The girl has been diagnosed with Dravet syndrome, and has a heart and oxygen monitor, so I'm sure she's under the care of MDs. From the Dravet Foundation:
Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Initial seizures are most often prolonged events and in the second year of life other seizure types begin to emerge.
Development remains on track initially, with plateaus and a progressive decline typically beginning in the second year of life. Individuals with Dravet syndrome face a higher incidence of SUDEP (sudden unexplained death in epilepsy) and have associated conditions, which also need to be properly treated and managed.
http://www.dravetfoundation.org/dravet-syndrome/what-is-dravet-syndrome
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So if it were up to you, would you allow the girl to be treated with marijuana?
Even if she lived her brain would most likely be fried anyway, without it. If nothing else has worked, may as well try it.
I’m not at all a fan of rec use, but if someone’s dying of cancer and the combination of properties gives them enough strength to live because they want to eat and can keep it down, or frying their brain from intractable seizures, there’s quite literally nothing to LOSE by trying.
Like any drug, prescribe it wisely, where it may do good.