Skip to comments.Updating my medical condition and prayer needs [Update at #'s 843,721,643,910]
Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. Its a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didnt hurt, I could lay on my sides and they didnt hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me Hes not going to give you anything stronger, period. He said Ill have to have a talk with her, I dont like to see you in the much pain. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said quit taking those, Im going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasnt getting anything stronger. She didnt even TALK to the doctor, and I told him she said that and he confirmed that he didnt know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance wont cover the patch, they will do the cream instead...but I cant reach my back to rub a cream on and Im not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. Im on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesnt do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. Im hoping I can get the patches so I can get some relief! They talk it up like its a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though Im still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Updated thread about my medical situation, surgery scheduled, prayers requested. Please...keep me in your prayers! God Bless!
Prayers up for you, trussell.
Prayers sent. I pray that your pain goes away away and a physician will notice your situation and become personally involved to help you.
Thank you for the update. Prayers continue.
Prayers up trussell. Hoping the best for your surgery.
TR— do you have a long chopstick, or something similar? You can put some cream on the top few inches, and use that to reach your back. Give it some thought.
Keeping You in my Prayers, Trussel!
Thank You for the reminder.
Praying that you have a successful surgery and relief from your pain.
Keeping you in my thoughts and prayers. Please keep us posted. ((HUGS))
Also...go to Amazon and order a lotion applicator. It’s a pad on the end of handle. It’ll help with getting the cream right you where you need it. I use mine to apply lotion to the winter dry skin on my back. It’s wonderful.
Praying for you !!!!
More prayers from California and Virginia
Prayers up for you!! God bless!
This post kind of blew my mind.
I am having a spinal stimulator implanted on January 27, 2014 in Erie, PA.
This procedure scares the hell out of me but I have been dealing with low back pain shooting done both legs to my toes since 2008 and have been taking vicodin (150 a month) and I really want off of these drugs.
I hope all works out for the both of us.
Keep me informed of your progress and I will let you know how well this works or doesn’t work.
Good luck trussell!
A friend of mine had that procedure done over a year ago and she is very happy with it. She gets around much better now.
And how is Kidlett CLR? Prayers for her too.
I get nerve blocks every 3 months for my CRPS in both legs & feet. SCS was not a choice for me because I was told they lose their effectiveness after 2 yrs & become a source of pain. But that is with my condition. I know people who have them & are very happy.
I had a friend recently get a morphine pump implanted. She is still waiting to see if she did the right thing. She also had the issue of them not addressing her pain levels properly & was very, very frustrated.
You are on some pretty strong stuff, did they suggest the phentynol patch to you?
Prayers for reduced pain levels. It is tough having relief then slipping back down into the pain.
What GOD does for one, He will do for another.
We pray in the name of Jesus that Johnny Cash and Trussell are healed of their afflictions. It says in the Holy Scriptures that You healed all of their diseases. By Your stripes we are healed.
May Holy Spirit flow through them and breath new life into their bodies. Amen.
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