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Girl eats real food for first time in 7 1/2 years
SF CHRONICAL ^ | Thursday, February 24, 2005 | - Dave Murphy

Posted on 02/24/2005 1:46:59 PM PST by AnOldCowhand

From the time Tilly Merrell was a year old, doctors told her family she would never have a normal life -- or even a normal meal.

British doctors found that the food she swallowed went into her lungs instead of her stomach, causing devastating lung infections. They said she had isolated bulbar palsy, and their solution was to feed her through a stomach tube. Forever.

But having a backpack with a food pump wired to her stomach wasn't much of a life for a girl whose favorite smell is bacon frying -- a girl who once broke through a locked kitchen door in an effort to sneak some cheese. So her family got help from their community of Warndon, about 120 miles north of London, raising enough money to take Tilly, now 8, on a 5,000-mile journey they hoped might change her life, a journey to Lucile Salter Packard Children's Hospital at Stanford University.

Doctors at Packard were intrigued that she had no neurological symptoms often associated with the palsy. In all other ways, she was a normal child with a mischievous smile and a truckload of energy. After seeing her Feb. 7, they ran three tests and found out what was wrong with her.

Nothing.

She had infections, certainly, but they were long gone. And when she swallowed something, it went into her stomach, not her lungs.

Doctors prescribed occupational therapy, figuring that Tilly's body and mind needed to be conditioned, after 7 1/2 years of struggling, so that it would be all right to eat normal food.

(Excerpt) Read more at sfgate.com ...


TOPICS: Health/Medicine
KEYWORDS: food; medicine
Did they take her to the best doctors in France? Germany? Canada?

No. They brought her to the US.

1 posted on 02/24/2005 1:47:07 PM PST by AnOldCowhand
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To: AnOldCowhand



Good thing they didn't remove her feeding tube....


2 posted on 02/24/2005 1:51:03 PM PST by SouthernFreebird
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To: AnOldCowhand
Of course they did...this is where they know she will get the best treatment.

they ran three tests and found out what was wrong with her. Nothing.

Amazing.

3 posted on 02/24/2005 1:51:39 PM PST by Jeff Head (www.dragonsfuryseries.com)
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To: AnOldCowhand

Wow.


4 posted on 02/24/2005 1:52:52 PM PST by Auntbee
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To: AnOldCowhand
. . . doctors in the socialized British system clung to the palsy diagnosis.

You watch, there won't be a word in the British press about how socialized medicine deprived this baby of one of life's simplest pleasures for seven years, and in fact nearly ruined her whole life.

5 posted on 02/24/2005 1:59:17 PM PST by LibWhacker
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To: AnOldCowhand; All
What does a healthy young British gal who has been deprived of proper food her whole life want to eat?

Not fish and chips wrapped in a newspaper, not jellied eels, not bangers and mash, but THIS:

 

applause.gif

6 posted on 02/24/2005 1:59:19 PM PST by Stoat (Rice / Coulter 2008: Smart Ladies for a Strong America)
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To: Jeff Head
Of course they did...this is where they know she will get the best treatment.

But aren't their healthcare systems superior to ours in every way.< /sarcasm >

At least that's what we keep hearing.

7 posted on 02/24/2005 2:03:16 PM PST by AnOldCowhand (The west is dead. You may lose a sweetheart, but you will never forget her - Charles Russell)
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To: Stoat

Come to think of British food, maybe she was better off before.


8 posted on 02/24/2005 2:04:57 PM PST by AnOldCowhand (The west is dead. You may lose a sweetheart, but you will never forget her - Charles Russell)
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To: AnOldCowhand
After all, England is not exactly a backward nation when it comes to medicine. Tilly had several cases of severe pneumonia as a baby, and her mother said that doctors in the socialized British system clung to the palsy diagnosis.

Of course it's a backward nation when it comes to medice, they have a socialized system. They are cretins, or bureaucrats, whichever is stupider, take your pick.

9 posted on 02/24/2005 2:14:58 PM PST by Phsstpok ("When you don't know where you are, but you don't care, you're not lost, you're exploring.")
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To: AnOldCowhand
Come to think of British food, maybe she was better off before.

I'd be curious as to whether you still think so after watching this slide show:

Slide Show for album British Food

10 posted on 02/24/2005 2:17:42 PM PST by Stoat (Rice / Coulter 2008: Smart Ladies for a Strong America)
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To: AnOldCowhand

Whoops....you were comparing what was in her backpack to British food, not comparing American food to British food, weren't you?

My bad :-(


11 posted on 02/24/2005 2:23:50 PM PST by Stoat (Rice / Coulter 2008: Smart Ladies for a Strong America)
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To: Stoat

Actually, no...I was thinking of their staples like meat pies and boiled beef. I don't even want to think about their vegetables.

Maybe I've only seen the worst but I dated a girl from GB for awhile in high school, her family tried to pass off the most tastless gruels as good food. ARRRGGG...Just remembering it makes me want to wretch.


12 posted on 02/24/2005 2:32:43 PM PST by AnOldCowhand (The west is dead. You may lose a sweetheart, but you will never forget her - Charles Russell)
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To: AnOldCowhand

Agreed....when I visited London, I encountered the most spectacular and wonderful INDIAN restaurants that I had run across but the traditional British fare left me aghast and wanting to search for even a McDonald's. I was less than impressed.

It's nice to know that this young gal has an intrinsic knowledge of what's right, however :-)


13 posted on 02/24/2005 2:50:07 PM PST by Stoat (Rice / Coulter 2008: Smart Ladies for a Strong America)
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Comment #14 Removed by Moderator

To: AnOldCowhand

Asked about her first meal she said "It tastes like chicken."


15 posted on 02/24/2005 7:57:16 PM PST by Darkwolf377 (Individuality)
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To: Stoat

Some of the dishes in your slide show looked pretty appealing, Stoat.

Others looked downright weird.

Spent some time in the UK in the early 1970s. TDY to RAF Mildenhall. Liked their Bangers & Mash. Their mutton. Loved their Yorkshire pudding!

Couldn't get behind the idea of room temperature beer, so I fell in love with Single Malt Scotch instead. The Brits do seem to love their Beans & Spam too.

Jack.


16 posted on 02/24/2005 8:20:14 PM PST by Jack Deth (Knight Errant and Disemboweler of the WFTD Thread)
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Kirstie Alley's 'Fat Actress' Hits Sore Spot
WCCO | March 8, 2005 | staff
Posted on 03/08/2005 3:52:55 PM PST by EveningStahttp://www.freerepublic.com/focus/f-chat/1358785/posts


17 posted on 03/10/2005 11:15:48 PM PST by SunkenCiv (last updated my FreeRepublic profile on Sunday, February 20, 2005.)
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