[corkoman]

Until you have a loved one who has this condition I recommend that you pause before making such statements.

My mother has it in spades. It is likely to be a mixed herpes/CMV/Epstein-Barr viral infection that is intra-neuronal and exceedingly difficult to diagnose.

I have spent hundreds of hours trying to get tone-deaf doctors to make the smallest effort to consider anti-viral treatment.

100 Years ago some might have claimed that diabetics were making it up.

[Uncle Miltie]

I suppose it depends on your experience.

[petercooper]

I recommend you do some serious research on fungus. Doug Kaufmann’s ‘Know The Cause’ is a great place to start. He has linked fungal overgrowth to all of the conditions you mention. The key is to starve the fungus of sugar/starches. You should start your Mom on his Phase 1 diet. Watch the show. It’s at the site.

http://knowthecause.com/

http://knowthecause.com/index.php/health-blog/doctors-and-trade-professionals/1366-higher-levels-of-mycotoxins-found-in-urine-of-patients-with-chronic-fatigue-syndrome

http://candidaclub.org/shawns-page/is-fungus-making-us-sick-tired-old-and-fat/

http://www.nsc24.com/fibromyalgia.htm

[Seizethecarp]

“It is likely to be a mixed herpes/CMV/Epstein-Barr viral infection that is intra-neuronal and exceedingly difficult to diagnose.”

After suffering for 15 years and having my PCP tell me this year that “you are depressed” I finally got my highly sensitive blood test results back from Dr. Nancy Klimas’ NOVA ME/CFS neuroimmune clinic in Ft.Lauderdale (one of the few and most advanced in the nation and it was confirmed that I have reactivated Epstein Barr Virus (HHV-4) aka mononucleosis.

In other words, I have a chronic case of mononucleosis like we used to have back in college, only I don’t get over it, it just keeps going on and on and on.

But that is not what is called ME/CFS...that is ON TOP OF my ME/CFS and is an opportunistic infection taking advantage of my underlying ME/CFS, as best as I can understand the research and my condition.

I also have severe orthostatic intolerance and vestibular migraine, both, IMO as a result of ME/CFS as an underlying condition for the past 15 years as a neuro-inflammatory condition.

The trolling scoffers may mock, but let them walk a mile in my shoes and pray that they never have this condition!

[Seizethecarp]

PS: The NOVA ME/CFS clinic has put me on the antiviral Valtrex for the reactivated EBV/mono (well actually the generic valacyclovir)

The Valtrex has kept the mono from killing me a couple of months ago (it was really taking me down) but it hasn’t knocked out the mono yet.

I consider my self lucky not to be co-infected with MULTIPLE herpes family viruses and other viruses that other s with ME/CFS are found to be co-infected with when tested at NOVA and Stanford.