As it stands now, with the CDC, “the squeaky wheel gets the grease” and monies that could go for research into the causes and possible cure of CFIDS (insidious, nasty disease) we get what’s left after AIDS and breast cancer research.
If you need enlightenment on the disease and how it affects victims and their families and friends, go to cfids.org/symptoms. A lot of us could have been productive a lot longer than we were.
Great post, and bravo to you for your donations to charities for Chronic Fatigue and Immune Dysfunction Syndrome. I know some people who suffer from the awful disease of Chronic Fatigue Syndrome... I would love to see a cure.
Aw, shucks!
I fought long and hard, just to have the diagnosis put in print on my medical records, but during that fight, the disease had progressed beyond what could be cured, if there was a cure. It wasn’t diagnosed because no one can diagnose a disease they don’t believe even exists!!
As it is, I am constantly in a state of relapse and remission, but even my remissions have little relapses. I still have to choose my battles.
CFIDS is ugly and deserves more attention than it is getting.