Skip to comments.Joey 6 yo son follow up - kidneys
Posted on 01/23/2012 12:35:43 AM PST by schwingdoc
Hello everyone. I am so truly humbled and sincerely lifted by eveyone's responses. What a new world of connectivety we have. Real prayers and teams of warriors whom I've never met, have come from everywhere, based only on a few common grounds, besides logging in to the same (wonderful) website. (Thank you Freeper!!) 1. We love and fear God. 2. We love and hold our children so close to our hearts. 3. We look to grow our faith based on God's constant interactions in our lives. 4. Our hope in humanity is elevated by the notable responses of sincere prayers and thoughts from strangers whom immediately become family with a single thread reply.
Joey was hospitalized from Wed to Sunday at Childrens for kidney biospsy and start therapy. (Seattle) For you docs: he has an IgA mediaited proliferative mesangial glomerulonephritis resulting in nephrotic syndrome. The good news however, according to the wonderful nephrologist, Dr Okamuro, (I love you)' "the biospy looked much better than I ever expected."
There is a spectrum of findings on histology (biopsy of kidney tissue): 1(good) to - 4(bad) 1. Mild proliferative mesangial inflammation 2. Moderate to severe proliferative measangial inflammation 3. Severe inflammation with some crescent formation (scarring) 4. Significant diffuse, widespread cresents and diffuse scarring.
Joey's biospy went well clincally. Tolerated the anaeasthesia well, no complications, The staff and nurses at COH in Seattle are God's personal angels. The next day (we had terrible a terible week of city stopping snow) the atttending Dr Okamuro came in on his own time to read the biopsy himself. As he said: "I am pleasantly surprised to see no crescent cells". Based on the amount of nephrotic syndrome (6800mg protein / 24 hours),low albumin (2.0), protein / Cr ratio of > 11 - and significant clincal edema (swelling) he expected to see a worse biospy.
As it turned out the biopsy had lots of inflammation as expected, but less chronic scarring (crescents) than expected. (essentially a stage 2 of 4, whereas his urine tests suggested worse). This bodes well for long term healing and recovery. This was a miracle in my opinion. 6 -7 weeks of nephrotic syndrome and a biopsy showing no crescents tells me divine intervention for healing.
So he healed quickly from the biopsy and they started high dose pulse therapy iv steroids and and immunosuppressant called mycophenolate mofetil (MMF). We are now home. The doc believes that this is curable based on the favorable biopsy and assuming good response and tolerance to the meds, which can run 1 -2 years.
All things equal, I am so thrilled compared where I was the day I posted the original thread. I saw no hope, and you all instilled hope, prayed and manifested hope via the "unexpected" favorable biopsy. How can I ever thank you? How do we not stay on our knees worshipping and praying to our God 24/7? In so many ways we are not worthy.
Now we wait and see how he does with meds and hopefully watch as the urine tests and kidney function improves. We have to navigate the lanmines of sideeffects from the immuinosuppressants, but now hope springs eternal.
Its has been agonizing to see my little man who was cut, and athletic and strong and focused, be reduced to a sick patient with protein wasting, muscle loss, shortness of breath, and emotional changes from the steroids. Still the door to complete healing has been opened, and I very much would like to help escort him through with the prayers from my friends and my new found family here, and the healing power of Christ our Lord.
Here is my favorite little guy, giving you all back a little thank you:
What a beautiful child! Bless you!
Tears of gratitude. Joey, your smile is a blessings to all of us who are praying for your healing.
More prayers coming your way from your FR family.
Thank you for wonderful news to start my day and week. Prayers for continuing healing for Joey from our Lord and Savior Jesus Christ.
....a biopsy showing no crescents tells me divine intervention for healing.
Praise to you, Lord Jesus Christ!
That photo of your beautiful little boy brought me to tears.
Prayers up for continued good news.
what a cutie!
Tell him “he’s welcome” and anytime!
That picture of him just brought tears to my eyes. Praise Our Lord! Joey is one handsome little man and his smile is just precious. Your family has got to just feel fantastic to have him home. God Bless, Schwingdoc. Please give Joey a hug, a squeeze and a smooch from us!
God Bless him so cute!
Great news! I will keep you and Joey in my prayers! God Bless!
He’s definitely a handsome lad!! Rest assured, I’ll continue to pray for Joey and your family. God Bless you all!!
Curable. What a beautiful word.
This is he best news and cutest pic ever on FR. Made my monitor go blurry. So happy for you and Joey. We’ll continue to pray till the entire program if care is completed for Joey. God love ya, mom. You’ve really been thru a trying experience and kept the faith.
He is adorable!!! I will continue to pray for healing!
Prayers for you, Joey, and your family. May he heal completely and enjoy a long and healthy life.
Cincinna, thank you for the ping.
Thank the Lord!
God Bless him and his entire family.
Wow! THANK YOU LORD! What a beautiful young man. We serve an awesome God. We will continue to pray and watch as God’s child improves and heals. To God be the glory!.
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