Skip to comments.With his son terribly ill, a top scientist takes on chronic fatigue syndrome
Posted on 10/07/2015 12:59:44 PM PDT by Seizethecarp
Before he got sick, Whitney Dafoe was an award-winning photographer and a world traveler. But now, at 31, Whitney lies in bed in a darkened room in his parents home, unable to talk, walk or eat. This isnt the picture that people imagine when they hear chronic fatigue syndrome, which is often viewed by the public and the health-care community as a trivial or primarily psychological complaint.In a February report, the Institute of Medicine gave the illness a new name systemic exertion intolerance disease. Many patients have long criticized the name chronic fatigue syndrome for not reflecting the seriousness of the illness. The new name, some say, is not much of an improvement. Some patients call it by an older name, myalgic encephalomyelitis. Most official documents refer to it with a compromise term, myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS.
The IOM report notes that doctors often lack understanding of the condition and are often skeptical that it is a true medical condition, believing instead that its partially or wholly psychological.
Some may therefore be surprised that the illness is now a major research focus for one of the worlds leading biomedical scientists.
That scientist, Ronald W. Davis, is Whitney Dafoes father.
Davis heads the Genome Technology Center at Stanford University. In the 1970s, he developed techniques for gene mapping that were later used in the Human Genome Project, for which he was a co-investigator. In 2013, the Atlantic magazine named him one of Todays Greatest Inventors, along with such people as Vint Cerf, sometimes called the father of the Internet, and Elon Musk, one of the founders of electric-car company Tesla Motors.
(Excerpt) Read more at washingtonpost.com ...
This is a real illness, but doctors always go back to saying you’re depressed. I would LOVE for someone to figure out how to test for CFS.
That’s what I was thinking lymes is nasty stuff
I suspect gut bacteria. But doctors know so little about nutrition they’ll never figure it out.
If not caught on the 1st go round and or eradicated it comes back much later and raises hell.
Most Dr say no way..I say treat for it,whats to loose.
Can he click a mouse?
Thank you for posting this. I have been battling exhaustion for two years now. Thought it was lymes. Was treated. It has turned my life upside down. It used to be I would sleep 5 hours a night and was good to go- any more and I got headaches. Sleeping in and taking naps were never a part of my life.... now they are. Since I am so tired and foggy I am now all of a sudden clumsy and have taken quite a number of very, very bad falls and sustained very bad injuries which require more down time to heal. Now, I sleep 12 hours a day and still am exhausted. Nothing seems to help.
Some of us (PWCs)[Persons With CFS] have learned to deal with the numerous symptoms, but life is a constant series of choosing which battle to fight which day. Some days, the malaise is just too strong to deal with much more than just getting out of bed.
I’m grateful that someone is now taking an interest in the long-ignored disease.
Thank you for posting this.
Worse than Lyme disease by years...
Maybe processed food with MSG and High fructose syrup. Doctors I have had in the past would go hrumpf when I mentioned I could not have any. Some even said that vitamins would not help yet when I stopped eating foods with that stuff in it and took more then the recommended vitamin D and Iron then I was not tired but as soon as I eat anything with that MSG and High fructose syrup in it I get tired. The kind of tired that you do not want to do anything, even sleep.
Faith, google B-12 with zinc patches. Patches work much better than pills. They’ve made a HUGE difference in my life.