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I need some help for my nine year-old nephew diagnosed with an aggressive cancer.
myself | May 3, 2012 | proud American in Canada

Posted on 05/02/2012 10:02:21 PM PDT by proud American in Canada

My nine year-old nephew has been diagnosed with Adrenocortical carcinoma. My sister lives near Madison, Wisconsin, and is seeing a doctor there for him. He is on mitotane and probably some other drugs I'm not aware of.

Apparently the prognosis is not good, like a one-in-five chance of making it through five years. A friend of mine mentioned the Children's Hospital in Philadelphia; apparently one of the best pediatric cancer specialists works there.

My sister is doing everything, and I mean everything. Supplements, massage, Reiki therapy, in addition to everything the doctors recommend. She also has him enrolled in clinical trials.

Now, I learned today that the doctors have made three massive mistakes--mistakenly diagnosing him when he was a toddler (and had pubic hair, muscles, and was beating up his older brother). In 2005 my sister and her husband were told they had tested him for Cushing's disease (?), or some other disease, when they had not. Then the doctors took an ex-ray in 2010 and missed the tumor (the size of a cantaloupe when they took it out a month ago; it's now metatasized into his lungs, although the last round of chemo seems to have shrunk the nodules a bit.

They're going to continue chemo, etc., as long as progress is made, otherwise; they're going to let him enjoy what time he has with his friends and family.

As a trained lawyer, I am sorry, but these mistakes over the years are lawsuit material. However, that is for another day. Not now. Now, the goal is to make him one of the 20% who live.

I know there so many Freepers who are smart and educated and I'm hoping there are some doctors or researchers, people out there who understand this.

I live in another country and am extremely emotional about this; it's affecting my work and sleep, although that is not important.

When I called my dad to say goodnight tonight (he lives right next door to them), I suddenly thought: Free Republic! I must ask for their advice!

In any case, if anyone has any advice or knowledge about this, I would really appreciate hearing from you.

I'm about to commit one of the cardinal sins of FR, posting and kind of running. It's really late here and I have to go to work, but I know I won't have time tomorrow. I'll stay up for another half hour or so and then check in tomorrow.

In any case, I would appreciate your prayers.

*posting while tears are running down my face*


TOPICS: Chit/Chat
KEYWORDS: adrenocortical; advice; pediatriccancer
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To: proud American in Canada

Of course we will pray for your dear nephew!


61 posted on 05/03/2012 7:22:08 AM PDT by Shimmer1 (government health officials seem to have the haunting fear that someone, somewhere, may be happy.)
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To: proud American in Canada
Prayers, prayers, prayers and a positive attitude all around. The doctors have a good chance of winning if your nephew truly believes in his heart of heart that he is being healed - and for that, everybody around him needs to be courageous and maintain a truly positive attitude 24/7 even when you're not around your nephew, because kids can detect fake encouragement. It must be honest and you must be a brave warrior in this battle.

Be positive and believe to the point of absolute certainty that you will attend your nephew's wedding.

God Bless you and your family.

62 posted on 05/03/2012 7:36:53 AM PDT by Sirius Lee (Sofa King Mitt Odd Did Obamneycare)
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To: proud American in Canada

Prayers


63 posted on 05/03/2012 8:45:34 AM PDT by patriot08 (TEXAS GAL- born and bred and proud of it!)
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To: proud American in Canada
Julie: try the Aflac Cancer center, they do remarkable things. Aflac Cancer and Blood Disorders Center of Children’s at Egleston
1405 Clifton Road NE, Third Floor
Atlanta, GA 30322
404-785-1200

Aflac Cancer and Blood Disorders Center of Children’s at Scottish Rite
(the Children’s Medical Office Building)
5455 Meridian Mark Road, Suite 400
Atlanta, GA 30342
404-785-3240

64 posted on 05/03/2012 10:31:19 AM PDT by JoeA (JoeA / Lex clavatoris designati rescindenda est)
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To: proud American in Canada

It’s the name of a local rattlesnake, aka Southern Pacific. You are the first to ask what it means!

The American Cancer Society has been busy not finding a cure for cancer for the last 70 years. They are the same people who will not find a cure for AIDS. But they get all the research money, and control the peer-reviewed literature.

Thomas Cowan is a great resource. He can do phone consults, and that may be a good way to determine whether you want to follow up in person.

God Bless!


65 posted on 05/03/2012 9:44:29 PM PDT by blackpacific
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To: blackpacific; All

Thank you, blackpacific!

I’m a journalist and my editor has often talked with me about how money keeps flowing into cancer research; golf tournaments, daffodil sales, etc., but “where’s the beef?”

I’m sure some progress has been done, but for laymen, it’s really hard to tell.

I’m going to forward this thread to my sister now. Thank you all for your help!


66 posted on 05/04/2012 11:32:52 AM PDT by proud American in Canada
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To: proud American in Canada

Try “The Germ that Causes Cancer” by Doug Kaufmann. His theory is very interesting. He has a diet that suppresses candida. His diet is very similar to the GAPS diet, which we follow. www.gapsdiet.com


67 posted on 05/04/2012 10:01:47 PM PDT by blackpacific
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