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One Woman Death Panel: Sebelius Wonít Allow Dying Girl to Have Transplant
life news ^ | Steven Ertelt

Posted on 06/04/2013 8:23:51 PM PDT by Morgana

HHS Secretary Kathleen Sebelius is refusing to intervene in a case of a young girl who needs a lung transplant as doctors have only given her weeks to live.

From a local news report:

The Newtown Square girl has been hospitalized for three months with end-stage cystic fibrosis.

Sarah is not giving up hope. She wants to be a singer, but needs a lung transplant to live. Her parents have been with her constantly while she waits at The Children’s Hospital of Philadelphia.

“She worries that she’s dying, because she’s not — she’s a smart kid. And she says to me, ‘Mommy, will I wake up tomorrow morning?’” said Janet Murnaghan.

Organ donation rules require adult lungs to be offered first to people over the age of 12. Sarah’s parents say that’s not fair.

“Rules are meant to be broken. My child is not a statistic. She’s a person,” said Janet.

Sebelius says she doesn’t want to intervene in the transplant case when other sick children are dying, but Sarah’s family says hey want the policy changed for all children awaiting a lung transplant, not just Sarah.

Sarah’s aunt Sharon Ruddock says older children should be eligible for adult lungs because so few pediatric lungs are available.

She says that would add just 20 children to the 1,600 people on the adult waiting list.

Sebelius has called for a review of transplant policies, but the Murnaghans says Sarah doesn’t have time for that

Sarah’s parents have launched a public relations campaign to try to get the rules changed and an online petition in support of Sarah has been created with thousands of supporters.

Congressman Patrick Meehan stepped in and sent a letter to the Secretary of Health and Human Services requesting that she address the tragic unfairness and act to give Sarah a chance at life.

Meanwhile, members of Congress asked Sebelius during a congressional hearing about Sarah’s case:

Health and Human Services Secretary Kathleen Sebelius rebuffed an appeal from Rep. Lou Barletta, R-Pa., on behalf of a girl who needs a lung transplant but can’t get one because of a federal regulation that prevents her from qualifying for a transplant.

“Please, suspend the rules until we look at this policy,” Rep. Lou Barletta, R-Pa., asked Sebelius during a House hearing Tuesday on behalf of Sarah Murnaghan, a 10-year-old girl who needs a lung transplant. She can’t qualify for an adult lung transplant until the age of 12, according to federal regulations, but Sebelius has the authority to waive that rule on her behalf. The pediatric lungs for which she qualifies aren’t available.

“I would suggest, sir, that, again, this is an incredibly agonizing situation where someone lives and someone dies,” Sebelius replied. “The medical evidence and the transplant doctors who are making the rule — and have had the rule in place since 2005 making a delineation between pediatric and adult lungs, because lungs are different than other organs — that it’s based on the survivability [chances].”


TOPICS: Conspiracy; Health/Medicine
KEYWORDS: abortion; again; deathpanel; deathpanels; obamacare; prolife; sebelius; zerocare
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1 posted on 06/04/2013 8:23:51 PM PDT by Morgana
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To: Morgana

Are the parents of this girl Republicans?


2 posted on 06/04/2013 8:33:45 PM PDT by GeorgeWashingtonsGhost
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To: Morgana

Dear LORD,
Please make a way where there is no way for this young girl. YOU promise, “I know the plans I have for you, plans for good and not for evil to give you a future and a hope.
In JESUS name we pray. Amen.


3 posted on 06/04/2013 8:33:52 PM PDT by stars & stripes forever ((Blessed is the nation whose God is the Lord!))
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To: Morgana

Hope this bitch sleeps well at night. Some day she will pay the price herself.


4 posted on 06/04/2013 8:35:27 PM PDT by elephant
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To: GeorgeWashingtonsGhost

I wouldnt be surprised if they are..if these parents were two lesbians this child would have already gotten the lungs..its not just about how supposedly adult lungs are not meant to be in young children, its what Sebelius said, “Someone lives and someone dies” she is basically saying that this child is going to die anyway so whats the point..this is how Obamacare is going to be run, if your old, or you don’t have a good chance of living a long life, they won’t bother taking care of you..its the true meaning of death panels


5 posted on 06/04/2013 8:36:58 PM PDT by Sarah Barracuda
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To: Morgana

I wonder if the Organ Transplant bureaucracy is the same as it is at the IRS, EPA, etc., where conservatives are abused and Leftists are favored.


6 posted on 06/04/2013 8:40:02 PM PDT by UnwashedPeasant
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To: Morgana

Too bad they were not Democrat Donors

It appears that helps, under Obama’s thuggery


7 posted on 06/04/2013 8:45:57 PM PDT by Mr. K (There are lies, damned lies, statistics, and democrat talking points.)
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To: Morgana

Unfortunately, in this case I believe Sebelius is right, for a couple of reasons (one of which she didn’t mean to prove). First, who should be bumped down the list so this girl can get the transplant? If she gets it, almost certainly someone else will die. Lungs are kind of odd, in that they don’t last very long in transplant situations. They start degrading, unlike other transplanted organs. After 5 or so years, the patient will need another transplant. So, this may only be prolonging the inevitable.

Second, while Sebelius has the authority to suspend the transplant rules, do we really want to further set the precedent of bureaucrats making the decisions instead of qualified medical authorities? I though that was one of the main objections to Ocare. The more exceptions we make, the more exceptions *can* be made. This time it might be a young girl. Next time it might be someone with political connections, or with more money, or the right political beliefs. And worse, the person who is chosen to get bumped down the list might be someone with the wrong beliefs, or who donated to the “wrong” party. I’d much rather that kind of thing get decided by a doctor on the basis of whether the transplant makes medical sense, than on any other factor.


8 posted on 06/04/2013 8:47:19 PM PDT by Little Pig (Vi Veri Veniversum Vivus Vici.)
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To: stars & stripes forever

joining you in prayer.

Amen.


9 posted on 06/04/2013 8:51:45 PM PDT by Shadowstrike (Be polite, Be professional, but have a plan to kill everyone you meet.)
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To: Morgana
This is sick. This is a decision that should be made by the parents (or patient if they are of sound mind or age) and their doctors only and if there is a chance to save her life, it should be tried if possible. I fear for my mother, she is fighting breast cancer, she will be 75 this year, I hope she kicks this before the full Bammycare goes into effect next year. I would not want a job like this, let's put it this way, I would be afraid of ticking the wrong person or people off. Think this way, could you imagine if healthcare was denied to a Tony Soprano or a member of his family?

Prayers up for this girl.
10 posted on 06/04/2013 8:57:36 PM PDT by Nowhere Man (It is about time we re-enact Normandy, at the shores of the Potomac.)
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To: Little Pig

I think we need to get away from transplants and work on tactics to grow replacement organs from the patient’s own (adult) stem cells, but this is a bit OT for now, but I think if we break this barrier, we’d all be better off.


11 posted on 06/04/2013 8:59:41 PM PDT by Nowhere Man (It is about time we re-enact Normandy, at the shores of the Potomac.)
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To: Nowhere Man

What would really make Americans sick is how many non US citizens and special minority status groups have jumped lines and received the care that should have gone to American citizens. We’ll never know because those stats will never be known or released.


12 posted on 06/04/2013 9:01:59 PM PDT by Sheapdog (Chew the meat, spit out the bones)
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To: Morgana

Thank heaven for Sebelius! She’s so kind to do the work of an entire Obamacare Death Panel, all by herself.
So efficient and respectful of our tax money.
So refreshing.
Three cheers for Sebelius the Saver!

/s


13 posted on 06/04/2013 9:03:25 PM PDT by faithhopecharity (()
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To: stars & stripes forever

I agree, in Jesus’ Healing Name, Amen


14 posted on 06/04/2013 9:05:28 PM PDT by skr (May God confound the enemy)
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To: Nowhere Man

Remember when Dick Cheney got a new heart and all you heard in the media was how “He’s so old, how come he was able to get one” that is how the left views people, if your old or considered not to have a long life span they just want you dead, they consider you a burden on society.
I dont give a damn about these regulations I say they should go ahead and give this child the lungs..its worth the risk, this child is already at death’s door..if I were this child’s mother I would want to know that EVERYTHING was done to save her life..if she dies without them giving it a shot and finding out if it worked, they will have to live with that regret for the rest of their lives.


15 posted on 06/04/2013 9:11:10 PM PDT by Sarah Barracuda
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To: Morgana
We're finally using Alinsky tactics against the Alinskyites; pick the target, freeze it, and personalize it.

This is a tactic we should use every day against Obamacare. It's a sitting duck now,

16 posted on 06/04/2013 9:18:25 PM PDT by E. Pluribus Unum ("Forget it, Jake. It's Eric Holder's people.")
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To: elephant

I suppose that the parents will be getting a visit from the ATF, IRS, Justice Department and the FBI soon.


17 posted on 06/04/2013 9:23:07 PM PDT by chiefqc
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To: Sarah Barracuda
Remember when Dick Cheney got a new heart and all you heard in the media was how “He’s so old, how come he was able to get one” that is how the left views people, if your old or considered not to have a long life span they just want you dead, they consider you a burden on society.

I remember that too. Heck, I'm going through a health crisis now with my mother fighting breast cancer, I fear for her but as of now, she is getting good treatment with chemo. I don't like to make judgements on who should live or die, leave it between the doctors and patients and/or families if the patient cannot speak for themselves. The government should stay out and not make these decisions.

I dont give a damn about these regulations I say they should go ahead and give this child the lungs..its worth the risk, this child is already at death’s door..if I were this child’s mother I would want to know that EVERYTHING was done to save her life..if she dies without them giving it a shot and finding out if it worked, they will have to live with that regret for the rest of their lives.

I don't know a lot about ling transplants but if there is a set of lungs that can fit her both size wise and compatible, then they should use them to save her life if she is one of the ones who is desperate (which she is). I understand you need rules and "going by the book" is a good thing to do but there are times "the book" doesn't address everything or special cases plus there are times you need to bend the rules a bit.

I remember here in Pittsburgh back in the 1980's, there was a kid who had multiple lung transplants that did not work yet they wanted to keep trying. I can see making a case where maybe it isn't going to work but again, leave it to the families and doctors.

If the government was not involved at all, then Sebelius should have no say either way but IIRC, the transplanting agency and its protocols are tied into HHS so she is culpable as well. She should just give it the green light and let the doctors and family take care if it. I know life isn't fair but she should not just shoot the poor kid's chances down like that. I know if it were my kid (or in my life, my mother), I'd do anything to try and save her life.
18 posted on 06/04/2013 9:32:40 PM PDT by Nowhere Man (It is about time we re-enact Normandy, at the shores of the Potomac.)
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To: Nowhere Man

ling=lung (it’s getting late)


19 posted on 06/04/2013 9:33:39 PM PDT by Nowhere Man (It is about time we re-enact Normandy, at the shores of the Potomac.)
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To: Nowhere Man

I wish the best for your mother..breast cancer is a tough illness but if she is anything like you I know she is a fighter and she will make it through this..this poor child, not wanting to go to bed at night because she is afraid she might not wake up tomorrow I cannot fathom that kind of fear. Sarah is worth the risk, you give her the lungs, period..and if God forbid she ends up dying anyway, at least they will know that everything was tried..if she dies and NOTHING is done, that will just kill these parents, having to wonder “What If?” She is sitting in that hospital bed dying..if they do nothing she is a goner..she is just lying there waiting to die..do something while there is still time


20 posted on 06/04/2013 9:37:20 PM PDT by Sarah Barracuda
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To: Nowhere Man

This sibelius subhuman is a degenerate ghoul. Her soul is black.


21 posted on 06/04/2013 9:37:33 PM PDT by ogen hal (First amendment or reeducation camp)
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To: Little Pig

Even a stopped clock is right twice a day.

I am disturbed by the number of FReepers engaged in thoughtless name calling on the issue.


22 posted on 06/04/2013 9:40:46 PM PDT by Valpal1 (If the police can’t solve a problem with brute force, they’ll find a way to fix it with brute forc)
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To: Nowhere Man
This is a decision that should be made by the parents (or patient if they are of sound mind or age) and their doctors only and if there is a chance to save her life, it should be tried if possible.

Transplanted organs are a (very) scarce resource, which makes the decision a lot more complicated than "let the patient/family/doctors decide."

23 posted on 06/04/2013 9:51:56 PM PDT by Conscience of a Conservative
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To: Sarah Barracuda
if she dies without them giving it a shot and finding out if it worked, they will have to live with that regret for the rest of their lives

The problem is, if she gets an adult transplant and it doesn't work (because it's riskier), that would not just affect her and her family. It would also affect the other patient who would have otherwise gotten the transplant.

Transplanted organs are a scarce resource, and these decisions are often a zero sum game (one patient getting a transplant means that another does not). There is obviously room to debate whether the particular regulations in place should be improved, but that doesn't mean that we should support government bureaucrats overriding the rules that are in place, in order to move a patient up in line because of media and/or political pressure.

24 posted on 06/04/2013 9:57:29 PM PDT by Conscience of a Conservative
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To: Conscience of a Conservative

I don’t think we’ve established that any such choice in recipients is in play here. Do you have specific information on this case or are you speculating?


25 posted on 06/04/2013 10:03:06 PM PDT by Billthedrill
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To: Sarah Barracuda

Yep. The first high-profile instance of a death panel under 0bamacare, personally autographed by Kathleen Sebelius.


26 posted on 06/04/2013 10:03:22 PM PDT by GeorgeWashingtonsGhost
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To: Little Pig

After compatibility, it should be a matter of size, not age. The parents are not asking for their daughter to bump adults, but rather for adults not to bump her - for her to get in the adult line and wait her turn, in other words.


27 posted on 06/04/2013 10:07:54 PM PDT by heartwood
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To: Billthedrill
>>>I don’t think we’ve established that any such choice in recipients is in play here. Do you have specific information on this case or are you speculating?

No, at this point there is no choice between recipients because at this point there is no lung (Headline is overly sensationalistic). What the parents are proposing is for the child to be added to the adult list. So, there could come a situation where there would be a choice among recipients.
28 posted on 06/04/2013 10:11:53 PM PDT by oincobx
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To: Billthedrill

There would be 1600 people ahead of her. I don’t know how fast the line moves, but she would certainly go before the 1601st. That is where the other considerations come into play: likelihood of it working, etc. She could take the place of someone with a better chance.

I’m glad I don’t have to make these decisions.


29 posted on 06/04/2013 10:15:12 PM PDT by firebrand
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To: oincobx

That’s as I understand it as well. Forgive me for possibly mischaracterizing the debate, but what I’m getting here is the aroma of “it’s too bad that the girl will die, but the important thing is that The Rules remain inviolate.” That’s the sort of attitude I’d expect out of a death panel but not on a conservative forum. Possibly I’ve misinterpreted.


30 posted on 06/04/2013 10:18:26 PM PDT by Billthedrill
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To: Little Pig

Your point is completely devoid of moral substance. May you personally reap the rewards of Obamacare.


31 posted on 06/04/2013 10:19:15 PM PDT by Gene Eric (Don't be a statist!)
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To: UnwashedPeasant
"I wonder if the Organ Transplant bureaucracy is the same as it is at the IRS, EPA, etc., where conservatives are abused and Leftists are favored."

I'm not very familiar with it, though it's my understanding that if one needs a quick Liver, it helps to know someone connected to the higher ups in the Chinese prison system, and be as wealthy as Steve Jobs.

32 posted on 06/04/2013 10:20:42 PM PDT by KoRn (Department of Homeland Security, Certified - "Right Wing Extremist")
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To: Little Pig

If your family member was the one who was next and was bumped for this girl, how would you feel?

Why is her life worth saving and someone else’s, who’s also on the list, isn’t?


33 posted on 06/04/2013 10:37:01 PM PDT by Chainsawj
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To: Morgana


34 posted on 06/04/2013 10:59:27 PM PDT by 2ndDivisionVet (I'll raise $2million for Sarah Palin's next run. What'll you do?)
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To: Billthedrill
That’s as I understand it as well. Forgive me for possibly mischaracterizing the debate, but what I’m getting here is the aroma of “it’s too bad that the girl will die, but the important thing is that The Rules remain inviolate.” That’s the sort of attitude I’d expect out of a death panel but not on a conservative forum. Possibly I’ve misinterpreted.

I don't think that's what people are saying (and it's certainly not what I'm saying). My point is simply that available transplant organs are very scarce, and unfortunately (but unaviodably) the fact that one person receives an organ necessarily means that someone else on the list does not receive that organ. In light of those circumstances, I think that it is better for these decisions to be made using a set of consistent set of rules/criteria than for some Washington bureaucrat (here, Sebelius) to start changing the rules for certain patients because those patients have managed to get widespread media attention.

35 posted on 06/04/2013 11:01:51 PM PDT by Conscience of a Conservative
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To: Morgana










36 posted on 06/04/2013 11:09:15 PM PDT by LyinLibs (If victims of islam were more "islamophobic," maybe they'd still be alive.)
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To: Little Pig

I’m not sure why the federal government is involved in this decision, it should be up to her doctors and parents.

What difference does it make if she’s 10 and it lasts for 5 years and if someone is 12 and it lasts for 5 years?


37 posted on 06/04/2013 11:51:45 PM PDT by porter_knorr
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To: Gene Eric

So what’s moral then? Who can you, morally, bump down the list so this girl can get in line for a transplant that might not even work (she’s small enough that adult lungs aren’t really a good match)? Knowing that it might be months before another suitable donor appeared, if your younger, say 18-yo, brother was next in line, with 2 weeks to live, and they kicked him down the list for this girl, would you still think it was the right thing? Would you let her in if it was your middle-aged mother?

Should we always “make room” for whoever has the best sob-story? Transplants are a real difficult situation, because the case can be made on both sides. If the choice was this girl, or some criminal or some political figure (but I repeat myself), it would be one thing. But we’re talking here about other ordinary people, members of someone else’s family, who are also waiting for that donated organ. Can you really say this girl deserves it more than they? On what grounds? That’s why in situations like this, it’s better to stick strictly to the medical suitability, because no one is really qualified to say morally who “deserves” to get the transplant more.

And what’s worse, this isn’t a surgeon we’re talking about making this decision. It’s a bureaucrat. As I noted in my original comment, the *last* thing anyone should want is for some paper-pusher to make arbitrary decisions on life-or-death procedures, based on either emotional appeals or abstract numbers like productivity (or campaign donations or political affiliation or any other non-medical criteria).


38 posted on 06/05/2013 12:04:39 AM PDT by Little Pig (Vi Veri Veniversum Vivus Vici.)
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To: Morgana

Let’s put Sebelius on the list for a heart transplant. She needs one badly. Not looking good for the OCare death panels, is it?


39 posted on 06/05/2013 12:08:31 AM PDT by tinamina
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To: Little Pig

>> Can you really say this girl deserves it more than they? On what grounds?

That was enough to reiterate your deeply lifeless point.

Clinical mediocrity is the driving precept of socialized medicine. You describe it well.

As an alternative to the austere conjecture, how about providing some hard data that complements the potential of a free healthcare market.


40 posted on 06/05/2013 12:59:28 AM PDT by Gene Eric (Don't be a statist!)
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To: Gene Eric

So you’re saying you can’t say why she deserves it more than some other person’s family member? Is it the appeal to emotion from the article, that she wishes she could be a singer, which is so apropos of her needing the lung transplant? What if the person whose place she takes is also a singer, and not just an aspiring one but a genuine trained operatic performer? What if the other person is your track-star cousin? Don’t they deserve the same consideration?

You’re trying to make it seem heartless that anyone would ever dare deny this girl, but you fail to acknowledge that with organ transplants particularly this is a zero-sum game. For her to get a spot on the adult list means someone else has to wait longer, even though this girl might be a less suitable transplant candidate. I don’t blame the parents for trying everything, and in their position I would do the same, but as an uninvolved party, I acknowledge that emotional appeals aren’t the best grounds for basing the decision. Further, my original point was that the grounds for the decision are not the main issue; the main issue is that Sebelius is not the right person to be making this decision for several reasons: she’s not medically qualified to truly understand the implications (and might even be contributing to false hope on the parents’ part), but that as a bureaucrat and a member of a now-known-biased administration she’s the last person who should *ever* get to decide who does and doesn’t qualify for life-saving surgery.


41 posted on 06/05/2013 1:14:52 AM PDT by Little Pig (Vi Veri Veniversum Vivus Vici.)
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To: Little Pig

There’s no doubt you’re giving this issue thoughtful consideration, but I suggest letting go of the limits you believe exist.

FRegards, Little Pig.


42 posted on 06/05/2013 1:41:09 AM PDT by Gene Eric (Don't be a statist!)
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To: Morgana

I hate Sebelius and the HHS should be terminated but the Federal government doesn’t need to be involved in this. Like everything else they need to stay out of people’s personal lives period.

You can’t pick and choose when you want the Federal government to step in because these types of individual cases is what got us into the mess were in as a nation. Look at Obamacare, a bullshxt piece of legislation because our supposed representatives wanted everyone to have insurance and look at the mess we have.

Laws based on what is perceived as a need of the moment from emotional not rational thought. So they change the law to allow the transplant for 10 year olds.. what about 9, 8, 7, 6 etc? Where does it end? Cover everyone.. you can’t and there’s not enough lungs. What about all other transplants? The list goes on.

And I do care but it’s life. I lost a sister in law to Cystic Fibrosis 20 years ago also awaiting a lung transplant at age 24 but was too week for the operation.


43 posted on 06/05/2013 2:32:02 AM PDT by maddog55 (America Rising.... Civil War II)
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To: Morgana

"THESE lungs are RESERVED only for Congress, its families, and Moslems."

44 posted on 06/05/2013 4:26:22 AM PDT by Diogenesis
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To: Morgana
Braking personal preference Sebelius says she will defer to the experts.
How convenient.

45 posted on 06/05/2013 4:47:01 AM PDT by Amagi (Obama is never so animated as when he is assaulting the Constitution.)
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To: Amagi

That picture just creeps me out. What is with the peeling skin on her forehead? Is she a Borg or alien?


46 posted on 06/05/2013 5:01:09 AM PDT by sleddogs
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To: Amagi

Sorta like this?

http://kindertrauma.com/images/tizers/valien.jpg


47 posted on 06/05/2013 5:03:22 AM PDT by sleddogs
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To: sleddogs

I’m “forbidden” from accessing that link. :(


48 posted on 06/05/2013 5:37:48 AM PDT by Amagi (Obama is never so animated as when he is assaulting the Constitution.)
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To: Little Pig

Remind me to leave in my will my lungs to a kid with cystic fibriosis. I just hope that kid does not mind having asthma for 5 years.


49 posted on 06/05/2013 5:39:57 AM PDT by Morgana (Always a bit of truth in dark humor.)
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To: Morgana
Good News From the White House Concerning Your Social Security and Healthcare Benefits:

نوراگررفتسايهپيدانيستنقشديواروچشمخيره

مانقشسايهدگرنميداننوراگررفتسايه. ررفت نوراگررفتسايهپيدانيستنقشديوار وچشمخيرهمانقشسايهدگرنميداننوراگررفتسايه.ررفتديواروچشمخيرهمانقشسايهدگرنميداننوراگررفتسايهپيدانيستنقشديواروچشمخيرهماسايه ديواروچشمخيرهمانقشسايهدگرنميداننوراگررفتسايهپيدانيستنقشديواروچشمخيرهماپيدا نيستنقش

If I Hear Anything Else, I'll Let You Know.

50 posted on 06/05/2013 5:42:48 AM PDT by IbJensen (Liberals are like Slinkies, good for nothing, but you smile as you push them down the stairs.)
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