Free Republic
Browse · Search
General/Chat
Topics · Post Article

Skip to comments.

Joey 6 yo son follow up - kidneys
1/22/2012 | schwingdoc

Posted on 01/23/2012 12:35:43 AM PST by schwingdoc

Hello everyone. I am so truly humbled and sincerely lifted by eveyone's responses. What a new world of connectivety we have. Real prayers and teams of warriors whom I've never met, have come from everywhere, based only on a few common grounds, besides logging in to the same (wonderful) website. (Thank you Freeper!!) 1. We love and fear God. 2. We love and hold our children so close to our hearts. 3. We look to grow our faith based on God's constant interactions in our lives. 4. Our hope in humanity is elevated by the notable responses of sincere prayers and thoughts from strangers whom immediately become family with a single thread reply.

Joey was hospitalized from Wed to Sunday at Childrens for kidney biospsy and start therapy. (Seattle) For you docs: he has an IgA mediaited proliferative mesangial glomerulonephritis resulting in nephrotic syndrome. The good news however, according to the wonderful nephrologist, Dr Okamuro, (I love you)' "the biospy looked much better than I ever expected."

There is a spectrum of findings on histology (biopsy of kidney tissue): 1(good) to - 4(bad) 1. Mild proliferative mesangial inflammation 2. Moderate to severe proliferative measangial inflammation 3. Severe inflammation with some crescent formation (scarring) 4. Significant diffuse, widespread cresents and diffuse scarring.

Joey's biospy went well clincally. Tolerated the anaeasthesia well, no complications, The staff and nurses at COH in Seattle are God's personal angels. The next day (we had terrible a terible week of city stopping snow) the atttending Dr Okamuro came in on his own time to read the biopsy himself. As he said: "I am pleasantly surprised to see no crescent cells". Based on the amount of nephrotic syndrome (6800mg protein / 24 hours),low albumin (2.0), protein / Cr ratio of > 11 - and significant clincal edema (swelling) he expected to see a worse biospy.

As it turned out the biopsy had lots of inflammation as expected, but less chronic scarring (crescents) than expected. (essentially a stage 2 of 4, whereas his urine tests suggested worse). This bodes well for long term healing and recovery. This was a miracle in my opinion. 6 -7 weeks of nephrotic syndrome and a biopsy showing no crescents tells me divine intervention for healing.

So he healed quickly from the biopsy and they started high dose pulse therapy iv steroids and and immunosuppressant called mycophenolate mofetil (MMF). We are now home. The doc believes that this is curable based on the favorable biopsy and assuming good response and tolerance to the meds, which can run 1 -2 years.

All things equal, I am so thrilled compared where I was the day I posted the original thread. I saw no hope, and you all instilled hope, prayed and manifested hope via the "unexpected" favorable biopsy. How can I ever thank you? How do we not stay on our knees worshipping and praying to our God 24/7? In so many ways we are not worthy.

Now we wait and see how he does with meds and hopefully watch as the urine tests and kidney function improves. We have to navigate the lanmines of sideeffects from the immuinosuppressants, but now hope springs eternal.

Its has been agonizing to see my little man who was cut, and athletic and strong and focused, be reduced to a sick patient with protein wasting, muscle loss, shortness of breath, and emotional changes from the steroids. Still the door to complete healing has been opened, and I very much would like to help escort him through with the prayers from my friends and my new found family here, and the healing power of Christ our Lord.

Here is my favorite little guy, giving you all back a little thank you:



TOPICS: Health/Medicine; Religion; Society
KEYWORDS: joey; kidney; prayers; schwingdoc
Navigation: use the links below to view more comments.
first 1-2021-4041-6061-70 next last

1 posted on 01/23/2012 12:35:58 AM PST by schwingdoc
[ Post Reply | Private Reply | View Replies]

To: schwingdoc

Oh, he is so beautiful!

More prayers on the way!


2 posted on 01/23/2012 12:42:27 AM PST by Explorer89 (And now, let the wild rumpus start!!)
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc; Texas Termite; .30Carbine; 68 grunt; 8mmMauser; admiralsn; Aggie Mama; al_c; ...

Oh My Word!!!! And to think I was about to turn the laptop off!!

THANK YOU LORD JESUS!! Please PLEASE continue to heal Joey...please Lord, let him come home soon. Thank you for already having Your Hand in Joey’s life. In Your Name, AMEN!

What a wonderful post, what a wonderful son you have! Thank you! We WILL continue to pray for his body, for you, for the medical team...


3 posted on 01/23/2012 12:45:09 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc

Do NOT know why, but I was drawn back to the computer only to find ‘good’ news and the best smile I have seen in days. Best wishes and continued prayers for your little one.


4 posted on 01/23/2012 12:45:48 AM PST by Just mythoughts (Luke 17:32 Remember Lot's wife.)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Just mythoughts

You too, huh? :)


5 posted on 01/23/2012 12:46:27 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
[ Post Reply | Private Reply | To 4 | View Replies]

To: schwingdoc

So very glad to see this good news. 8D

Handsome lad.

Prayers continue.


6 posted on 01/23/2012 12:47:38 AM PST by amom
[ Post Reply | Private Reply | To 1 | View Replies]

To: Brad's Gramma
You too, huh? :)

Yes, and darn it I am having trouble drying up the tears over this 'good' news, most especially after seeing that beautiful smile.

7 posted on 01/23/2012 12:48:59 AM PST by Just mythoughts (Luke 17:32 Remember Lot's wife.)
[ Post Reply | Private Reply | To 5 | View Replies]

To: Just mythoughts

Yeah... ;)

Such a precious boy he is.


8 posted on 01/23/2012 12:49:52 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
[ Post Reply | Private Reply | To 7 | View Replies]

To: schwingdoc

Prayers up, that Joey be healed and made whole!


9 posted on 01/23/2012 12:51:54 AM PST by Smokin' Joe (How often God must weep at humans' folly. Stand fast. God knows what He is doing)
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc; afraidfortherepublic; mojo114; seenenuf; LucyT; Miss Didi; Think free or die; ...

Thank you, Lord, for hearing our prayers for Joey.
I will keep Joey and your family in my prayers.


10 posted on 01/23/2012 12:54:09 AM PST by Cincinna ( *** NOBAMA 2012 ***)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Brad's Gramma; schwingdoc

Wonderful news, thank you for sharing both the news and that great pic. He looks so good. God bless and heal!


11 posted on 01/23/2012 12:59:42 AM PST by hocndoc (WingRight.org: Have mustard seed & I'm not afraid to use it. 2 men inherited a Bush economy.)
[ Post Reply | Private Reply | To 3 | View Replies]

To: schwingdoc; Brad's Gramma

Prayers of thanksgiving for this blessing. Thank you Schwingdoc for sharing the good news. Thank you Joey’s doctors for selfless attendance over Joey. Thank you Joey for being you. Thank you God!

Prayers for Joey’s continued improvement.


12 posted on 01/23/2012 1:01:39 AM PST by bd476
[ Post Reply | Private Reply | To 3 | View Replies]

To: hocndoc

Sure does help, doesn’t it, to have a PICTURE of who we’re praying for? ESPECIALLY when it’s a “little people” pic. :)

This reminds me of another prayer thread...long time ago.

Hope all’s well with you, hocndoc!


13 posted on 01/23/2012 1:06:32 AM PST by Bradís Gramma (I'm endorsing O'bama AND Romney as all my guys & gals don't make it very far. Go Barry! Go Mitt!)
[ Post Reply | Private Reply | To 11 | View Replies]

To: schwingdoc

Oh my, tears but grateful tears, my FRiend.

And indeed, how many and unexpected are the blessings in our lives.

Prayers lifting, for you all to continue to grow in strength and faith as Joey heals.

May God bless.
Tatt


14 posted on 01/23/2012 1:11:20 AM PST by thesearethetimes... ("Courage, is fear that has said its prayers." Dorothy Bernard)
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc

Continuing prayers for Joey. What a cute kid.


15 posted on 01/23/2012 1:12:14 AM PST by RebelTex
[ Post Reply | Private Reply | To 1 | View Replies]

To: Cincinna

Thanks so much for your ping!


16 posted on 01/23/2012 1:17:49 AM PST by Lauren BaRecall (I declare for Santorum)
[ Post Reply | Private Reply | To 10 | View Replies]

To: schwingdoc

A really big hug for Joey, Schwingdoc and thank you for the update.

Dear Lord,

Thank You for watching over Joey and his medical needs.

We praise You Lord and give You all the glory.

In Jesus’ Holy Name.
Amen.


17 posted on 01/23/2012 1:18:04 AM PST by Cindy
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc; Brad's Gramma


Prayers for your complete recovery, Joey.
Prayers for your family and your doctors. (Click)


18 posted on 01/23/2012 1:29:16 AM PST by Kathy in Alaska
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc
Oh what a beautiful boy he is! I'm so glad to see his sweet picture with the “thank you” note. That's really cute. :-)

I'm new to the thread, so I appreciate getting caught up to the story to date. Thank God that everything is better than previously thought, and Joey is on the mend.

You're right, God's always with each and everyone of us, and we'd be stunned to realize just how intensely He listens to our every word, sigh, and heartbeat.

I'll be sure to keep your little guy in my prayers, and please continue to keep us updated. :-)

God bless you and Joey.

19 posted on 01/23/2012 1:33:08 AM PST by Lauren BaRecall (I declare for Santorum)
[ Post Reply | Private Reply | To 1 | View Replies]

To: schwingdoc

God bless you Schwingdoc. I will keep this beautiful young son of yours in my prayers, that he will continue to make amazing progress!


20 posted on 01/23/2012 2:04:26 AM PST by kelly4c
[ Post Reply | Private Reply | To 1 | View Replies]


Navigation: use the links below to view more comments.
first 1-2021-4041-6061-70 next last

Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.

Free Republic
Browse · Search
General/Chat
Topics · Post Article

FreeRepublic, LLC, PO BOX 9771, FRESNO, CA 93794
FreeRepublic.com is powered by software copyright 2000-2008 John Robinson