Posted on 09/28/2020 9:09:58 PM PDT by Mariner
That sounds like trigeminal neuralgia. I suffered that for several years, until a dentist finally found a cracked tooth and took it out. The trigeminal nerve comes out from the back of your head and covers most of your face.
https://en.wikipedia.org/wiki/Trigeminal_nerve
A lot of things can cause the disease; they call it the ‘Suicide Disease’, because people have killed themselves rather than live with it. The pain comes on very suddenly and unpredictably - I remember having to sit down on a curb and just cry, simply because a wind hit my face.
In your case, the shingles lesion must have been impacting the nerve, somehow.
(Ben Carson is one of the doctors who has done a lot of good work with this.)
Shingles is mentioned as one of the causes, in the Wiki on TN:
https://en.wikipedia.org/wiki/Trigeminal_neuralgia#Causes
https://www.urmc.rochester.edu/neurosurgery/services/conditions/trigeminal-neuralgia.aspx
Was he able to obtain opioids for the pain?
They are taboo now and they force all shingles patients to endure it with ibuprofen.
My wife got it on Christmas Day. We immediately went to an open (!) Urgent Care and she immediately diagnosed it as such.
She got an antiviral and a strong pain killer and it subsided. She got it again a few years later and treated it the same.
No lingering issues. However, my poor grandmother got it and had it chronically until her death. It sucks when you are alone and can’t see issues in a timely fashion through another set of eyes.
> I got the shingles vaccine and so far so good. <
Did you get the new vaccine (Shingrix)? It’s supposed to be much better than the old one. The new one is two shots. The two shots have to be spaced a few months apart.
As I noted in another post, I got a vaccine after I recovered from the shingles. It was the old one. Then when the new one came out I got that one too. I don’t fool around when it comes to shingles.
If the yahoo that did your roof could guarantee me I’d never have new shingles for 30 years, it would get me to a 100 years old. I’d take it. Shingles is a hard row to hoe.
Just insane pain that lasted 2 months. I’d go to work in the morning and hit the bed right after lunch and try to sleep. I lost all my muscle tone from lack of activity and even after the pain subsided I had no energy for months.
i have a friend who has the post-herpetic pain that has never subsided, she lives in misery.
re the vac: its a two shot vaccine nowadays....
“I don’t fool around when it comes to shingles.”
I will get the Shingrix series the moment I am allowed.
Shingles is nothing to fool around with as you said. It’s certainly not trivial.
Looking at your posts since you posted on this Shingles thread, I believe you go from thread to thread and never go back and check for responses to your previous posts.
I am pretty sure it’s the new one. It was this year. I still have another one to get. I never get flu shots but don’t mess around with shingles. Nasty stuff.
I was 35 when I had shingles on my torso. My dad had it at the same time. We had visited my mom in the hospital. Later we found out her hospital roommate had chicken pox. My dr said I was the youngest patient he ever had with shingles. So painful even wearing the softest t shirt.
Ahem! Look online about trying Lysine and Vitamin D, six weeks. Reportedly, vastly reduces shingles. Buyer beware, but check it out as I have not nor do I have shingles.
Stories like this from the OP are exactly why I went for the new Shingrix vaccine a couple of years back. I have enough serious health problems already without adding the horror of shingles to the mix. :(
Why is the pain so much worse at night...when the devil his own self stalks the weary?
Apologies. Never heard of a disease called Shingles. I was born in 1972. It seems to be an issue for people born before vaccines were prevalent. That said, no one in my family has ever suffered from this disease. Or, if they have I don’t know about it. Again, my apologies. Looks very unpleasant.
I got this protocol information from different internet sites and it worked out really well for me. I had mild discomfort for the first 2 weeks and I was done by week 4.
I recommended this protocol to two family members who also had the shingles and they had the same recovery I did.
Worse than kidney stones?
I’ve had it twice on my back. It hurt to stand up, it hurt to sit down or lie down, it hurt to laugh, cough, sneeze, or breathe. It hurt to eat. It hurt to wear clothes. The first time the treatment was cortisone shots in the affected area and some pain meds. The second time, I took some antiviral drug the doctor gave me.
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