One more point to all - there are indeed some wonderful and amazing doctors out there. I wish I had time to tell more of our story. In brief, a friend that has a daughter with DS pointed us to a new pediatrician whose office was about 2 miles from our house. Turned out he has a teenage son with DS, is a grad. of Harvard med. school, and is active in DS research and our local organization. Heck, he is one of the people responsible for establishing separate growth charts for children with DS.
Even though we had met him on only one occasion (when we interviewed him to see if we liked him), he went out of his way to visit us and our son in the hospital, twice. Another pediatrician from his office (actually, a large medical practice of 50+ docs) also stopped by to visit us. We had never met this pediatrician before, yet he spent an hour with us in the hospital room, mostly just talking - not about anything in particular, but just a friendly visit to let us know that there were people in the medical profession that cared about us and our son, and understood what we were going through. At the end of his visit, he told us the story of The Snow Goose (the short story by Paul Gallico). By the end of the story, he had tears in his eyes - and so did we.
There are indeed many, many special doctors out there. Don't stop looking until you find one.