Sebelius: Health Care Waivers Are For Union Pals, Not a Dying Child

Are you as concerned about the 35 yo mother of several children that needs those lungs.

Of course I am. What, exactly in my statement made you think otherwise?

I was berating someone who, firstly, assumed Sebelius gives a rat's ass about anyone except her and hers and secondly, assuming someone with a family member needing a transplant sat around wishing someone would die so that their family member could live.

I'm not saying some of them might not, but I don't spend my time sitting around passing moral judgment on my own assumptions concerning other people's motives.

How about you?

yes, husbands brother died in accident and his wife had to decide to let him go, and donate his organs

many people live better lives because of her decision but it is still a decision she re-thinks over and over again, wondering....

we too lost a teenager, our 19 yr old son, it was not a situation where organ donation was possible, but he himself had made that decisions when he got his driver's license and checked the block to be a donor

When he checked that block on his license I asked if he was sure and he said “Mom, I'm not stupid. Why wouldn't I do this?”

Geez, the things you think will never ever happen.

Their daughter has one chance to live. A stranger somewhere might give her that opportunity by generously donating lungs they no longer need; organs that are critical for the child. A cruel and heartless government has denied the young lady that option. The parents are exercising their only remaining option by appealing the bureaucrats' decision to the court of public opinion. They recognize that the young lady may still die from her disease, but if their plea is heard at least she will have a possibility (albeit small one) at life. And that's all they want. Period.
I have to admit that if I were in their circumstances, I would do exactly the same thing that the child's parents are doing right now.

To impute other sinister motives to the parents' actions is not only unfair, it reflects on your own personal character. And I suggest that in your case, a reassessment of your value system is long overdue.

It doesn't matter what kind of semantics you use. The fact is, to get an organ "donation", someone must die. (With the exception of kidney transplants.)

If I were in that position, there is no way I would have myself or my child put on a transplant wait list. I do not have the right to actively hope for a stranger to die for my benefit. Nor do I have the right to wish the agony of loss on another family just so I can have their loved one's spare parts.

No, I do not see anything wrong with my value system at all.

First, thank you for helping me understand the low success rate of a shaved lung procedure. This is totally different from the information I received that said the success rate of adult lungs in pediatric patients was significantly higher.

While this is a very emotional issue, I understand both sides and would have to fall on the side of the medical professionals.

It is never easy losing a child. I think sometimes our loss was easier because it was sudden, unexpected, and there was nothing we could do. To sit and watch your child die slowly and not be able to help is a pain I’d never want to experience.

CC, I hope, for your sake, that you find the “miracle” that will lessen your suffering and extend your life. You will be in my prayers.

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