Inside story: spinal muscular atrophy
Doctors want to let a disabled baby die, on the ground that his existence will be intolerable. But who are they to judge quality of life, argues Spike Breakwell, who was also written off as a child
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Theres a 17-month-old lad, named baby MB, whose parents are going through the courts at the moment on his behalf. He has SMA. The doctors caring for him want to withdraw his life support as they suspect that his quality of life will be intolerable. His parents, somewhat understandably, dont want them to do this.
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When a doctor makes a mistake, the patient dies. When an abortionist makes a mistake, the patient lives. Gianna Jessen was aborted by saline solution but lived to tell the story -- and what a story it is!
The doctor told Penny [foster mother] that she should give up on the thought of Jessen progressing beyond a vegetative state.
"Doesn't this language sound strangely familiar?" Jessen asked. "Didn't we hear the same language over and over last March in regards to a woman named Terri Schiavo?
"So my point being ... we cannot take the lives of weak people just because they make us uncomfortable," she said. "Just maybe those weak people might be forcing us to deal with the issues in our own souls."
Jessen explained how she could relate to Schiavo, who survived for 13 days after being deprived of food and water, because Jessen had the same will to live as a struggling infant.
"When you want to live, you fight," Jessen said. "The person, whether or not she can speak, is speaking volumes by the fact that she will not give in to death .... [So] this has gotten me thinking about why in the world we are so eager to end the lives of weak people...."
The same condition was diagnosed when I was younger, although, in fact, I never had the exact condition that baby MB has. What actually made me disabled was the oral polio vaccine I had when I was 4 months old (Im now 37). My problem is that my muscles have atrophied, the root cause being in the spine.
On another topic, the survivor of abortion is in the news again...
A Near-Death Experience
Jessen is an abortion survivor who now spends her life speaking up for the speechless. She was invited to meet the president on August 5, 2002, as a result of her standing before Congress and testifying on behalf of the Born-Alive Infants Protection Act that Bush signed into law that day.
Abortion Survivor ... Rescued, Redeemed and Running the Good Race
8mm
Terri after the attack and before bioethicking.