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New Jersey Takes The Lead In Confronting Autism
Newark Star Ledger ^ | 12/29/2002 | Carol Ann Campbell

Posted on 12/29/2002 7:53:16 PM PST by Incorrigible

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I'm glad to see that Autism research is getting more attention.  More worthy than research into diseases that can be prevented with behavior changes.

I'm actually surprised that the reporter came across two girls for this story since Autism is so much more prevalent in boys.

As the father of one of the 4,000 children in NJ diagnosed with Autism, we tried some of the medical/gastro-intestinal solutions.  The DAN protocol was the basis of his diet for a while.  He's still dairy free and mostly casein-free but we're slowly integrating a more varied diet.  I attribute any success he's had more to his therapist teachers than to his diet.  Unfortunately his vocabulary is still very limited and it strains him to say even those few words.  I highly recommend the PECS system which is his primary method of communication.

 

1 posted on 12/29/2002 7:53:16 PM PST by Incorrigible
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To: afraidfortherepublic; dead; seowulf; Severa; USA21; alnick; FormerLurker; Mack the knife
Autism Bump. Let me know if you want on or off.
2 posted on 12/29/2002 7:54:02 PM PST by Incorrigible
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To: Incorrigible
Please put me on the bump list. A few of my friends have autistic children and I'm extrmely interested. I believe the huge increases in diagnosises is that autistic children were classified as mentally disabled in the past. More and more children have moved to the autistic category. Are the actual numbers going up?

I recently read a story on Dan Marino's kid. Completely cured.

I had an autistic friend in highschool. He would run down the hallway with his arms outstrectched. He really believed he was an airplane. He was obsessed with the weather and watched the weather channel all day if able. He actually flew airplanes with supervision too. I don't believe he was ever able to work, but he did drive.

3 posted on 12/29/2002 8:04:26 PM PST by Archie Bunker on steroids
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To: Incorrigible
Some more history on the guy I knew from school. This was in the 70s & I believe many school districts didn't know what autism was. He was kept in public schools, which probably hamed him more than anything. Although he was highly functioning in several areas, he was harrassed to no end. He finished highschool at age 21.

I wonder if someone like him had access to today's treatments, could he have progressed like Dan Marinos son.

4 posted on 12/29/2002 8:11:12 PM PST by Archie Bunker on steroids
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To: Archie Bunker on steroids
Interesting.

I didn't know about Dan Marino's son.  I did a search an came across this article:

This Marino miracle is a victory over autism

I was aware of Doug Flutie (http://www.dougflutiejrfoundation.org/)and his son who unfortunately, is still profoundly Autistic.

5 posted on 12/29/2002 8:16:51 PM PST by Incorrigible
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To: Incorrigible
My grandson is on the Autism spectrum - Asperger's - and I'm most interested in this study. Please put me on the your list!
6 posted on 12/29/2002 8:26:19 PM PST by jtill
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To: Incorrigible
If there is an increase in autism that does not necessarily indicate either a rise in genetic defects nor in environmental toxins (altho both conditions may exist), more likely it simply means an increase in the willingness of diagnosticians to identify a kid as autistic instead of, say, retarded or attention-deficit.

You'd think, from reading this article, that nobody trumpeted a "breakthrough" before, but I remember about 5 or 6 years ago there was a lot of buzz about "facilitated communication" - involving a parent or a therapists "helping" the kid pick out letters on a keyboard. Carefully devised tests proved that it was the parents who were really doing all the communicating.

There are still several different theories about what causes autism, and it is possible that several or all of them may be right, in the sense that several different causes can lead to apparently similar diagnoses. But it is possible that autisms from different causes require different treatments.

7 posted on 12/29/2002 8:37:09 PM PST by DonQ
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To: Incorrigible
My best friends only grand son is autistic and he keeps telling me how lucky I am to have a grandson to interact with. Has there ever been a study of a link to MTBE, the gasoline additive that is leaking into ground water supplies
8 posted on 12/29/2002 8:47:52 PM PST by tubebender
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To: Incorrigible
Please add me to the list. I have a friend who's 2 year old son may have Autism.
9 posted on 12/29/2002 8:54:43 PM PST by Columbine
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To: Incorrigible
I didn't know about Dan Marino's son. I did a search an came across this article:

The article really doesn't go into detail on which therapies, diets, etc., helped Dan Marino's son. At least that is my opinion such as it is. I would very much like to be put on your list please as I have a 12 year old autistic child. Thank you..:)

10 posted on 12/29/2002 8:55:50 PM PST by atpeace
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To: Incorrigible
Please put me on ypur Autism bump/ping list...Thanks

Matt
11 posted on 12/31/2002 4:07:54 PM PST by Mixer
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To: Incorrigible
bttt. My friend works with some autistic children in New Jersey through a form of music therapy. This is of course no substitute for a medical study of the situation & treatment. But the results have been amazing. Music, movement, rhythm should all be explored more as ways to reach these kids and avenues for them to express themselves and feel more engagement with the world around them.
12 posted on 12/31/2002 4:15:06 PM PST by PianoMan
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To: Incorrigible
I'm skeptical of a diet that reverses some of the effects of autism. The same things have been claimed for Bipolar, ADD, and schizophrenia, but they never panned out.

Please add me to the Autism Bump List.
13 posted on 12/31/2002 4:19:43 PM PST by gitmo
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To: Incorrigible
I'm actually surprised that the reporter came across two girls for this story since Autism is so much more prevalent in boys.

It is more rare in girls however I know of at least two.

My nephew is Autistic and my sister works, shadowing two boys, 3 days a week. She was also working with a girl but it didn't work out. My wife is also friends with woman a who has an autistic niece.

14 posted on 12/31/2002 4:34:44 PM PST by Mixer
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To: Incorrigible
I remember reading about 15 years ago of a doctor in England I think who did some work with autism and hearing. It seems in some cases the ear is receiving ultra high pitched sound. This would be quite annoying and distracting. The doctor "tuned" the ear of the patient and blocked out the high frequencies. Her results were remarkable. I read this in Reader's Digest and have never seen itmentioned anywhere else.
15 posted on 12/31/2002 4:44:08 PM PST by pbear8
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To: Incorrigible
Thanks for the ping. I've been out of town, away from my computer, and visiting with my autistic grandchild in NJ.

It is just heartbreaking to watch my grandchild. He is about 8 now and larger than his older brother, yet functions at a level less than his 3 year old brother in many ways. He does have some language, although most of it is just repetitive. On this visit, I did hear him say a few things unprompted.

We brought our Golden Retriever for the visit, and my autistic grandchild interacted with the dog a little bit, although he was also frightened of the dog. We couldn't get him to address Max (the dog) except once when the dog put his cold, wet nose on his tummy. Then he said "Max!" -- not Max-the-dog. That was a break through.

My daughter and grandchildren took Max on a hike in Ramapo State Park, and my autistic grandchild did enjoy sitting and playing with Max's tail when they were resting at the end of the trail, watching his fur cascade when my grandchild held the tail aloft. This was also a major breakthrough because many autistic children are reluctant to touch new things.

Before our visit was over, my grandchild had learned to ask me for help with the DVD player. He's very good with mechanical and electronic things -- has them all figured out. But the DVD is new and requires a complicated procedudre to program, and he has NOT been shown how to do this for a good reason -- he'd be doing it all the time.

I have to say that not all autism education in NJ is as positive as this story implies. Many school districts are reluctant to provide the mandated education for their charges and funnel the kids off to other districts where they have no rights.

How I wish that my affected grandchild lived close enough to Princeton to benefit from the work that is being done at Edens.

16 posted on 01/02/2003 3:03:07 PM PST by afraidfortherepublic
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To: PianoMan
My friend works with some autistic children in New Jersey through a form of music therapy.

Where? My 8 year old autistic grandchild LOVES music. His main form of entertainment these days is his boom box. He enjoys listening to CDs of Satchmo singing Disney songs. He plays them over and over. He also enjoys his DVDs (the VCR had to be retired because he wrecked too many tapes by playing them over and over.) He likes the colors and movement, but I'm convinced that the music is also an equal attraction. I would get him a keyboard if I thought that he could learn to use it.

17 posted on 01/02/2003 3:08:48 PM PST by afraidfortherepublic
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To: Incorrigible
I saw this on 60 minutes the other night, hope this helps.
http://www.cbsnews.com/stories/2003/01/14/60II/main536416.shtml
18 posted on 01/18/2003 10:22:46 PM PST by Coleus (RU 486 Kills Babies)
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To: Coleus
I did see that. Thanks!
19 posted on 01/19/2003 8:46:36 AM PST by Incorrigible
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To: Incorrigible
I'm listening to this guy now on the radio, wor.

You may want to check him out for allergy and nutritional evaluations.

http://www.drpodell.org/autism_treatments.htm
20 posted on 01/19/2003 12:19:17 PM PST by Coleus (RU 486 Kills Babies)
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