Skip to comments.Joey 6 yo son follow up - kidneys
Posted on 01/23/2012 12:35:43 AM PST by schwingdoc
Hello everyone. I am so truly humbled and sincerely lifted by eveyone's responses. What a new world of connectivety we have. Real prayers and teams of warriors whom I've never met, have come from everywhere, based only on a few common grounds, besides logging in to the same (wonderful) website. (Thank you Freeper!!) 1. We love and fear God. 2. We love and hold our children so close to our hearts. 3. We look to grow our faith based on God's constant interactions in our lives. 4. Our hope in humanity is elevated by the notable responses of sincere prayers and thoughts from strangers whom immediately become family with a single thread reply.
Joey was hospitalized from Wed to Sunday at Childrens for kidney biospsy and start therapy. (Seattle) For you docs: he has an IgA mediaited proliferative mesangial glomerulonephritis resulting in nephrotic syndrome. The good news however, according to the wonderful nephrologist, Dr Okamuro, (I love you)' "the biospy looked much better than I ever expected."
There is a spectrum of findings on histology (biopsy of kidney tissue): 1(good) to - 4(bad) 1. Mild proliferative mesangial inflammation 2. Moderate to severe proliferative measangial inflammation 3. Severe inflammation with some crescent formation (scarring) 4. Significant diffuse, widespread cresents and diffuse scarring.
Joey's biospy went well clincally. Tolerated the anaeasthesia well, no complications, The staff and nurses at COH in Seattle are God's personal angels. The next day (we had terrible a terible week of city stopping snow) the atttending Dr Okamuro came in on his own time to read the biopsy himself. As he said: "I am pleasantly surprised to see no crescent cells". Based on the amount of nephrotic syndrome (6800mg protein / 24 hours),low albumin (2.0), protein / Cr ratio of > 11 - and significant clincal edema (swelling) he expected to see a worse biospy.
As it turned out the biopsy had lots of inflammation as expected, but less chronic scarring (crescents) than expected. (essentially a stage 2 of 4, whereas his urine tests suggested worse). This bodes well for long term healing and recovery. This was a miracle in my opinion. 6 -7 weeks of nephrotic syndrome and a biopsy showing no crescents tells me divine intervention for healing.
So he healed quickly from the biopsy and they started high dose pulse therapy iv steroids and and immunosuppressant called mycophenolate mofetil (MMF). We are now home. The doc believes that this is curable based on the favorable biopsy and assuming good response and tolerance to the meds, which can run 1 -2 years.
All things equal, I am so thrilled compared where I was the day I posted the original thread. I saw no hope, and you all instilled hope, prayed and manifested hope via the "unexpected" favorable biopsy. How can I ever thank you? How do we not stay on our knees worshipping and praying to our God 24/7? In so many ways we are not worthy.
Now we wait and see how he does with meds and hopefully watch as the urine tests and kidney function improves. We have to navigate the lanmines of sideeffects from the immuinosuppressants, but now hope springs eternal.
Its has been agonizing to see my little man who was cut, and athletic and strong and focused, be reduced to a sick patient with protein wasting, muscle loss, shortness of breath, and emotional changes from the steroids. Still the door to complete healing has been opened, and I very much would like to help escort him through with the prayers from my friends and my new found family here, and the healing power of Christ our Lord.
Here is my favorite little guy, giving you all back a little thank you:
Oh, he is so beautiful!
More prayers on the way!
Oh My Word!!!! And to think I was about to turn the laptop off!!
THANK YOU LORD JESUS!! Please PLEASE continue to heal Joey...please Lord, let him come home soon. Thank you for already having Your Hand in Joey’s life. In Your Name, AMEN!
What a wonderful post, what a wonderful son you have! Thank you! We WILL continue to pray for his body, for you, for the medical team...
Do NOT know why, but I was drawn back to the computer only to find ‘good’ news and the best smile I have seen in days. Best wishes and continued prayers for your little one.
You too, huh? :)
So very glad to see this good news. 8D
Yes, and darn it I am having trouble drying up the tears over this 'good' news, most especially after seeing that beautiful smile.
Such a precious boy he is.
Prayers up, that Joey be healed and made whole!
Thank you, Lord, for hearing our prayers for Joey.
I will keep Joey and your family in my prayers.
Wonderful news, thank you for sharing both the news and that great pic. He looks so good. God bless and heal!
Prayers of thanksgiving for this blessing. Thank you Schwingdoc for sharing the good news. Thank you Joey’s doctors for selfless attendance over Joey. Thank you Joey for being you. Thank you God!
Prayers for Joey’s continued improvement.
Sure does help, doesn’t it, to have a PICTURE of who we’re praying for? ESPECIALLY when it’s a “little people” pic. :)
This reminds me of another prayer thread...long time ago.
Hope all’s well with you, hocndoc!
Oh my, tears but grateful tears, my FRiend.
And indeed, how many and unexpected are the blessings in our lives.
Prayers lifting, for you all to continue to grow in strength and faith as Joey heals.
May God bless.
Continuing prayers for Joey. What a cute kid.
Thanks so much for your ping!
A really big hug for Joey, Schwingdoc and thank you for the update.
Thank You for watching over Joey and his medical needs.
We praise You Lord and give You all the glory.
In Jesus’ Holy Name.
I'm new to the thread, so I appreciate getting caught up to the story to date. Thank God that everything is better than previously thought, and Joey is on the mend.
You're right, God's always with each and everyone of us, and we'd be stunned to realize just how intensely He listens to our every word, sigh, and heartbeat.
I'll be sure to keep your little guy in my prayers, and please continue to keep us updated. :-)
God bless you and Joey.
God bless you Schwingdoc. I will keep this beautiful young son of yours in my prayers, that he will continue to make amazing progress!
Hey Joey..know this..your father protects you. Give him a big smile and a great big hug.
Fantastic news! Prayers for his continued improvement, easy time with his medications, and a complete healing from heaven.
He is a very handsome boy with a beautiful countenance. How many grandmas does Joey have? What I mean is, he is so precious he looks like every granny in town would want to claim him and then proceed to smother him with love and kisses wherever he goes, lol. :)
So glad to hear it for all of you. Get better Joey.
I am sure you will be reading this thread at some point.
So glad to see ya smiling. You have been in my thoughts and prayers since your folks filled us in.
Keep smiling, my young FReeper FRiend.
Thank you God. What a handsome young man.
He has a plan!
What a lovely boy! Thanks for the ping, Ezekiel ... I’m so pleased to know of young Joel’s progress.
I’m a new addition to Joey’s list. Prayers up!
GLORY AND PRAISE BE TO GOD IN CHRIST JESUS!!!
What a wonderful blessing, THANK YOU for your update. Joey’s been in our prayers since you posted, and what a joyous relief to see his beautiful, sweet smile!
Thank you, great, gracious, wonderful, LORD!
Glad to hear all is well.
How wonderful to see him smiling. Thanks for the update. Please continue to keep us posted on the progress.
Prayers up, Joey! Great news!
Thank you for the update. I was anxious to hear how Joey was doing. I know it has to be tough for the little guy to even be in the hospital and have all thoses tests run. He looks great. Keep the faith. Keep posting.
Thanks for sharing a picture. What a beautiful child.
Praying that God keeps things moving in the right direction. :)
Such trying times, Prayers for your Joey.
Please tell Joey we continue to pray for him and his family.
Exodus 15:26 ~ For I am the Lord that healeth thee ...
Rejoicing with you!!!
God Bless you all. What a beautiful little boy! Continued prayers for you all!
What a beautiful child! Bless you!
Tears of gratitude. Joey, your smile is a blessings to all of us who are praying for your healing.
More prayers coming your way from your FR family.
Thank you for wonderful news to start my day and week. Prayers for continuing healing for Joey from our Lord and Savior Jesus Christ.
....a biopsy showing no crescents tells me divine intervention for healing.
Praise to you, Lord Jesus Christ!
That photo of your beautiful little boy brought me to tears.
Prayers up for continued good news.
what a cutie!
Tell him “he’s welcome” and anytime!
That picture of him just brought tears to my eyes. Praise Our Lord! Joey is one handsome little man and his smile is just precious. Your family has got to just feel fantastic to have him home. God Bless, Schwingdoc. Please give Joey a hug, a squeeze and a smooch from us!
God Bless him so cute!
Great news! I will keep you and Joey in my prayers! God Bless!