As I said, the government should not be involved in this process IMHO. You feel differently. Fine, apparently we disagree. Big whoop.
But since they are involved, using the avenues of our Republic to petion them is perfectly worthwhile.
My hope is that we will return to a more sane policy and let the medical profession, through working with their patients and the facilities that are available, work out the issue.
The fact is, the girl will die with no transplant. She has a chance to live with one. That is simple to understand. It is understood that there are waiting lists. The storuy makes that very obvious. I hope the girl gets a lung, despite that. Apparently, because of the rules, there ae=re two lists. I do not know how long she has waitred relative to others.
However, I have faced a similar circumstance...luckily for me, before the implementation of the Obama Care program and its mentality. My rare Chordoma Cancer involved my entire sacrum with three additional spots in my illium.
The doctors at MD Anderson who sat on the board for the proposed surgery were not sure it would be worthwhile to operate on a 54 year old man, because they feared it had already spread. The facility and its resources are finite. Tough decisions hghad to be made.
However, my cancer had not spread to the soft tissue and so my Dr., Dr. Rhines at MD Anderson, percervered and the approval was given there, by the professionals on that board.
My insurance company did not have a vote in it. They would either pay for it (and they did) after my deduction, or I would have been put on a financila plan by MD Anderson to pay on it the rest of mmy life.
The very difficult and involved three surgeries were performed, with multiple surgical teams in each. They were successful. I was in the hospital for over three months and then spent a good six months in very internse therapy.
As a result I can walk, work, and am living out my life with the resulting disabilities.
And you know what...if I had heard or knew that a 10 year old was going to die unless I gave up my position on the table...I would have done so. But the Dr.s assured me things were not that dire and no one would have to "die" for me to take my place there.
As I said before. I hope and pray this girl gets the organ, the procedure and her chance to live. Praying for that to occur is not emotional or non-coherant. it is an act of faith.
Petitioning my representatives to help is not emotional or non-coherant, it is working within our constitutional system to try and impact an outcome.
You have the right to petion otherwise. Knock yourself out.
You are demanding a political override of a medical board’s decision, while stating it should be a medical decision. That is incoherent.
Well, the Organ Transplant board has decided, so why should the government intervene with their non medical, politicized decision making power.
Leave the Organ Transplant Board alone. Every TDH is now going to demand an appeal and congressional hearing regarding their place on the list and what criteria placed them there, is that how we’re going to do it now?
Because that is what you are demanding.
It’s great that your doctor persevered, but you said so yourself, nobody else was going to die or lose their chance at treatment as a result of your treatment. That is not the case here, so don’t try to draw an analogy between her treatment and yours. They are not in any way equivalent.
Again, where is the news about finding her a live partial lobe donor???
So does everyone else on the waiting list. Why should the criteria be ignored for her and not for everyone else. Why should she be made an exception and not everyone else. Why her and not some other pitiable dying person. That is why the Organ Board developed the criteria in the first place. So now we should just pitch it, because why again??? Your point or philosophy on this issue truly eludes me.