Skip to comments.Urgent Prayer for Clare
Posted on 07/07/2006 7:42:15 PM PDT by richardtavor
More urgent prayer requested for baby Clare. She was born 3 days ago at 1 lb, 14 Oz, and is fighting for her life. The grandmother told us that the Doctors diagnosed Triasamine? and some brain damage. They intend to un plug her in the morning. Do any of the preme parents that wrote in tell us what Triasmine is? At this point, we need a miracle for this little one to survive...thanks to all for their prayerful concern...
Prayers being sent for baby Clare. Bump.
Prayers sent for baby Clare.
Prayers up for Clare and her family.
Prayers for you and your baby
Kay, can you rouse the prayer warriors with a ping?
So sorry to hear that - prayers started. Were they meaning "trisomy", perhaps?
Possible, but we just wrote down what we heard..don't know the spelling, and the grandmother was just a little distraught...any answers???
Prayers offered for this tiny child.
Prayers for Clare.
Anyway, prayers for baby Claire and her family.
Please join in prayer for this wee one and her family.
Prayers going up for this sweet baby and her family.
Prayers for baby Clare.
trisamine is a pharmaceutical agent used for emulsifications
never heard of that word used as a disease.
do you mean tyrosinemia?
if so, there is treatment in the form of NTBC + diet restrictions and ultimately liver transplant (for which this patient is not a candidate).
however, a baby less than 1 kilo has lots of other issues.
this baby is probably on TPN which can give a false elevation in the tyrosine level.
where is the baby admitted?
God bless Clare. God bless you.
Thanks to the Prayer Warriors, I looked it up--it is Trisomy 18, she has the clubbed feet, clefted chin, clinched fist--everything that is a precursor to Down's...G-d needs to intervene in this case, but his will be done.
Prayers sent for precious baby Clare.
God bless and keep Clare.
One of the Prayer warriors said it was Trisomy 18, this fits the symptoms...thanks
My prayers for Clare and family.
Prayers just sent for baby Clare, and her parents.
trisomy 18 is a completely different disease from trisomy 21(downs)
trisomy 18 is also known as edwards syndrome.
it is universaly fatal. if not now, then in the coming days/weeks.
i agree with the physicians. comfort measures is appropriate.
proverbs says "give strong wine to the dying"
godspeed little one.
Our prayers to Clare and your family from all of us at Temple Beth Am on this night.
Prayers up. This is such a sad situation.
For those who don't know, here is some information about the syndrome they are talking about:
Trisomy 18 syndrome is a disorder of human chromosomes which occurs in approximately 1 in 6,000 live born infants. Trisomy 18 is due to the presence of an extra #18 chromosome. Over 90% of infants with Trisomy 18 syndrome will have a full trisomy while the remainder will have a trisomy due to a rearrangement called a translocation or have mosaicism (two different cell lines).
Infants born with Trisomy 18 usually have small size at birth. There is a recognizable pattern of physical features that often allow the health professional to make the diagnosis of the syndrome. These physical findings are not medically significant but provide clues. They include: prominence to the back part of the head, short eyelid fissures, small mouth and jaw, external ear variations, clenched fist with index finger overlapping the third and 5th finger overlapping the 4th, small fingernails, underdeveloped or altered thumbs, short sternum (breastbone), club feet and redundant skin at the back of the neck.
Synonyms: Trisomy 18
(these last two terms are usually not used at the present time)
Major impact of Trisomy 18 is a predisposition to congenital malformations (birth defects), increased infant mortality, and a developmental disability in older infants and children.
The congenital malformations involve the medically and significant findings mentioned above as well as the presence of some internal or external birth defects. The most common and important is a defect of the heart. Over 90% of children with Trisomy 18 will have a congenital heart malformation; these include: ventricular septal defect an opening between the lower chambers of the heart which prevents the heart from pumping blood correctly (a heart murmur is generally heard from this finding); atrial septal defect an opening between the two upper chambers of the heart making it difficult for the heart to pump sufficient oxygen rich blood to body tissues (a heart murmur is often heard); patent ductus arteriosis a heart defect involving the lack of closure of the channel that usually closes near the time of birth. This then is a persistence of the opening of this channel. In addition, children with Trisomy 18 usually have an alteration of one of the four heart valves. This combination is referred to as a ventricular septal defect with polyvalvular dysplasia. About 10% of children with Trisomy 18 will have a life threatening heart defect noted before or soon after birth. These include a double outlet right ventricle and hypoplastic left heart.
The increased occurrence of infant mortality is related to a combination of factors but most importantly central apnea, where the brain does not give the message to breathe. Other complicating factors include difficulty feeding with aspiration with a predisposition to aspiration pneumonia, and under development of the lungs. The heart defects can play some role in this but are usually not the only cause of this increased mortality. Important and common birth defects seen in Trisomy 18:
* Congenital heart defects 90%
* Multiple joint contractures 10%
* spina bifida
* hearing loss >50%
* radial aplasia (underdevelopment or missing radial bone of forearm) 5-10%
* cleft lip 5-10%
* birth defects of the eye 10%
Common Disorders in
* feeding difficulties
* gastroesophageal reflux
* slow post natal growth
* kidney defects
* urinary tract infections
* developmental disability
Prayers going up for baby Clare - what a pretty name.
The medical literature says that 5-10% of Trisomy-18 babies *do* live past 1 year old and some have lived to their teens. Miracles do happen.
Bless her family--this is heart-breaking.
Amen to that. Prayers for her and her poor parents...
Prayers have been sent up.
Prayers have been sent up.
Praying for baby Clare and her family.
Thanks, I agree--she probably won't make it. But my prayer is that G-d save her, and if not, to comfort the family and bring Shalom to them all. Reminds of a quote from Rabbi Tsvi G. Schur in his book "Illness and Crisis, Coping the Jewish Way", in which he quotes from Chaim Potak. 'As he looked on a dead bird in front of his house.' "Is it dead, Papa?" 'I was six and could not bring myself to look at it.' "Yes." I heard him say in a sad and distant way. "Why did he die?" "Everything that lives must die." "Everything?" "Yes." "You too, Papa? and Mama?" "Yes." "And me?" "Yes," he said. Then he added in Yiddish. "But may it be only after you live a long and good life, my Asher." I couldn't grasp it. I forced myself to look at the dead bird. Everything alive would one day be as still as that bird? "Why?" "That's the way the Ribbono Shel Olam (G-d) made his world, Asher." "Why?" "So life would be precious, Asher. Something that is yours forever is never precious." May this family find Shalom no matter what the will of G-d is..may he be merciful and heal this innocent child and cause her to be a testament to his Name....I give thanks to all of the prayers generated by the prayer warriors on this forum...
Please post your replies to richardtavor
richardtavor, My prayers continue for this new baby and the baby's family. God's protection for Clare...God's comfort for Judy and the family. I pray for God's intervention in her care. I pray he gives her the will and the ability to survive
If you want on/off my prayer ping list, please let me know. All requests happily honored.
Our first one was 6.5 weeks early, born at 4 lbs. 12 oz., and she just turned four today. Still, it's hard to imagine what little Clare's parents are going through. May the Lord carry all of you through this difficult time.
Prayers for this little baby.
Prayers for little Clare and her family.
More prayers for little Clare.
Prayers go out for little Clare and your family.
This is heartbreaking news. I'm so sorry that you and your family are going through this. I pray that God is with little Clare during this time and that He will give wisdom to the doctors. May He give your family mercy and peace.
Please Embrace this Dear Child and her Family in Your Bright Light of Grace and Wellness.Please give them all the Strength they need to overcome this difficult time.THANK YOU LORD, Amen.
Put me on your list, please...
Stay strong in the Lord and know that He is good, beyond our comprehension.
Bigtime prayers for this little one!
Dear Lord, Dear Lord, I didn't want to stop here because I knew my heart would break. I should never dread shedding tears or feeling the pain of others. Forgive me Lord!
Dear Heavenly Father,
With over 45 million unwanted babies murdered it just doesn't seem fair for Clare who is loved and wanted to be facing such hardships. Dear Lord our hearts are burden for little Clare. I've read the posts and some stirs up doubt but I know that you have all power. Some make mock and ridicule but in this battle there is not room for doubt. I join all who's faith is strong and know your healing power, to ask Dear Lord, Please let us keep this one.
Please watch over Clare's family, keep them strong.
In Your Gracious Loving Name Jesus, Amen
Richard, I see that your questions regarding the disease that this precious child of G-d has....As hard as it is to watch this happening to Clare, NEVER forget that He holds her in the palm of His hand. He created her. He loves her.
And we all join you in fervent prayer for that miracle she so richly deserves.
Lord, please, hear our prayers....