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Thank you for posting this. I have been battling exhaustion for two years now. Thought it was lymes. Was treated. It has turned my life upside down. It used to be I would sleep 5 hours a night and was good to go- any more and I got headaches. Sleeping in and taking naps were never a part of my life.... now they are. Since I am so tired and foggy I am now all of a sudden clumsy and have taken quite a number of very, very bad falls and sustained very bad injuries which require more down time to heal. Now, I sleep 12 hours a day and still am exhausted. Nothing seems to help.

[[Since I am so tired and foggy I am now all of a sudden clumsy and have taken quite a number of very, very bad falls and sustained very bad injuries which require more down time to heal. Now, I sleep 12 hours a day and still am exhausted. Nothing seems to help.]]

Aint it fun? The brain fog is terrible, making it very hard to think or keep concentration on anything too complicated or lengthy- but the exhaustion is horrible- it absolutely destroys your life

For those who have symptoms like those at the link in this report, try to find an MD who will buy into the new definition of the illness, especially including orthostatic intolerance, i.e. intolerance of sitting or standing for very long.

https://iom.nationalacademies.org/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf

By the way, the article might not be entirely up to date as I believe that the PROPOSED new name, SEID, “Systemic Exertion Intolerance Disease” was rejected and ME/CFS was decided to be retained for various reasons.

Of course, first you have to be screened by your MD for the zillion things that are NOT ME/CFS. ME/CFS is a “diagnosis of exclusion” meaning you get it only after they have excluded everything else. There is not yet any actual POSITIVE TEST for ME/CFS.

Although more and more there ARE signature confirming tests of things such as REACTIVATED VIRUSES as in my case...a whole pile of them for which I take a pile of Valtrex!

I wanted to offer you a possible way to help. I had similar symptoms as you 5 years ago. My doctor had no clue, and never did, but on my own I found out I was suffering from multiple food sensitivities. By doing a simple blood test from an independent lab unrelated to my health care provider (who as I said was clueless and never would have found me this help) I was able to simply change what I ate, and my health was restored.

http://meridianvalleylab.com/E-95

Here is the website of the lab that did my test. There are no doctors or insurance companies involved which makes the price of the test low. Last time I sent a friend to get help from Meridian Valley Lab, the cost of the blood test was 277 dollars. It was only 255 when I did it 5 years ago. It literally saved my life to do this simple blood test.

I got the “combo test” which tests you for 200 foods. The Combo Test is the basic food panel plus the “extended” food panel and is test #2200 when ordered.

The nice folks at the lab tell you what to do when you call.
They take payment over the phone, mail you the test kit, you go to a local approved blood draw place (it is free here, but usually it costs 50 dollars and that is in addition to the $277), they use the kit you bought to prepare the blood sample, they send it back to Meridian for you (it’s pre-paid with the kit), and you get in the US Mail a 4 page chart of what you are OK to eat and what to avoid.

I felt better in one day. I was jumping for joy, Praising The Lord, and called the lab a few times to tearfully thank them for saving my life with a 250 dollar test.

If I was a doctor, I’d require all my patients to take this cheap test. Doctors are so dense about how foods we eat, become part of us, and certainly have the potential to harm us just like other allergies like pollen and other breathed in stuff.

God Bless, and I hope you feel better soon. Freep mail me with any questions, I am a bit of an evangelist for this test, since I owe my health to it.