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Who Will Care for Children With Autism When They're Adults?
Yahoo News ^ | August 23 | Serena Gordon

Posted on 08/23/2013 4:37:36 PM PDT by Idaho_Cowboy

FRIDAY, Aug. 23 (HealthDay News) -- The vast majority of youngsters with autism will grow up to be adults with autism.

An estimated one of every 88 children in the United States has an autism spectrum disorder, according to the U.S. Centers for Disease Control and Prevention. That means that 45,000 to 50,000 kids with autism turn 18 each year, says autism researcher Paul Shattuck, from Washington University in St. Louis.

"This is an impending health care or community care crisis," said Dr. Joseph Cubells, director of medical and adult services at the Emory Autism Center at Emory University in Atlanta. "The services that are available vary from state to state, but often the resources just aren't there."

Public schools are required to provide services to people with an autism spectrum disorder until they reach age 22, according to the National Alliance on Mental Illness. After that, the responsibility shifts to the person with autism and family members to find educational or employment opportunities and appropriate living arrangements.

But experts note that a shortage of necessary programs for adults with autism already exists and is likely to worsen as the increasing number of children who are being diagnosed with autism spectrum disorders grow into adults.

(Excerpt) Read more at health.yahoo.net ...


TOPICS: Health/Medicine
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I realize this might be a valid question, but in light of Obama Care, I sense danger lurking.
1 posted on 08/23/2013 4:37:36 PM PDT by Idaho_Cowboy
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To: Idaho_Cowboy

Who’s been taking care of them before now?

Since they’ve always been around. We just haven’t noticed them?


2 posted on 08/23/2013 4:38:44 PM PDT by Black Agnes
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To: Black Agnes

My question as well.

Could it be that autism is largely an invented illness?


3 posted on 08/23/2013 4:44:07 PM PDT by BenLurkin (This is not a statement of fact. It is either opinion or satire; or both.)
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To: Idaho_Cowboy

Have they really always been around (or in such numbers)?
It seems to me that both Alzheimers and Autism are problems that either did not exist 40 years on, or else were much rarer than today.

Maybe its something in the environment or food or?


4 posted on 08/23/2013 4:46:08 PM PDT by faithhopecharity (E)
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To: faithhopecharity

I think they just came up with new names for senility and being a little slow


5 posted on 08/23/2013 4:48:22 PM PDT by al baby (Hi Mom)
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To: faithhopecharity

I had plenty of kids with “autism” in my school 50 yrs ago. They were termed retarded or crazy but they certainly were around.


6 posted on 08/23/2013 4:48:45 PM PDT by nascarnation (Democrats control the Presidency, Senate, and Media. It's an uphill climb....)
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To: Black Agnes
Each family has its own challenges to deal with. Our family has an autistic child. We deal with it.

No need for the state to come in and try to "help".

There's some financial and legal support while they are young, but not much when they get older.

By "legal support" I mean certain accommodations that schools must make to adapt to autistic children.

It will be tough, but it's better that each family work this out on their own, with the help of families in similar situations, rather than through taxing others and forcing people into specific programs that by and large won't work.

7 posted on 08/23/2013 4:49:46 PM PDT by who_would_fardels_bear
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To: faithhopecharity
Oldtimers disease has been around as long as old people have and now that life expectancy is increasing more people live long enough to exhibit symptoms.

However, this article seems to say that autism of some kind affects 12% of kids? That does sound awfully high!

8 posted on 08/23/2013 4:50:11 PM PDT by Menehune56 ("Let them hate so long as they fear" (Oderint Dum Metuant), Lucius Accius (170 BC - 86 BC))
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To: Idaho_Cowboy

Most high functioning autistic and AS people can take care of themselves. The more severely affected sadly will wind up being housed in institutions.


9 posted on 08/23/2013 4:51:02 PM PDT by swamprebel (a Constitution once changed from Freedom, can never be restored.)
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To: BenLurkin

It’s hardly ‘invented’.

And it’s not just ‘bad parenting’ or kids who need to be spanked.

I had a great aunt who was ‘retarded’ in the vernacular of the 1940’s. She made eye contact, was verbal, social, affectionate. she was potty trained. She just had the abilities of a 5yr old.

Anyone who sees the head banging, drooling diaper wearing severe autistics would never confuse them with ‘retarded’ kids from the past.

We’ve got friends with a severely autistic son. He’s in diapers at the age of 15. He can also read anything you put in front of him and communicate via ipad. He’s never spoken a word. But he’s very very aware of what’s going on around him.

I don’t think that, at age 15, he’s wearing a diaper to get attention. I don’t think spanking him would serve to potty train him either.


10 posted on 08/23/2013 4:51:12 PM PDT by Black Agnes
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To: BenLurkin

The autustic kid I know has a very bad mental disorder that is quite different from being retarded, etc. It’s more like short circuts in the brain, fried wires trying to make connections...

I thought I had read that they don’t tend to live long into adulthood.


11 posted on 08/23/2013 4:51:53 PM PDT by SaxxonWoods (....Let It Burn...)
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To: Idaho_Cowboy
I realize this might be a valid question, but in light of Obama Care, I sense danger lurking.

Danger? What a silly suggestion.You'll recall Osama Obama's prescription for that 95 year old woman whose doctor recommended a cardiac pacemaker...a pain pill.Pepto Bismol should solve this problem nicely.For we members of the Great Unwashed,that is.

12 posted on 08/23/2013 4:53:41 PM PDT by Gay State Conservative (If Obama Had A City It Would Look Like Detroit)
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To: Idaho_Cowboy

Heck, they will probably make great politicians. Certainly much better than the current crop.


13 posted on 08/23/2013 4:54:08 PM PDT by wastoute (Government cannot redistribute wealth. Government can only redistribute poverty.)
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To: swamprebel

I don’t think their is really an increase in the people affected with Autism, it’s a spectral disease. I just think we now recognize that people with a “flat affect”, or lack of emotion are on the spectral line.


14 posted on 08/23/2013 4:56:08 PM PDT by swamprebel (a Constitution once changed from Freedom, can never be restored.)
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To: BenLurkin

Not every retarded or autistic child is fake. Maybe you should go back to lurkin and not postin.


15 posted on 08/23/2013 4:56:56 PM PDT by Starstruck (If my reply offends, you probably don't understand sarcasm or criticism...or do.)
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To: Menehune56; nascarnation; al baby

Thanks for all the quick replies.
I agree partly.
It does seem like maybe the Authorities have come up with new names and applied them to a lot of folks who were always with us.
But, it still seems that there are many more cases of both conditions nowadays.
I could be wrong. But the autism thing seems to be far in excess of the number of “slow” kids back in my Paleolithic Age grammar school days. And, my Lord they’ve got zillions of people locked up or housed in special places (not to even mention all those at home) for “Alzheimers” -—

It just SEEMS that the number of cases of these conditions far exceed when I was young.


16 posted on 08/23/2013 4:57:24 PM PDT by faithhopecharity (E)
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To: Starstruck

That’s not what I said, sir.


17 posted on 08/23/2013 4:57:52 PM PDT by BenLurkin (This is not a statement of fact. It is either opinion or satire; or both.)
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To: al baby

I think that’s largely it.


18 posted on 08/23/2013 4:59:28 PM PDT by 9YearLurker
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To: Idaho_Cowboy
this is an impending health care or community care crisis

Back when Obamacare was being discussed, on CSPAN there were some hearings about the bill. What they were discussing was covering autism...physical, psychological, medical, extra care, you name it.

Obamcare forces all US citizens to share in the expense of caring for autistics, Down's Syndrome, severe handicapped, bipolar. They're all "pre-existing conditions" so they'll just take what it costs out of everyone's paychecks, in the name of health insurance.

I thought everyone knew that.

19 posted on 08/23/2013 4:59:55 PM PDT by grania
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To: faithhopecharity

I may be cynical but the whole “special education” crew has become a self-sustaining economic force.


20 posted on 08/23/2013 5:00:55 PM PDT by nascarnation (Democrats control the Presidency, Senate, and Media. It's an uphill climb....)
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To: Menehune56
However, this article seems to say that autism of some kind affects 12% of kids? That does sound awfully high!

It is.

They have expanded it from kids who rock back and fourth and scream if they are touched, to kids who have trouble reading non-verbal signals (we used to call these kids literal) to kids who are standoffish and uncommunicative or what used to be called shy.

It is sort of like calling everyone who's hair is not jet black "blond". You can raise the statistical number of blonds though the roof.

21 posted on 08/23/2013 5:02:41 PM PDT by Harmless Teddy Bear (Revenge is a dish best served with pinto beans and muffins)
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To: BenLurkin

Ding, Ding, we have a winner. Austism was extremely rare until it was turned into a government-funded business.


22 posted on 08/23/2013 5:04:49 PM PDT by kabumpo (Kabumpo)
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To: Idaho_Cowboy

It depends if Sebelius,HHS, IRS know you or your family has voted republican all your lives. I am not kidding. deathcare is exactly that.


23 posted on 08/23/2013 5:05:13 PM PDT by ColdOne (I miss my poochie... Tasha 2000~3/14/11)
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To: Idaho_Cowboy

“An estimated one of every 88 children in the United States has an autism spectrum disorder, according to the U.S. Centers for Disease Control and Prevention. That means that 45,000 to 50,000 kids with autism turn 18 each year, says autism researcher Paul Shattuck, from Washington University in St. Louis.”

Do you see what they did there? They went from citing the statistic on “autism spectrum disorders”, to extrapolating a number for “kids with autism”. It’s a bait and switch, since ASD includes a whole range of symptoms, including Aspergers, that are not what people normally consider disabling varieties of “autism”. So they are trying to get you to sympathize for more public spending with misleading statistics that include a lot of people who can take care of themselves perfectly well.


24 posted on 08/23/2013 5:05:32 PM PDT by Boogieman
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To: grania

“Obamcare forces all US citizens to share in the expense of caring for autistics, Down’s Syndrome, severe handicapped, bipolar. They’re all “pre-existing conditions” so they’ll just take what it costs out of everyone’s paychecks, in the name of health insurance.”

How compassionate. You DO realize that Obamacare fully intends to euthanize these same groups ultimately.

Right?


25 posted on 08/23/2013 5:05:37 PM PDT by Black Agnes
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To: nascarnation

Retarded has nothing to do with autism.


26 posted on 08/23/2013 5:05:55 PM PDT by kabumpo (Kabumpo)
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To: Black Agnes; BenLurkin

“And it’s not just ‘bad parenting’ or kids who need to be spanked.”

I think some cases are true autism but some are not and just kids who need to be spanked.

I’ve often wondered how they diagnose autism. I know here lately a test was made but in the past how was it done? I was out somewhere onetime when a mother, with a relative said doctors thought her baby daughter had autism. She told me the baby does not make eye contact and does not respond to people. I walk right over to the baby (about 1 1/2 or 2 years of age) and the child looked me right in the eyes and smiled. Not only that when I played with the child it interacted with me. That child had autism? Really? Kid seemed normal to me.


27 posted on 08/23/2013 5:06:26 PM PDT by Morgana (Always a bit of truth in dark humor.)
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To: Idaho_Cowboy

Most times the parents take care of them until they die. Who cares for them after that.

It is one of the greatest worries of a parent of an autistic child who will care for them after the parent dies.

Sometimes a sibling, sometimes a group home.


28 posted on 08/23/2013 5:06:35 PM PDT by Venturer ( cowardice posturing as tolerance =political correctness)
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To: faithhopecharity

Alzheimer’s has been around for years, they just called it “hardening of the arteries” or “senile dementia.”

My grandmother had it, early onset in fact, she was completely bed bound and unable to recognize any of us when she was 63...that was in 1964.

My grandfather (opposite side of the family) also had it, but his was later onset.

Years later when they started talking about Alzheimer’s and the symptoms of Alzheimer’s did we realize that this was what had afflicted them.


29 posted on 08/23/2013 5:07:23 PM PDT by memyselfandi59
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To: kabumpo

Retarded is obviously an outmoded and politically incorrect term. But it wasn’t in 1955.


30 posted on 08/23/2013 5:07:31 PM PDT by nascarnation (Democrats control the Presidency, Senate, and Media. It's an uphill climb....)
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To: Harmless Teddy Bear

Exactamente.


31 posted on 08/23/2013 5:08:33 PM PDT by kabumpo (Kabumpo)
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To: faithhopecharity

Maybe its something in the environment or food or?


Back about 10 - 20 years ago I saw something that claimed that the area around “silicon valley” had above average autism rates. They chalked it up to the areas population who were very tech/analytically minded.

I worked with an officer whose son was profoundly autistic. He was very “quirky.” He was a great guy and a talented officer but lacked something in social skills. He seemed to realize it and worked around it.


32 posted on 08/23/2013 5:08:47 PM PDT by Rides_A_Red_Horse (Why do you need a fire extinguisher when you can call the fire department?)
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To: nascarnation

you are probably correct about that, any economic activity group tends to pursue its self-interests... which would of course include survival for sure

I’m all for helping these unfortunate people if they need help. I am just wondering why there are so many of them nowadays.... and MAYBE there are some causes beyond the existence of generous welfare or assistance programs....
maybe there might be something in our food chain or larger environment nowadays.... that is increasing the caseloads of autism and alzheimers. Certainly there have been studies that have INDICATED such possibilities ... aluminum for Alzheimers for example... and some air pollutants or some vaccinations for Autism. I was just thinking that it would be worthwhile to have more research to pin down these questions, so that we could cut the high number of these cases down to size? It sure could save a lot of grief for a lot of families, plus it probably would wind up saving the taxpayers a ton of money. Just thinking...


33 posted on 08/23/2013 5:11:53 PM PDT by faithhopecharity (E)
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To: Morgana

It’s a pattern of behavior.

The boy I was discussing up thread will occasionally make eye contact.

If you’ve ever been around an autistic child for any length of time you wouldn’t think they were ‘normal’.

Keep an eye on this kid. And look up Regressive Autism. That strikes around the age of that kid. They get worse and worse and worse. If that child had in fact lost skills she’d learned previously and stopped making eye contact like she’d made before she would definitely qualify for a diagnosis.

And yes, I know there are lots of people who school their children in ‘acting crazy’ so they get a crazy check.

And for those who begrudge taking care of these kids I remind you you’re only a serious car crash away from being a burden yourself. Under obamacare both will be given the ‘Liverpool Care Pathway’. Or Schiavo’d.

It’s part of the reason for obamacare. The ability kill those unworthy of life gives some people almost erotic pleasure.


34 posted on 08/23/2013 5:14:21 PM PDT by Black Agnes
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To: Rides_A_Red_Horse

SillyCon Valley has “at least its share” of (largely new) industrial contaminants. Indeed, there is an entire district of Palo Alto that is known for its underground chemical cocktail of industrial waste (known in the trade as MES, short for Methyl Ethyl Sh*t .. since there are so many compounds included in the stuff that ...some of the best-known corporations...used to just toss out or allow to soak into the ground, etc.).
And there was a neighborhood of San Jose that had a similar leakage of cancer-causing chemicals from a big-name semiconductor manufacturer.
Nowadays, we understand that these companies are being far more careful, .. thankfully.


35 posted on 08/23/2013 5:16:28 PM PDT by faithhopecharity (E)
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To: Rides_A_Red_Horse

Look up epigenetics.

If there is an environmental reason and it were epigenetic it would affect the parents generation a little but the kids a lot more.

If it were strictly genetic, the risk factors wouldn’t be living within 500ft of a major highway or having been born prematurely.


36 posted on 08/23/2013 5:17:22 PM PDT by Black Agnes
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To: faithhopecharity

I’m certainly no expert.

We grew up downwind of the Cleveland steel mills and Std Oil refinery and drinking water from the Cuyahoga River.
Swam in Lake Erie every summer.

I would have expected those conditions to foster far more “problems” in the 40s and 50s than today.


37 posted on 08/23/2013 5:21:08 PM PDT by nascarnation (Democrats control the Presidency, Senate, and Media. It's an uphill climb....)
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To: faithhopecharity

fifty years ago, the two thirds of autistic kids who were mentally retarded were put into institutions. We now have “deinstitutionalized” the long term facilities, and the parents now have to care for them at home, never mind their behavior.

The higher functioning kids in the past often ended up diagnosed with mental problems, and often ended up in psychiatric facilities.

The bad news is that when puberty hits, often the boys become aggressive, so aging parents may not be able to cope. There are “halfway houses” for them, however.

As for Alzheimer’s: That used to be called senility. In the “good old days” usually the oldest daughter sacrificed her life to care for her aging parents.

An no, these are not “new” diseases. Just given a fancy new name.


38 posted on 08/23/2013 5:23:54 PM PDT by LadyDoc (liberals only love politically correct poor people)
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To: Black Agnes
Anyone who sees the head banging, drooling diaper wearing severe autistics would never confuse them with ‘retarded’ kids from the past.

actually, back in the good old days, we had entire wards in the long term care institutions for the retarded full of such kids.

The gentle ones could be cared for at home.

39 posted on 08/23/2013 5:27:05 PM PDT by LadyDoc (liberals only love politically correct poor people)
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To: swamprebel
Most high functioning autistic and AS people can take care of themselves. The more severely affected sadly will wind up being housed in institutions.

I occasionally had to work with an individual with Aspergers syndrome. I could walk past him in the hallway and say hi and he was unable to acknowledge my greetings. Knock on his door or send him email to discuss work you would never know something was haywire..

40 posted on 08/23/2013 5:32:17 PM PDT by EVO X
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To: Idaho_Cowboy

Don’t they just transition to the democrat side of the Congress and Senate?


41 posted on 08/23/2013 5:34:44 PM PDT by Mastador1 (I'll take a bad dog over a good politician any day!)
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To: nascarnation

I had plenty of kids with “autism” in my school 50 yrs ago. They were termed retarded or crazy but they certainly were around.

Hell Some of my Teachers were retarded


42 posted on 08/23/2013 5:35:33 PM PDT by al baby (Hi Mom)
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To: faithhopecharity

Another factor to keep in mind is that 40 or 50 years ago, the entire earth was less populated. Today’s population is proportionally larger in almost every aspect and in every sub group, which no doubt includes formally diagnosed autistic people. Also, there is the internet, allowing knowledge to twitter across the globe 24/7. No more Pony Express needed.


43 posted on 08/23/2013 5:40:25 PM PDT by lee martell
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To: Idaho_Cowboy

Same people who take care of the democrats.


44 posted on 08/23/2013 5:49:49 PM PDT by NoLibZone (The reason we are where we are today is the belief that posting on a website will fix the nation.)
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To: swamprebel

Mac daddies obamacare death panels will provide a final solution for them just like the germans did for the jewish people.


45 posted on 08/23/2013 5:50:15 PM PDT by chiefqc
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To: faithhopecharity
The numbers in relation to population likely haven't changed. Rather you just didn't see them out and about. I went to a school that likely had 50-75 students with it clinically and accurately diagnosed. It was a regional multi-county Special Education School for those with either physical or learning developmental issues.

The school if I remember it's history right was founded first as a private school during the Polio Epidemic of the 1950's. The county because of the massive urgent need took over the school and it expanded to take in Deaf, Deaf mute, ADD/ADHD, Dyslexic, Legally Blind, Spinal Disorder, CP, MD, Multiple Personalities it was there. The later to come Forced Mainstreaming of kids with disabilities into schools is why many saw a sudden so called epidemic.

Personally in general I'm not for Mainstrtreaming. I think the gets would get maximum needed help in a Special Education School where they could recieve all levels of help. The help I got in just two years was enough that in 1976 I passed my Military entrance physical and again in 1984.

I attended it in 1970-71 for some Eye and muscle coordination issues which also made studying difficult. As an adult after doing research when it hit disability level I now know that I have had life long Sensory Processing Disorders that worsened over time. More than one likely several together. Look up Central Auditory Processing Disorders. I think that is often misdiagnosed as being ADD ADHD. The symptoms are close by treatment and triggering events vastly different. That was believed at the time to be ADD ADHD in my case but wasn't. I didn't need Ritalin I needed Valium or simluar.

The Polio epidemic began a slow change in how society saw persons with disabilities. Rather than the disabled being left at home with no help many were helped and many as well achieved significant levels of independence. Thankfully medical science is helping to cut down on such disorders as CP by taking doing C-Sections.

We have also seen a rise in children born with birth defects but I'd say again medical science advances has allowed for many children to survive that even a couple decades ago would not have made it to term.

Some mention Dementia. My sister is 5 years older than me and is almost 61. She was diagnosed with it over two years ago and has likely had it a couple years before that. The Strokes and Smokes took their toll. She's in a Memory Care Unit for her own safety. She can't walk off or hurt herself or others there.

I used to work in nursing homes about 20 years ago and we had patients in their early 50's with it. Truth is Alzheimer's/Dementia has always been there but folk just didn't usually live long enough for it to be seen as much as it is today.

46 posted on 08/23/2013 5:54:05 PM PDT by cva66snipe (Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?)
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To: cva66snipe

LOL Man Oh Man look at my wording in my previous post. I can not correct my mistakes even when I find them LOL. Spell Check only does so much. LOL


47 posted on 08/23/2013 5:58:48 PM PDT by cva66snipe (Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?)
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To: Idaho_Cowboy

The ones that can adapt and work, should work.

The ones that are unable to work cause they are like rainman, then I say strip the lazy abled bodied welfare leeches of the “bene’s” and give it to the disabled autistic folks.


48 posted on 08/23/2013 5:59:40 PM PDT by GraceG
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To: Starstruck

It’s not that the label is fake, but grouping ASD with real autism causes many to see it as fake. I’ve seen real autism. The children today with ASD are able to function in regular society and give the whole issue a bad reputation. With all the symptoms that can be used to label a child with ASD, I think I qualify for ASD -— as do many other FREEPERS.


49 posted on 08/23/2013 6:10:47 PM PDT by eccentric (a.k.a. baldwidow)
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To: Idaho_Cowboy

I am a mother of a 24 year old son that is autistic. Obamacare scares me. I think his life will not be treated as important as “normal” people. We still have decent insurance...for now. And whoever said its a “made-up” disease is very ignorant.


50 posted on 08/23/2013 6:11:00 PM PDT by ladyellen
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