That is TRAGIC!
I’d never heard about this.
Thank you for posting this.
I copied practically everybody who’d posted on the thread because I think it’s really important for people who are fighting socialized medicine in the US to have a good arsenal of examples. Tilly is one of the most appalling examples, since the 7+ years she and her family spent dealing with this awful situation was not the result of the usual culprits — i.e. lack of resources, rationing, waiting lists, etc — but just the result of nobody in the entire NHS system having any motivation to find a solution.
That’s what’s wrong with removing personal profit from the system. Everybody is busy “doing their jobs”, but nobody is focused on trying to do better than others so standards drop through the floor. Tilly’s special feeding system and related medical attention obviously cost the system a good deal of money, but nobody in the system would have earned a penny more by finding the right answer, even though in this case that clearly would have saved the system considerable money.