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To: HollyB

Glad you got through it so well. My buddy had a rough time when he had his BMT. He was in and out of the Hospital for nearly a Year, but he made it through.

While my CLL is currently treatable, I also have MDS (Myelodysplastic Syndrome) which will probably require a Bone Marrow Transplant if it becomes more aggressive.

MDS has a habit of morphing into Acute Leukemia, so my Oncologist is keeping an eye on it.

The same time I was told my CLL was in Remission I was told that I also had MDS. I told my Oncologist that I didn’t realize he was having a BOGO Sale.


72 posted on 05/07/2017 11:33:22 AM PDT by Kickass Conservative (The way Liberals carry on about Deportation, you would think "Mexico" was Spanish for "Auschwitz".)
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To: Kickass Conservative

Btw, a Stem cell transplant is never easy for patients and I’m still suffering.
The first year is just awful for us as we are like infants. I pretty much was a bubble girl. Unless someone has been thru a donor SCT (different than when using your own cells), one can’t even imagine the recuperation process. Hopefully, your friend does not have GVHD. That’s when the donor cells attack the recipient’s body. Sun exposure can trigger skin gvhd so SCT patients need to stay covered up all summer. My chief gvhd complaint is gvhd of the eyes. Vision issues from it can’t be corrected with glasses. Apparently, I’ve got it good in comparison to most who deal with GVHD of the gut, skin, kidneys etc. I try to remind myself that I’ve got it good.


85 posted on 05/08/2017 7:32:26 AM PDT by HollyB
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