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Urgent Prayer for Clare

Posted on 07/07/2006 7:42:15 PM PDT by richardtavor

More urgent prayer requested for baby Clare. She was born 3 days ago at 1 lb, 14 Oz, and is fighting for her life. The grandmother told us that the Doctors diagnosed Triasamine? and some brain damage. They intend to un plug her in the morning. Do any of the preme parents that wrote in tell us what Triasmine is? At this point, we need a miracle for this little one to survive...thanks to all for their prayerful concern...


TOPICS: Miscellaneous
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1 posted on 07/07/2006 7:42:15 PM PDT by richardtavor
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To: richardtavor

Prayers being sent for baby Clare. Bump.


2 posted on 07/07/2006 7:44:43 PM PDT by jdm
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To: richardtavor

Prayers sent for baby Clare.


3 posted on 07/07/2006 7:46:39 PM PDT by tapatio
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To: richardtavor

Prayers up for Clare and her family.


4 posted on 07/07/2006 7:46:53 PM PDT by Jaded (does it really need a sarcasm tag?)
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To: richardtavor

Prayers offered.


5 posted on 07/07/2006 7:47:15 PM PDT by TASMANIANRED (The Internet is the samizdat of liberty..)
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To: richardtavor

Prayers for you and your baby


6 posted on 07/07/2006 7:47:50 PM PDT by Constitutional Patriot
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To: richardtavor; kayak
Prayers lifted.

Kay, can you rouse the prayer warriors with a ping?

/johnny

7 posted on 07/07/2006 7:48:02 PM PDT by JRandomFreeper (D@mmit! I'm just a cook. Don't make me come over there and prove it!)
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To: richardtavor

So sorry to hear that - prayers started. Were they meaning "trisomy", perhaps?


8 posted on 07/07/2006 7:50:09 PM PDT by Moonmad27
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To: Moonmad27

Possible, but we just wrote down what we heard..don't know the spelling, and the grandmother was just a little distraught...any answers???


9 posted on 07/07/2006 7:51:43 PM PDT by richardtavor (Pray for the peace of Jerusalem in the name of the G-d of Jacob)
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To: richardtavor; Victoria Delsoul

Prayers offered for this tiny child.


10 posted on 07/07/2006 7:52:46 PM PDT by Alberta's Child (Can money pay for all the days I lived awake but half asleep?)
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To: richardtavor

Prayers for Clare.


11 posted on 07/07/2006 7:53:04 PM PDT by LdSentinal
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To: richardtavor
Are you sure it wasn't something like trisomy 21? That's related to Down syndrome, I believe.

Anyway, prayers for baby Claire and her family.

12 posted on 07/07/2006 7:54:51 PM PDT by IrishRainy
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To: richardtavor; Brad's Gramma; trussell
Over here, Prayer Warriors! Quickly!

Please join in prayer for this wee one and her family.

13 posted on 07/07/2006 7:56:14 PM PDT by kayak (Praying for MozartLover's son, Jemian's son, all our military, and our President every day!)
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To: richardtavor

Prayers going up for this sweet baby and her family.


14 posted on 07/07/2006 7:56:21 PM PDT by derllak
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To: richardtavor

Prayers for baby Clare.


15 posted on 07/07/2006 7:58:13 PM PDT by lexington minuteman 1775
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To: richardtavor

trisamine is a pharmaceutical agent used for emulsifications
never heard of that word used as a disease.

do you mean tyrosinemia?
if so, there is treatment in the form of NTBC + diet restrictions and ultimately liver transplant (for which this patient is not a candidate).
however, a baby less than 1 kilo has lots of other issues.
this baby is probably on TPN which can give a false elevation in the tyrosine level.
where is the baby admitted?


16 posted on 07/07/2006 7:59:38 PM PDT by brannon (now hold on there son....)
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To: lexington minuteman 1775

God bless Clare. God bless you.


17 posted on 07/07/2006 7:59:57 PM PDT by Brad from Tennessee (Anything a politician gives you he has first stolen from you)
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To: IrishRainy

Thanks to the Prayer Warriors, I looked it up--it is Trisomy 18, she has the clubbed feet, clefted chin, clinched fist--everything that is a precursor to Down's...G-d needs to intervene in this case, but his will be done.


18 posted on 07/07/2006 8:00:07 PM PDT by richardtavor (Pray for the peace of Jerusalem in the name of the G-d of Jacob)
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To: richardtavor
Prayers sent.

My father was born in 1919. His dad had died months before from the flue epidemic.

Dad was born premature and weighed 4#'s. They used the stove as an incubator. Had it set on low. It took awhile but he survived.

That was 87 yrs ago. He made it.
19 posted on 07/07/2006 8:00:25 PM PDT by cibco (Xin Loi Saddam)
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To: richardtavor

Prayers sent for precious baby Clare.


20 posted on 07/07/2006 8:00:55 PM PDT by tertiary01
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To: richardtavor

God bless and keep Clare.


21 posted on 07/07/2006 8:01:02 PM PDT by krunkygirl
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To: brannon

One of the Prayer warriors said it was Trisomy 18, this fits the symptoms...thanks


22 posted on 07/07/2006 8:01:33 PM PDT by richardtavor (Pray for the peace of Jerusalem in the name of the G-d of Jacob)
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To: NYer; Salvation; Knitting A Conundrum

Ping


23 posted on 07/07/2006 8:01:43 PM PDT by Jaded (does it really need a sarcasm tag?)
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To: richardtavor

My prayers for Clare and family.


24 posted on 07/07/2006 8:01:50 PM PDT by Family Guy (I disagree with what you said, but I'll defend to the death your right to shut up.)
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To: richardtavor

Prayers just sent for baby Clare, and her parents.


25 posted on 07/07/2006 8:03:31 PM PDT by NRA2BFree (NEVER ARGUE WITH IDIOTS!!! THEY*LL DRAG YOU DOWN TO THEIR LEVEL AND BEAT YOU WITH EXPERIENCE!!!!)
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To: richardtavor

trisomy 18 is a completely different disease from trisomy 21(downs)
trisomy 18 is also known as edwards syndrome.
it is universaly fatal. if not now, then in the coming days/weeks.
i agree with the physicians. comfort measures is appropriate.
proverbs says "give strong wine to the dying"
godspeed little one.


26 posted on 07/07/2006 8:03:50 PM PDT by brannon (now hold on there son....)
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To: richardtavor
Job 12:10 ~ "In His hand is the life of every living thing, and the breath of all mankind."

Unto You, O Lord, we return with thanksgiving for the birth and life of baby Clare. Hold her in the palm of Your hand, Merciful Father, for therein is safety. Shower her medical team with divine wisdom, that they do and say in accordance with Your will. May Your mercy fall greatly upon this family, that they would be sustained in the hours to come.

In the Name of the Lord Jesus Christ we pray, Amen ...
27 posted on 07/07/2006 8:07:50 PM PDT by Pegita ('Tis so sweet to trust in Jesus, just to take Him at His Word ...)
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To: richardtavor

Our prayers to Clare and your family from all of us at Temple Beth Am on this night.


28 posted on 07/07/2006 8:10:37 PM PDT by bpjam (If we take 12M illegals, they have to take Kennedy & McCain!)
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To: richardtavor

Prayers up. This is such a sad situation.

For those who don't know, here is some information about the syndrome they are talking about:

Trisomy 18 syndrome is a disorder of human chromosomes which occurs in approximately 1 in 6,000 live born infants. Trisomy 18 is due to the presence of an extra #18 chromosome. Over 90% of infants with Trisomy 18 syndrome will have a full trisomy while the remainder will have a trisomy due to a rearrangement called a translocation or have mosaicism (two different cell lines).

Infants born with Trisomy 18 usually have small size at birth. There is a recognizable pattern of physical features that often allow the health professional to make the diagnosis of the syndrome. These physical findings are not medically significant but provide clues. They include: prominence to the back part of the head, short eyelid fissures, small mouth and jaw, external ear variations, clenched fist with index finger overlapping the third and 5th finger overlapping the 4th, small fingernails, underdeveloped or altered thumbs, short sternum (breastbone), club feet and redundant skin at the back of the neck.

Synonyms: Trisomy 18

Edward Syndrome

Trisomy E

Trisomy 16-18

(these last two terms are usually not used at the present time)

Major impact of Trisomy 18 is a predisposition to congenital malformations (birth defects), increased infant mortality, and a developmental disability in older infants and children.

Birth Defects

The congenital malformations involve the medically and significant findings mentioned above as well as the presence of some internal or external birth defects. The most common and important is a defect of the heart. Over 90% of children with Trisomy 18 will have a congenital heart malformation; these include: ventricular septal defect – an opening between the lower chambers of the heart which prevents the heart from pumping blood correctly (a heart murmur is generally heard from this finding); atrial septal defect – an opening between the two upper chambers of the heart making it difficult for the heart to pump sufficient oxygen rich blood to body tissues (a heart murmur is often heard); patent ductus arteriosis – a heart defect involving the lack of closure of the channel that usually closes near the time of birth. This then is a persistence of the opening of this channel. In addition, children with Trisomy 18 usually have an alteration of one of the four heart valves. This combination is referred to as a ventricular septal defect with polyvalvular dysplasia. About 10% of children with Trisomy 18 will have a life threatening heart defect noted before or soon after birth. These include a double outlet right ventricle and hypoplastic left heart.

Medical Problems

The increased occurrence of infant mortality is related to a combination of factors but most importantly central apnea, where the brain does not give the message to breathe. Other complicating factors include difficulty feeding with aspiration with a predisposition to aspiration pneumonia, and under development of the lungs. The heart defects can play some role in this but are usually not the only cause of this increased mortality. Important and common birth defects seen in Trisomy 18:

* Congenital heart defects 90%
* Multiple joint contractures 10%
* spina bifida
* hearing loss >50%
* radial aplasia (underdevelopment or missing radial bone of forearm) 5-10%
* cleft lip 5-10%
* birth defects of the eye 10%

Common Disorders in

Trisomy 18

* feeding difficulties
* gastroesophageal reflux
* slow post natal growth
* apnea
* seizures
* kidney defects
* urinary tract infections
* developmental disability
* scoliosis


29 posted on 07/07/2006 8:10:49 PM PDT by Knitting A Conundrum (Act Justly, Love Mercy, and Walk Humbly With God Micah 6:8)
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To: richardtavor
Poor little baby. Prayers all around.
30 posted on 07/07/2006 8:14:26 PM PDT by fieldmarshaldj (Cheney X -- Destroying the Liberal Democrat Traitors By Any Means Necessary -- Ya Dig ? Sho 'Nuff.)
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To: richardtavor; Knitting A Conundrum

Prayers going up for baby Clare - what a pretty name.

The medical literature says that 5-10% of Trisomy-18 babies *do* live past 1 year old and some have lived to their teens. Miracles do happen.

Bless her family--this is heart-breaking.


31 posted on 07/07/2006 8:17:35 PM PDT by Rte66
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To: Rte66

Amen to that. Prayers for her and her poor parents...


32 posted on 07/07/2006 8:21:54 PM PDT by Knitting A Conundrum (Act Justly, Love Mercy, and Walk Humbly With God Micah 6:8)
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To: Knitting A Conundrum

Prayers have been sent up.


33 posted on 07/07/2006 8:24:31 PM PDT by NellieMae
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To: Knitting A Conundrum

Prayers have been sent up.


34 posted on 07/07/2006 8:24:34 PM PDT by NellieMae
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To: richardtavor

Praying for baby Clare and her family.


35 posted on 07/07/2006 8:24:54 PM PDT by CindyDawg
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To: brannon

Thanks, I agree--she probably won't make it. But my prayer is that G-d save her, and if not, to comfort the family and bring Shalom to them all. Reminds of a quote from Rabbi Tsvi G. Schur in his book "Illness and Crisis, Coping the Jewish Way", in which he quotes from Chaim Potak. 'As he looked on a dead bird in front of his house.' "Is it dead, Papa?" 'I was six and could not bring myself to look at it.' "Yes." I heard him say in a sad and distant way. "Why did he die?" "Everything that lives must die." "Everything?" "Yes." "You too, Papa? and Mama?" "Yes." "And me?" "Yes," he said. Then he added in Yiddish. "But may it be only after you live a long and good life, my Asher." I couldn't grasp it. I forced myself to look at the dead bird. Everything alive would one day be as still as that bird? "Why?" "That's the way the Ribbono Shel Olam (G-d) made his world, Asher." "Why?" "So life would be precious, Asher. Something that is yours forever is never precious." May this family find Shalom no matter what the will of G-d is..may he be merciful and heal this innocent child and cause her to be a testament to his Name....I give thanks to all of the prayers generated by the prayer warriors on this forum...


36 posted on 07/07/2006 8:28:41 PM PDT by richardtavor (Pray for the peace of Jerusalem in the name of the G-d of Jacob)
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To: richardtavor; 4woodenboats; 68-69TonkinGulfYatchClub; abletruth; Accountable One; Aeronaut; ...
Prayer ping.

Please post your replies to richardtavor


richardtavor, My prayers continue for this new baby and the baby's family. God's protection for Clare...God's comfort for Judy and the family. I pray for God's intervention in her care. I pray he gives her the will and the ability to survive 

Blessings,
trussell


If you want on/off my prayer ping list, please let me know. All requests happily honored.

37 posted on 07/07/2006 8:29:22 PM PDT by trussell (Work for God...the retirement benefits are awesome!)
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To: richardtavor
Prayers sent for this precious child and her parents.

Our first one was 6.5 weeks early, born at 4 lbs. 12 oz., and she just turned four today. Still, it's hard to imagine what little Clare's parents are going through. May the Lord carry all of you through this difficult time.

38 posted on 07/07/2006 8:31:23 PM PDT by inkling
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To: richardtavor

Prayers for this little baby.


39 posted on 07/07/2006 8:36:45 PM PDT by Colorado Buckeye (It's the culture stupid!)
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To: richardtavor

Prayers for little Clare and her family.


40 posted on 07/07/2006 8:46:22 PM PDT by barker
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To: richardtavor

More prayers for little Clare.


41 posted on 07/07/2006 8:52:11 PM PDT by NonValueAdded ("I'm all in favor of a dignified retirement: Why not try it on Kerry as a pilot program?" M. Steyn)
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To: richardtavor

Prayers go out for little Clare and your family.

This is heartbreaking news. I'm so sorry that you and your family are going through this. I pray that God is with little Clare during this time and that He will give wisdom to the doctors. May He give your family mercy and peace.


42 posted on 07/07/2006 8:56:44 PM PDT by Evie Munchkin (Democrats - lovers of death and taxes)
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To: richardtavor


Dear Lord,
Please Embrace this Dear Child and her Family in Your Bright Light of Grace and Wellness.Please give them all the Strength they need to overcome this difficult time.THANK YOU LORD, Amen.


43 posted on 07/07/2006 8:58:04 PM PDT by patriciamary
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To: trussell

Put me on your list, please...


44 posted on 07/07/2006 9:14:49 PM PDT by richardtavor (Pray for the peace of Jerusalem in the name of the G-d of Jacob)
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To: richardtavor
Prayers up Fellow FReeper for baby Claire. My 9 week old was born 9 weeks early and our family is praying for you.

Stay strong in the Lord and know that He is good, beyond our comprehension.

45 posted on 07/07/2006 9:17:18 PM PDT by IllumiNaughtyByNature (My Pug is On Her War Footing (and moving to Texas!))
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To: richardtavor

Prayers offered!


46 posted on 07/07/2006 9:36:40 PM PDT by elk1
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To: richardtavor

Bigtime prayers for this little one!


47 posted on 07/07/2006 9:38:42 PM PDT by JennysCool (Roll out the Canarble Wagon!)
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To: richardtavor

Dear Lord, Dear Lord, I didn't want to stop here because I knew my heart would break. I should never dread shedding tears or feeling the pain of others. Forgive me Lord!

Dear Heavenly Father,

With over 45 million unwanted babies murdered it just doesn't seem fair for Clare who is loved and wanted to be facing such hardships. Dear Lord our hearts are burden for little Clare. I've read the posts and some stirs up doubt but I know that you have all power. Some make mock and ridicule but in this battle there is not room for doubt. I join all who's faith is strong and know your healing power, to ask Dear Lord, Please let us keep this one.

Please watch over Clare's family, keep them strong.

In Your Gracious Loving Name Jesus, Amen


48 posted on 07/07/2006 9:40:36 PM PDT by SoulSearching
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Comment #49 Removed by Moderator

To: richardtavor; Texas Termite; manna; Okies love Dubya 2; Fawnn; Harmless Teddy Bear; ...

Richard, I see that your questions regarding the disease that this precious child of G-d has....As hard as it is to watch this happening to Clare, NEVER forget that He holds her in the palm of His hand. He created her. He loves her.

And we all join you in fervent prayer for that miracle she so richly deserves.

Lord, please, hear our prayers....


50 posted on 07/07/2006 11:12:41 PM PDT by Bradís Gramma (Get right with God....eternity is a long time.....)
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