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To: AD from SpringBay

We had a neurologist pushing some medication to my daughter for a hand disorder she has (focal dystonia). He was correct at diagnosing the disorder, but wrong about the treatment.

He said the medication had minimal side-effects, but we reaseached, and it has terrible side effects. It also only works on a small amount of people.

We went to a movement disorders specialist, and she told us that is not how they treat dystonia when it is in 1 area of the body. The medication is for people that have it throughout their bodies and the benefits outweigh the risks.

The specialist has sent my daughter to physical therapy.

Grant it, it’s not helping, but nothing much does help with the disorder.


13 posted on 04/15/2013 8:42:02 AM PDT by luckystarmom
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To: luckystarmom

“He said the medication had minimal side-effects, but we reaseached, and it has terrible side effects. It also only works on a small amount of people.”
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If people knew enough to consider the possibility of a positive result and weigh that against the possibility of a devastating “side effect” most would throw their pills away and pharmaceutical stocks would crash like a train wreck. I have done a little studying on my own and it is truly absurd the way Americans take pills that may have only a three percent chance of any positive result and expose themselves to the possibility of side effects up to and INCLUDING death.

I have personally seen some of the victims of thalidomide which was sold for five years or so ending in 1962 for relief of morning sickness in pregnant women. It was taken off the market quickly because the results are so awful, babies born with tiny arms and legs and other problems. Many other medications that should be taken down stay on the market because the results are not so obvious.


102 posted on 04/16/2013 7:06:36 AM PDT by RipSawyer (I was born on Earth, what planet is this?)
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