Free Republic
Browse · Search
General/Chat
Topics · Post Article

Skip to comments.

Updating my medical condition and prayer needs [Update at #'s 843,721,643,910]
1/17/2014 | trussell

Posted on 01/17/2014 6:14:56 AM PST by trussell

I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!

Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!

Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.

Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.

Please, keep up the prayers. I appreciate them so much!


TOPICS: Chit/Chat; Daily Prayer; Miscellaneous
KEYWORDS: medical; prayer; spinalcordstimulator; trussell
Navigation: use the links below to view more comments.
first 1-5051-100101-150151-200 ... 951-988 next last
Please keep praying for me. I truly appreciate it so much. God Bless you all!
1 posted on 01/17/2014 6:14:56 AM PST by trussell
[ Post Reply | Private Reply | View Replies]

To: All; 4woodenboats; abletruth; Accountable One; Aeronaut; AKA Elena; Alamo-Girl; AlGone2001; ...

Updated thread about my medical situation, surgery scheduled, prayers requested. Please...keep me in your prayers! God Bless!


2 posted on 01/17/2014 6:18:17 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Prayers up for you, trussell.


3 posted on 01/17/2014 6:18:40 AM PST by Scoutmaster (I'd rather be at Philmont)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Prayers sent. I pray that your pain goes away away and a physician will notice your situation and become personally involved to help you.


4 posted on 01/17/2014 6:19:13 AM PST by jsanders2001
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

sent


5 posted on 01/17/2014 6:20:32 AM PST by darkwing104 (Forgive but don't forget)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Thank you for the update. Prayers continue.


6 posted on 01/17/2014 6:21:46 AM PST by Duchess47 ("One day I will leave this world and dream myself to Reality" Crazy Horse)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Prayers up trussell. Hoping the best for your surgery.


7 posted on 01/17/2014 6:26:21 AM PST by rktman (Under my plan(scheme), the price of EVERYTHING will necessarily skyrocket! Period.)
[ Post Reply | Private Reply | To 2 | View Replies]

To: trussell

TR— do you have a long chopstick, or something similar? You can put some cream on the top few inches, and use that to reach your back. Give it some thought.


8 posted on 01/17/2014 6:31:12 AM PST by Exit148
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Keeping You in my Prayers, Trussel!

Thank You for the reminder.


9 posted on 01/17/2014 6:34:18 AM PST by left that other site
[ Post Reply | Private Reply | To 2 | View Replies]

To: trussell

Praying that you have a successful surgery and relief from your pain.


10 posted on 01/17/2014 6:34:28 AM PST by aubreys_mom
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Keeping you in my thoughts and prayers. Please keep us posted. ((HUGS))


11 posted on 01/17/2014 6:35:30 AM PST by E.G.C.
[ Post Reply | Private Reply | To 2 | View Replies]

To: trussell

Also...go to Amazon and order a lotion applicator. It’s a pad on the end of handle. It’ll help with getting the cream right you where you need it. I use mine to apply lotion to the winter dry skin on my back. It’s wonderful.


12 posted on 01/17/2014 6:38:11 AM PST by aubreys_mom
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Praying for you !!!!
Polly....


13 posted on 01/17/2014 6:42:01 AM PST by pollywog ("O Thou who changest not, abide with me.".......)
[ Post Reply | Private Reply | To 2 | View Replies]

To: trussell

More prayers from California and Virginia


14 posted on 01/17/2014 6:46:25 AM PST by publius911 ( At least Nixon had the good g race to resign!)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Prayers up for you!! God bless!


15 posted on 01/17/2014 6:51:34 AM PST by ScottinVA (Obama is so far in over his head, even his ears are beneath the water level.)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

This post kind of blew my mind.

I am having a spinal stimulator implanted on January 27, 2014 in Erie, PA.

This procedure scares the hell out of me but I have been dealing with low back pain shooting done both legs to my toes since 2008 and have been taking vicodin (150 a month) and I really want off of these drugs.

I hope all works out for the both of us.

Keep me informed of your progress and I will let you know how well this works or doesn’t work.

Good luck trussell!


16 posted on 01/17/2014 6:54:39 AM PST by Johnny_cash (10 out of 10 idiots voted for 0Bama!)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Johnny_cash

A friend of mine had that procedure done over a year ago and she is very happy with it. She gets around much better now.


17 posted on 01/17/2014 7:00:01 AM PST by Rusty0604
[ Post Reply | Private Reply | To 16 | View Replies]

To: trussell
Prayers for you.

And how is  Kidlett CLR? Prayers for her too.

18 posted on 01/17/2014 7:01:34 AM PST by Responsibility2nd (NO LIBS. This Means Liberals and (L)libertarians! Same Thing. NO LIBS!!)
[ Post Reply | Private Reply | To 2 | View Replies]

To: trussell
Lidocaine patches aren't a miracle drug but they do give some relief. You can cut them in half & get twice as much for the same price. Plus the directions say leave patch on 12 hrs, then leave off twelve hours. We cut them in half or fourths and moved them around so I never had one in the same place twice in a row.

I get nerve blocks every 3 months for my CRPS in both legs & feet. SCS was not a choice for me because I was told they lose their effectiveness after 2 yrs & become a source of pain. But that is with my condition. I know people who have them & are very happy.

I had a friend recently get a morphine pump implanted. She is still waiting to see if she did the right thing. She also had the issue of them not addressing her pain levels properly & was very, very frustrated.

You are on some pretty strong stuff, did they suggest the phentynol patch to you?

Prayers for reduced pain levels. It is tough having relief then slipping back down into the pain.

19 posted on 01/17/2014 7:03:31 AM PST by grame (May you know more of the love of God Almighty this day!)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Johnny_cash; trussell

What GOD does for one, He will do for another.

Father God,

We pray in the name of Jesus that Johnny Cash and Trussell are healed of their afflictions. It says in the Holy Scriptures that You healed all of their diseases. By Your stripes we are healed.

May Holy Spirit flow through them and breath new life into their bodies. Amen.


20 posted on 01/17/2014 7:03:40 AM PST by stars & stripes forever (Blessed is the nation whose God is the Lord.)
[ Post Reply | Private Reply | To 16 | View Replies]

To: Johnny_cash

Are you having the trial or the permanent one implanted? If the permanent, how did the trial work for you? It’s interesting that we are both having it done on the same day. Mine is being done in Savannah GA.

I was on Vicodin for a couple years then I had the surgery and went to oxycodone (percocet). The surgeon decided to cut me off, saying there was no reason for me to have the pain I was claiming...I said “refer me to a pain management doctor, today please!” Saw the pain doc and he immediately put me back on oxycodone and revoked my permission to look for work.

I was told “you will never be free from pain, but we hope to manage it enough that you have quality of life”. If this doesn’t work, the next option is the ITP (an internal pain pump, implanted in the abdomen with a line going to the spinal column). I’m ready for relief...I want to try to walk again. I will keep you in my prayers. Hope it works for you (and me). God Bless!


21 posted on 01/17/2014 7:06:33 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 16 | View Replies]

To: trussell

Prayers up up up!


22 posted on 01/17/2014 7:08:06 AM PST by null and void (We need to shake this snowglobe up.)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Exit148

I will look around and see if there is something that will help. Thank you for the suggestion!


23 posted on 01/17/2014 7:09:09 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 8 | View Replies]

To: aubreys_mom

amazon isn’t an option at this time..still waiting for my disability to be approved. But if that comes through, I will check that out! Thank you


24 posted on 01/17/2014 7:10:16 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 12 | View Replies]

To: Responsibility2nd
And how is Kidlett CLR? Prayers for her too

She is off the streets. She is in an apartment in a rough neighborhood, but she has a door that locks between her and those who might have less than good intentions! Please keep up the prayers for her safety, and thank you so much for keeping us both in your prayers.

25 posted on 01/17/2014 7:12:30 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 18 | View Replies]

To: trussell

I am having the implant on the 27th and will be on a trial run for a few days, and if it works it will be permanently implanted.


26 posted on 01/17/2014 7:16:14 AM PST by Johnny_cash (10 out of 10 idiots voted for 0Bama!)
[ Post Reply | Private Reply | To 21 | View Replies]

To: trussell

have you tried suboxone?
my spouse uses it and all the pain from 4 spinal surgeries is gone. lasts for 24 hours.
it is not a pain medication. they give it for drug withdrawal. side effects are great pain relieve.


27 posted on 01/17/2014 7:16:19 AM PST by americanbychoice3
[ Post Reply | Private Reply | To 23 | View Replies]

To: grame
You are on some pretty strong stuff, did they suggest the phentynol patch to you?

They have not suggested that one yet. I'm praying relief comes before that is the option.

thank you for the suggestions on the patches...I will have to see if I can get them and then see if cutting them down is an option. What do you do for the 12 hours off? Doesn't the pain come back in full force then?

Thank you so much for your prayers. It was REALLY hard to have them take that unit away when I was getting some relief. Still had the pain in other areas, but the areas that had relief were heavenly!

28 posted on 01/17/2014 7:17:10 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 19 | View Replies]

To: trussell

Prayers going up!


29 posted on 01/17/2014 7:21:17 AM PST by KGeorge (Till we're together again, Gypsy girl. May 28, 1998- June 3, 2013)
[ Post Reply | Private Reply | To 2 | View Replies]

To: Johnny_cash

The trial was done on me just prior to Christmas. They took it out on Christmas eve, I was wishing they could have given me a couple more days, but I’m on a blood thinner and had to get back on those so they had to remove the unit. My best relief came from the T10-12 area...that covered the middle of my back all the way to the bottom of my feet. Before finding that area, they had it working in another area that was buzzing my stomach and made it very difficult to eat. They CAN get it out of your tummy if that happens, just make them be thorough! Good luck, and I will be praying for your procedure!


30 posted on 01/17/2014 7:21:36 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 26 | View Replies]

To: trussell

Prayers sent for you trussell!


31 posted on 01/17/2014 7:22:18 AM PST by jocon307
[ Post Reply | Private Reply | To 2 | View Replies]

To: americanbychoice3

I haven’t had that yet...it’s by script, right? I will keep that med name handy and ask about it. Thank you!


32 posted on 01/17/2014 7:23:08 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 27 | View Replies]

To: Johnny_cash

I have a cousin who has a stimulator. He said the surgery was no big deal and it works!


33 posted on 01/17/2014 7:24:06 AM PST by sheana
[ Post Reply | Private Reply | To 16 | View Replies]

To: All; jocon307

To everyone who has said they will be praying...THANK YOU so much. Your prayers are greatly appreciated!


34 posted on 01/17/2014 7:24:19 AM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
[ Post Reply | Private Reply | To 31 | View Replies]

To: trussell
Prayers up trussell and will continue.

Rick/nothingnew.

FMCDH(BITS)

35 posted on 01/17/2014 7:25:54 AM PST by nothingnew (I fear for my Republic due to marxist influence in our government. Open eyes/see)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell
Prayers up for you, Trussell!

I have problems with my back as well and I can't imagine having that much in pain meds and it not doing much good at all.

I pray the surgery for your implant spine stimulator is quick and uneventful with much success!

36 posted on 01/17/2014 7:29:57 AM PST by CAluvdubya (Molon Labe)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Johnny_cash; trussell

Prayers for you both.


37 posted on 01/17/2014 7:30:23 AM PST by BykrBayb (Somewhere, my flower is there. ~ Þ)
[ Post Reply | Private Reply | To 16 | View Replies]

To: trussell

Sent and Praying for success!


38 posted on 01/17/2014 7:54:43 AM PST by JDoutrider
[ Post Reply | Private Reply | To 34 | View Replies]

To: trussell

Prayers sent FRiend, for you and yours.


39 posted on 01/17/2014 7:56:03 AM PST by thesearethetimes... ("Courage, is fear that has said its prayers." Dorothy Bernard)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Continued prayers trussell.


40 posted on 01/17/2014 8:05:53 AM PST by Berlin_Freeper (Mia San Mia)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Exit148; trussell

Or, a long piece of plastic wrap, with the cream at about the middle. Grab both ends, and use to rub the cream over your back.


41 posted on 01/17/2014 8:39:49 AM PST by knittnmom (Save the earth! It's the only planet with chocolate!)
[ Post Reply | Private Reply | To 8 | View Replies]

To: trussell

Prayers for God’s blessings.


42 posted on 01/17/2014 8:54:25 AM PST by ex-snook (God is Love)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

if you wish, pick the one of these that looks best to you
and send us a private FR note with your name and address
and we will gladly tell Amazon to ship it to you

we understand that the spinal cord stimulator usually works (after the trial stimulator has show that it works), to reduce at least a significant amount of the pain....
if not always all of it....a good part of it for most patients
...and for some, all of it

also, that the procedure is simple, not very risky, and you get out of hospital the same afternoon usually

it all sounds very favorable and if you need it then it seems to make good sense to proceed

pinch a nurse for me ! The pretty one, not Nurse Ratchett!)


43 posted on 01/17/2014 9:18:29 AM PST by faithhopecharity (C)
[ Post Reply | Private Reply | To 24 | View Replies]

To: trussell

oops, here is the link to the back-goo-applicators, pick one if you wish and let me know with a private email where to have amazon send it to you

best,
fhc

http://www.amazon.com/s/ref=nb_sb_ss_c_0_15?url=search-alias%3Dhpc&field-keywords=back%20applicator&sprefix=back+applicator%2Caps%2C554


44 posted on 01/17/2014 9:19:58 AM PST by faithhopecharity (C)
[ Post Reply | Private Reply | To 2 | View Replies]

To: trussell

Dang,, you post real good for someone all zonked on painkillers.. or are you using DRagon software. :-]

I feel for you and wish you all the best. Hang in there.

Prayers sent.


45 posted on 01/17/2014 9:32:18 AM PST by NormsRevenge (Semper Fi)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Prayers!!!!!!


46 posted on 01/17/2014 9:34:08 AM PST by dennisw (The first principle is to find out who you are then you can achieve anything -- Buddhist monk)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

Prayers for sure!!!!


47 posted on 01/17/2014 9:35:55 AM PST by ColdOne (I miss my poochie... Tasha 2000~3/14/11))
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell

remember, it is not pain relieve. most doctors only know it for drug withdrawal:)


48 posted on 01/17/2014 9:55:09 AM PST by americanbychoice3
[ Post Reply | Private Reply | To 32 | View Replies]

To: americanbychoice3

I have read all communication about this drug. Nowhere is the word “Pain” mentioned.


49 posted on 01/17/2014 9:56:50 AM PST by americanbychoice3
[ Post Reply | Private Reply | To 48 | View Replies]

To: trussell
Keep the faith HE will provide the way for a successful surgery and outcome for your current medical conditions.
HIS very best for you and yours, in Jesus' name. So be it.
50 posted on 01/17/2014 10:12:57 AM PST by Marine_Uncle (Galt level is not far away......)
[ Post Reply | Private Reply | To 2 | View Replies]


Navigation: use the links below to view more comments.
first 1-5051-100101-150151-200 ... 951-988 next last

Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.

Free Republic
Browse · Search
General/Chat
Topics · Post Article

FreeRepublic, LLC, PO BOX 9771, FRESNO, CA 93794
FreeRepublic.com is powered by software copyright 2000-2008 John Robinson