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Deaf babies deserve no less than Rush Limbaugh
HoustonChronicle.com ^ | May 12, 2002, 6:18PM | JOHN WHEELER

Posted on 05/13/2002 5:03:04 AM PDT by rw4site

Deaf babies deserve no less than Rush Limbaugh

By JOHN WHEELER

Rush Limbaugh went deaf last year and received a cochlear implant. In time, he can expect to hear and speak about as well as he did before. But deaf babies are not so lucky. Most have no access to cochlear implants, because their parents want to cure the affliction but cannot afford the procedure. By contrast, deaf parents who use genetic manipulation to conceive deaf babies are guaranteed lifelong public support for their children under various state laws and the Americans With Disabilities Act, or ADA.

Every year, about 4,000 deaf babies are born in America. If a baby cannot hear, its auditory pathways become altered, so that by about 24 months language comprehension and speech begin irreversible degeneration. But with an implant, the baby grows up hearing, attending regular school, even taking piano or ballet lessons. The earlier an implant is received -- in Germany now as young as five months -- the less special care a baby needs.

Yet only one in 10 deaf babies gets an implant before damage sets in. One reason is that just 65 percent of babies have their hearing tested at birth. Then there is the money. Inadequate reimbursement by private insurers and Medicaid puts implants beyond the reach of most families. To avoid losses, implant centers are forced to limit the number of cases they take. Some are in danger of closing.

The scandal is that neither Congress nor the executive branch supports parents who choose hearing for their baby. Government maintains deafness, while the rest of society acquiesces. This is because of the activism of the deaf community, whose view is that deafness is a lifestyle, not a medical affliction, even though they insist that they are covered by the ADA.

From Congress to newborn wards, parents and policy-makers face deaf activists who extol the virtues of living deaf. Meanwhile, implant surgeons are labeled "profiteers" and anti-deaf "bigots," and accused of genocide. Some are so besieged they dare not even offer patients the option of an implant. Meanwhile, we swallow the myth that keeping a baby deaf is morally and medically equivalent to letting the baby hear.

Society is not wrong in according respect to the deaf community. The isolation of deafness was, until recently, quite real. Helen Keller said that if given a choice between deafness and blindness she would choose to hear because deafness isolates you from people, while blindness only isolates you from things. Thanks to the deaf community, American sign language is hugely successful in ending the isolation. Ironically, just as the deaf culture came into its own, technology produced the cochlear implant, the first bionic device to stream digital data directly to the brain. If every deaf baby gets an implant, then the deaf culture, long sought by deaf individuals, will shrink in the coming generation. This is hard for many to accept.

It would take $160 million per year for an implant in every baby whose parents choose hearing. Savings from avoiding special schooling and other support could be 10 times that amount, according to recent independent studies. The funds can be found: direct grants to families or guaranteed loans; educating insurance executives so that medical policies cover implants, surgery and habilitation; and vouchers that let parents choose either deafness or hearing for their baby. One way to jump-start the drive is parity of funding. Let total federal funds each year for implants for newborns match the annual total for special education of children and students who are kept deaf.

But the first step is to come to our senses -- literally. Deafness, like blindness, is a medical affliction. More than 95 percent of the parents of deaf babies are hearing parents. They desperately want their babies to hear. If later the child decides to turn off the implant, that is real choice. There is no choice if we strip the baby at birth of its ability ever to hear.

It is time we do as much for those who want hearing as for those who don't. The parents of these babies are isolated and defeated. Against their wishes, nine babies a day are abandoned to deafness. They deserve the same miracle that Rush Limbaugh enjoys.


Wheeler is chairman of Right to Hear, based in Washington, a movement to give parents an affordable choice to let their babies hear.


TOPICS: Culture/Society; Miscellaneous; Unclassified
KEYWORDS: deaf; rights
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Mr. Wheeler has found a "Right" I've never heard of and I'm not deaf.
1 posted on 05/13/2002 5:03:05 AM PDT by rw4site
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To: rw4site
Very interesting column. I have to agree, the money would be better spent providing hearing instead of assisting the deafness.
2 posted on 05/13/2002 5:08:28 AM PDT by Cincinatus' Wife
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To: Cincinatus' Wife
Apparently we'll never return to our Constitutional government, so I will agree with you about this being one of the better uses of government (our taxes) funds.

However, how long do you think it will take for Congress to make the funding available for those on Medicare/Medicaid?

3 posted on 05/13/2002 5:24:58 AM PDT by rw4site
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To: rw4site
Re: "Deaf babies deserve no less than Rush Limbaugh"......By JOHN WHEELER

You aren't kidding me, are you?

This was written by Hillary Clinton, right?

4 posted on 05/13/2002 5:27:42 AM PDT by G.Mason
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To: rw4site; dighton; aculeus
Guess the Houston Chronicle needed to fill some space. Gratuitous headline and a pointless article.
5 posted on 05/13/2002 5:29:45 AM PDT by Orual
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To: rw4site
Deaf babies deserve no less than Rush Limbaugh

So why stop at cochlear implants? Rush also golfs and owns a private jet. Let's buy everyone golf lessons and private jets also!

I hate it when otherwise worthwhile charitable causes decide to go on the attack. Now, instead of feeling sympathy for deaf children, I feel contempt for their advocates.

6 posted on 05/13/2002 5:31:42 AM PDT by Snuffington
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To: rw4site
Anything written by the Houston Chronicle is pig tripe.

Wheeler should know that you can get loans from those rotten banks.

You can start a fund for the child.

But noooo! Slam Limbaugh... he's an evil right-wing conservatve who has money.

I pee on this type of thinking.

7 posted on 05/13/2002 5:37:41 AM PDT by johnny7
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To: rw4site
Cochlear Implants (CI) have gotten good press but the actual results across the board are not quite so impressive. CIs have several limitations. Pretending that they can turn someone born deaf into a "normal" person - with the corollary notion that CIs can work this wonder on ANY deaf person - is not only deceptive but has an evil result on the public attitude toward deaf people similar to about 60-70 years ago when battery powered hearing aids became common; the usual hype was that a hearing aid could "cure" ANY deaf person ... so any person you might meet who is still deaf must be nothing but stubborn and uncooperative and not entitled to any consideration.
8 posted on 05/13/2002 6:01:08 AM PDT by DonQ
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To: Snuffington
"Rush also golfs and owns a private jet. "

If the demos have their way we will be purchasing all his meds when he retires.

What I think is hideous is that we have financed deafness so much that it is now a "lifestyle". How many children won't get to ever hear becuz of this movement?
9 posted on 05/13/2002 6:07:19 AM PDT by lizma
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To: Snuffington
Let's buy everyone golf lessons and private jets also!

Can I substitute advanced fly-casting for the golf? ;-)

10 posted on 05/13/2002 6:13:56 AM PDT by StriperSniper
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To: DonQ
What I wish Rush would do is give a short informative discussion to his audience regarding CI. I inquired about the procedure to my son's audiologist if he would be a good candidate for it. She told me that Rush's surgery was so successful because he had had normal hearing and had only lost it for a relatively short period of time before getting the implant. When the CI was implanted (and it destroys any hearing you may have), Rush was able to "remember" speech and music, etc.

My son has a small amount of residual hearing at this point and can "hear" somewhat better with hearing aides, but there is no clarity. He will not have had the advantage of knowing what "real" speech sounds like.

I will let him decide when he is older (14-15 yo), if he wants to lose the hearing he has now for a chance at a different kind of hearing, or keep what he has. It broke my heart when he asked my husband the question "When I grow up am I going to hear like you Dad?"
11 posted on 05/13/2002 6:41:30 AM PDT by PLOM...NOT!
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To: Cincinatus' Wife
Very interesting column. I have to agree, the money would be better spent providing hearing instead of assisting the deafness.

I must EMPHATICALLY disagree with you. The article states

One way to jump-start the drive is parity of funding. Let total federal funds each year for implants for newborns match the annual total for special education of children and students who are kept deaf.

What the twit who wrote this is advocating is taxpayer funding of implants for deaf babies. The money would be much better spent by the individuals who earned it in the first place rather than taken from their pockets at gunpoint and then squandered by government bureaucrats on making the deaf more dependent on government. Remember every single dollar that government spends on anything comes from the pocket of someone who worked to earn it, and that is a dollar that the original earner can't spent to feed, cloth, house, etc. himself and his family.

12 posted on 05/13/2002 6:42:12 AM PDT by from occupied ga
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To: from occupied ga
I'd rather have less of my tax $$ spent on CIs than more of my tax $$ on ADA assistance for the left-wing "deaf activists".
13 posted on 05/13/2002 6:48:53 AM PDT by fishtank
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To: rw4site
They deserve the same miracle that Rush Limbaugh enjoys.

I'm not heartless, but hmmmmm... Let's see. Rush has plenty of money. Rush has medical insurance. Hey, nimrod! Didn't Rush PAY for his "miracle?" You got money to pay for everyone else that "deserves" this treatment?

I didn't think so.

14 posted on 05/13/2002 6:53:49 AM PDT by mhking
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To: rw4site
Deaf babies deserve a radio talk show?
15 posted on 05/13/2002 7:02:08 AM PDT by PBRSTREETGANG
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To: Orual;dighton
Gratuitous headline and a pointless article.

It gives "fluff" a bad name.

16 posted on 05/13/2002 7:02:48 AM PDT by aculeus
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To: rw4site
The scandal is that neither Congress nor the executive branch supports parents who choose hearing for their baby

How about the choice to be BORN???

17 posted on 05/13/2002 7:04:37 AM PDT by AppyPappy
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To: rw4site
More than 95 percent of the parents of deaf babies are hearing parents. They desperately want their babies to hear.

And the deaf activists are waiting in the wings of the hospitals for some parent to mention trying to get their kid to hear. Then they'll descend on them in the fashion of either side of the abortion or sex ed debates, giving out so much false information and appeal to emotion, that the parents will in the end consider it to be child abuse to get their kids the medical attention they deserve.

Sorry, rant over. I saw a show on this a few years back on a treatement that could help deaf children, and the few deaf activists they interviewed really sickened me.

To put into perspective: "Don't get that baby's severe cleft palette fixed" said the speaker for the Cleft Paletteers of America.

18 posted on 05/13/2002 7:10:25 AM PDT by Quila
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To: PLOM...NOT!
I suggest that you get in touch with the National Assn of the Deaf, 814 Thayer Avenue, Silver Spring, MD 20910-4500, email: nadinfo@nad.org

They have a Junior NAD division, sort of a deaf cub scouts organization, which can help your child tremendously. The vast majority of deaf children are born to hearing parents, and those kids tend to grow up with seriously underdeveloped social/coping skills, self-image, etc. Early socialization among other deaf kids, with instructors expert in deaf culture, can make an enormous difference.

19 posted on 05/13/2002 7:11:09 AM PDT by DonQ
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To: rw4site
Hey wait a minute--deafness is preferable. Remember the deaf couple (I believe they were lesbians) that mated with a deaf sperm donor a couple of weeks ago?
20 posted on 05/13/2002 7:14:31 AM PDT by Musket
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