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My 33rd Update on my Bone Cancer of the back - My Sacral Chordoma
JEFFHEAD.COM and Facebook ^ | June 19, 2011 | Jeff Head

Posted on 06/19/2011 9:39:30 AM PDT by Jeff Head

I have been keeping a blog/jounral here on FreeRepublic, and on Facebook of my experience with malignant bone cancer of the back, sacral chordoma. The Facebook journal is located at : Jeff's Sacral Chordoma III - http://www.facebook.com/note.php?note_id=459192742493&id=755469068 (Entries 29 on). On my web site it is here: HERE - Jeff's Chordoma Journal on JEFFHEAD.COM, there is also a prayer thread here on FreeRepublic, where our many, many patriotic, God-fearing, conservative friends are uniting in faith and prayer on our behalf. This is the link to that thread for anyone interested.

This is my 33rd update, June 19, 2011:

I thought it time to make another entry into my Chordoma Journal.

Time passes quickly, particularly as we are involved in our daily routines of life. It is no different after such major events and crisis lik what I have experienced.

Yet, things are not the same. Life has changed for me and my family and we continue to deal with it as best we can with each other's help and support and the tender mercies of a loving Father in Heaven and His Son, our Savior, Jesus Christ. The faith and outlook we have on the future...and indeed towards one another and those around us, guide us in these circumstances like they do in all others.

A year ago today I was still in the hospital at MD Anderson. Having completed all three of my surgeries between April 27th and May 9th. I had been in the ICU for several weeks but ultimately was given a normal, private room. June 19th found me in that room, having started my in-hospital physical and occupation therapy. I had been through the tilt board that took a week or so to get me to a 90 degree stadning position and had finally started slowly, painstaakingly walking with a walker and the help of my therapists. June 18th, the day before today a year ago, was also the day before my birthday.

I remember it very well. I was walking around the nurse's station...the first time I had gone around it more than once.

In such situations your perspective of time and distance changes. it could only have been about 50-60 feet around that nurse's station...but oh it seemed so much further! I would take little rests as needed and as I came around for the second time, about to start a third...I was so proud of myself and so grateful. Gail was not there and I was a little sad. She had indicated she needed to go out and send something to her father for Father's Day.

Little did I know.

Next thing I knew, someone was standing behind me and said, "Hello Pops," I turned around and could not believe my eyes. There was my son, Jeff and his wife, Jolene. They had flown to Houston to surprise me for my birthday and Father's Day. I literally broke down and wept. What a surprise and how grateful I was.

I shared with them my great accomplishment as I went around the third time.

Now, here I am at home, about to celebrate another birthday and Father's Day today. My 55th birthday.

Today we will have four of our five children here, three of them with their spouses and we'll have seven of our eight grandchildren here. What a blessing! Katie and her husband, Nathan, and their three boys moved back into the Boise area yesterday. We helped them move in (actually I did not do much more than lend moral support and carry a couple of light things). How happy we are. Just need to get Rachel over here now. As it is, we have four of five living near by. I love my family so. And how grateful I am to be able to see them all...for however long the good Lord deems it here on this earth.

I have made progress and walk now everywhere without a cane.

My leg, and particularly hip strength in my left leg is still not what it should be...I do not believe it will ever be what it was.

My bowel and bladder management (and I have to do this daily, painstakingly because of the nerves that were cut to take out my sacrum), is doing very well as these things go. it is still one of the hardest things for me and a source of constant worry, despite the fact that it is going so well as these things go.

I find that worries and concerns get to me much easier than they diod before this experience. I suppose my body chemistry has changed. I am so thankful for a loving wife, who cares so well for me and about me and helps me get through these minor crisis...and family that doe sthe same...and particularly, as stated above, for a loving Father in Heaven and His Son, whose plan of atonement salvation helps me understand that it really will be okay, and that I have important things to do and can carry on.

I know one of the reasons I have been preserved is to witness to others, particularly going through such difficulties that there is help...there is comfort...there is relief to the soul. I intend to do that every chance I get...like now.

We will be going back to MD Anderson in September for my next "check up." They will check for any new cancer near the site of the surgery or in my soft tissue. We are very hopeful in that regard...but things will be according to God's will and we will face whatever challenge when the time comes. We will also decide what to do about the three small tumors in my hip bones. They are chordomas like the one that was taken out, but they are very small and very slow growing. If there aren't more of them, we will probably handle it with what they call stereo-tactical radiation using protons. This would be a 2-3 day affair where each one is zapped with a very precise, very heavy dose, precisely onto the tumor.

Amazing technology.

If there are several more of these small tumors, or if some cancer develops in my soft tissue, we would probably use the broader proton radiation which lasts 6 weeks, five days a week, and involves thirty treatments. We hope to avoid that. Because of the dosages and the more broad nature of it, you can only do it once in a life time. it also has potential significant side effects. We hope to avoid that.

While in Houston in September, I have been asked to make a presentation at "Chordoma Day," and annual event they have for all of their chordoma patients. A lot of folks will be there and they discuss and bring out so much new info. I will be presenting with two very distinguished men, that I respect so much. Dr. Lieberman, the Phd Therapist from TIRR who worked with me, and Dr. Rhines, my neurosurgeon who did my surgery and who is the head of the Spine Department at MD Anderson. They will present first, about my case, the surgery and the therapy necessary...and then I will speak as a patient and what it was like and what one can and should do to prepare and then cope with the results and the blessings of survival. See...another opportunity to help and I know if I am humble and seek the help of the Lord, he will bless me with His Spirit so that presentation can touch and help others.

In the mean time...tomorrow I am back to work. Another great blessing. Since getting back last October 1st, three months after release from the MD Anderson and at the conclusion of my intensive therapy at TIRR in Houston, I have been blessed to work full time. It has not always been easy at all...but it has been a blessing. Both for our finances and for me, keeping me involved and focused...which is very important.

Again, thank you to all who have prayed, given comfort, encouraged, helped, thought about us and called or visited. Every one of those things and so many more have helped more than I can explain. I pray I can help others similarly.

Again, thanks mostly to my dear, wonderful wife and children, and those wonderful grand-children who are a great light to us...and thank you to my Father in Heaven and His Son, my Savior and friend, for helping me...for teaching me. I pray I can pass those blessings on always.

Happy Father's Day all!

Sincerely, and in Christ,

Jeff


TOPICS:
KEYWORDS: bonecancer; chordoma; jeffhead; mysacralchordoma; sacralchordoma
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This is my 33rd update...what an experience it has been and continues to be. My sincere and humble thanks to so many here who have prayed, helped, encouraged, and exercised their faith on our behalf. It means more than I can express in words and I pray I can return the favor to others in similar need.
1 posted on 06/19/2011 9:39:34 AM PDT by Jeff Head
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To: Jim Robinson; Noumenon; joanie-f; Dukie; Squantos; JohnHuang2; RobFromGa; k.trujillo; ...

All. My latest...a year later.


2 posted on 06/19/2011 9:41:10 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

God Speed.


3 posted on 06/19/2011 9:43:34 AM PDT by Vendome ("Don't take life so seriously... You'll never live through it anyway")
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To: Vendome

Thank you. His tender mercies aand watch care have been with us throughout the entire time. I am grateful to be here...and still engaged in the fight for our liberty, way of life, and constitution...and my kids and grandkids future!


4 posted on 06/19/2011 9:46:07 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

Friend, never forget that Our Almighty God’s name is still “Jehovah Rapha”. The LORD God Our Healer. Every cancer roots can dry at the command of our Great Lord. He is the same that spoke to the fig tree and it dried from its roots. Nothing is too hard for Him. He is able to make the bad cells stop spreading. His Word has power to heal, deliver and restore. I pray that your health or that of your loved one will be restored in Jesus Mighty Name, Amen. Friend, His Word will restore health to you.

Jeremiah 30:17 “But I will restore you to health and heal your wounds declares the LORD.”

Friend, so be it, in Jesus Name. Amen.


5 posted on 06/19/2011 9:48:00 AM PDT by illiac (If we don't change directions soon, we'll get where we're going)
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To: Jeff Head

Friend, never forget that Our Almighty God’s name is still “Jehovah Rapha”. The LORD God Our Healer. Every cancer roots can dry at the command of our Great Lord. He is the same that spoke to the fig tree and it dried from its roots. Nothing is too hard for Him. He is able to make the bad cells stop spreading. His Word has power to heal, deliver and restore. I pray that your health or that of your loved one will be restored in Jesus Mighty Name, Amen. Friend, His Word will restore health to you.

Jeremiah 30:17 “But I will restore you to health and heal your wounds declares the LORD.”

Friend, so be it, in Jesus Name. Amen.


6 posted on 06/19/2011 9:48:16 AM PDT by illiac (If we don't change directions soon, we'll get where we're going)
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To: Jeff Head

Friend, never forget that Our Almighty God’s name is still “Jehovah Rapha”. The LORD God Our Healer. Every cancer roots can dry at the command of our Great Lord. He is the same that spoke to the fig tree and it dried from its roots. Nothing is too hard for Him. He is able to make the bad cells stop spreading. His Word has power to heal, deliver and restore. I pray that your health or that of your loved one will be restored in Jesus Mighty Name, Amen. Friend, His Word will restore health to you.

Jeremiah 30:17 “But I will restore you to health and heal your wounds declares the LORD.”

Friend, so be it, in Jesus Name. Amen.


7 posted on 06/19/2011 9:48:52 AM PDT by illiac (If we don't change directions soon, we'll get where we're going)
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To: Jeff Head
And while I am at it, to be sure...for this election cycle, should God grant it to be so...



RUN SARAH, RUN!

8 posted on 06/19/2011 9:49:03 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

No one who has seen your X-rays can cease to be amazed at how well you are doing!

Thanks for the current update.


9 posted on 06/19/2011 9:49:48 AM PDT by null and void (Day 878. When your only tools are a Hammer & Sickle, everything looks like a Capitalist...)
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To: illiac
He is MIGHTY to save, and there is healing in His wings. Amen.

He has done so by me, I know He wil, according to II Chron 7:14 also do so for our nation if we will but turn to Him.

10 posted on 06/19/2011 9:50:35 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

We love your writing and love you.

Happy Fathers Day.


11 posted on 06/19/2011 9:51:14 AM PDT by Vendome ("Don't take life so seriously... You'll never live through it anyway")
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To: null and void
That is oh so true...and as a witness to the same...here it is:


12 posted on 06/19/2011 9:52:04 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

Thanks....sorry about the multiple posts, but I got a “service unavailable” message....best wishes!


13 posted on 06/19/2011 9:52:12 AM PDT by illiac (If we don't change directions soon, we'll get where we're going)
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To: Jeff Head

Thank you for the update Jeff. We will keep you and your family in our prayers.
Happy Fathers day and Happy Birthday!


14 posted on 06/19/2011 9:52:36 AM PDT by Liberty Valance (Keep a simple manner for a happy life :o)
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To: Jeff Head

Thank you for the update Jeff. We will keep you and your family in our prayers.
Happy Fathers day and Happy Birthday!


15 posted on 06/19/2011 9:53:49 AM PDT by Liberty Valance (Keep a simple manner for a happy life :o)
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To: Jeff Head

Great to hear your progress. God Bless and keep you well.
You are remembered in my prayers.


16 posted on 06/19/2011 9:53:53 AM PDT by Marty62 (Marty60)
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To: Liberty Valance
Thabnk you SO Much, LV! God bless you and yours this day too!.

Now I am off to Church to give my thanks to God in Heaven and His Son there.

17 posted on 06/19/2011 9:54:55 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Marty62
Thanks, Marty! I cannot thank you and sop many others enough for your prayers.
18 posted on 06/19/2011 9:55:42 AM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

Happy Father’s Day, Jeff.


19 posted on 06/19/2011 9:56:28 AM PDT by patton (I am sure that I have done dumber things in my life, but at the moment, I am unable to recall them.)
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To: Jeff Head

You betcha!


20 posted on 06/19/2011 10:01:23 AM PDT by Vendome ("Don't take life so seriously... You'll never live through it anyway")
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To: Jeff Head

Happy Father’s Day, Jeff!

God Bless! and congratulations.


21 posted on 06/19/2011 10:01:44 AM PDT by hattend (Let's all meet Sarah at her last bus stop -- 1600 Pennsylvania Ave in Jan 2013)
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To: Jeff Head

Happy Father’s Day, Jeff!

God Bless! and congratulations.


22 posted on 06/19/2011 10:01:56 AM PDT by hattend (Let's all meet Sarah at her last bus stop -- 1600 Pennsylvania Ave in Jan 2013)
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To: Jeff Head

Happy Father’s Day, Jeff!

God Bless! and congratulations.


23 posted on 06/19/2011 10:02:19 AM PDT by hattend (Let's all meet Sarah at her last bus stop -- 1600 Pennsylvania Ave in Jan 2013)
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To: Jeff Head

Happy Fathers Day, Jeff! May God continue to bless you and your family!


24 posted on 06/19/2011 10:13:38 AM PDT by tarheelswamprat
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To: illiac

Amen.


25 posted on 06/19/2011 10:15:14 AM PDT by TaxPayer2000 (The United States shall guarantee to every state in this union a republican form of government,)
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To: Jeff Head

May God bless you, Jeff. Thanks for checking in, and my nightly prayer will continue.


26 posted on 06/19/2011 10:16:06 AM PDT by Exit148
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To: Jeff Head

Jeff,

Prayers up for you and your family. Happy Father’s Day!


27 posted on 06/19/2011 10:18:40 AM PDT by PDGearhead (Obama's lack of citizenship)
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To: Jeff Head

I’m glad to see you here for another Happy Father’s Day.


28 posted on 06/19/2011 10:20:04 AM PDT by B4Ranch (Allowing Islam into America is akin to injecting yourself with AIDS to prove how tolerant you are...)
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To: Jeff Head

God Bless and Happy Father’s Day!


29 posted on 06/19/2011 10:22:51 AM PDT by NormsRevenge (Semper Fi ... Godspeed .. Monthly Donor Onboard .. Obama: Epic Fail or Bust!!!)
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To: Jeff Head
Sure looks like some good work by the ortho. Did they do the work anterior or posterior? (I work for a group that might have supplied the rods, screws, and connectors.)
Sure does look cool on the x-rays there.
30 posted on 06/19/2011 10:42:30 AM PDT by Maigrey (Life, for a liberal, is one never-ending game of Calvinball. - giotto)
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To: Jeff Head

May our Lord continue blessing you with his healing mercy Jeff...


31 posted on 06/19/2011 10:44:35 AM PDT by JDoutrider
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To: Jeff Head

Happy Fathers day Jeff.
MD Anderson has saved two of my friends lives.
One had such a rare form and has done so well, that he has become the text book study.

God Bless you and may your health be preserved.


32 posted on 06/19/2011 11:03:39 AM PDT by mylife
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To: Jeff Head

Bless you and your family.


33 posted on 06/19/2011 11:10:49 AM PDT by lysie
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To: Jeff Head

Happy Birthday and Happy Father’s Day. It’s great to have you alive to celebrate another one. My 55th comes near the end of August.


34 posted on 06/19/2011 11:24:42 AM PDT by Myrddin
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To: Jeff Head

May God heal you today!


35 posted on 06/19/2011 11:29:05 AM PDT by NoLibZone (Impeach Obama for among other things , violating the War Powers Act.)
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To: Jeff Head

:)

Happy Fathers/B-day Day Jeff.


36 posted on 06/19/2011 11:30:31 AM PDT by mowowie
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To: Jeff Head

I am SO happy to once again see your name on FR. We love you and continue to pray for a full recovery!

God Bless you and your family and I am again so happy you are surrounded by your loving family!


37 posted on 06/19/2011 11:51:34 AM PDT by NoGrayZone ("Islamophobia: The irrational fear of being beheaded.")
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To: Jeff Head

Absolutely Amazing. The only explanation is an Act of God that you can walk. My prayers going your way. Do you have a link for donations.


38 posted on 06/19/2011 12:05:03 PM PDT by Orange1998
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To: Jeff Head
Happy Birthday and Father's Day.

Thanks for the update.

Prayers for your continued recover.

God Bless

39 posted on 06/19/2011 12:09:03 PM PDT by wagglebee ("A political party cannot be all things to all people." -- Ronald Reagan, 3/1/75)
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To: Jeff Head

Good to hear you’re doing well!

How is your right fibula handling the robery? :o)


40 posted on 06/19/2011 12:21:45 PM PDT by editor-surveyor (Going 'EGYPT' - 2012!)
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To: Jeff Head
Jeff, I had not previously seen the x-ray, and all I can say is YIKES!
I knew it was intense surgery and rebuild, but YIKES!

God continue to bless you FRiend. You are quite a testament.

41 posted on 06/19/2011 1:00:08 PM PDT by Grammy
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To: Jeff Head

Jeff,

I am so happy to hear how well you are doing.

I Praise God everytime I read one of your posts and how you give God the Glory and are trusting him!

Keep your eyes on Him Jeff, he will not fail you!

Doug


42 posted on 06/19/2011 1:10:31 PM PDT by SoConPubbie
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To: Jeff Head

Thanks for the update.

You are an inspiration.


43 posted on 06/19/2011 1:34:35 PM PDT by smokingfrog ( sleep with one eye open ( <o> ---)
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To: Jeff Head

Burzynski: Cancer Is Serious Business
http://vimeo.com/24821365
by BurzynskiMovie

Jeff - you need to check this information out. God Bless You for hanging in there. Sometimes the hand of God reaches down to help His believers. I just found out about this & I’m hoping it could be something that could make a difference in your life.

Watch this movie - it will be posted to watch until tomorrow - JULY 20, 2011. THIS IS A MUST SEE FOR ALL!!

Please check this out & read the comments from outraged people against what the government, FDA & drug companies are doing to this doctor.

This doctor has documented proof of curing cancer & they are harassing him & trying to shut his research down. If anyone can send this to Sarah Palin - she could be a big help for Americans whose lives could be saved!!!

He is located in Texas.
Burzynski: Cancer Is Serious Business
by BurzynskiMovie
http://vimeo.com/24821365

in case anyone with cancer needs his help - here is his site: www.burzynskiclinic.com/


44 posted on 06/19/2011 1:44:30 PM PDT by LADY J ( Change your thoughts and you change your world.. - Norman Vincent Peale))
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To: Jeff Head

Cancer is just a name, and Our Heavenly Father’s name is over every other name.


45 posted on 06/19/2011 2:18:42 PM PDT by richardtavor (Pray for the peace of Jerusalem)
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To: Jeff Head

Cancer is just a name, and Our Heavenly Father’s name is over every other name.


46 posted on 06/19/2011 2:18:53 PM PDT by richardtavor (Pray for the peace of Jerusalem)
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To: editor-surveyor
It's okay. The Dr. says that the bone is relatively unused and perfect for this type of thing. I walk fine on that side. My biggest limp is as a result of all the muscle and tondons and cartlidge and what not they had to cut through in my hips to get at it...twice. They have not recovered and in a couple of cases, attachment points for significant muscles on the sacrum simply are not there anymore so I will never have the strength I once had.

I am grateful however, to have what I do have and will make the absolute best of it as long as the good Lord keeps me around.

47 posted on 06/19/2011 2:37:28 PM PDT by Jeff Head (Liberty is not free. Never has been, never will be. (www.dragonsfuryseries.com))
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To: Jeff Head

Amen Bro. Happy Birthday, and Happy Fathers Day!


48 posted on 06/19/2011 4:05:29 PM PDT by Doomonyou (Let them eat Lead.)
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To: Jeff Head
Jeff,

You're an amazing man, and a testimony to the power of faith in our Lord and Savior.

Godspeed on your continued recovery, continued prayers for you and your family.

Happy Fathers Day!
USC

49 posted on 06/19/2011 5:15:10 PM PDT by usconservative (When The Ballot Box No Longer Counts, The Ammunition Box Does. (What's In Your Ammo Box?))
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To: Jeff Head

Thank you so much for sharing your experiences with us. Your strength is admirable and your blessings evident.

I don’t know how I have missed all your previous updates but this is the first I have seen. Your family and you will be included in my prayers and may God continue to hold you in the palm of His hand.


50 posted on 06/19/2011 6:49:11 PM PDT by jch10 (I stand with Sarah Palin)
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