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'Orchid Ladies' Test Gender Perception
Madison.com ^ | September 20, 2007 | Susan Lampert-Smith

Posted on 09/20/2007 4:35:26 PM PDT by Diana in Wisconsin

Friday, Oprah will look out at her audience, and in her Oprah style, ask:

"Are you a male or a female?"

A simple question, right?

The "orchid ladies," and other people born "intersex" know it's anything but simple.

"Sometimes I look in the mirror and wonder, who am I?" said Marcia, a 42-year-old Madison woman with delicate bones and curly brown hair.

She expects it will be surreal to see a national TV show talking openly about people born with her condition: female, but with the XY chromosomes of the male gender. A member of her support group, Katie, will be on Friday's show.

Marcia says the Oprah show is an important milestone in talking about a condition that caused so much shame that her family and doctor hid the truth from her. She didn't learn that she had XY chromosomes until she read her own medical records at age 35.

"I hope there will be other girls like me out there watching this and knowing they aren't alone,'' she said.

(A number of genetic conditions can cause as many as 1 in 4,500 babies to be born somewhere between the two sexes. Oprah's book of the month, "Middlesex,'' by Jeffrey Eugenides, has a lead character, Calliope, with a different intersex condition. Eugenides' word for it, hermaphrodite, is now looked on with disfavor.)

When Marcia was born in 1965 at St. Mary's Hospital, she was by all appearances a perfect baby girl, with all the external parts that girls are supposed to have.

But, inside, she was lacking a uterus and ovaries, and had internal testes, instead.

All developing fetuses have the capacity to develop either male or female organs, but in people like Marcia with "Androgen Insensitivity Syndrome" or AIS, the tissues don't respond to the male hormones and instead develop female. There an estimated 7,400 women with the condition in the United States.

In Marcia's case (but not in all) the condition runs in the family. I'm not using her full name because some family members aren't comfortable talking about it.

Frankly, no one was talking about it when she was growing up.

At age 12, she was given a genetic test, which revealed the XY chromosomes. Then, she had surgery to remove her internal testes, but she wasn't told the reason. All she knew was that she had had an operation and could never have babies. She would be on hormone replacement therapy the rest of her life.

And she was miserable.

"Growing up, I knew that I was different,'' she said. "I had to make up stories when my friends got their periods."

She said she always had low esteem. But she went to college, had a successful career, and has been happily married for 13 years.

Her husband knew she was infertile when they married, and was fine with that because he didn't want children, she said. He was also supportive, years later, when she accidently discovered the truth.

She saves her anger for the doctor who hid the truth from her for all those years.

Her saving grace was finding the AIS support group online at www.aissgusa.org.

There she meet other women who shared the condition, some of whom had also endured humiliating medical procedures and having their naked pictures — with their eyes blacked out — appear in medical journals.

She says she loves seeing teenage girls at the support meetings, knowing how much she could have benefited from them when she was growing up.

She also counsels younger women who contact the support group.

"Their first question is always, 'Are you married?'" she said. "They feel excited to know that a woman like them, with AIS, found someone to love and marry."

The women in the AIS support group call themselves "orchid ladies" because the surgery they had is called an orchidectomy. (The medical term for testes is orchids from the Greek "orkhis").

Also, Marcia said, "Because the orchid is the symbol of rare and beautiful women. ... Many orchids have roots that look like testes, and out of it grows a beautiful flower."

Marcia has never had gender confusion; she and most of the women in the group have always identified themselves as women.

Instead, the confusion is on the part of the rest of us, who think there's always a simple answer to the question: Boy or girl?


TOPICS: Health/Medicine; Society; TV/Movies
KEYWORDS:
I'd never heard of this before, but it doesn't effect many people compared to the population as a whole.
1 posted on 09/20/2007 4:35:28 PM PDT by Diana in Wisconsin
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To: Diana in Wisconsin
Yep, an estimated 7400 women in the country.

That’s a whopping 0.05% of women. Time to make ‘intersex’ bathrooms. /s

2 posted on 09/20/2007 4:44:59 PM PDT by varyouga ("Rove is some mysterious God of politics & mind control" - DU 10-24-06)
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To: varyouga

Well, if they’ve caught Oprah’s ear, I wouldn’t doubt it’ll be “The Flavor of the Month” and special considerations will be forthcoming. *Rolleyes*


3 posted on 09/20/2007 4:47:18 PM PDT by Diana in Wisconsin (Save The Earth. It's The Only Planet With Chocolate.)
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To: Diana in Wisconsin

Oprah is the Antichrist.


4 posted on 09/20/2007 4:52:37 PM PDT by lesser_satan (FRED THOMPSON '08)
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To: Diana in Wisconsin
You have never heard of Hermaphrodite, the “son” of Hermes and Aphrodite? (Greek gods)

Calling this condition anything other than “hermaphrodite” is simply “Newspeak”.

5 posted on 09/20/2007 4:53:26 PM PDT by NathanR ( Duncan Hunter for SecDef)
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To: Diana in Wisconsin

It certainly isn’t justification for all the transgender nonsense out there. This isn’t about sexual preferences or sex change operations.

It’s too bad these poor people are being exploited to further the homosexual agenda, but that’s what the left is good at, exploiting people to further their agenda.

Personally, I’d rather not know. I can’t imagine dealing with being married to a man if I found out that I had an XY set of chromosomes.


6 posted on 09/20/2007 7:06:11 PM PDT by metmom (Welfare was never meant to be a career choice.)
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To: wagglebee

ping


7 posted on 09/20/2007 7:06:39 PM PDT by metmom (Welfare was never meant to be a career choice.)
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To: metmom

Most men find Jamie Lee Curtis quite attractive. In fact these people are really female in body proportion, bone structure, genitalia. Androgen makes an embryo a male and the absence of androgen makes an embryo a female. These people are not sensitive to it and, therefore, female.


8 posted on 09/20/2007 11:09:43 PM PDT by Rudder
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To: Rudder

what does Jamie Lee Curtis have to do with it?......


9 posted on 09/21/2007 12:52:02 AM PDT by cherry
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To: cherry

One of this syndrome.


10 posted on 09/21/2007 1:29:43 AM PDT by Rudder
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To: Diana in Wisconsin
Tom Cruise and Oprah, with their electric personalities, will solve all the problems of the world...given enough air time.


11 posted on 09/21/2007 3:04:37 AM PDT by Daffynition (The quieter you become, the more you are able to hear.)
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To: Rudder

Proof or just speculation? I know Jamie Lee Curtis has children and I thought these people were not capable of childbirth.


12 posted on 09/21/2007 5:12:53 AM PDT by marine86297 (I'll never forgive Clinton for Somalia, my blood is on his hands)
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To: Daffynition

He is SUCH a freak! If anyone is sexually “confused” it’s him.


13 posted on 09/21/2007 6:14:48 AM PDT by Diana in Wisconsin (Save The Earth. It's The Only Planet With Chocolate.)
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To: marine86297
I thought these people were not capable of childbirth.

They're not.

14 posted on 09/21/2007 7:13:32 AM PDT by Rudder
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To: marine86297

It’s a rumor that’s been around for years. Snopes has an article on it at: http://www.snopes.com/movies/actors/jamie.asp


15 posted on 09/21/2007 9:35:12 AM PDT by Starter
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To: marine86297
“... Jamie Lee Curtis has children ...”

They’re adopted. Of course, that doesn’t prove the hypothesis. It seems that, as is often the case, the people who know aren’t talking and the people who don’t know are.

16 posted on 09/21/2007 1:23:36 PM PDT by riverdawg
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