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Fighting the curse of the face-eating tumour
The Telegraph ^ | 12/6/2007 | Matthew Moore

Posted on 12/05/2007 8:35:17 PM PST by bruinbirdman

A Jehovah's Witness who for decades refused all surgery on his horrific facial disfigurement has been given hope by a British doctor and new medical technology. Unwilling to accept a blood transfusion, Jose Mestre has allowed the bloody tumour that first appeared on his lip in adolescence to obliterate almost all of his face.


Jose Mestre aged 14, when his tumour was still small (left), and as he is now

Now 15 inches long and weighing 12 pounds, it has blinded him in one eye and made eating a daily ordeal. As it begins to block his airways, doctors fear his life could be in danger.

But now one of Britain's leading facial surgeons has proposed treating Jose, 51, by employing ultrasound waves to coagulate the blood before the operation.

This should allow his growths to be removed without risk of heavy bleeding – satisfying his religious prohibition on blood transfusions that has so far hampered his search for treatment.

Jose was examined by two doctors in Britain - Loshan Kangesu, consultant plastic surgeon at Broomfield Hospital, and Dr Iain Hutchison of St Bartholomew's in London.

Dr Hutchison, who also runs the Saving Faces surgery research charity, is optimistic that a single operation with a harmonic scalpel could have a dramatic affect on Jose's features.

"I think we can remove a large proportion of the lesions – around 80 per cent," he said. "We would then have to deal with the underlying nose, lip and tongue disfigurement."

"I have never seen a vascular malformity as bad," he added.

Jose's condition, haemangioma, stems from abnormalities in the capillaries and veins in his face. In effect, what should be a river carrying blood back to his heart has turned into a lake, which has now expanded to obliterate the rest of his features.

For Jose, surgery would offer an escape from the routine he has developed to help deal with his affliction.

Every day he sets off from his home in a suburb of Lisbon for Rossio Square, one of the city's main plazas, where he sits out the afternoon enduring the stares and questions of strangers. He has become something of a local celebrity, a notoriety he does not always seem to resent.


Telegraph TV: Jose Mestre and his sister Guida in London

Unable to find work or a girlfriend, he has been supported by his siblings since the death of his mother, with whom he was very close and from whom he took his religious beliefs.

"It's very difficult to find out the truth about why he hasn't been treated in the past," said Rob Farquhar, producer of the Discovery Channel documentary which brought Jose to Britain in search of a cure.

Financial pressures, mis-diagnoses and the limitations of the Portuguese health system all played a role, but Jose's own complicated attitude to his condition has not helped.

Unsuccessful and unhappy visits to Germany and Spain in search of medical care in his youth have left him with a distrust of doctors. This, combined with his loyalty to his mother's faith, and concerns about life without the mask to which he has become accustomed, appear to have instilled Jose with a sullen fatalism about his condition.

His inertia has infuriated his close family, who do not share Jose's religious beliefs. Jose himself, although a Jehovah's Witness, does not attend any church.

During the consultation with Dr Hutchison in London, Jose's sister Guida reacted with exasperation her brother's initial reluctance to discuss the offer of a transfusion-free operation.

"Die alone, not with me. For me, finished," she cried, in dramatic footage to be broadcast for the first time this week. Guida shoulders much of the burden for caring for Jose.


Jose Mestre's siblings do not share his religious beliefs.


TOPICS: Business/Economy; Culture/Society; Miscellaneous; News/Current Events
KEYWORDS: bloodtransfusions; hemangioma; jehovahswitness; jehovahswitnesses; josemestre

1 posted on 12/05/2007 8:35:19 PM PST by bruinbirdman
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To: bruinbirdman

Um, he couldn’t have donated his own blood for a while? IT wouldn’t be as if they’re transfusing someone else’s blood into him.


2 posted on 12/05/2007 8:38:36 PM PST by metmom (Welfare was never meant to be a career choice.)
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To: bruinbirdman

I’m sorry, but I have a hard time believe that God wanted his face to be disfigured like that. The poor man.


3 posted on 12/05/2007 8:40:03 PM PST by Shadow44
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To: metmom

I don’t know the finer points of Jehovah’s Witness theology, but that certainly makes sense to me.


4 posted on 12/05/2007 8:44:01 PM PST by Huntress (The essence of war is violence. Moderation in war is imbecility.--Admiral Sir John Arbuthnot Fisher)
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To: bruinbirdman

prayer bump


5 posted on 12/05/2007 8:47:53 PM PST by Tribune7 (Dems want to rob from the poor to give to the rich)
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To: bruinbirdman

What the hell?


6 posted on 12/05/2007 8:48:17 PM PST by kinoxi
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To: bruinbirdman

I don’t like it when I see a zit on my face. This is hard to look at.


7 posted on 12/05/2007 8:49:26 PM PST by liege
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To: Huntress

I’d think that he’d have been able to donate enough blood in a relatively shot amount of time to cover the blood loss when it was initially noticed and relatively small.


8 posted on 12/05/2007 8:53:14 PM PST by metmom (Welfare was never meant to be a career choice.)
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To: Huntress
I don’t know the finer points either, but I do remember my mother telling me that she had an aunt that broke her hip and died a slow painful death lying on a couch because the beliefs would not allow her to seek medical attention (this was back in the ‘40s).
9 posted on 12/05/2007 8:53:39 PM PST by 2111USMC
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To: bruinbirdman

I hate to ask the obvious, but how can he breathe, see, eat brush his teeth or blow his nose? He should get the surgery and renounce thaty religion Jehovah’s Witness is a crock claiming to be Christian.


10 posted on 12/05/2007 8:57:52 PM PST by Blue Highway
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To: bruinbirdman

Damn!

Just Damn!


11 posted on 12/05/2007 9:01:05 PM PST by Grizzled Bear ("Does not play well with others.")
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To: Grizzled Bear
DAY-um....
12 posted on 12/05/2007 9:50:00 PM PST by clintonh8r
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To: clintonh8r

DAY-um....


Whatever! That is some Sheet!


13 posted on 12/05/2007 9:53:47 PM PST by Grizzled Bear ("Does not play well with others.")
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To: bruinbirdman

Its a good thing he did not get a blood transfusion or God would surely smite him.....but then again maybe this is what getting smited by God looks like


14 posted on 12/05/2007 9:58:52 PM PST by woofie
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To: TigersEye; yorkie

Hmmm this is sure nasty looking & I hope they can help this guy asap. Prayers that they can.


15 posted on 12/05/2007 10:25:34 PM PST by pandoraou812 ( Its NOT for the good of the children! Its BS along with bending over for Muslim's demands)
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To: pandoraou812

I’ll pray right along with you, for this poor soul. Bless his heart!


16 posted on 12/05/2007 10:36:16 PM PST by yorkie
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To: bruinbirdman

It’s hard to believe that any faith would call it a sin to accept medical help in dealing with such a condition. Cults steeped in legalism do much harm to their followers.


17 posted on 12/06/2007 12:19:37 AM PST by trailboss800
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To: metmom
That's right. A transfusion involves a donor and a recipient. If his own blood were stored and used, that would be a refusion.
18 posted on 12/06/2007 1:12:30 AM PST by USFRIENDINVICTORIA
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To: bruinbirdman

Where in the Bible does it state that it is wrong to have a transfusion? Because I’ve never come across it.


19 posted on 12/06/2007 1:33:10 AM PST by spetznaz (Nuclear-tipped Ballistic Missiles: The Ultimate Phallic Symbol)
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To: bruinbirdman
I never realized people would be willing to suffer so horrifically for beliefs that have no basis at all in Scripture.

Unbelievable.

20 posted on 12/06/2007 1:45:16 AM PST by GiovannaNicoletta
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To: metmom

I know one devout Jehovah’s Witness who, when shot in the head, had the decision made for her to go forward with surgery that required transfusions. She survived and I don’t think even she believes she will suffer eternal damnation.

This man needs help. He is putting not only himself but his family through hell.


21 posted on 12/06/2007 1:54:38 AM PST by EDINVA
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To: Blue Highway
"Jehovah’s Witness is a crock claiming to be Christian"

I believe that anyone who accepts Jesus as their Lord and Savior, and lives their life as 'Christ-like' as they can and perceive it to be, is a Christian. Although I subscribe to a different Christian religion, most are welcome to sit at my dinner table.

22 posted on 12/06/2007 1:58:49 AM PST by moonman
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To: spetznaz

Not to be too religious here, but I thought Christ gave his own blood so that others might live. Not that that necessarily equates to a blood transfusion, but I don’t understand where the JW doctrine comes from. In Japan it is (or was) taboo to donate blood, organs, etc. Hemophiliacs had to import their donated products. It is not just JW’s.


23 posted on 12/06/2007 2:19:23 AM PST by bajabaja
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To: bajabaja

It comes from Leviticus- prohibition on eating animal blood. They misconstrued and perverted the verse to include human to human transfusions. It’s also the same book that provides the reason Jews won’t eat cheeseburgers because you’re not allowed to boil a calf in its mother’s milk.


24 posted on 12/06/2007 3:14:15 AM PST by CalvaryJohn (What is keeping that damned asteroid?)
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To: bruinbirdman; Larry Lucido

Elaine: Ooh!
Mrs. O: What’s the trouble? Are you alright?
Elaine: Yeah. Yeah. Yes. Yeah.
Mrs. O: It’s my goiter, isn’t it?
Elaine: Did you say goiter? What goiter?
Mrs. O: This football-shaped lump jutting out the side of my neck.
Elaine: Oh, *that* goiter. Hey... Heh heh heh... Whaddya know...
Mrs. O: Does it bother you?
Elaine: Bother me? Oh, phhbt... Why would a little goiter like that bother me? No, not a bit. It’s nothing. It’s nothin’, it’s um, in fact, it’s um, it’s very distinctive, y’know? Um, I mean you want to know something? I, I wish I had one. [pause] Really.


25 posted on 12/06/2007 6:01:51 AM PST by Gamecock (There was only one victorious life.)
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To: bruinbirdman
This poor man, I cannot even begin to fathom the hell he has endured...

Prayers lifted for his future...
26 posted on 12/06/2007 6:05:49 AM PST by PigRigger (Donate to http://www.AdoptAPlatoon.org - The Troops have our front covered, let's guard their backs!)
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To: bruinbirdman

Good heavens! And I thought I was having a bad day because I have a head cold.

This poor man...I pray that he is able to be cured of this affliction.

Regards,


27 posted on 12/06/2007 6:10:16 AM PST by VermiciousKnid
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To: moonman
I believe that anyone who accepts Jesus as their Lord and Savior

But Jehovah's Witnesses don't do that. They 'mouth' the words, but they believe they must obey certain tenets to be 'saved'. They also do not believe Jesus is God manifest in the flesh, but that He is a created being (Michael the archangel to be exact.)

Given just those two things, they can't validly be called Christians.

Of course, you can still have them sit at your table if you like, but if you invite them to go to church with you, they will not be permitted to go. The strictest of adherents to JW doctrine would not even pray with you before the meal.

28 posted on 12/06/2007 6:27:57 AM PST by MEGoody (Ye shall know the truth, and the truth shall make you free.)
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To: trailboss800; Gamecock

I believe that the healing profession is ordained by God. Sad to see someone suffer having been so mislead.


29 posted on 12/06/2007 6:51:53 AM PST by Larry Lucido (Hunter 2008)
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To: metmom; Huntress
I am NOT a JW, but I found this page regarding that subject.
30 posted on 12/06/2007 6:55:59 AM PST by ShadowAce (Linux -- The Ultimate Windows Service Pack)
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To: MEGoody

Exactly, if you are unsaved and 5 minutes from death and your only hope of hearing the Gospel is a Jehovah’s Witness, you are going to Hell. You have to earn your way into Heaven. What Jesus did was not good enough.


31 posted on 12/06/2007 6:57:00 AM PST by AppyPappy (If you aren't part of the solution, there is good money to be made prolonging the problem.)
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To: Larry Lucido
I believe that the healing profession is ordained by God.

I agree with Luther's doctrine of vocation. Everyone is called to glorify God by their calling. If you are called to be a ditch digger, be the best ditch diger possible. If in the healing arts, be the best you can be and glorify God.

What kind of horrid cult would condem a man to live such a life?

32 posted on 12/06/2007 7:24:03 AM PST by Gamecock (There was only one victorious life.)
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To: pandoraou812

The surgeons may be able to fix his face but he will still have the “victim” mindset.


33 posted on 12/06/2007 9:14:28 AM PST by TigersEye (God doesn't cause your troubles. You do!)
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To: TigersEye

Well he has lived most of his life as one..Prayers for him.


34 posted on 12/06/2007 9:31:22 AM PST by pandoraou812 ( Its NOT for the good of the children! Its BS along with bending over for Muslim's demands)
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