST by outofsalt ("If History teaches us anything it's that history rarely teaches us anything")
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To: schwingdoc

schwingdoc,
Thank you for the update. I was anxious to hear how Joey was doing. I know it has to be tough for the little guy to even be in the hospital and have all thoses tests run. He looks great. Keep the faith. Keep posting.


35 posted on 01/23/2012 4:28:41 AM PST by FryingPan101
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To: schwingdoc

Thanks for sharing a picture. What a beautiful child.

Praying that God keeps things moving in the right direction. :)


36 posted on 01/23/2012 4:35:47 AM PST by freemama
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To: schwingdoc

Such trying times, Prayers for your Joey.


37 posted on 01/23/2012 4:37:40 AM PST by TalBlack ( Evil doesn't have a day job.)
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To: schwingdoc

Please tell Joey we continue to pray for him and his family.


38 posted on 01/23/2012 4:44:59 AM PST by lysie
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To: schwingdoc
+ To God be the Glory ... Great things He has done, and continues to do.

Exodus 15:26 ~ For I am the Lord that healeth thee ...

Rejoicing with you!!!

39 posted on 01/23/2012 4:52:32 AM PST by Pegita ('Tis so sweet to trust in Jesus, just to take Him at His word ...)
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To: schwingdoc

God Bless you all. What a beautiful little boy! Continued prayers for you all!


40 posted on 01/23/2012 4:56:34 AM PST by liberalh8ter (I don't like what the world has become....)
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To: schwingdoc

What a beautiful child! Bless you!


41 posted on 01/23/2012 4:57:38 AM PST by miss marmelstein
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To: schwingdoc
Joey has been in my prayers, along with the prayers of your many prayer warriors at FR. What a beautiful child! Oh my—
you are blessed with such a sweet angel.
Today is a day of prayer and fasting to reflect on the damage that has been done to our country, the world, families, mothers, because of the decision by the supreme court 38 years ago—Roe v Wade. We must honor life. Looking at Joey, there is a precious life, a true gift from God. As I pray to end abortion today, I pray for the continued healing of sweet Joey.
God bless you.
42 posted on 01/23/2012 5:25:56 AM PST by fatfertile
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To: schwingdoc

Tears of gratitude. Joey, your smile is a blessings to all of us who are praying for your healing.

More prayers coming your way from your FR family.


43 posted on 01/23/2012 5:27:27 AM PST by etabeta
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To: schwingdoc

Thank you for wonderful news to start my day and week. Prayers for continuing healing for Joey from our Lord and Savior Jesus Christ.


44 posted on 01/23/2012 5:35:36 AM PST by 2nd amendment mama ( www.2asisters.org | Self defense is a basic human right!)
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To: schwingdoc

....a biopsy showing no crescents tells me divine intervention for healing.

&&&
Praise to you, Lord Jesus Christ!

That photo of your beautiful little boy brought me to tears.

Prayers up for continued good news.


45 posted on 01/23/2012 5:35:59 AM PST by Bigg Red (Pray for our republic.)
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To: schwingdoc

what a cutie!
Tell him “he’s welcome” and anytime!


46 posted on 01/23/2012 5:37:05 AM PST by ronniesgal ( I miss George Bush. Hell, I miss Bill Clinton!!)
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To: schwingdoc

That picture of him just brought tears to my eyes. Praise Our Lord! Joey is one handsome little man and his smile is just precious. Your family has got to just feel fantastic to have him home. God Bless, Schwingdoc. Please give Joey a hug, a squeeze and a smooch from us!


47 posted on 01/23/2012 5:42:22 AM PST by momtothree
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To: Explorer89

God Bless him so cute!


48 posted on 01/23/2012 6:01:35 AM PST by angcat (NEW YORK YANKEES!)
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To: schwingdoc

Precious!


49 posted on 01/23/2012 6:26:50 AM PST by lonestar (It takes a village of idiots to elect a village idiot.)
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To: schwingdoc

Great news! I will keep you and Joey in my prayers! God Bless!


50 posted on 01/23/2012 7:09:37 AM PST by Amberdawn
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