Thanks Brytlea, not sure we have one in our very small area, but it may come to that if it gets any worse.
Well, just don’t give up and be an advocate for him if he won’t advocate for himself. I spent several years with pain doctors before I found a good neurologist (because I had no idea what was wrong with me). They simply wanted to give me pain killers and didn’t run tests etc. I don’t have a complete diagnosis, but it was such a relief to have at least a name for my condition instead of feeling like it was all in my head. And I have to say, I was actually glad when my nerve conduction test wasn’t normal. I know that sounds a little crazy but it showed that things weren’t working normally. When your symptoms are simply something you can describe but no one can *see* you do start to feel like a nutcase.
Of course phantom sensations and stuff can be quite disturbing!