Skip to comments.MetMom Serious Prayer Need--EATING threatened [Update @560]
Posted on 08/21/2010 9:18:48 PM PDT by Quix
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LOL.. we are on the SAME wavelength!
I wish I understood the biology of auto-immune attacks. A lot of us have small versions of the extreme, life-threatening one you have.
I note that a lot of people find their child suddenly gets strong allergies right after a vaccination. Is there any time-correlation for this beginning after the same for you? A flu shot? The 4th flu shot? Just wondering.
Will keep praying. This is not fair and you should not have to suffer this.
There are allergic responses which I am grateful to have never experienced, migraines being one of them. My heart goes out to you.
Thanks for the prayers.
Yes, D3 is miraculous. I hope MetMom can find a way to up hers. If not lying nearly naked in the sun, then maybe the clear tiny drops that have no added cr@p in them. They have 2000 units per tiny drop. But not sure she can take anything by mouth, so it might have to be sun exposure.
That’s very unusual for Wegman’s.
You might want to consider contacting someone in upper management in Rochester NY and complaining.
Wow, prayers up! Perhaps an online search of exotic farmers in your area might turn up something you can handle. Maybe you can go directly to the source.
You’re a precious Dear.
And, actually, I agree with you about that.
However, my preference and tendency is to defer to the person concerned.
I REALLY DO try very hard to DO UNTO OTHERS as I’d want in their shoes. And when in doubt, I defer to their preferences even though mine in their shoes would likely be different.
We’ve both had allergies from birth. His have improved. My have worsened.
We have moved a couple times and it hasn’t made any difference in my food problems.
FWIW, although nobody has brought it up yet, organic doesn’t help either. I have a vegetable garden and grow everything organically (I could make a fortune if I got certified) and even that doesn’t make any difference. I react to those vegetables just like I react to all others.
My problems aren’t to the classic allergy provoking substances, surprisingly, it’s to everything else; stuff usually nobody reacts to - like virtually all vegetables and most fruits.
The threads I’ve learned the most on are neverdem’s health threads. He posts a lot of cutting edge stuff that has been very useful.
Surprisingly, my reactions are not the anaphylactic variety, no hives, no swelling, no asthma attacks.
I get eczema really badly and my digestive track just burns along with my mouth, like the same reaction on my skin is happening internally. I have other symptoms as well that are not classic allergic responses.
I feel like I’m going to die when it happens, but obviously :) that hasn’t happened yet.
If you don’t mind me asking, what state(s) do you live in and how far were you moves?
Freepmail if it feels more comfortable
Also, if the water, dirt, some other sort of environmental/industrial contaminant is affecting your garden/home, they might be seriously non-oganic.
Okay, dont laugh on this one. It was a diagnosis for my German shepherd.. Super allergic. Digestive problems, sores on skin, lack of energy, lack of appetite...
I had done a lot research.. and when I started her on this, I also started ME on this. (BTW I am a vegetarian & already on a lot of supplements & follow the Fit for Life & a modified Mediterranean & modified macrobiotic)
I read how German shepherds and many people are allergic to molds & mildews that they pick up from grain products. Primarily wheat. I have gone to barley, wild rice & brown rice now primarily. For her it was scratch cooking & buying products that were safe.
The help also included high vitamin E, B1, Night primrose Oil. They said it would take 3 months to see a difference but I stated noting it in 2 weeks. I made all her food fresh & no cheap dry/wet food. The pretty high end that did not have the products at fault.
I have since read so much about the negative effects of mold mildew on foods/digestion etc.
I would seriously recommend you try to find a naturopathic physician. They are state certified & a genuine doc like a MD, osteopath etc. Just their emphasis is natural & not just piling meds on symptoms, but finding the cause. They do different tests. This is not voodoo. I am very impressed with the work they have done with my cancer patients
I have had many friends who have had excellent results with acupuncture over the years. (again the Chinese practitioners would recommend).
God is our ultimate physician but he gives us helpers professionally & with friends to find the way to understand our bodies. We in the USA do abuse, neglect our bodies.
We take 5,000 unit drops/day. WHen dad was on the GJ Tube, we opened them up and put them in the feeding tube. Don’t know how/if they taste.
I live in Central NY, which has been no secret.
Our moves have all been within NYS with the exception of a stint in NJ as a child.
There are no industries to speak of in our community. I’m aware of the possibility of incidental environmental pollution. I actually took a course on air pollution as part of my degree program so know that nothing is truly organic. But we’ve gotten as close to it as we can come.
I also drank raw goat milk for years, from people and goats I knew. It’s done wonders for my family.
Goat milk dropped out last year. Boy, was I bummed with that change.
THAT SETTLES IT. I’ll post the FREEPMAILS HERE, THEN:
Anonymously—they can claim ownership as they wish . . . just trying to abide by forum rules on such . . .
When she is up for suggestions, they are now treating food allergies like my old allergies I had - through gradually increased (in this case oral) exposure. I got injections to allergens as a child and outgrew them by my teens. THey are doing oral exposures to food proteins that cause allergies and gradually ramping them up over months and years to build the persons tolerances back up so they outgrow the allergy. Sometimes they start with as little as 1/1000 of a percent of the protein they are allergic to.
They also have a sublingual therapy similar to above where a small amount of proteins are placed under the tongue and absorbed by the body that way.
| 08/21/2010 9:43:10 PM PDT replied
Has she seen a DAN! doctor and/or chelated for heavy metals?
08/21/2010 9:59:43 PM PDT replied
Highly recommend my nutritionist, Dina Khader. She is in NY but does phone consults. She absolutely has helped everyone I know who Ive sent to her (or had talk to on the phone) - I recommend her without reservation. I had the exact same issues my whole life: I AM NOW CURED. Dina has a unique blood-type-based system which WORKS FOR EVERYONE WHO TRIES IT. Check out http://www.dinakhader.com/ and especially the success stories (which are absolutely true - many of these people I actually know) http://www.dinakhader.com/success-stories/ - it sounds too good to be true, but it isnt - she is the real deal. Dinas approach is unique - her recommendations are totally personal and custom to each person, and there isnt another nutritionist like her in America. TRY HER. (FYI she doesnt take insurance but I guarantee you YOU WONT REGRET IT.)
Anything else causes her to react rather destructively, debilitatingly.
Does this mean she reacts in a psychological way?
Has anyone checked/monitored her brain chemistry?
Were currently treating one of my children in the context of allergies to just about everything. Shes also autistic. Weve seen miraculous gains in both since weve been eliminating heavy metals. I breastfed her during dental work that involved amalgam removal. Shouldnt have done that.
The heavy metals screw up the metabolic enzymes necessary for digestion. Theyre everywhere. Some people just dont eliminate them properly.
Will pray for her.
08/22/2010 9:31:33 AM PDT replied
Dear Quix: Please dont think Im meddling or prescribing, but if her diet is so restrited, she might have some nutrition deficiencies. Try giving her magnesium supplemnts and B complex vitamins with her main meal. Food allergies are very frightening. There is a new diet plan called GAPS especially for people with food allergies. Look it up online and see if it fits her.
I will be praying for you. This is a very difficult thing to try to deal with.
I have pinged all the senders.
I just got a couple names of people to check out from someone at church today.
And even my OB highly recommended a naturalist in a nearby city who has a great track record.
I’ve been waiting until this month is over. I have three kids moving off to college within the next week, one to LA for grad school, and two to their respective colleges a couple hours away.
I will actually have time to plan after this.
Somewhere out there lies an answer. I pray that the Lord will lead you to the right place and the right person for that answer. I also pray that the Lord will give you the strength to “plow on” through this storm, and comfort you.
virtually all vegetables and most fruits.
I discovered that the reaction to these came about because my gut was already inflamed and they were like pouring acid on an open sore. Once everything has settle down I can eat most of them again.
Praying for ya girl..
We grow the most when we have no one to lean on but Him..
I will be praying for a healing ...medically or spiritually ..how ever God wishes ..
the other mom
Best of luck with finding a cause/cure.
If your daughter has similar allergies, I’d be curious in knowing if she sees any improvement by moving away. If so, that might be a clue your eventual recovery.
Just fishin for an answer!
Have looked into sublingual drop therapy and tried them for pollen allergies and reacted to the drops. My doctor was very honest that they only sometimes work for foods and sometimes make them worse.
I live in NYS and NY is close enough for me to check out.
I have ofen suspected amalgam and do have a lot of fillings. I’ve considered having them replaced but dread the procedure. It will not be a pleasant one. Finding a dentist who will do it and paying for it are also options, and since I’m not sure that is the problem, since I had them since I was born (pre fillings) I don’t know what role it plays or if it will even help.
An endocrinologist has been suggested by a medical professional and that is next on the list if other avenues don’t go through.
It is . We purposely scheduled intestinal tests when my intestines were reacting.
Going quickly isn’t the issue. What I’m thinking I’m facing is not quick and not welcome.
And in the meantime, feel awful almost constantly.
The better I eat, the worse I feel.
Healing is what I really want, as I think it’s the only solution. I’d like the cause to be done, not just treat the symptoms.
Prayers up for Metmom ...
Her allergies are pollen.
Knowing I had food allergies, I nursed all my kids for a good long time and they don’t react to any foods at all, even though two of the three have allergies. And, not coincidentally, those two were on anti-biotics the most as children. If I had to do it over again......
Anyway, her pollen allergies disappear when she goes on vacation anywhere outside this area, (except Atlanta), so she is very much looking forward to a bit of a reprieve.
Laz...I love you....
metmom, bumping this thread for more exposure and prayer.
Isn't it just SICKENING??
My extreme sensitivity is to MSG. I have gone so completely off of it that I now am sensitive to the tiniest bit, so I can eat pretty much no processed foods. It's healthier, anyway. But the things the manufacturers do to get MSG into a product is as shocking as that deli counter.
The reason people "looove" the taste of the supermarket roasted chickens is because they inject the raw birds with "water" with MSG in it, and there is some loophole that they do not have to mention the MSG. Since MSG is an addicting taste, people want more and buy more. And wonder why their chicken doesn't taste as "good."
[Personally, I can make my chicken taste better than that salty, MSG flavored, store bought piece o' junk. Just get a free-range, organic whole chicken, stuff it with cut up lemons or onions or herbs or a combo, rub it down with salt and pepper -- I add tumeric for health and taste, but you needn't -- and roast it in a roasting pan (the one you use for your turkey) 20 minutes for each pound of bird. The first half of the cooking, make sure breast is DOWN. Flip the chicken half way through. You WILL thank me, as it's delicious and REAL.]
Have you been teasted for yeast infections in the intestinal wall. It’s relatively easy and lets them know the exact medication to treat you with.
People with yeast are often intolerant in varying degrees of soy, corn, wheat products...as well as react to all other acidic foods because their intestines are inflamed.
What I would love, and just doesn’t come for the asking, is to find some medical center somewhere that deals with allergies, check in to the hospital, and EAT. Eat a real meal and then react for them under medical supervision so they can record it, and see it and test during it.
There’s the hope that maybe that would show something up as it would catch it while it’s happening.
Every time I’ve had a reaction, by the time I make it to the doctor (or ER) the symptoms are almost gone. So I get packed off with yet another prescription for Prenisone and told to keep on the antihistamines.
The medical community, however, in general does not like to deal with things that do not have nice, neat, tidy solutions.
The standard response of *Well, just stay away from foods you react to* doesn’t cut it any more.
Prayers up for metmom.
To make a long story short, explained to her the problem, how it had made my life miserable and asked if I (or my family after my death)had to sue to get the Ag department in line with Food and Drug. You'll notice all meat is now labeled....Except restaurants of course that you must ask for their listings.
Home cooking is the way to go, but hasn’t helped me any. I haven’t had prepared foods in years.
Well, it’s still horrible, and we need to get you healed.
I think this would be one of those (sadly for you) very fascinating cases for the right doctor. It’s a puzzle. The cause is environmental/food borne, but how to counteract and cure it?
Have they tried a feeding tube? Who knows what is in the cr@p they feed patients, though? Might be the same old poisons. I know that I have been given topical medicines that contained the very same allergens in them as filler and delivery and preservative ingredients. Sheesh.
Bumping this. I hope someone on this prayer thread will tell some doctors that they know, of various specialties. I might know someone at UCLA that might be curious to help you. I'd have to ask. Where are you located?
PRAISE GOD FOR YOUR COURAGE AND PERSISTENCE.
THANKS FOR SO MANY YOU HAVE HELPED.
Please know that you are in my prayers mm.
My dear FRiend metmom is in need of all of our prayers.
Please post your prayers to metmom.
Thank you and God Bless.
It was the grace of God that gave us some of the answers (we , my dear personal Dr and I) are still learning how my body works.
Was drinking coffee with friends, had a reaction, Only thing in the cup was coffee, sugar and artificial creamer.
Experimented for a few days with other foods etc and discovered it was soy in creamer, and margarine, and salad dressing and....then my BIL reminded me that when he worked for Central SOya 22 out of 23 food scientist had said soy was NOT good for American people...and they fired all 22 and promoted soy.
At that time I tried using the celiac diet to determine what else my gut reacted to....It starts out with just rice....and then a book fell into my hands about eating God made food not man made.....
We are still fighting the yeast (It's manifesting itself in a different way now) which was first created by large dosages of antibiotics that kept me alive from a couple of bouts of Strepticacamilleria. Finally had gall bladder out and it's gone.
Since I've started the D3, no longer have seasonal allergies or sinus problems.
WHen yeast is present, sugar become elevated...am currently working with the Glycemic Index to keep the carbs low=sugar low...It'w worked buest for me but the local nutritionist says that even though it's been used in Europe for decades the American people aren't smart enought to use it....She doesn't know sheet either!
This probably isn't to helpful, but about 15 years ago I was suffering terribly from allergies it manifestied itself in a hive-like condition called “idiopathic dermographism”. I was very incapacitated by it. The doctors and I thought it was food related. Allergy skin tests also showed that I was highly allergic to nearly all the vegetation, mold, and fungus in Maryland.
Well...One day the air conditioner in our house broke. When the repairman open up the AC we found a think layer of mold that was at minimum an inch thick covering all the working parts and the air ducts. ( Maryland is very humid.) We had everything in the AC system thoroughly cleaned out and bought several hepa-filters for the house. I **immediately** began to improve.
However...When we moved to a dry state, all allergies disappeared including all food allergies. I am noticing though, that after 10 years of living here, I am getting some nasal reactions to pollen in the spring. I suppose I am becoming allergic to the local flora.
My God bless you during this very very hard time in your life, and I pray that you will soon feel much better.
What was the filler in the hamburger meat?
You can ask restaurants what is in the food but some of them won’t answer truthfully. They will either lie that there is “nothing in the food” or tell you “yes, all of the above” because they want you to leave and stop bothering them. I have had both responses numerous times.
Of course my body doesn’t lie about MSG, it has the same reaction every time.
Dear metmom, I am so sorry to hear that you are so ill. Prayers are on the way!
Please keep us posted.
Thankfully, I don’t have any mold allergies any more.
I did the shots thing for about 8 years and that took care of them. That’s been confirmed with shin prick testing and RAST testing.
I know that it can be an issue, however, and manifest are other problems.
I also found a doctor who is a little off mainstream, and was skin tested for yeast/Candida allergies and that came back as negative as well in spite of the fact that it seems to be a mitigating factor.
I’m glad you’re better though.
Praying from here now, believing, joining the prayers of others.
shin prick=skin prick