Actually it is fibromyalgia folks who have the pain, as well as fatigue, so you might have CFS.
Have you ever tried an alternative doctor?
Are you going to take the XMRV test?
I’ve had so many different doctors and test in my life-time that I have given up.
Want to hear what the last and greatest reason for the fatigue?
This one given by .. another specialist!!
Because my mother was 12 at my birth and because I was a preemie .. I Lack .. ‘Something”!
Not sure what it is but Definably .. “Something”!
Fibromyalgia (FMS) has a sharper more localized pain. My wife has it, and there is overlap with CFS as the Canadian Criteria for both syndromes best describes, IMO.
CFS has the “bad flu” kind of aching and progressively severe muscle stiffness, depending on the individual. I take 10mg of backlofen (a drug mostly used for MS but also CFS) four times a day to allow me to walk and move and I still have spasticity that greatly limits my mobility.
CFS also often has progressively severe orthostatic intolerance, which is intolerance of standing even briefly or for sitting for more that a few hours without needing to lie down. The intolerance to upright posture takes the form of either hypotension or much less frequently hypertension, as I have, followed by neurocardiogenic syncope (blood pressure drops suddenly causing loss of consciousness).
For the first five years or so that I had CFS, I really wasn't in conscious pain very often as long as I paced myself, but in the most recent five years the stiffness and fatigue and need to lie down every few hours makes you want to cry sometimes just from frustration at not being able to function.
A key part of the orthostatic intolerance is pooling of blood in the lower body and poor return of the blood to the heart which has been associated with CFS. This causes painful discomfort from just sitting upright for more than 15 minutes, say in a restaurant, which I can't do anymore. Air travel or even extended car travel is out of the question. I must sit with me feet elevated all day to avoid increasingly intolerable discomfort.
So while most of this doesn't qualify as “pain” it causes my day to be oriented around avoiding severe discomfort and staying awake as long as possible between obligatory naps...