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If you're referring to my grandmother's case, I had always thought that hospice was focused specifically on caring for those in an imminently terminal condition. In fact, I thought that you could not receive hospice care unless you were in that dire state(at least that is how it was back when I was with VNA). I did not realize had since begun expanding into longer-term care scenarios, such as with my grandmother. My uncle had power of attorney and we were not consulted or involved in her medical care decisions. From reading this thread, I gather now that hospice may have been able to offer more hands-on care than was normally provided in that small personal care home. It was not a positive experience, but I also can't say it was negative, as the others were.

Between 4 traumatizing experiences with 3 different hospice care providers & an experimental cancer treatment program, (the details of which I will not share), the horror of the Terry Schaivo incident, and the "peek behind the curtain" at who is funding the "evolution" of hospice care, I personally have a very negative opinion of hospice. However, out of respect for others here who are dealing with the raw grief of recent loss, I'm not going to salt their wounds by enumerating my grievances. My own grief is too fresh for me to be objective. However, I'm sincerely glad for those who have had good hospice experiences or who have provided exemplary hospice care.