Skip to comments.Is there a wrong answer to terminating a baby with Down syndrome?
Posted on 02/11/2013 8:54:30 PM PST by Morgana
An anonymous blogger shared her story last week about receiving a prenatal diagnosis of Down syndrome and choosing to then have an abortion because of the diagnosis. Its not surprising it happens nine out of ten times, after all but it didnt make her claims any less disturbing.
I was so late in pregnancy, there seemed not to be time to meet with a genetic counselor so I did my own research on Down syndrome. I concluded it was a grey diagnosis where best case was hard and worst case terrible. I could envision handling the early years, but not the long term. We have family friends with children who have cognitive disabilities, and those families and children have struggled. I have seen the parents leave it all on the field to try to position their kids for some form of independence and still fail. Once the kids aged out of school, there were no jobs, no meaningful roles, no chance of family and homes of their own for these young men. The parents have suffered. The kids have suffered too. I didnt want that future for my son or for my family. We decided to terminate.
In all, my experience was not only painful; it was educational. Regarding prenatal testing, i certainly learned the what, the why, and the so what. I wish I had had that knowledge before. I met many women who had terminated wanted pregnancies for medical reasons due to all kinds of conditions, of which Down syndrome is the tip of the iceberg. Bigger picture, I learned that in life, things go wrong, and when it comes to kids, the stakes are through the roof. In fact, strangely, I think I became a better parent. It was revealed to my husband and me that our children are everything to us, and ensuring their welfare our primary purpose in life. We treasure every moment with them. We moved into a better school district. I never forget that what I do is all for them. And I never forget my son who had T21. I loved him just as much as the kids I have living here with me today.
When it comes to continuing or terminating a pregnancy with Down syndrome, I believe there is no right answer. This means there is also no wrong answer. I would never advocate for a family to choose one road or another. It is a personal choice with many complex factors and, ultimately, both choices should be supported more than they are today. Families raising children with DS deserve greater social and practical supports, particularly aimed at adults with DS and their roles in life as adults as well as their medical long-term care. On the flip side, termination of pregnancies should be de-politicized and de-stigmatized. Parents on both sides of the fence have more in common than they may think, since in every case we are talking about people loving their children and thinking only of their quality of life in the face of a very difficult diagnosis.
As the mother of a child diagnosed prenatally with Down syndrome, I found myself feeling physically ill on so many different levels from reading this article.
First, its profoundly disappointing that this woman would choose to end the life of her child based on her own perceptions of a few disabled people she knows. She states that the people she knows with cognitive disabilities have no chance at independence, no job, and most insultingly no meaningful roles.
I wonder if this blogger actually spoke to any of these people before making such a snap judgment. Who is she to decide how meaningful someones life is, or whether that person is suffering or not? If she had done even a little bit of research, she could have learned how far people with Down syndrome can go in life now. Contrary to what she seems to believe, people with Down syndrome marry, have families, work, and lead meaningful lives. One young man with Down syndrome even got a college degree and now owns his own restaurant. Unfortunately, this womans son was killed based on her own prejudices and stereotypes, formed on outdated, negative, incorrect information. She claims to have been concerned for his quality of life, but she killed him, so now he has no life to live whatsoever.
Why do so many people seem to believe that they can decide whether or not a person with a disability would want to live or not, or whether or not he or she would enjoy life? Thats not something that we get to decide. This blogger acts as if she somehow saved her son from an abysmal life, something that would be worse even than death. But if she had only taken the time to, I dont know, talk to some people with Down syndrome, she might have realized how unbelievably wrong she was.
Consider, for example, the fact that a whopping 99% of people with Down syndrome report being happy with their lives and who they are. Families of people with Down syndrome are overwhelmingly happier and report a more positive outlook on life. Yet this woman condemned her son to death. Shell never know the joy and love that little boy would have brought to her life. Given the chance of living with Down syndrome or not living at all, what choice do you think he would have made? This woman acts as if she made some sort of noble choice, though, saving him from a miserable life. Whether she actually believes it or just tells herself that so she can sleep better at night is anyones guess.
I also have a very hard time believing this blogger when she claims to love her son with Down syndrome just as much as she loves her other children. If that were truly the case, then she wouldnt have killed him. If shes telling the truth, then what would she do if, God forbid, one of her living children were in a car accident and ended up disabled? Kill him because she thinks his quality of life isnt good enough? Its the same logic she used for the son she killed, after all. The only difference is that her remaining children have already been born. It would be unacceptable for her to kill her children because they are disabled once they are born, so why is it acceptable to do the exact same thing before they are born? What gives her the right to decide whether her sons life was worth living or not?
Most disturbing of all, though, is her closing: an abhorrent display of moral relativism where she excuses her decision to kill her son, claiming that there is no right or wrong answer to the question of whether or not to abort a baby after a prenatal diagnosis of Down syndrome. Its never the right choice if it means denying someone of the chance to live. Its even more despicable to do so based on a diagnosis of a disability. An extra chromosome does not mean that its acceptable to rob a person of his life. This womans argument is basically that people with Down syndrome are less valuable than normal people; otherwise, it wouldnt be acceptable to kill them based just on the fact that they have a disability. Its a sickening, disgusting mindset to have, and one thats very, very wrong.
The Teachings of Jon
It truly is a horrific ailment. I pray they find a treatment soon to improve the lives of those who are born.
They might be wrong about the diagnosis. It might also be God’s will and you should not be circumventing that.
Here’s a wrong answer!
The Doc’s get it WRONG, a LOT!
I worked with a couple who received such a diagnosis and the husband wanted to terminate and the wife refused.
The baby girl was born PERFECT!
How would you like to be THAT dad?!?!?
Toss a coin - murder a baby.
Is is wrong to kill an innocent human being, including an unborn one? Yes.
Is it wrong to kill an unborn Down's Syndrome child?
I think the answer is crystal clear.
We were faced with this situation. My wife got an amniocentesis. The genetic testing was fast and covered by our insurance. It was 100% accurate. If you are pre screened, that’s good. Get screened before you do something stupid.
The wrong answer is “Murder it! Murder it!”
did their marriage (I know.. assumption) survive that?
There is no justification for murder regardless of the mental or physical state of the baby. If it is alright to kill the unborn for such a reason, why not kill a child who is already born or even an adult? Why even limit it to those born with such a condition? Why not extend it those who become physically or mentally disabled at a later time in their life?
WOW! This woman has managed to justify murdering one of her children “for the children”. How...expected.
Typical liberal relativity speak.
How many of the self-righteous stone throwers who’ve replied so far have raised a down’s syndrome child, I wonder ...
“We treasure every moment with them. We moved into a better school district.”
If that’s the case, then sorry, game over lady. Just look up CSCOPE if you live in Texas and you’ll see why.
Am learning a lot about all of this testing. Seems they find more and more genetic “disorders” that we can decide whether or not to terminate. (kill). They find an errant gene somewhere in the mix and boom ...you’re on the kill list. They are trying REALLY hard to find it with autism, but so far the’ve been unsuccessful. Once they are, though ...on the kill list for sure. Makes me sick.
I know raising these children is hard — but why not just try harder to improve their lives, rather than ending them? Same goes for ALL children who someone else decides will be a “burden” to someone.
Death always seems the knee jerk option to these ghouls.
Murderers! 9 out of 10? God requires justice for all of them. Who’s going to the be the focus of His anger?
So it’s self-righteous to appose murder now? You’ve captured the zeitgeist quite well.
I have a Down’s Syndrome daughter. There is no justification for having her executed. Difficult...yes; fruitless...never.
We are told NOT to sacrafice our children to the gods of world. Abortion is a god to many people in this world.
Who determines what a quality of life is? Is it, IF we can make enough money to buy a big screen TV?
Is it, IF we can go on a Disney cruise and stand in line for autographs for Disney characters and recite lines from their movies?
Is it, IF we can run in the Boston Marathon?
Or is it IF we can learn to be thankful for what we have, and love the people who have been given to us as family?
The answer is that abortion is murder- and we are told not to murder.
Plan and simple.
Raising children is HARD. Don’t have unprotected sex- with penis ejaculation into vagina, on days you are ovulating- IF you can not love a child.
It is not asking people to give up coffee... for God’s sake.
My best friend and his wife were told their second child was going to have Downe’s. They recommended abortion (Canada). Thank God my friend is a strong Christian and believer in life, that he said no and they had a strong healthy girl.
I've never raised a blind kid or a kid with a club foot.
Is it alright with you if I oppose the killing of babies with those conditions? I wonder...
I told my doc don’t even bother testing for it, I was having the baby, period. I was not the only one.
No. No it is not "horrific". My brother with Down Syndrome has the use of all his limbs. He has his sight, his hearing, his other senses. He has his mind; he can read and write and work minor arithmetic, enough to make change and get by day to day. He's learning to hold down a menial job and it makes him happy.
Is it a life I envy? No! But it's not "horrific". He's happy, he's productive, he's a human being designed in God's image just as I am. He doesn't need treatment. It's not a fatal illness.
90% of children diagnosed with DS are killed in their mother's womb. 90%. That number is absolutely horrific. It also tells me that many people who claim to be pro life will commit murder when the chips are down.
Keep your pity for the children who are murdered, not the ones who survive.
I really don’t know, in the long run.
I lost track of them.
Can you imagine what must go through the father’s mind, every time he looks at his daughter?
I also didn’t take the testing. I didn’t need to know or have the spontaneous abortion the testing might cause. I was,”of advanced maternal age”, when I was pregnant with my third.
I figured that if God brought me to it- he was going to take me thru it. Come what may ,I had my third child and she has been a blessing I can not describe with words.
I have worked with Down’s syndrome children and knew there was something much worse in this world- people with no spirit. Now that is a horrifying way to live.
Half the population is below average.
Folks with Down Syndrome make up a small portion of that half.
If it's acceptable to kill the Down Syndrome folks, is it not also acceptable to kill the other below average folks?
Indeed, is it not a requirement to do so? To improve the breed, of course ... indeed, killing the below average folks who don't have Down Syndrome would seem more important. They don't look different from the above average folks, and are more likely to breed.
Shouldn't we embark on a careful plan for improving humanity? Shouldn't we mandatorily test everyone for IQ? Shouldn't we either sterilize or euthanize all the poor useless eaters who are below average? Aren't they just less-human? Aren't they just suffering through lives unworthy of being lived? Shouldn't we also encourage the above average folks to breed, under the careful supervision of the most intelligent?
Have we ever seen this mentality implemented in the past?
Wrong! There is no "answer" there is human life and it is precious in the eyes of God. We lose sight of that and we are where we are today with millions being aborted. A true holocaust.
Just ask this lady what the "answer" is.
Yeah no one talks about the risk of the stupid test when they remove cells to test....