[bethybabes69]

Thanks to all lurkers who may be inclined to add information in a future post.

I bet, like myself, many people are lurking and reading in horror at the emergence of this dreadful condition.

My Love and prayers go out to you Scythian, and any others suffering in silence..

FWIW, I've never heard of this here in Britain either directly, or indirectly referring the the US, why aren't people speaking out about this? This should be shouted from the rooftops to get some weight behind a process for defining treatments.

[PGalt]

FWIW, I've never heard of this here in Britain either directly, or indirectly referring the the US, why aren't people speaking out about this? This should be shouted from the rooftops to get some weight behind a process for defining treatments.

HEAR! HEAR!

Thanks bethybabes69. I've told everyone I communicate with on regular basis about it...including my family members. I sent links to this site/thread to many of them.

Life/health/prayer BUMP!