Skip to comments.Update: # #286 - Amanda is home! Cancer free! "Mandy"13 y.o. in need of prayer-lump on hip & ca
Posted on 02/11/2010 10:38:19 PM PST by Joya
CURRENTLY via FReepmail from LibertyRocks 02/11/2010, late Thursday
It was a rough day. We are right now at Childrens Hospital, we came in this afternoon at 2:30 and by 5:00 she was admitted as a patient.
We are in our own private room in the oncology ward - not because she is sick, or because they are thinking its definitely cancer (still on the table though), its because there are so many kids sick with the flu and H1N1 in the other part of the Peds wing. Its nice because they are very private rooms, and very comfortable and homey.
= = = BACKGROUND via FReepmail from LibertyRocks 02/07/2010 [Superbowl Sunday]
I took my daughter Amanda (13 yo) to the doctor last night [Feb. 6]. She had been complaining of a sore calf for the last 2 weeks. I (we) assumed it was a pulled muscle, and told her to take it easy - she was still walking around and wasnt limping, but we didnt notice she was walking on her tiptoes on that leg (long pants...). Yesterday, she came to me and said, Mom its starting to hurt REALLY bad, and theres a lump.... Turns out there was a lump there, and its been getting bigger over the last week or so (at this point its slightly oval and at least 2 in. in diameter!). At the doctors office we were able to get her in to get an ultrasound before the techs left for the weekend. I saw the ultrasound, but dont know what I was really looking at - it seemed the mass was pushing out in between her calf muscles so its origin was deep - like next to the bone itself. After the ultrasound my daughter got nervous and confessed there is a lump on her hip thats been there for some time (a few months???) - its much smaller, but its there.
[WHY dont children tell their parents these things? I cant tell you how frustrating this is now.]
Anyway, the doctor ruled out infection, and a blood clot, and they mostly ruled out a pulled / torn muscle (it would hurt WORSE on her toes if it were the muscle), but they cant give us a diagnosis at this point at all. They are scheduling her for an MRI (of her leg & hip) first thing [February 8], we need to schedule an appointment with our reg. doctor ASAP for a referral to an Orthopedic Surgeon. If the MRI doesnt give us more of an answer she will need a biopsy.
Please just pray for Jesus to heal my baby!
Weve ruled out the easy stuff, and there is no history of trauma to the area either! This leaves a few VERY scary diseases - two that are cancers that primarily affect children her age. Combine that with the fact that her doctors are flying half-blind with only familial medical history of her father (Im adopted), and it necessitates they treat this as if its a cancerous growth until they rule that out.
My daughter is normally a nervous person (like her mom), so please also pray for her to have strength, and not to worry. Im trying VERY hard to be brave and strong for her, Im praying with every other breath at this point.
Thanks to everyone for their prayers over our family. I know so many others are going through their own problems. Please know, you all remain in my thoughts and daily prayers.
God Bless all of you, LR
You’re very welcome. Please keep us informed.
continued prayers LR
Thank you for the update. You are in our continued prayers.
Heartfelt prayers for complete healing for Mandy.
Prayers for Mom, Libertyrocks too and for all who love Mandy.
Prayers up for Mandy, you, and all of your family.
Lord please bless your servant Amanda with good health and complete recovery.
In the name of the Father, and of the Son, and of the Holy Ghost, in the company of saints in heaven we pray.
You have my thoughts and prayers. May God bless, strengthen, and heal your dear daughter.
Nothing can be scarier than your child sick. God be with you all.
Praying hard for Mandy.
UPDATE: GOOD NEWS!
PRAISE GOD for He is good - ALL THE TIME!
We received some VERY VERY good news today! Amanda received a needle aspiration/biopsy of both masses today. Within TWO hours they were able to identify the culprit... She has blastomycosis (blasto for short). It’s a fungal infection endemic to our area due to the WI River here in Wausau.
She is still in the hospital (our oldest who is 18 is with her tonight having a “sleepover party”), and she may be there for a while longer.
They will do a full body scan tomorrow to see if they find any other infected areas, then they will start her on anti-fungal medications. We’re not sure if they will start with IV treatment for a couple weeks in the hospital, or if she will be able to come home, but she will need to be on medication for around 6 months, at least.
She may still need surgery on the mass in her calf - the Orthopedic Surgeon and Infectious Disease specialist are discussing that tonight and we should know more tomorrow. They are thinking of going in, removing the infected mass, and making whatever repairs they need (if necessary) to her muscle and such in that area.
I can’t even express my anger regarding the treatment we received at the local hospital here, but right now I’m just going to be happy because this - according to her doctors - is probably the BEST news we could have hoped for!!!
PRAISE GOD, and THANK YOU JESUS!!!
My deepest heartfelt thanks to all of you for all your prayers, love, and especially the emotional support you all have given me. I know I wouldn’t have been able to stay strong and push so hard to get this taken care of without everyone “having my back” so to speak.
I will update again tomorrow after I speak with her doctors and the scan is completed. Thanks again for all the prayers. Amanda was able to briefly look through the thread last night, and she was very touched by everyone’s posts. Thank you so much everyone!
Thanks for letting us know. Continued prayers for a swift and successful treatment.
[the BEST news we could have hoped for!!!]
I am so happy for Amanda, you and your family. Wonderful news. What a weight has been lifted off your hearts!
Thank you Lord.
Prayers continue. Glad that the news is good; hope that they get her fixed up soon.
Prayers up for Mandy and her family.
Praying that the lesion is benign and can be easily removed.
Glory be to God, our Creator, Physician, and Savior.