But how much is actually getting to treatment and research?
Here's their Form 990:
http://www.guidestar.org/FinDocuments/2013/133/271/2013-133271855-09f7c477-9A.pdf
Here's an article on the subject:
http://www.cincinnati.com/story/news/local/2014/08/21/als-association-finances-2013/14380977/
In 2013, "The association paid out $6.6 million in grants for research and clinical trials to attempt to cure the disease."
Their office is on K. St. in D.C. They are lobbyists.
From what I read, their donations received in 2014 will be much higher than in 2013.