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Gainesville family fights for children's lives after insurance cancellation
www.kxii.com ^ | Nov 22, 2013 | By: Allison Harris

Posted on 11/22/2013 6:22:56 PM PST by moonshinner_09

GAINESVILLE, TEXAS -- A Gainesville family is fighting for their childrens' lives.

Ronald and Krista Alford's two children, Hunter and Mikayla, were born with extremely rare types of cancer.

Now, sven years into fighting that battle, they've been hit with a new one: their children's insurance has been cancelled, affecting Hunter's chemotherapy.

News 12's Allison Harris brings us their story of struggle and strength.

Hunter Alford is due for his next round of chemo.

As of right now, his mom Krista says, he's unlikely to get it.

"Since his insurance was dropped, we're thinking about cancelling his chemotherapy," Krista Alford said.

The 7-year-old, who loves playing games on his iPad, is reportedly the youngest person to have his type of cancer.

Hunter has Plexiform Hishocyne Neoplasm.

The Alford's are in a battle with children's medicaid -- or CHIP -- Hunter's insurance.

Krista says, despite receiving a new, renewed insurance card, the agency told her they dropped his insurance.

"I called them and they said we were dropped October 31st," Krista said.

Krista says an insurance agent told her that Hunter's information got lost when they made changes under the new Affordable Care Act.

Now, Krista is on a mission to re-gain that insurance, but they're running out of time before his next chemo treatment, and the agent says they can't expedite.

"The lady's like, the only way we can expedite is if your son was pregnant and in labor, or if he was an illegal," Krista said.

Hunter's chemo would cost $50,000 without insurance.

(Excerpt) Read more at kxii.com ...


TOPICS: Culture/Society; Government; News/Current Events; US: Texas
KEYWORDS: cancer; immigration; obamacare; texas

1 posted on 11/22/2013 6:22:56 PM PST by moonshinner_09
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To: moonshinner_09

They can now be covered for maternity care and free birth control. That is far more important.


2 posted on 11/22/2013 6:30:28 PM PST by A message
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To: A message

Anyone who dies because of ACA is laid at the feet of Obama. The blood is on his hands.


3 posted on 11/22/2013 6:31:54 PM PST by SkyDancer (Live your life in such a way that the Westboro church will want to picket your funeral.)
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To: SkyDancer

You are so right.

Prayers for that precious child........


4 posted on 11/22/2013 6:35:29 PM PST by basil (2ASisters.org)
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To: moonshinner_09

Computers lose information all the time. The insurance company’s programmers should be able to figure out how their code caused this glitch and fix it. Pronto.


5 posted on 11/22/2013 6:37:15 PM PST by petitfour
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To: moonshinner_09

“The Alford’s are in a battle with children’s medicaid — or CHIP — Hunter’s insurance.”

For what it’s worth, Obamacare did not affect CHIP plans. This sound more like a typical bureaucratic screw-up than an Obamacare cancellation.


6 posted on 11/22/2013 6:40:47 PM PST by Conscience of a Conservative
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To: basil

And to all those who’s lives that have been put in danger because of that evil person who pretends to be the president of the USA.


7 posted on 11/22/2013 6:41:59 PM PST by SkyDancer (Live your life in such a way that the Westboro church will want to picket your funeral.)
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To: moonshinner_09

“The lady’s like, the only way we can expedite is if your son was pregnant and in labor, or if he was an illegal,” Krista said.

Illegal?????


8 posted on 11/22/2013 6:48:38 PM PST by Moonman62 (The US has become a government with a country, rather than a country with a government.)
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To: moonshinner_09

There was a time when Canadians with rare diseases would seek out help in the U.S. I wonder how much longer that will continue—if fewer and fewer doctors are aware of-have experience with such diseases, people won’t make it.


9 posted on 11/22/2013 6:54:19 PM PST by proud American in Canada (R.I.P., James Helmuth, my nephew who passed away at ten years old, from cancer, on March 23.)
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To: moonshinner_09

But their new policy will be better as you know their policy was cancelled because it was a crappy policy so they should be grateful to O and the democrats cause they made it happen.


10 posted on 11/22/2013 7:04:06 PM PST by funfan
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To: SkyDancer

Like he would even care. Obama is a bastard and all around evil sob.


11 posted on 11/22/2013 7:05:05 PM PST by funfan
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12 posted on 11/22/2013 7:11:58 PM PST by RedMDer (Happy with this, America? Make your voices heard. 2014 is just around the corner. ~ Sarah Palin)
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To: Conscience of a Conservative

Like clockwork....


13 posted on 11/22/2013 7:40:59 PM PST by Prince of Space (Be Breitbart, baby. LIFB.)
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To: Prince of Space

?


14 posted on 11/22/2013 7:46:47 PM PST by Conscience of a Conservative
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To: SkyDancer

The blood is on the hands of the American people who forgot God and endorsed all these crazy utopian schemes.


15 posted on 11/22/2013 8:33:46 PM PST by Theodore R. (The grand pooh-bahs are flirting with Christie, but it's Jebbie's turn!" to LOSE!)
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To: moonshinner_09
"The lady's like, the only way we can expedite is if your son was pregnant and in labor, or if he was an illegal," Krista said. Sad. Why do we tolerate this stuff. I do believe the fuse is getting very short.
16 posted on 11/22/2013 8:35:02 PM PST by Irenic (The pencil sharpener and Elmer's glue is put away-- we've lost the red wheel barrow)
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To: moonshinner_09
Actually they are better off than if they bought a policy on the exchange. Many of those policies wouldn't provide any coverage since the specialty hospitals that save children with terrible diseases aren't in their networks. At least if they can get their CHIP reinstated they have a chance.

Who would have even dreamed that President Obama's and the Democrat's idea of improving healthcare was to deny really sick children the care they need to beat cancer and live to adulthood? Even the people who warned about "death panels" never thought that same philosophy would be applied to kids with cancer.

17 posted on 11/22/2013 8:38:53 PM PST by freeandfreezing
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To: moonshinner_09
"The lady's like, the only way we can expedite is if your son was pregnant and in labor, or if he was an illegal,"

No comment.

18 posted on 11/22/2013 8:41:14 PM PST by Harmless Teddy Bear (Proud Infidel, Gun Nut, Religious Fanatic and Freedom Fiend)
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To: moonshinner_09

We need a new, non-profit organization formed to pay to have poor souls like these maintain a 24x7 vigil in front of the White House starting 1/1/2014.

That’ll get KommieKare repealed faster than anything else.

There will be hundreds and maybe thousands and maybe even tens of thousands of such folks being killed by KommieKare towards the end of January.


19 posted on 11/22/2013 8:47:46 PM PST by catnipman (Cat Nipman: Vote Republican in 2012 and only be called racist one more time!)
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To: moonshinner_09

They should contact Senators and Reps, Rep Burgess is an MD but don’t think his district extends to Gainesville.


20 posted on 11/22/2013 8:52:46 PM PST by 1066AD
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To: moonshinner_09

first of all let’s look into why a few ounces of chemicals injected into a child would cost anyone $50,000 dollars....that entire concept is asinine.....but because insurance companies have paid it over the years, it has become the norm......I would bet a whole lot of money that there isn’t more than $100 dollars worth of product involved and other than the salaries of the doctor and nurses and the hospital room, $50,000 is an outrageous amount of money to be charged for a somewhat routine proceedure...


21 posted on 11/22/2013 9:01:18 PM PST by terycarl
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To: moonshinner_09

If he was an illegal?! Are they flipping KIDDING???


22 posted on 11/22/2013 9:28:24 PM PST by Nea Wood (When life gets too hard to stand, kneel.)
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To: terycarl

“...$50,000 is an outrageous amount of money to be charged for a somewhat routine proceedure...”

I think you’ve failed to consider the costs for years of testing, trial and error, and huge amounts of money to get those chemicals in their chemotherapeutic form cleared thru FDA for use in humans. Also, there’s massive product liability insurance premiums for the manufacturer.

The article fails to state over what period of time the $50K cost is accrued, or how frequently the child requires chemo. Is it $50K/year? The child’s lifetime? We simply don’t know.

A lot went into finding the exact formula that works to keep this child and other cancer patients alive. And those patients and their families would likely tell you it’s worth every last penny.


23 posted on 11/22/2013 9:46:53 PM PST by EDINVA
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To: 1066AD

I will try to get a link to this to Sen. Cruz. I am a total outsider to this family, but he is my Senator.


24 posted on 11/22/2013 9:48:45 PM PST by 5thGenTexan
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To: moonshinner_09

“Since his insurance was dropped, we’re thinking about cancelling his chemotherapy,”

Ah no....you continue to give him the treatments and let the bills pile up if you have to. You don’t quit the treatments.

I’m also curious what kind of cancer are you “born with”....and why that is? Will check the article further...might explain.


25 posted on 11/22/2013 9:52:33 PM PST by caww
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To: terycarl

Not really....12 yrs. ago a family member was paying $500. per treatment session for Cancer...once a week for three months and not near as serious as this case seems to be. The medication, one pill daily to keep them from vomiting, was $1,500 a month.

So I can believe in this case the costs would be that today.


26 posted on 11/22/2013 9:59:30 PM PST by caww
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To: A message

And mental illness and drug addiction!


27 posted on 11/22/2013 10:06:17 PM PST by Trailerpark Badass (There should be a whole lot more going on than throwing bleach, said one woman.)
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To: moonshinner_09

I just sent this to Sen. Cruz via his website:

Dear Senator Cruz,

I am writing to pass on a story that touches my heart and needs a champion like you to get the message out and to use your influence to help make a difference in some children’s lives.

Now, I do not know this family personally, but reading their story touched my heart and we Texans stand with each other, so I thought I might help by raising it to your attention.

The Alford family of Gainsville Texas have two young kids with a rare form of cancer. With all the turmoil Obamacare is causing in the marketplace, their coverage was dropped.

They are now in a life and death struggle to get things fixed in an overwhelmed healthcare system thrown into chaos by the moving target that Obamacare has become to meet the political ends of the Democrat Party.

Here is a link to their story:

http://www.kxii.com/news/headlines/Gainesville-family-fights-for-childrens-lives-after-insurance-cancelled-232923131.html?device=phone&device=tablet

I am sure that anything you could do to assist them would mean the world to this family.

God bless you and keep up the good fight for us Texans, and the rest of this Nation.

Thank you for your time in this matter,


28 posted on 11/22/2013 10:08:09 PM PST by 5thGenTexan
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To: caww
Ah no....you continue to give him the treatments and let the bills pile up if you have to.

Increasingly, the provider will withhold treatment without proof of ability to pay and will sometimes demand payment up front.

Also, I don't understand what kind of "agency" or insurance agent is involved in Medicaid. Is this some kind of weird Texas thing? I have dealt with foster children who were dropped in error before and it was a matter of going to the state office and correcting the situation -- 30 minutes effort and insurance recommenced on first day of next month.

29 posted on 11/22/2013 10:29:13 PM PST by steve86 (Some things aren't really true but you wouldn't be half surprised if they were.)
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To: EDINVA

Some of the newer chemo drugs are $13,000/month, I know that.


30 posted on 11/22/2013 10:30:57 PM PST by steve86 (Some things aren't really true but you wouldn't be half surprised if they were.)
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To: steve86

That wouldn’t surprise. And I may be about to find out.

But I think the earlier poster just didn’t factor all that goes into bringing the chemicals as an effective drug to the marketplace. I.e., how much metal/rubber, etc. is in a Ferrari? Couple hundred bucks?


31 posted on 11/22/2013 10:38:06 PM PST by EDINVA
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And the Dems would complain about Republicans “killing” various classes of citizens.


32 posted on 11/22/2013 10:39:45 PM PST by Gene Eric (Don't be a statist!)
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To: moonshinner_09; Armen Hareyan; B4Ranch; BykrBayb; cajungirl; cookcounty; dadfly; duckbutt; ...
A must read. These children have a rare type of cancer. Their insurance has been dropped, thanks to the ACA.

CANCER WARRIORS PING

This is a ping list for cancer survivors and caregivers to share information. If you would like your name added to or removed from this ping list, please tell us in the comments section at this link (click here).

(For the most updated list of names, click on the same link and scroll to the end of the comments.)

33 posted on 11/23/2013 10:47:26 AM PST by Tired of Taxes
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To: EDINVA
I think you’ve failed to consider the costs for years of testing, trial and error, and huge amounts of money to get those chemicals in their chemotherapeutic form cleared thru FDA for use in humans. Also, there’s massive product liability insurance premiums for the manufacturer.

I failed to conssider nothing...tort reform has been on the agenda for years and nothing gets done....Pathetic...I have a son in the business and the overcharge for some of the products would boggle your mind....thousands of percent increase....other than for my son's commission, PATHETIC...

34 posted on 11/24/2013 1:25:04 PM PST by terycarl
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To: caww
Not really....12 yrs. ago a family member was paying $500. per treatment session for Cancer...once a week for three months and not near as serious as this case seems to be. The medication, one pill daily to keep them from vomiting, was $1,500 a month. So I can believe in this case the costs would be that today.

that doesn't justify the price then nor now...the asinine markup in the medical field has no defense, other than tort reform....if the treatment doesn't work, you should not be able to sue for millions...

35 posted on 11/24/2013 1:42:17 PM PST by terycarl
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To: moonshinner_09

Any update on the family in this story?


36 posted on 12/05/2013 3:00:18 PM PST by Altariel ("Curse your sudden but inevitable betrayal!")
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