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Dad Breaks Gag Order To Speak Out About Why a Hospital is Holding His Daughter Against His Will
TheBlaze ^ | Liz Klimas

Posted on 02/17/2014 3:11:38 PM PST by Lucky9teen

The last time Lou Pelletier spoke with his 15-year-old daughter was Feb. 14 — Valentine’s Day. For this father of four, though, the day held a different meaning for his youngest valentine: It marked one year since she was taken and placed in a psychiatric ward against her parents’ will.

“We need help,” Lou Pelletier told TheBlaze in an exclusive interview, explaining why he made the decision to break a judge’s gag order and talk about the situation.

“I’m trying to save my daughter’s life,” he said.

“While still being able to live,” Jessica, one of Justina’s older sisters, added.

For more than a year, Justina Pelletier has been the center of a battle between her parents, the Massachusetts Department of Children and Families and Boston Children’s Hospital, and two controversial medical diagnoses. After her family began speaking out last November about their fight against these major institutions in court, they were placed under a gag order.

Beyond little snippets given outside of court on the many hearings they’ve had, little has been heard from the parents who believe their daughter has mitochondrial disease and the medical facility that says she doesn’t, saying it’s a psychosomatic disorder instead.

But now the Pelletiers are speaking out. ‘My daughter is about to be kidnapped’

When the Pelletiers brought Justina to a Connecticut hospital in February 2013, she was suffering from the flu. As her sister Jessica explained it, people with mitochondrial disease are affected by illnesses, like the flu, in a more pronounced way.

Jessica, 25, is the second-oldest of the Pelletiers’ daughters and has mitochondrial disease herself. The disease can manifest itself in various ways, but at its root, results from a defect in the mitochondria, an organelle inside cells that produces energy. Jessica’s diagnosis was established medically through analysis of the cells of her muscle tissue.

In Justina’s case, a doctor evaluated her symptoms, considered her family history — mitochondrial disease can be inherited — and gave her a clinical diagnosis of the disorder. Under the care of physicians at Tufts Medical Center, Justina was treated for mitochondrial disease.

But when she got the flu and her parents were told she should be transferred to Boston Children’s Hospital, things changed.

As Lou Pelletier explained it, Justina was supposed to be transferred in an ambulance, for insurance purposes, to the Boston hospital, and brought through the emergency room but seen by a gastrointestinal doctor. Instead, upon arriving, he said she was stopped and evaluated by a neurologist, who, Pelletier said, didn’t look at her medical history or contact her other doctors. This doctor, according to Justina’s father, said he thought the illness was all in Justina’s head — that it was somatoform disorder.

The physicians at Boston Children’s Hospital disagreed with her diagnosis of mitochondrial disorder and wanted to take a different approach to her treatment. At first, Lou Pelletier said, “we were game to try a new approach.” But when the hospital laid out their plan to take Justina off all of her mitochondrial and pain medication, her parents balked.

That was Feb. 13, 2013. The next day — Valentine’s Day 2013 — Justina’s parents went to Boston Children’s Hospital with a couple of advocates intending to have her discharged and brought to Tufts. Instead, they were met with security guards and served a 51A, a report of alleged physical or emotional abuse.

Lou said when he saw security showing up, he called 911, thinking that things were not about to go in their favor.

The Pelletiers were accused of overmedicalizing their daughter. Lou Pelletier pointed out that he doesn’t see how having a congenital band removed, her tonsils taken out, procedures to help her have bowel movements — a reoccurring issue for Justina — and following doctor’s orders for prescriptions for mitochondrial disease can be considered overmedicalizing.

Justina was transferred to Boston Children’s Hospital’s Bader 5 psychiatric unit on April 9, 2013. There she was treated for somatoform disorder. According to a document from Boston Children’s given to the Pelletiers, Justina’s treatment included a “behavioral plan […] formulated with input from all relevant disciplines which will day schedule, feeding and functioning plans with a therapeutic approach.” Physical therapy was included as well.

Another measure on the “Guidelines for Care of Justina Pelletier” included that “no diagnostic tests and no new consultations are to be requested unless Justina develops a new or acute process as observed and assessed by the medical team.”

The Pelletier family isn’t necessarily alone in their experience with the hospital. After their case made national headlines, other families began speaking out about the hospital threatening to get DCF involved. Complaints that have been filed since against Bader 5 prompted the Massachusetts Department of Public Health to launch an investigation.

‘I want to have all my guns blazing’

Lou Pelletier told TheBlaze he used to play “20 questions” on the phone to learn from Justina what was going on in the psych ward on the days they were scheduled to call. Justina also used to sneak little notes to her family in cards she wrote them.

Jessica Pelletier demonstrated how she would fold a flap in cards and write messages in small handwriting underneath. Lou Pelletier said if Justina got caught doing this “she would get tortured,” which he said the hospital called “behavioral modification.”

“That’s what Kim Jong Il’s doing in North Korea, behavior modification. … No, no, no, no. It’s torture,” he said.

The Pelletiers don’t get cards anymore. All they get from Justina now are 20 minutes on the phone every Tuesday, one-hour visits each Friday, and her bracelets, which show her preferences for the colors blue and green. Both Lou and Jessica Pelletier sported several of Justina’s beaded or artistically twisted rubber band bracelets on their wrists.

After several court dates, Justina was moved from Boston Children’s Hospital to another facility in Massachusetts. At the time, Lou Pelletier said “justice maybe prevailed.” But in the hearing following this decision two weeks later, things seemed more grim from the Pelletiers’ perspective. Lou Pelletier said it is not a medical facility. He said it’s a temporary place where she is being held until her treatment going forward can be agreed upon in court.

“Now we go back the 24th, a week from today, and I want to have all my guns blazing. We’re not going to make it much more,” Lou Pelletier said.

“Our family,” Jessica Pelletier said, “I don’t know how we survived this long.”

And they’re not just talking about the “heartbreak” of Justina. The yearlong fight to bring the decisions regarding her medical care back to her parents has taken a toll on the Pelletier family.

Financially, they’re trying to make ends meet with expensive legal fees. The Pelletiers have a PayPal account for those wishing to donate to her family’s cause.

If the decisions regarding Justina’s care are returned to her parents, Lou thinks she needs total rehabilitation, saying that he worries her current state could be “irreversible.”

“She needs physical therapy. She needs to be back on the vitamin cocktail. She needs to be treated for the goddamn diagnosis she had from the beginning,” Lou said. ”I need to save my daughter. If we don’t do something, she is going to die.”

Lou Pelletier will appear on The Glenn Beck Program on TheBlaze TV at 5 p.m. ET for an extended interview. This story may be updated with relevant clips from the show.

TOPICS: Chit/Chat; Health/Medicine
KEYWORDS: boston; dcs; freedom; hospital; justinapelletier; kidnap; massachusetts; nannystate; obamacare; parentalrights; policestate

1 posted on 02/17/2014 3:11:38 PM PST by Lucky9teen
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To: Lucky9teen
Caught the last half of his interview onthe radio simulcast of the blaze radio...

Heartbreaking and angering... The State is legally killing his daughter and there is not much he can do about it, welcome to the authoritatian state...

2 posted on 02/17/2014 3:13:38 PM PST by GraceG
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To: Lucky9teen; GraceG; cripplecreek; 2ndDivisionVet; Sarah Barracuda; onyx
I hate it when Sarah Palin is right all the time :(

And Rod Serling...

3 posted on 02/17/2014 3:19:18 PM PST by KC_Lion (Build the America you want to live in at your address, and keep looking up.- Sarah Palin)
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To: Lucky9teen
My dad was in the hospital for physical maladies he had. He was also allergic to morphine which his regular physicians knew.

However, it seems that every hospital has roaming doctors that look at patients' bedside records and prescribe something so that they can get a bit of the insurance money.

Some idiot doctor saw that my father was in pain and told the nurses to give him morphine. He went temporarily insane and was put in the hospital's psych ward.

It took us several days to convince everyone that it was the morphine and that my father was not crazy.

Fortunately the entire episode took less than a week and within the walls of a single hospital, but it was still disconcerting.

4 posted on 02/17/2014 3:20:03 PM PST by who_would_fardels_bear
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To: Lucky9teen; All

This is scary...and can happen to anyone.

5 posted on 02/17/2014 3:21:35 PM PST by SeminoleCounty (Diversity is just racism against white folks)
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To: KC_Lion; Lucky9teen

Wonderful, true life story and great link, KC!

6 posted on 02/17/2014 3:22:50 PM PST by onyx (Please Support Free Republic - Donate Monthly! If you want on Sarah Palin's Ping List, Let Me know!)
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To: who_would_fardels_bear

Exact same thing happened to me but with Fentanyl.

Do not EVER let anybody put this in your drip.

7 posted on 02/17/2014 3:23:42 PM PST by txhurl
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To: KC_Lion

Bookmark ;)

8 posted on 02/17/2014 3:26:54 PM PST by Jane Long (While Marxists continue the fundamental transformation of the USA, progressive RINOs assist!)
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To: txhurl

Fetanyl is very common.

9 posted on 02/17/2014 3:28:15 PM PST by driftdiver (I could eat it raw, but why do that when I have a fire.)
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To: who_would_fardels_bear

We have an elderly uncle who goes “insane” when he gets a UTI. Several visiting docs have made mistakes with his *diagnosis*...that’s why we try to keep our notes/binder and a family member present at all times. Once the antibiotics are started, he gets back to his old happy self, rather quick.

10 posted on 02/17/2014 3:30:16 PM PST by Jane Long (While Marxists continue the fundamental transformation of the USA, progressive RINOs assist!)
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To: driftdiver

So is salmonella.

11 posted on 02/17/2014 3:32:22 PM PST by txhurl
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To: Lucky9teen

Don’t take your child to that hospital

12 posted on 02/17/2014 3:34:46 PM PST by yldstrk (My heroes have always been cowboys)
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To: who_would_fardels_bear
The same thing happened to my dad after his second bypass surgery. The medical team gave him morphine even though his records said that he was intolerant of the drug.

For three days we fought with the physicians while my father, who was a brilliant articulate man, sat in his bed and drooled, and messed himself if you didn't get him to the bathroom. Imagine having an in depth conversation with a man regarding social science and politics and then feeding him and wiping him the next day.

Neurologists insisted that he had had a stroke. My poor mother fought tooth and nail for them to take him off the morphine and they treated her terribly up to the moment they physically shoved her.

At that point I unleashed the hounds as it were and went straight to the top using the words liability and litigation in every sentence. They took him off the morphine and within three hours, he was back to himself.

This is what we learned. Do not leave a loved one unattended in a hospital and question, question, question everything. There are wonderful health care providers out there; but there are also arrogant ignorant jacka**es.

13 posted on 02/17/2014 3:35:34 PM PST by MWestMom (We are not designed to sacrifice for the state, we were designed to sacrifice for each other.)
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To: txhurl

So, because YOU reacted badly to a particular drug, no one should ever have it?

14 posted on 02/17/2014 3:38:06 PM PST by Hepsabeth
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To: Lucky9teen


15 posted on 02/17/2014 3:40:26 PM PST by Scrambler Bob ("The Pen" has a nice ring to it, kind of like "Graybar Hotel")
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To: Lucky9teen

I hope the majority of his legal bills are going towards setting up a 10 - figure lawsuit.

16 posted on 02/17/2014 3:40:30 PM PST by snowrip (Liberal? You are a socialist idiot with no rational argument.)
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To: Hepsabeth

they once put arsenic in my drip.

17 posted on 02/17/2014 3:42:42 PM PST by MNDude
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To: txhurl

“Exact same thing happened to me but with Fentanyl.
Do not EVER let anybody put this in your drip.”

Fentanyl is a very powerful synthetic analog of opiates. It is very effective at controlling pain and has few adverse side effects when used properly. It is a good drug used properly but is a drug of great potential abuse outside of a medical setting.

However, any drug can have adverse side effects. In your case it was Fentanyl. See my tag line of occupations>

18 posted on 02/17/2014 3:53:40 PM PST by cpdiii (Deckhand, Roughneck, Mud Man, Geologist, Pilot, Pharmacist. THE CONSTITUTION IS WORTH DYING FOR!)
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To: MWestMom

I found that out! I was called and told to get to the hospital to say “good-bye”. Thank God, there was no DNR. That doctor was never allowed in that room again. 15 years later, we are still going strong. You have to be the advocate for you and your family. And, do whatever it takes.

19 posted on 02/17/2014 3:54:56 PM PST by ozaukeemom (Is there even a republic left?)
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To: Lucky9teen

why can’t Tufts get this worked out

20 posted on 02/17/2014 3:57:47 PM PST by yldstrk (My heroes have always been cowboys)
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To: Lucky9teen

He needs a lawyer to file a habeus writ for him fast

21 posted on 02/17/2014 3:58:44 PM PST by yldstrk (My heroes have always been cowboys)
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To: MWestMom

Thankfully I’ve never had a situation as extreme as what you experienced, and I’m sorry you and your family had to endure that.

I’m constantly amazed at the naivté so many people have about hospitals. They seem to think Florence Nightengale will be holding the hand of their loved one 24/7. I have had to change bedsheets and sanitary garments for relatives because the nurses (or nurse techs or healthcare assistants, or whomever happened to be hired by that particular facility) couldn’t be bothered. One time a resident lashed into my mother, with much profanity, that she should be on her knees thanking him because he “got a speeding ticket” on the way to the hospital to take care of my father (post-stroke). THAT particular smug SOB heard an earful from me — still makes my blood boil remembering it.

People really need to be more aware of how “warehouse” so many hospitals are — if a patient doesn’t have a strong-willed advocate, they will fall to the end of the line.

22 posted on 02/17/2014 4:09:23 PM PST by workerbee (The President of the United States is DOMESTIC ENEMY #1!)
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To: yldstrk

He doesn’t just need a lawyer, he needs a “pitbull in a brooks brothers suit” to take the law, publicity and anything else he can get his hands on and shove it straight up the hospitals ass.


23 posted on 02/17/2014 4:22:53 PM PST by Celtic Conservative (tease not the dragon for thou art crunchy when roasted and taste good with ketchup)
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To: GraceG

Was there any explanation given for the Gag order?

24 posted on 02/17/2014 4:25:36 PM PST by RightOnTheBorder
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To: Lucky9teen

Massachusetts went medical nanny state under Romney. This story is a small screenshot of what is coming to the entire country. Unfortunately the majority (apparently) of the voters in this country are Social Utopians. They should have had to live in a Socialist country before they voted to destroy this one.

25 posted on 02/17/2014 4:48:22 PM PST by originalbuckeye ("A thing moderately good is not so good as it ought to be. Moderation in temper is always a virtue;)
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To: driftdiver

It is also highly enjoyable. Spent six hours once in an emergency room with five fractures in my pelvis. They kept trying to get me to walk. No meds.

When they finally figured out I had fractures, they lit me up with Fetanyl.

They can do that again anytime they want.

26 posted on 02/17/2014 5:07:32 PM PST by Sherman Logan
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To: Sherman Logan

Yeah a couple years ago I had my very first stay at the hospital.

Had me on Delodid until I started hallucinating that the nurse was trying to kill me. In between not being able to stop exhaling every time I breathed.

Then morphine once the pain subsided. The rush you see in the war movies is real.

27 posted on 02/17/2014 5:13:58 PM PST by driftdiver (I could eat it raw, but why do that when I have a fire.)
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To: driftdiver

That is just insane!!!

28 posted on 02/17/2014 5:22:44 PM PST by mgist (.)
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To: mgist

Yeah but the nurse was an Angel!

There are many good hospitals. I really don’t understand how this makes sense from a care perspective or financial perspective for the hospital.

29 posted on 02/17/2014 5:25:06 PM PST by driftdiver (I could eat it raw, but why do that when I have a fire.)
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To: Lucky9teen

The other girl, Wray, went through the same thing including a gag order being placed on the family. Besides the state taking away the rights of the parents, it seems something else might be going on. I’d be calling a big shot lawyer and suing for millions. I’m not one to sue, but these people need the fear of losing everything, along with anyone else who would consider doing anything like this. This sounds like it comes out of one of obama’s czars.

30 posted on 02/17/2014 5:27:26 PM PST by Linda Frances (Woe to those who call evil good and good evil, who put darkness for light and light for darkness.)
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To: who_would_fardels_bear

I’ve been hospitalized three times for heart problems. All three times some Korean gastro doctor stopped by my room. I have no idea why he was there. He billed the insurance company and was paid. He billed me for the co-pays. I wrote him a letter basically telling him to go to hell. I never heard from him again.

31 posted on 02/17/2014 5:51:29 PM PST by VerySadAmerican (".....Barrack, and the horse Mohammed rode in on.")
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To: Hepsabeth
This is one of the reasons that the Second Amendment is so impotent. My wife was in a recovery home after breaking a leg. Most of the help was from south America and could barely speak English. If I had left her there she would have died. So I stayed with her 12/14 hours a day to keep them honest.
32 posted on 02/17/2014 5:52:21 PM PST by ANGGAPO (Layte Gulf Beach Club)
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To: workerbee
I have used this procedure with amazing results. Take out your cellphone and say “I am going to call 911” then set down and watch the Panic.
33 posted on 02/17/2014 5:58:50 PM PST by ANGGAPO (Layte Gulf Beach Club)
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To: yldstrk

IMHO egos

34 posted on 02/17/2014 7:00:25 PM PST by Nuc 1.1 (Nuc 1 Liberals aren't Patriots. Remember 1789!)
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To: Lucky9teen
There are many great doctors. There are also many doctors who are like Josef Mengele, seeing patients as nothing more than lab specimens. It appears many of the latter group are in this Boston hospital. That hospital needs to shut down and many, if not all, of its doctors imprisoned.

One thing I didn't see was the basis of the gag order. Why did a judge violate the First Amendment by trying to silence this man?

35 posted on 02/17/2014 7:38:29 PM PST by Repeal 16-17 (Let me know when the Shooting starts.)
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I just told them I work with hipaa compliance and they were great.

36 posted on 02/17/2014 8:08:50 PM PST by driftdiver (I could eat it raw, but why do that when I have a fire.)
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To: MWestMom
You really have to be able to speak up for your family members. My father was in the hospital and at 86 refused chemo for acute leukemia. I was with him the night before he was to be released. He told me some doctor came in and said he needed a blood transfusion and he said no but they were going to give it to him cause his doctor ordered it...Being a nurse, hospitals and staff don't intimidate me. The resident that took the phone order from his doctor was at the nurse station. I went there and asked who was in charge of my father getting a blood transfusion and the resident said he was....I told the resident my father was refusing the transfusion. The resident don't understand, his doctor ordered it......I told the resident.....NO you don't understand there will be no transfusion given.....Everyone has a right to refuse treatment and my father had gone out of another hospital AMA after talking with anesthesia the night before scheduled Kidney removal due to what turned out to be a large cyct on the kidney and not cancer.. I know that cause I was with him when he was transferred to another floor (I worked at this hospital) told the nurse transferring him to go slow, I wanted to read all the reports of tests done....including a cancer cells were found in any tests done...
37 posted on 02/17/2014 11:36:03 PM PST by goat granny (.)
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To: Lucky9teen

How much did dad donate to a teaparty candidate?

38 posted on 02/19/2014 7:53:24 AM PST by TurboZamboni (Marx smelled bad and lived with his parents .)
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