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Parents Desperately Search for Food Their Baby Can Eat Without Dying
LifeNews.com ^ | 05/20/14 | Steven Ertelt

Posted on 05/20/2014 7:12:49 PM PDT by kathsua

The parents of a little girl in Kansas are having problems getting their daughter to eat. It’s not that she’s picky or refuses the food they offer her. Instead, she has a very rare disorder that makes it so her body aggressively attacks itself any time she eats any kind of food, with one exception.

Maehlee Her is 13 months old and has eosinophilic esophagitis, which is a rare condition causes her to get horrible diarrhea and vomiting every time she eats normal food. The only thing she can currently stomach is squash. The rare disorder makes her white blood cells attack her body every time she swallows food.

Parents Marci Flory and Kao Her are desperate to find foods that don’t put little Maehlee’s health and potentially her life at risk.

From the story:

Mother Marci Flory and father Kao Her tell the Topeka Capital-Journal that they were lucky to find that one thing their daughter could eat.

For the first several months of her life, Maehlee lived in nonstop misery as her body attacked itself every time she swallowed any food.

‘She didn’t sleep, and she started refusing to eat,’ Ms Flory told the newspaper.

At one point, she hadn’t eaten anything for 15 hours straight.

Even a single morsel could set her body against her. On recent afternoon, Maehlee found a doughnut crumb at her grandmother’s house and put it in her mouth.

Vomiting and screaming for hours followed almost immediately.

Topeka doctors told Mr Flory and Mr Her that Maehlee simply had a colic or bad acid reflux.

But, after months of enduring their daughter’s screams, the family took Maehlee to Children’s Mercy Hospital in Kansas City, Missouri, where doctors found white patches in her throat and a biopsy showed high levels of white blood cells.

‘The white blood cells are wired wrong, and when children with this condition eat food, the white blood cells come in to fight off the food because they think the food is a foreign invader,’ Ms Flory explained to the Capital-Journal.

Doctors said Maehlee had eosinophilic esophagitis, a digestive disorder. They told the parents to take her off all food and put her on Elecare, an amino acid-based medical food.

For months, the Elecare had to be fed directly into Maehlee’s stomach through a tube in her nose.

Now, she can drink the food through a bottle. But it doesn’t taste very good.

‘It tastes like cardboard. It’s the most disgusting stuff I’ve ever tasted,’ Ms Flory said.


TOPICS: Culture/Society; News/Current Events; US: Kansas
KEYWORDS: foodallergy; immunedisorder
This may not seem like the type of story usually found in Free Republic. However this baby needs our prayers. We will need to watch this story to make sure the Obamacare bureaucracy doesn't decide this is a hopeless care which shouldn't be covered by insurance. Doctors might the decide the best way to handle it is to just let her die.
1 posted on 05/20/2014 7:12:49 PM PDT by kathsua
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To: kathsua

The poor thing. Prayers offered for her.


2 posted on 05/20/2014 7:16:56 PM PDT by Blood of Tyrants (Haven't you lost enough freedoms? Support an end to the WOD now.)
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To: kathsua

OMG.

Poor baby!

How can she survive on just squash??

Prayers for her.

:(


3 posted on 05/20/2014 7:16:58 PM PDT by Salamander (It's a cult and they worship blue oysters!)
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To: kathsua
This may not seem like the type of story usually found in Free Republic. However this baby needs our prayers. We will need to watch this story to make sure the Obamacare bureaucracy doesn't decide this is a hopeless care which shouldn't be covered by insurance. Doctors might the decide the best way to handle it is to just let her die.

=======================================

She has mine.

4 posted on 05/20/2014 7:17:11 PM PDT by cloudmountain
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To: cloudmountain

You got it!


5 posted on 05/20/2014 7:33:44 PM PDT by Huskrrrr
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To: Huskrrrr

It’s the same way Celiac Disease responds to gluten. I nearly lost my wife in 2005 with the same exact set of symptoms. God bless that little one.


6 posted on 05/20/2014 7:38:58 PM PDT by Luke21
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To: kathsua

Prayers.


7 posted on 05/20/2014 7:46:43 PM PDT by hoosiermama (Obama: "Born in Kenya" Lying now or then or now)
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To: kathsua

Prayers for this precious child and her family!


8 posted on 05/20/2014 7:50:06 PM PDT by FamiliarFace
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To: Luke21

My adult daughter also has this, but to a much lesser extent. She used to drink Pepto Bismol like it was candy before she was diagnosed. It helped only some. Her “allergy” is to anything with barley in it. She does remarkably well in taking care of herself so far.

.


9 posted on 05/20/2014 7:54:46 PM PDT by FamiliarFace
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To: kathsua

Thanks for posting...what a tragic story. I hope and pray the doctors can find a way for the poor darling to have a somewhat normal life. I can’t imagine the difficulties her Mom & Dad must be experiencing.

How fortunate the doctor was able to see the white patches in her throat and make the diagnosis. It’s unusual for such rare diseases to be diagnosed at all...most docs go through their entire career without seeing such cases.

My niece had really strange eating habits growing up (essentially only dry Cheerios and slices of American cheese). The docs were never able to identify any underlying problems.


10 posted on 05/20/2014 7:55:53 PM PDT by ProtectOurFreedom
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To: kathsua

11 posted on 05/20/2014 8:07:23 PM PDT by BlessedBeGod (Democrats are Cruz'n for a Bruisin' in 2016.)
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To: kathsua

Prayers for that poor child, and her family.


12 posted on 05/20/2014 8:08:41 PM PDT by Shadowstrike (Be polite, Be professional, but have a plan to kill everyone you meet.)
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To: kathsua

May God heal her.


13 posted on 05/20/2014 8:11:13 PM PDT by tioga (WFTD...be there or be square.)
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To: kathsua

prayers up.


14 posted on 05/20/2014 8:31:07 PM PDT by Secret Agent Man (Gone Galt; Not averse to Going Bronson.)
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To: kathsua

“However this baby needs our prayers.”

And she will get them, I assure you.


15 posted on 05/20/2014 8:49:18 PM PDT by MichaelCorleone (Jesus Christ is not a religion. He's the Truth.)
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To: cloudmountain

Mine too.


16 posted on 05/20/2014 8:55:00 PM PDT by Bulwyf
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To: kathsua

She’s in our prayers. May G-D be with this child and her family.


17 posted on 05/20/2014 9:18:53 PM PDT by Impala64ssa (You call me an islamophobe like it's a bad thing.)
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To: kathsua

My prayers are out. My sister had some sort of eating issue when she was born, she could not tolerate anything- even my mother’s breast milk. Doctors told my parents she would not live and they should take her home and love her until she died- which the doctors expected to happen in a matter of days. My sister was born at the end of World War II and there were not a lot of options. A Basque sheepherder told my dad to try goat’s milk; fresh goat’s milk as in milk the goat and feed it right to her. That goat’s milk was a miracle, she was able to grow and thrive on it. I am sure whatever my sister had was not the same as this baby but things like that would be worth a try. You just never know.


18 posted on 05/20/2014 9:38:31 PM PDT by Tammy8
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To: kathsua

I know a little boy with something similar. He is one of only 5 in the US with it. I cannot recall what it is exactly, but it is horrible to watch a child suffer. He is able to eat now, but it is limited and took years before he could tolerate actual eating.
Prayers up for this little girl and her family.


19 posted on 05/20/2014 10:00:27 PM PDT by ozaukeemom (Is there even a republic left?)
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To: kathsua

bump for prayer


20 posted on 05/21/2014 8:54:58 AM PDT by CatherineofAragon ((Support Christian white males---the architects of the jewel known as Western Civilization).)
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To: kathsua

Poor baby. Praying.


21 posted on 05/21/2014 2:25:53 PM PDT by Altariel ("Curse your sudden but inevitable betrayal!")
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