Skip to comments.Psych meds drove my son crazy
Posted on 05/19/2007 5:36:59 PM PDT by Scutter
This is a story with a hopeful ending. Lucky, even. But be forewarned, you have to get through a lot of hopeless, unlucky crap before you find it.
Here's how it all starts: My first-born son has autism.
Now that isn't hopeless or, in my opinion, unlucky. Autism isn't sick or crazy. It's rigid and routine, a little eccentric. Autism is multiplying columns of numbers easily while being unable to look anyone in the eyes; listening to only one band's music, and always in the same order, for a period of six weeks; refusing to eat anything orange. It's also being able to remember the exact date and time you ate a bison burger in Chamberlain, S.D., when you were 6. But there's a really charming side to all this, a wonderful tilted perspective on life that, if you're a parent of autism, you come quickly to enjoy.
I was a parent like this.
Until he was 17, my son was unique and funny and odd. He was difficult in some ways but incredibly easy in others. He washed the family's dishes precisely, went to bed at exactly the same time each night, and sorted our mail into careful piles. He did fairly well in school -- above average in math, a little below in social studies -- and spent his weekends playing tournament-level chess. He was a loner, but sweet and articulate and very close to his only brother.
Then junior year came. He met a girl, he went to a dance, he thought life was better. And for a night it was. Then the dance ended, the girl decided she was interested in someone else, and the boy became depressed.
Was this cause for alarm? I thought not. Teenage boys routinely get depressed over girls and fickle friends and school dances. It was painful, but I assumed it would blow over. When it didn't, after six months, I took him to a psychologist who recommended a psychiatrist who put him on a newfangled antidepressant she said would have the added benefit of controlling some of his obsessive tendencies, like stacking the dishes and sorting the mail.
I didn't want to control those things -- to me, these weren't symptoms, they were characteristics of my son. And I'd fought for 17 years to keep him drug-free. But the psychiatrist and the psychologist and several family members insisted: He'd become unhappy, his routines were getting in the way of his developing a social life. This pill, they said, would help him.
Instead, he gained 30 pounds and began to lose his mind.
It happened slowly, over a period of months. First his grades began to fall. There were some random episodes of violence -- nothing major, just an out-of-control moment here or there. A tendency to stand up from the dinner table, after a full meal, and walk to Arby's for a snack. Eerie giggles that seemed involuntary. A flat expression on his once-curious face.
Senior year, he started an after-school job at an auto parts factory but lost it when he couldn't keep up with even the elderly workers. He stopped speaking to his brother entirely and even hit him several times. He lost interest in music, computers and chess.
I talked all this over with his father, my ex-husband, who said, "Maybe he needs a man's attention. Let me give it a try."
So our now 18-year-old, autistic, depressed and quickly losing ground, moved across town, to live with his father in a small, quiet apartment. My ex worked odd shifts, so our son began wandering the city on foot, early in the morning and late into the night. He told his dad about how he had to fight the bad thoughts that were crowding in his head. And when he wasn't out walking, he slept a lot -- around two-thirds of his life, in fact -- despite the fact that he drank 12 to 15 cups of coffee a day.
Together, my ex-husband and I took our son to a highly respected neuropsychology clinic housed in a suburban office building. The doctors there even looked like bankers; they wore regular clothes and carried clipboards and fancy pens embossed with the names of drug companies, rather than stethoscopes.
After meeting our son twice, they conferred with the original psychiatrist (who, we discovered later, was employed by the same large healthcare conglomerate) and came up with an altogether new diagnosis. This wasn't autism at all, they told us, but "psychomotor slowing" -- a form of schizophrenia. Our son was just unlucky, they said sadly, the victim of two devastating neuro-behavioral disorders. Completely unrelated.
It was critical that we begin treating him immediately; they couldn't stress this strongly enough. We were given a prescription for a brand-new antipsychotic medication with the inspiring name Abilify that was direct-to-consumer advertised in Newsweek and Time magazine. It featured a woman gazing into an azure sky and copy promising the drug would work on the brain "like a thermostat to restore balance."
We were skeptical. But the experts were firm: He would continue to deteriorate if we didn't catch this now. Did we want our son to end up institutionalized? In jail? Sick to our stomachs and desperate, we gave him the drugs. Then he got much, much worse.
He stayed with me on weekends, and twice during the workweek he would come to my house for dinner. We would sit at the table -- my husband (his stepfather), his brother and sister and I -- but my once-reserved older son would only stand over us acting crazy. Humming, shifting foot to foot, screaming if anyone touched him or tried to move him to the side. Often, he would talk back to the people who were speaking to him inside his head, telling him to do things. He would not, however, say a word to us.
He wasn't eating meals. But he was eating -- constantly. After graduating from high school, during the period when he was still holding the voices at bay, he'd started a government job through a disability work program. I'd given him a car and helped him open a checking account during this period of lucidity. Now, he began stopping at fast food restaurants on his way home from work to consume nachos, burgers, brownies and lattes. He ate with his hands and wiped them on his clothes, which he'd quit washing. He stopped bathing altogether.
We discontinued the Abilify, tapering it off as directed. Two days after taking the final pill, he got out of bed at 2 p.m. and stood in one place for a solid hour. My husband had taken our daughter roller-skating; our younger son was at work. It was just me, alone with this 6-foot-3-inch man I'd given birth to but no longer knew. I put my hand on his back and tried to push him forward, toward his shoes. And he turned to look at me -- his eyes empty and cold -- then grabbed me by both arms and beat me until the neighbors heard me screaming and called 911.
You think you know what crazy is, but you don't. Not unless you've been there.
In the movies, it might be depicted as quaint or flat-out violent. But whichever way it goes -- Hannibal Lecter or the wacky old ladies of "Arsenic and Old Lace" -- crazy is portrayed as consistent, interesting, narratively coherent. Not so in life.
In reality, crazy is like war. It's tedious for long periods of time, until it turns around and is devastating. It's random, senseless, all-consuming, financially draining, destructive, ugly, sickening and gross.
It's standing in the front yard wearing nothing but torn underwear and trying to control the thoughts of people who drive by. It's saying yes to every question, no matter what the real answer. It's drinking compulsively, straight from the faucet, then spewing a stream of clear-water vomit like a geyser.
It's needing to be tracked down at 5 a.m. and being found, more often than not, at a 24-hour convenience store drinking free coffee and eating package after package of mini-doughnuts. It's getting escorted out by security guards after hanging out at Target for nine hours. It's standing directly in front of a childhood home and swaying until the people inside, the ones who now live in the house, call the cops.
For the people who live with crazy -- who love crazy -- it means answering the phone over and over to say, "Yes, I'm so sorry, where is he? Please don't do anything yet. I'm coming." It means never finishing a movie or a book or a television show. Never eating a meal in peace. Suggesting showers that won't be taken and changing shit-stained sheets and throwing away clothes that have become too soiled to wash clean. And it means going to bed each night with a queasy feeling that something is looming over you, left undone.
It's paying over and over: for the library books that were lost, the iPod that was worn in the shower, the high-priced vitamins and health foods, the therapies and lessons and groups that are supposed to help but never do. It's including crazy on every family outing even though you know how it's going to end because it's the least wrong thing to do in an equation that contains no right.
It's also watching people you once loved fade away. Answering their periodic phone calls, full of concern, all their questions about what you've done already and what you're planning to do now, which medications you've tried, why you haven't called the doctor they recommended, whether you've read "Dear Abby" today where a letter about something remotely similar appeared.
But it's knowing, too, that after the phone call, they'll be gone. You won't be asked to the next neighborhood get-together or family event. They're worried, yes, but they can't let their lives be interrupted by crazy. They have to maintain their own sanity and keep the chaos from mucking up their lives, even if that means letting you go, too.
And you understand, only you don't. Because you'd like to be done with crazy yourself. In fact, you hunger for it. A full night's sleep, a meal by candlelight, a midnight drive across town that doesn't include peering out windows, scanning the dark streets for a mammoth, curly-haired young man in a green sweat shirt carrying a Styrofoam cup of coffee who sways back and forth as he mutters strings of remembered conversations under his breath.
Sometimes you wish for these things so hard that you ask yourself, "How badly do you want this to be over? And what, exactly, are you willing to do to end it?" You hate crazy with all your heart. But the person underneath, you love. You still remember him as a tiny, big-eyed baby who liked to be wrapped tightly in a blanket, a cheerful toddler sitting high in the seat of a grocery cart chanting the word "asparagus." And you'll stop at nothing to find him and bring him back.
The thing is: You have no idea how.
- - - - - - - - - - - - We lived like this for as long as we could, then went back to the team of specialists with our story. Our son wasn't schizophrenic, we insisted. The medication they'd prescribed seemed to be harming him and our son was getting worse. But they told us we were wrong.
A second psychiatrist was called in. "Your son is definitely psychotic," she said, using the violence as evidence that we were wrong to have stopped giving him the drug. It was possible, however, that he needed something stronger. So this time, she prescribed Abilify's big, hulking chemical cousin: a pill with a no-nonsense name that makes it sound like a building material of some kind. Geodon.
"I'm sure you thought you were doing the right thing," the psychiatrist said in a stern voice. "But your son is very sick, he needs treatment. You absolutely must give him this medication. It would be cruel not to." And then she left.
That's the day I decided I was a terrible mother who deserved to be beaten. Out of fear and shame and denial, I'd withheld a medication my child needed as he would have needed penicillin were he suffering from an infection. "Go ahead," I told my ex-husband, "give him the drug. Let's hope this one works."
That's when things got really bad.
Our son went from unpredictable to entirely random. He would arise to brew and drink an entire pot of coffee at 3 a.m. He would call us, but be able to say nothing for 15 minutes except, "Uh, please..." He began stalking the girl from the dance, going to her workplace, standing in one place for hours, and staring at her. Ultimately, every officer in our town's small police department learned his name.
After two weeks, psychiatrist be damned, we discontinued the Geodon, too. Things couldn't get worse, we told ourselves. But we were wrong.
Our son, the former chess champion and 1980s music buff, stopped responding to language altogether. He could not follow directions such as: "Put on some pants" or "Get in the car." And he began walking away from everywhere. From home, from work. Often in the middle of the night.
My ex-husband -- newly married to a very understanding woman and blissful for all of about seven minutes -- never slept because he was working day and night to keep track of our son. I didn't sleep out of solidarity. Also due to worry and grief.
This turned out to be a good thing, however, because I was up all night, for many nights in a row, with nothing better to do than search online.
The first thing I found was a list of "infrequent" side effects of the very first drug, the antidepressant he'd been given nearly two years before. Among these: auditory hallucinations, narcolepsy and obesity.
The second was an obscure article about a boy who sounded exactly like my son: a high-functioning young man with Asperger's syndrome who'd suddenly become nonfunctional at the age of 17 and was diagnosed with something called autistic catatonia.
It was 3 a.m. and I was on the couch under a blanket with my dying laptop, alone in the silence of a sleeping house. That's when I Googled "autistic catatonia" and hit the mother lode. There were dozens of stories, coming from countries all over the world, and each one described in wretched detail the previous year of my son's life: the slowing, the disintegration, the delusions and insomnia and explosive anger.
In addition, they all warned -- each and every journal article, white paper and scientific treatise -- that the one thing practitioners should never do is prescribe antipsychotic medications, such as Abilify and Geodon, because they will make the symptoms of autistic catatonia much worse. And it might cause permanent damage.
The third thing I found was a Web site that described neuroleptic malignant syndrome, a slow poisoning by prescription that lasts (and this is the part that caught my attention) even after the drug is stopped.
Finally, believe it or not, we've reached the hopeful, lucky part. Only I didn't know that yet.
I was crazed. Throughout the early morning hours, I e-mailed people. The retired doctor from Stony Brook, N.Y., who had authored original work on autistic catatonia; a therapist from the Netherlands who claimed to have a new method for treating it; researchers at our local university. Then I went to bed and slept fitfully for exactly one hour and 40 minutes.
When I awoke, at 7:30, my e-mail box was full. The most helpful response came from the gentleman once of Stony Brook, now professor emeritus of both psychiatry and neurology, a genuine mensch, living on Long Island with his wife. "Dear Mrs. Bauer," he'd written at 6:48 a.m., "I know of no one in Minneapolis who understands the connection between autism and catatonia. But the clinicians at Mayo are very knowledgeable. Would you like me to make a referral?" Other messages simply advised me to seek medical attention for my son immediately, to flush the medications from his system. "It sounds as if your son is, indeed, suffering from autistic catatonia," one doctor wrote. "But I believe most of the symptoms you describe are related to the inappropriate use of neuroleptics."
How lucky can you get? Not only did the world's top expert reach across electronic airspace to help diagnose and refer a stranger, but we happen to live just one hour and 15 minutes from Mayo Clinic, one of three places on earth where autistic catatonia is truly understood. And it's that rare healthcare organization where doctors are not allowed to take kickbacks from the drug companies. But I'm getting ahead of myself.
On April 30, my ex-husband and his wife put our son in the back seat of their car and drove like hell the 72 miles to Rochester, Minn. Exhausted after the 90-minute trip, the three-hour wait to check in, the half-year of tracking a drug-addled boy, they walked across the street to a hotel room after checking him into the hospital and had their first uninterrupted night's sleep in weeks.
We all did. Secure in the knowledge that the boy who'd been wandering for nearly two years was finally locked up and safe, my husband and I, too, slept the way starving people eat.
Then we drove to Rochester to meet with the nine practitioners who'd been called in to assess our son. It was an interesting case, they told us -- and instructive. Within three days, they'd performed a series of medical tests and evaluations, determining that our son was neither schizophrenic nor psychotic. He was autistic, exhausted, improperly medicated, borderline diabetic, and simply stuck. It would take them perhaps a month to detox his body of all the drugs and treat the underlying catatonia that had dogged him for more than a year.
"This occurs in about 15 percent of all young people with autism," the team lead told us. "We don't know yet why it happens, but we can treat it."
And then they did. Magically, it seemed. On the morning after they began their regimen -- a combination of therapies that they orchestrated like a carefully choreographed dance -- our son awoke and stretched, clear-eyed, to ask us if we'd like to play a game of hearts. And after a slightly shaky start, he shot the moon, gathering all the tricks with controlled sweeps of his right hand, flashing us a shy but satisfied smile.
Five days later, the New York Times ran a front-page story about psychiatrists in Minnesota who were collecting money from drug manufacturers for prescribing atypical antipsychotics, including Abilify and Geodon. According to the Times, "Atypicals have side effects that are not easy to predict in any one patient. These include rapid weight gain and blood sugar problems, both risk factors for diabetes; disfiguring tics, dystonia and in rare cases heart attacks and sudden death in the elderly."
Side effects like our son's -- almost certainly caused by a unique combination of the drugs and autistic catatonia -- were not explicitly cited. These facts, however, were:
"In Minnesota, psychiatrists collected more money from drug makers from 2000 to 2005 than doctors in any other specialty," the Times reported. "Total payments to individual psychiatrists ranged from $51 to more than $689,000, with a median of $1,750. Since the records are incomplete, these figures probably underestimate doctors' actual incomes."
By this time, we four parents had resumed our life in Minneapolis and were trading visiting days.
After work on the night the Times article came out, my husband and I got on his motorcycle, puttered through rush hour traffic, then sped down Highway 52, arriving after the dinner hour to find our son sitting at a table, playing chess with a nurse. She was hunched over the board, muttering; he was lounging in his chair, leaning back to watch television while he waited for her to make her move. There was a small crowd gathered around watching.
"He's killing her!" a patient named Richard crowed. "He beat her the first time in seven moves and the second time in four."
The nurse raised her head and grimaced.
"Did you tell her you used to be a tournament player?" I asked, bending to kiss my son's woolly hair.
"Oh no, I guess I forgot," he said vaguely and slid his eyes at me in a way I recognized from years ago, that quirky boy from long ago.
After the visit, riding home through rolling farmland and a scarlet sunset that was cracked with gold, I counted the ways we were lucky. The doctors at Mayo had assured us that our son's prognosis was very good: Even after the treatment was done, he probably would continue to improve and regain most of the ground he'd lost by summer's end. My son's supervisor -- a wise and gentle woman who'd never flinched, even when he was at his craziest -- had called to say she was holding his job for him, maintaining his health insurance, and hoping for his swift recovery. My husband and my former husband's new wife had parented stalwartly through the very worst of times.
And there was that one moment, as we were leaving, when my son had put his hand on my arm and told me he missed us. He also missed going to Starbucks and walking in the sunshine and he wanted, more than anything, to go outside for just an hour or so. "You could just lead me out of here," he'd said, his face sober as a Lutheran minister's. "If I walked past the desk with you, maybe they wouldn't even see." I looked straight up at him, this bearded man who, at 250 pounds is exactly twice my size, and started to tell him I thought the nurses probably would notice. But he reached out and touched my arm, gently, wrapping his fingers all the way around. "I would only go out for a little while, you know. And later, I could come back. Don't worry, Mom. I can find my way."
Although I think there is a lot of reason to doubt the safety of such drugs and to be concerned that they are over prescribed, I also question the validity of many of these anachdotal stories.
In a way its like saying that heart medicine is killing people because so many people on heart medicine get worse and die.
I keep reading stories about anti-depresent medicine causing someone to commit suicide, but the clinicly depressed are more likely to commit suicide in the first place.
Indeed ... and anecdotal evidence in a case where there are already serious problems is hardly the example upon which to build a regulatory regime.
Brought tears to my eyes. Thanks for posting.
On the other hand......there are those that couldn’t lead any kind of life without those drugs. I just finished a rotation at our local State Hospital and was amazed at how many schizophrenics snapped back to reality with their meds. They keep them for 90 days to make sure there aren’t bad side effects....then send most to halfway houses to be monitored for various lengths of time, afterward. The biggest problem is compliance by the patient ...once they get out. They feel alright and don’t think they need to take the meds... and subsequently spin out of control. Very sad.
I have a 10 year old daughter with brain damage. She’s different (speech problems, auditory problems, temper problems), but she’s also doing great. She should be very disabled in a wheelchair, but we just went to a track meet that she was in. She didn’t do great but she did it.
We’ve had doctor’s mention drugs to us because of her temper, but I have hesitated. So far, discipline and age has helped.
At first doctors didn’t think she had brain damage, but I knew something was wrong. Then when they saw how much brain damage she actually had, they were surprised that she could even walk.
Since they know so little about her brain the way it is, how can they possibly give her drugs. I don’t think that most of them know what drugs would do to her.
I hope she can maintain herself as she gets older.
(She’s also going on her first over-night trip without me on Monday, and I’m so worried about how she is going to do.)
“In reality, crazy is like war. It’s tedious for long periods of time, until it turns around and is devastating. It’s random, senseless, all-consuming, financially draining, destructive, ugly, sickening and gross.”
I have lived with crzy and I can say that this is a vey accurate description.
This is a very well written article. I’m very happy these people were able to get good help for their son. Mental illness is the worst.
thanks for posing this.
This struck me:
“He told his dad about how he had to fight the bad thoughts that were crowding in his head. And when he wasn’t out walking, he slept a lot.”
My neighbor was a bit depressed. She didn’t have autisim just going through some hard times. Her doctor recommended an antidepressant. She reluctantly filled it and read ALL the fine print - especially the side effects. Sure enough after an hour of taking it she had this thought that wouldn’t go away. She described as like having a pie in the oven and needing to get up and turn the oven off to avoid burning the pie. The thing is, her thought was not about a burning pie but the word SUICIDE kept creeping into her mind.
She talked to herself till the drug wore off. She was strong enough to fight it and knew it didn’t agree with her chemistry. I forget it if was Zoloft or Prozac ... one of the popular ones doctors push like candy. Boy, did she let her doctor know that under NO CIRMCUMSRANCES did she want any more of her “antidepressant drugs.
“In Minnesota, psychiatrists collected more money from drug makers from 2000 to 2005 than doctors in any other specialty,” the Times reported. “Total payments to individual psychiatrists ranged from $51 to more than $689,000, with a median of $1,750. Since the records are incomplete, these figures probably underestimate doctors’ actual incomes.”
It’s not just psychiatrists that push this shit. GP’s and others push this shit like crazy. It messes up your mind. It plays with the chemicals in your brain.
All I can say is that it is NO WONDER that people are OUT OF CONTROL. Notice that every single shooter in a high school shoot out had or was on an “antidepressant”.
One doctor literally scared the crap out of her and signed her 15 year old daughter for ELECTRIC SHOCK TREATMENTS and ZOLOFT. He readily admitted that he didn’t know the effect of a developing brain but this would stop her from suicidal thoughts. LOL!
She’s NEVER been the same since. She’s very screwed up. She’s in college now, majoring in “art”.
Yes but misdiagnosis is also common. Does that mean avoid doctors? I would say if something doesn’t work, get a second opinion or three or however many to get it right.
I’m like Michael Savage. I believe a lot of the hacks in DC are on psych meds and other meds that alter their mind in unhealthy ways. I’m dead serious. Arlen Spector would be one. McCain too
I tried Zoloft with instant bad effects from one pill - extreme agitation, bowels turned to water. On the other hand, Paxil worked wonderfully.
I wonder what meds this freak was on? Too many monsters out there lately.
‘...Notice that every single shooter in a high school shoot out had or was on an antidepressant...’
More specifically, an SSRI (such as Paxil, Zoloft, Prozac). Suicidal and homicidal “ideation” is a side-effect of these drugs, but is particularly pronounced in young men. Research has yet to explain why, it would seem that hormones are involved, as brain chemistry and hormone production obviously are inter-related (as is blood sugar).
Yet most doctors don’t give parents any warning signs to look for. Anyone on a drug like this, should be talking daily on the phone to the psychiatrist and answering a litany of questions about how they are feeling, eating, thinking, etc, so the indicators are caught before the person acts out the suicidal/homicidal promptings.
Often the diagnosis is not correct to begin with. Someone comes into the doctor “depressed” but really has bipolar, shizophrenia, or something else, which SSRI’s greatly make worse, such as triggering mania. Or they don’t have the type of depression that can be helped with SSRI’s to begin with.
Most doctors, especially general practitioners, do not have the knowledge or training to diagnose or treat brain disorders or mood disorders. But somehow instead of making referrals, they prescribe these powerful drugs. If they get financial ‘kick-backs’ that could explain why, and seems quite unethical to me.
Thank you for posting this article. I have an 18 y.o. son with Asperger’s syndrome who is struggling with sleepiness and a loss of will and focus. It’s very hard to tell how much is a neurological problem and how much is chosen behavior, some of both I think. But you have given me some things to research.
Unfortunately, many people reading this will think all psych meds will make patients “crazy”. This case involves a misdiagnosis of a rare condition.
This one is getting bookmarked. Thanks for pinging me.
Personally, I wouldn’t take ANY of them.
If I get “depressed” I talk to God, my spouse or someone that I know cares about me. I have yet to meet anyone that really needed this crap. The ugly truth is, drum roll, something is troubling their soul. A pill is just a bandage. It’s artificial “relief” that causes chemical changes in your brain that are NOT good.
The Blasted Shrinks needed to pick up a PDR and read a Medical Journal once in a while. SEROTONIN SYNDROME!! A chemical of which under normal conditions 98% located in the stomach. It promotes digestion. If the serotonin migrates from the stomach to the brain it is basically the same as giving someone LSD.
My family went through our own Hell Week thanks to some doctors who prescribed SSRI's to a patient with severe neurological problems. They did this not once mind you but twice.
Some long ago discussions here in FR and prayer led me to do a search on the meds +adverse reactions. The medications were Trazadone and Zoloft. Ironically the person these were given to was being treated for PTSD from a previous medication reaction a dentist prescribed for a simple extraction.
Shrinks are bad for not wanting to listen to patients nor doing good medical histories to determine other more likely causes of disorders like anxiety etc.
Shrinks fail to educate themselves, their patients, and families to the possibilities of severe adverse reaction. A severe adverse reaction to antidepressants can mean death. Serotonin Syndrome is nothing to play around withand saddly the doctors mistake the rreaction for pyschotic illnesses and make matters worse by increasing the level of the offending medication.
I am also one who can not take these type of medications due to neurological sensory impairment as well as my wife who is a quadriplegic whom this happened to. I about flipped out on it but I stopped taking it and demanded the doctors use Xanax. They cringe at the mention of that medication yet do not bat an eye giving SSRI's. No one in medical history has developed Serotonin Syndrome caused by Benzo's as they are the counter acting medication to such a reaction.
Doctors don’t fully understand what they do to the brain. We are learning the hard way through suicides and chemically altered moods that are not addressing the ROOT problem for ANY depression.
That is true, that is good advice. But that is what the people in this article did do...kept searching until they found the Mayo Clinic could help. But how many depressed or psychotic people (especially if they are alone and don’t have “four parents” to help them?) have the time, resources or knowledge to do that? And even while one is searching for the “right” treatment, look at the suffering caused in the meantime by the arrogance of doctors who insisted they knew what was best.
I feel much of the responsibility of patient care is not taken on adequately by their doctors. But what is the solution?
I have a relative who absolutely must take anti-psychotic medication, but when her doctor put her on Abilify for a short time, it was a big disaster.
A lot of you people hear a story about a patient who had a side effect taking a medication. Do these meds have some side effects, sure, but many patients lives are greatly improved. Until you see patients with schizophrenia, you cannot believe their lives are devastated.
A little bit of knowledge is scary. Look at all the patients with depression who live normal lives after being so depressed they were suicidal, are put on an antidepressant, and improve. Americans expect perfection from medications and everything and when a small number of patients have a side effect, the media paints a broad picture and speak to an idiot with virtually no knowledge about the subject and make claims that these meds are dangerous. If you do not want to take a medication, don’t, but don’t scare others away from meds that can help them live normal lives.
Prozac saved my life in college. It saved my marriage a few years later.
The fact is that sometimes the chemicals in your brain can be out of whack, not unlike insulin in your body. No one blames the diabetic for some sin that is bothering them, yet so many assume that depression is caused by some unresolved sin. I am certain that in many case in this country, simply making yourself right with God IS what the patient needs, but certainly not in all cases.
OK BAA, what are the root cause of depression. It is a chemical imbalance in many patients, How would you treat that ?
My problem was that I was sleeping to much and feeling tired and fatigued.
Doc thought I was depressed, me arguing saying I wasn't depressed was actually taken as a sign of depression.
I refused to go meds, and went to another doctor who actually did work, and figured that I just had a virus, needed some rest, relaxation and some anti-biotics, they worked and I was fine.
It amazed me and my parents how quick the first doctor was to just push some pills down my throat for something I didn't even have.
My dad teaches and researches neurophysiology at Emory University. If I’ve learned one thing from him, it’s that the human brain is the most complex machine in the world. These drugs are large, clumsy devices, that can change the overall chemical balance in the brain. They are not subtle instruments. They may do wonders for a patient, but they might just as likely cause problems.
I’m not suggesting that all of these drugs are bad, or that people should ignore the advice of physicians. I think the moral of the story is not just to blindly accept the advice of a physician. Get a second, or third, opinion; research it for yourself. The Internet is a great tool that can be used to reach out to others who may have the same problem. Do your homework.
I can agree with everything you say. The statistic generally accepted now, for depression (not more serious “mental” disorders), is that 65% are helped by medication. Some argue 60%, some say as much as 75%, so yes, you are right these meds can improve or even save lives.
HOWEVER, the other 35% of people who are not helped by meds are still to be considered.
Also, the fact that many people are helped does not mean that there are not extremely dangerous side-effects. The problem is when doctors do not inform patients of the side-effects, or monitor them closely enough to prevent tragedies.
I am not anti-medication. I’m against the casual and unprofessional way it’s administered.
I think these medications should only be used as a last resort with intensive supervision. I know that is not a very profitable way to think, but I’m sure that the drug companies and powers that be are looking out for the people’s best interest.
(Shes also going on her first over-night trip without me on Monday, and Im so worried about how she is going to do.)It sounds like an important step in her development. I hope everything goes well.
The brain is an amazing thing, and even though we can't replace dead neurons, it does have the ability, over time to form new connections and in some cases regain lost function. It sounds like she still has the most important thing, which is a loving parent.
Studies have shown that the elderly rate of suicides are up.
Four years ago we lost a close family member to suicide, she was on a antidepressant. Six months after her passing a black box warning came out for children up to 18 could become suicidal on these drugs. Two weeks ago they raised the black box warning to age 24.
The warning should be for all ages, these drugs send the wrong signals to the brain for some people no matter what the age.
A couple of yeas ago parents of college kids who were committing suicide went before Congress and told their stories how their young adult children were not suicidal before taking these drugs. I think that is why the age was raised.
Too many in Congress get money from these drug companies.
Check this out:
With the oxycoton story this past week,the company knowingly sold the drug since 1995 without releasing how addictive it was, the company was fined 643 million and the head of the company pleaded guilty to a misdemeanor. What a joke.......
Merck makes 4 billion a year on one anti-depressant, effexor.
Here is another reason why anit-depressants shouldn't be prescibed like candy.
Can’t someone put 2 and 2 together.
Oh yes, and Andrea Yates was on 2 different anti-depressants, one being effexor.
I believe that the poor woman did not know what she was doing. So sad.
My wife had some issues with reacting in the opposite direction of what an anti-depressant is supposed to correct. She has what I guess they call and chemical imbalance.
Before we got together, she was a wild college chick who was spiraling out of control. She ended up dropping out, losing her scholarship and going from one bad relationship to another. Ultimately ending up with an attempt on her life.
After I met her, she thought what was missing was a person who cared for her like I do. Unfortunately, she started becoming volatile again. Lows and highs were extreme.
I decided to sit her down and tell her that her chemical imbalance is not anything to fight. Just like people with asthma, heart disease or diabetes, it must be treated to continue a normal life. I told her that its important because its not just her its effecting but me and our kids.
She agreed to seek some more help and to find a medication that works. We saw many people have issues with various medications as they all arent the same.
We watched for any warning signs that would indicate adverse effects and stop it and try another drug.
We found that wellbutrin was the key to her lock. It works like a charm and has kept her within that high-low range that you want.
I wouldnt be so quick to slam all anti-depressants. Some work better than others and its all dependant on a good idea of all side effects. The main thing is to educate yourself about all medications.
Well, maybe it was the meds. But a lot of psychosis starts in young adults (and late teens)—
My neighbor was a bit depressed. She didnt have autisim just going through some hard times. Her doctor recommended an antidepressant. She reluctantly filled it and read ALL the fine print - especially the side effects. Sure enough after an hour of taking it she had this thought that wouldnt go away. She described as like having a pie in the oven and needing to get up and turn the oven off to avoid burning the pie. The thing is, her thought was not about a burning pie but the word SUICIDE kept creeping into her mind.A few years ago, before moving to a different county, I was a volunteer firefighter. One night I responded, along with the police, to a report of a car in a ditch in a field. The car was still running, but the driver wasn't in the vehicle. When we looked we found clothes strewn about in a path away from the vehicle. Eventually we heard a rustling in some bushes. The Deputy drew his sidearm and issued a verbal command for the person to come out with hands up. Out walks this stark naked young man. The guy was completely disoriented and (at least claimed he) had no idea how he got there. And no, there wasn't a naked young woman hiding in the bushes nearby.
So this guy was on one of those anti-depressant medications, and had recently gone off of it. I forget which one it is, but I remember one of the paramedics telling me that strange behavior was not uncommon with this particular medication -- particularly if you were on it and suddenly stopped.
I'm not saying these drugs aren't without their valid uses, just that they are a very powerful medication and that we don't really have a good picture how they will impact every individual, especially in a non-clinical setting.
I have friend whose bi-polar son is on Abilify and it has been a life saver.
My bi-polar son is on something less powerful, which we hope will continue to control his problem.
I fired 5 of my own shrinks for insisting I go the antidepressant route. Even Buspar made me sick. I am diagnosed for disability purposes with General Anxiety Disorder. However I am non phobic and do not panic like many do. I become agitated instead to certain audio and visual situations.
I found a second hand book after about my second year into it called Phobia Free by Harold Levinson MD. The more I read it the more I saw my symptoms and came to realize that my childhood sinus allergies had wrecked my sensory processing system including my Inner Ear. As a result I have what is called Myloclonic Seizures from offending sounds and certain visual stimulation. I have severe upper torso spasms when it hits lasting a few seconds duration and as many as a dozen in a few minutes time. SSRI's only overloaded my already overtaxed damaged processing system resulting in more anxiety.
I found a doctor who had seen it and he put me on a low maintenance dosage of Xanax four times a day. It dulls the sensory impulses somewhat and helps control the seizure activity as well. I've taken it safely for 13 years. Sometimes you have to put your foot down with doctors. SSRI's and most antidepressants should be given to persons with neurological disorders very carefully if at all. Usually the neurological disorder is the actual underlying cause of the presumed mental disorder.
Is the brain not a human organ just as capable to be inflicted with a disorder that can not be prayed away? My dad has diabetes, is an infliction, should he simply pray it away? Sometimes you just have to accept the fact that the brain is a complex organ just as capable to possess a disorder as any other organ.
If you have asthma, would you not use an inhaler? If you have a migraine, do you not take a pain reliever?
Great that it worked out for your wife. But I still maintain many of those DC politicos we see on TV are improperly medicated. Furthermore that some non psychological medications are distorting their thought process
More specifically, an SSRI (such as Paxil, Zoloft, Prozac). Suicidal and homicidal ideation is a side-effect of these drugs, but is particularly pronounced in young men. Research has yet to explain why, it would seem that hormones are involved, as brain chemistry and hormone production obviously are inter-related (as is blood sugar).These drugs work by (over time) raising the level of serotonin in the brain. One thing I remember reading when these drugs first came out, was that if you analyzed a group of apes, the dominant male would have an elevated level of serotonin in his brain.
I had two coworkers who went on this stuff when it first came out. BOTH of them had different personalities on it than off it. One of them strikingly so. I'm not talking about they were depressed and suddenly became undepressed; I'm talking about someone who seemed reasonably balanced before became very gregarious, outgoing, and in some cases took what I thought unwarranted risks.
Suicide rates have been slowly declining since the early 1990s.
And, amazingly, enough, people were killing themselves before there were any psychiatric drugs at all.
What was your daughter's original diagnosis?
I understand your frustration and I’ve studied Seratonin Syndrome. I’m not defending the drug companies OR the incompetent Psych Dr’s. that prescribe at random. (there are plenty of them) I’m just saying that there are many people who have benefited from the meds when used carefully and selectively.
>>Often the diagnosis is not correct to begin with. Someone comes into the doctor depressed but really has bipolar, shizophrenia, or something else, which SSRIs greatly make worse, such as triggering mania. Or they dont have the type of depression that can be helped with SSRIs to begin with.<<
Or they don’t have depression at all, which was my case.
What makes me absolutely frothing livid is that in my personal experience, from the age of 15-23, with treatment from multiple doctors at multiple facilities is that the answer was always medication.
- No suggestion of hormone or thyroid tests
- No examination of behavior patterns
- No suggestions for exercise or diet
- No comparison of drug interactions (when the combination of SSRI’s and birth control pills made me stark raving mad, the answer was yet anoter pill, not discontinuing one of the other two)
And worst of all:
- No thought to how damaging a frivolous diagnosis and prescription can be to someone’s life.
My friend had a son that was born brain injured. She took him through the program at The Institutes for The Achievement of Human Potential. He graduated with honors from HS and college and is doing very well.
The institute is not without its critics but they do have a website and Wikipedia has information on them as well.
I am a school nurse and I love my special needs kids. It is always exciting to see the changes they make throughout the year. Our school is blessed with some talented teachers and aids so our kids do really well. We also have parents very involved with their kids and that makes a huge difference. God Bless you and your family....