A sad few days we live in. Glad your daughter made it in spite of tremendous odds. You are blessed! Will pray for your grandchild.
Who would think in our days of technological advances politicians would be seeking to limit the advances in medicine and human life as they increasingly are doing.
Above all trust in God our Father, He is sovereign and trust worthy!
I spelled her condition incorrectly. It is Non-Ketonic hyperglycemia's.
Our daughter and son-in-law are rightfully very concerned as to how this legislation will impact her care, as she is only about 1-1/2 years old and will be in need of very aggressive treatment for some years to come.
The child was normal in the womb all the way to delivery. Shortly after birth her glycine level began to climb rapidly - - her little body began to shut itself down. It was a very difficult, painstaking, and expensive testing procedure over several weeks that finally determined her condition.
A lot of damage was done in the time it took several laboratories to pinpoint the cause. Since it is a rare condition, there could be no guess work.
We thank God that the family was not abroad on the mission field at the time because the technology required to properly diagnose the problem would not have been available at all.
But now there is this concern that our granddaughter's treatment and the treatment of other such children will be hindered, slowed, and/or halted altogether by bureaucrats dictating the terms of health care to physicians.
The pro-abortion people have always cried out, “Personal health decisions are between a woman and her physician only.” But now what will they cry? With whom will they stand?
Will the level and quality of care for severely ill newborns be determined by the physician and the parents? Or will the physician have to wait for word from a bureaucrat?
Abortionists will not likely side with sick infants, will they. After all, they will defend the killing of infants in “live abortions” and partial-birth abortions. These people have no normal regard for life. What care do they have if a very ill newborn dies without care; “just another burden gone.”
When our own daughter, at birth to two weeks old, lay in a children's hospital in south Florida in 1979, with a head the size of a two year-old’s, she was not alone there.
There were about 15 other newborns in that neonatal section born with serious, heartrending birth defects. A few of them had actually been abandoned by the parents entirely, according to the nurses there. We suspect that some were abandoned at the advice of physicians. Why do we suspect such? Keep reading.
My wife and I, and others, spent time at each bed or incubator praying for those children. Some would certainly perish. How do we know that?
When our daughter was three weeks old, a neurosurgeon in Coral Gables, Florida, by the name of Purlmutter, told us, “Your daughter is USELESS; she will be nothing but a severely retarded vegetable.”
He tried to get us to put the child back in the hospital, abandon her to the State of Florida to be institutionalized, and “ . . . go home, raise your son (then two years old), and FORGET THAT SHE HAD EVEN BEEN BORN.”
Yes, the heartless surgeon told us that our daughter was “USELESS.” He used that very word.
When we later told this to his associate, a man named Morrison, Dr. Morrison told us that it simply cannot be determined what progress our daughter might make or whether she will be a “vegetable.”
We can now imagine that surgeons like Purlmutter would gladly go along with bureaucrats who might suggest that it is not “cost-effective” to care for such newborns, and they should just be allowed to die.
We are very sure now, putting 2 and 2 together, that had we institutionalized our daughter, she would have been allowed to die.
I believe that we can look for a big increase of this kind of thing when health care is rationed by bureaucrats.
I don't believe that God can continue to bless or preserve a society that murders its unborn and denies care to the elderly or the very young.
Rationing of health care will mean the denial of health care to very many!
We are in the fight! We phone lines and computers will remain red hot in this cause regardless of the final votes on this DE-stimulus legislation.
And I will repeat that we are in fact fighting communism in this effort. Make no mistake about that!
Thanks again for your kindness in spending time in prayer for our granddaughter. That is still the greatest weapon of all.