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#SaveJosh: Virginia boy's family pleads for drug to save his life
Fox Memphis ^ | 3/9/14 | Ch, 13

Posted on 03/10/2014 9:57:43 PM PDT by GailA

imee Hardy says her son is in agony. He has battled cancer on and off, and now he's in jeopardy again due to complications from a bone marrow transplant. Doctors believe Brincidofovir could save his life, but the maker of the drug won't provide it.

Chimerix is the company that makes Brincidofovir. They're facing a major ethical dilemma because they say there are hundreds if not thousands of people who need it, but if they give it to patients like Josh, it will slow down their efforts to make it widely available. They hope that will happen in 2016 if it passes all its clinical trials.

"If we were to make it available for this young boy, and I would very much like to as a human being, how would we say no to the dozens, hundreds—potentially thousands of other requests that we get for this drug?" said Kenneth Moch, president and CEO of Chimerix.

Read more: http://www.myfoxmemphis.com/story/24937836/savejosh-virginia-boys-family-pleads-for-drug-to-save-his-life#ixzz2vcvWSSyT Follow us: @myfoxmemphis on Twitter | fox13news.myfoxmemphis on Facebook

(Excerpt) Read more at myfoxmemphis.com ...


TOPICS: Culture/Society; Extended News; News/Current Events; US: Virginia
KEYWORDS: bioethics; brincidofovir; cancer; chimerix; drugmanufacture; dying; g42; healthcare; pharmaceuticals; sigatechnologies
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To: Vendome
For instance, there is a drug that been in use for years in Europe to combat Hep-C.

My friend had exhausted all remedies available in the U.S. With no relief.

Sounds like she needs an airline before she needs a doctor.

My God damn the Regime!

21 posted on 03/10/2014 10:27:53 PM PDT by cynwoody
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To: TigersEye
The “Regime?” OK, Alex Jones. lol

Alex Jones? A hero of yours?

WTF is Alex Jones? And WTF should I care?

I refer to the government to which you obviously remain slavishly loyal.

You need a new lexicographer. (For those of you in Rio Linda, a lexicographer is an authority on the meaning of words.) I recommend the GOOG.

22 posted on 03/10/2014 10:43:34 PM PDT by cynwoody
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To: TigersEye

Because they think it is the only drug that will work.


23 posted on 03/10/2014 10:48:00 PM PDT by airedale
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To: Vendome

I’ve lost 2, one to illness one to murder. Been the victim of malpractice I can’t prove. I generally LOATH doctors. But if this drug can help this child, let them try it. There is no harm to the manufacture in a compassionate use case and may actually help them to prove the case for the drug. See your Private mail.


24 posted on 03/10/2014 10:50:45 PM PDT by GailA (IF you fail to keep your promises to the Military, you won't keep them to Citizens!)
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To: airedale

Since it hasn’t even passed the clinical trials yet they are making a big assumption. They should also know that the company isn’t going to want to jump the process.


25 posted on 03/10/2014 10:55:56 PM PDT by TigersEye (Stupid is a Progressive disease.)
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To: GailA; dalereed

““Their only issue is PROFIT!”

There is no other reason to be in business!

Charity is for fools and those that want to go bankrupt!”

Which is exactly whats wrong with this world when it comes to life-saving medicines.. Money is valued more than life.


26 posted on 03/10/2014 10:56:00 PM PDT by coldphoenix
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To: cynwoody

LOL!

No, she is currently on simeprevir

That’s the drug that is the last line of hope and we think she may very well succeed.


27 posted on 03/10/2014 10:56:19 PM PDT by Vendome (Don't take life so seriously-you won't live through it anyway-Enjoy Yourself ala Louis Prima)
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To: Vendome
No, she is currently on simeprevir

My point was, she had to wait for federal dispensation to get the drug.

That's where intercontinental jet transport comes in, either of patient to drug or drug to patient (much cheaper, but illegal, LOL).

That’s the drug that is the last line of hope and we think she may very well succeed.

That's excellent!

28 posted on 03/10/2014 11:04:36 PM PDT by cynwoody
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To: GailA

They must have tried the nearly 100 other approved antiviral drugs already.


29 posted on 03/10/2014 11:13:30 PM PDT by <1/1,000,000th%
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To: Michael.SF.

There are a lot of potential life saving drugs still in the FDA hoop jumping stage.
Maybe if the company and parents greased enough palms in the FDA, it will happen faster. Its the Chicago way.


30 posted on 03/11/2014 3:37:51 AM PDT by Yorlik803 ( Church/Caboose in 2016)
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To: Michael.SF.
Brincidofovir

Random thought - this looks like the name of an ancient Celtic hero.

31 posted on 03/11/2014 3:44:07 AM PDT by Hardastarboard (The question of our age is whether a majority of Americans can and will vote us all into slavery.)
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To: GailA
There is a federal law for COMPASSIONATE usage

And who makes that determination; the Fed or the company?

32 posted on 03/11/2014 6:46:37 AM PDT by Michael.SF. (I never thought anyone could make Jimmy Carter look good in comparison.)
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To: Hardastarboard

Or one of the characters in Vikings.


33 posted on 03/11/2014 6:47:42 AM PDT by Michael.SF. (I never thought anyone could make Jimmy Carter look good in comparison.)
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To: GailA
BULL FEATHERS. they have no heart or soul.
Their only issue is PROFIT!
??? The FDA doesn’t make a profit. All they do is exercise POWER by putting the company in that bind.
“It is not from the benevolence of the butcher, the brewer, or the baker that we expect our dinner, but from their regard to their own interest.” - Adam Smith
I can’t find it in my heart to criticize anyone who is developing a wonderful drug.

The FDA, on the other hand . . .


34 posted on 03/11/2014 7:01:50 AM PDT by conservatism_IS_compassion ("Liberalism” is a conspiracy against the public by wire-service journalism.)
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To: Michael.SF.

The government can never be to blame....under a Democrat president.


35 posted on 03/11/2014 7:03:41 AM PDT by AppyPappy
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To: GailA

The FDA says “No way”.


36 posted on 03/11/2014 7:05:24 AM PDT by AppyPappy
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To: GailA

This is DIRECTLY the fault of YOUR GOVERNMENTS lows and regulations concerning drugs.

The company is at risk of bankruptcy from lawsuits if this UNLICENCED drug kills, or maims.

The CEO, as much as he might want to, cannot put his EMPLYEES and company at risk, because of YOUR GOVERNMENT

So look in the mirror if you’d like to see who’s to blame.


37 posted on 03/11/2014 7:15:54 AM PDT by Freeport (The proper application of high explosives will remove all obstacles.)
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To: GailA; AllAmericanGirl44; Armen Hareyan; B4Ranch; Ban Draoi Marbh Draoi; bayareablues; BykrBayb; ..
CANCER WARRIORS PING

This is a ping list for cancer survivors and caregivers to share information. If you would like your name added to or removed from this ping list, please tell us in the comments section at this link (click here). (For the most updated list of names, click on the same link and scroll to the end of the comments.)

38 posted on 03/11/2014 10:42:26 AM PDT by Tired of Taxes
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To: GailA

I’m very sorry for your losses. I hope this young boy can be helped somehow.


39 posted on 03/11/2014 10:51:28 AM PDT by Tired of Taxes
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To: GailA
BULL FEATHERS. they have no heart or soul.

Thalidomide babies, these were a few of the lucky ones......


40 posted on 03/11/2014 10:53:16 AM PDT by Hot Tabasco (Was Occam's razor made by Gillette?)
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