Hubby has had Crohns for 27 yrs and now has to take a b12 shot monthly due to losing 15 ft of intestine in 2 surgeries. Do you have to do the shots also? His b12 was so low doc said it was dangerous!
I've got Crohns too, and while I haven't had a bowel resection, I've got an elevated white blood cell count (13000 - 14000) that just won't come down, and they suspect it may be caused by a combination of long term use of prednisone (20mg/day since 1985) and low levels of vitamin B12. I've been getting the injection monthly as well, but we're going to try a month of my using a 1MCG supplement daily to see if it works at all. If not, I may look into doing the IM injections myself.
Mark
I also have no lower itnestines, and only part of my upper/small intestines, and have had to have stomach rerouted, resected (had to have a Ruyan(sp?) ‘Y’ done to bypass diseased sectio nthat couldn’t be removed and was closed up and non functional because of hte Crohn’s
I’m suppsoed to be o nthe shots- I did try them for awhile, but it didn’t seem ot be helpiung, so I quite a few years back, but I’ve developped peripheral neuropathy over hte years that has left me weak and causes muscle ‘burning pain’ (I liken it to when you overexcersize, and your muscles begin to burn, and you have to stop to let that burning sensation stop before you can go on again- this burning pain happens to me with very little muscle stimulation now- causing excersize intolorance and making life kinda miserable)- looking into the issue, there’s a condition caused by B-12 dificiency that causes neuropathy- from what I understand, it’s irreversible, and the only hting you can do is take B-12 to keep it from getting any worse.
I’ve ordered some B-12 methylcolbalmine which is suppsoed to be a more absorbable form for people with isntestinal problems- we’ll see how that works-