Call the medical companies maybe they can assist.
We now have a name for the attack that sent me to the hospital last Oct and again Aug 23 Colitis ileus. Slow motility with an obstruction, only treatment is a liquid diet and rest. And PAIN meds. Their motility drugs are not very effective. Had a reaction to Reglan broke out in a red rash back and chest that itched like hives and diarrhea. They did learn there is no infection in the GI tract.
I’m so glad to hear there is some understanding of your situation going on...you have sure had a hard time of it with trying to get your doctors to listen to you! You remain in my prayers...Maybe now, they will avoid the things that are messing with you and give you what helps!