Posted on 08/24/2016 6:34:43 AM PDT by lysie
I'm not one to post vanities, but I need some advice/input. Do any of you know safe/successful alternative treatments for Multiple Sclerosis?
Thank you in advance.
Changing life style to a healthier eating and activity level can help...cutting out foods that cause inflammation (tons of literature on this) and reducing stress help. There is no cure.
She should search latest studies I recall reading that there were some good results in recent trials
Seems that way. She's a devoted Christian woman , wife and mother with strong family values.
I have a friend who has had it for years. She goes through periods of remission and problem periods, which is the most common form of the disease. Moving to a colder and drier climate helped her more than anything else. When she visits her old home area in Louisiana, she goes downhill within days from heat and humidity. She is very sensitive to any kind of pesticide exposure, which sends her into weeks of inability to walk properly.
Get Terry Wahls’s book and follow her ketogenic diet. Lots of meat.
I used to think I just felt bad most of the time, until I figured out my sensitivity to MSG and cut that shite out of my food chain. So simple.
Her Christian faith will help her through this.
I meant to say what another poster said about Vitamin D. She is on huge doses of Vitamin D3. Her blood is tested to see what her Vitamin D level is and then she gets a prescription for a mega dose of Vitamin D3 to bring her level up to what they think is best. Then she goes on a regimen of several thousand IU’s of Vitamin D3 per day. I don’t know the exact dose. Her blood is routinely tested to be sure the proper level is maintained.
I’ve had MS for over 20 years. The first MS treatments approved were the interferons. I was on Betaseron for many years and it seemed to help keep me relatively stable. Betaseron is an every other day injection. All meds are offered for RRMS (relapsing remitting MS) and a few years ago, I slipped across the line to SPMS (secondary progressive)...so no meds are used for that kind of MS
Her doctor is putting her on Copaxone which is a once a day injection, developed in Israel, yet it, too would be considered an older treatment.
The cutting edge now is Stem Cell treatment, but unless you’re in a “study” you won’t be getting it , and your insurance won’t pay, so we’re talking
around 20 thousand dollars, and I might be wrong about this, but I think you have to travel outside the country to get it done. I heard miraculous sounding stories about stem cell transplant (they use your own stem cells.)
Tysabri is a once a month infusion. People on this med report it can actually reverse symptoms. Only thing is, there’s a risk for a brain infection call PML, and so they discourage use of the medicine past a certain number of doses.
But most folks on this infusion love the way it makes them feel.
There is another new pill, beside Aubagio, that’s called Tecfidera. It’s exceedingly expensive, but usually covered by insurance. Don’t get me started on the cost because according on what was charge in Europe for this med in much higher doses, MS patients, and their insurance are getting supremely ripped off.
Tecfidera is supposed to be better than the original injectable ABCR meds (,Avonex, Betaseron, Copaxone, Rebif) It’s convenient, pill form. Side effects are gastrointestinal, but can be alleviated by eating certain foods with the pill, and those side effects seem to pass the longer you’re on them.
So many options, but it all depends on a person’s MS. Everybody’s different. Tell her because she starts on Copaxone doesn’t mean she’ll have to stay with the med. I know folks who have been on every med regimen, just looking for what’s right for them.
There are folks who have never taken an MS med and seem to be doing just fine, but I personally choose to medicate but I stayed with the older interferon, even as the new drugs were coming out because the Betaseron seemed to be keeping me somewhat stable and it didn’t give me side effects..
Read forums, you can get some great info from other MS patients.
MS World has a forum subset just containing meds. (I think MSWorld is down for maintenance right now...but it’ll be up soon.)
There are diets that are recommended for MS, Remember MS is not an immune deficiency, it’s just the opposite, my immune system has gone into overdrive and it’s gnawing on the myelin of my nerves, much like a mouse might gnaw on the rubber coating of an electrical cord. When enough of the “wire” is gnawed through, the signal stops getting through, or is slowed, and parts of my body don’t work right. My immune system is so hyped I haven’t had a cold or virus in years. Everyone around me will get sick, and I just don’t catch it (that may be one of the bonuses if there is such a thing)
Tell her welcome to the club that nobody wants to be a member of :)
Montel Williams credits cannabis for treating his MS. It’s a good medicine for some illnesses in some people for sure.
Vote Trump 2016
VITAMIN D
I use cannabis to treat anti-depressant withdrawal syndrome. Quality of life definitely took a huge bump into positive numbers as a result. IMO, it’s the perfect medicine for many but not for all.
Vote Trump 2016
Low Dose Naltrexone. Full strength Naltrexone is for recovering drug addicts and alcoholics, but low dose works by modulating the immune system so it will stop attacking itself and healing can begin. it is a prescription drug that is actually good for your health.
The other thing she could look into is the Auto-Immune Protocol (elimination diet). The theory is that many (if not all) autoimmune disorders are caused (or exacerbated) by leaky gut syndrome and the accompanying inflammation.
I have an autoimmune disorder (but not specifically MS) and I am completely asymptomatic using these two strategies.
I have read about this person, Terry Wahls MD, and she says she used diet mostly to put her into remission. Saw on facebook the MS Society is starting some trials of her protocol. Best of luck to your niece! https://www.facebook.com/TerryWahls
When I work with someone, we explore the root causes of their disease, decide which areas of their life could change to make their condition better, and then I walk with them on their journey to support both their physical needs and emotional needs.
What your niece wants is exactly what I do. I'd love it if you would give her my contact info. You can find my website at http://dandelionthyme.com
I've got a free download there with some first steps to take in getting back on track.
I wish her the best in her journey. MS is a tough diagnosis, but I've seen it go into remission and even reverse with understanding the root cause and working to resolve the ongoing inflammation that causes the damage.
Toke up... It’s good for the symptoms. At least that’s what I’ve heard....
You beat me to it in your advocating for pot.
Please note that there not only is pot bred specifically for MS and seizure sufferers, but they now can isolate the helpful components and ship it across state lines legally, as the active ingredient that helps MS patients is not THC or psychoactive in any way.
Lorenzo’s oil
http://www.sciencebasedmedicine.org/lorenzos-oil/
The Ketogenic Diet Works; A Mom Reflects on the Success
http://epilepsymoms.com/blog/complimentary-alternative-therapies/ketogenic-diet-works-mom-reflects.html
IF you are looking at health boards with broad discussions on various health issues and great advise Inspire is the place to go. Inspire.com they will know all about the drugs and alternative treatments. You just have to sift through until you find what works for you. PLEASE google all meds for reactions. Some are very horrible and lead to other diseases and more horrible drugs.
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