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Prayer and Answers For Focal Seizures
TEARUNNER14 ^ | 3-29-2014 | TEARUNNER14

Posted on 03/29/2014 7:44:22 PM PDT by TEARUNNER14

I need prayer for my events that I am having in my life. These events are not a vanity. They could result in a life or death situation.

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TOPICS: Health/Medicine
KEYWORDS: answers; focal; nonfocal; seizures
I started these spells or life changing events after I had a death back to life experience. As a result of coming back I have had to go on social security disability and that sucks. But, my wife who is a register nurse-retired thinks I have focal seizures and she tells me from the way I act, it really scares her as much as me. These events make me have a feeling of being really high, then when the high drops, I feel really weak and tired and so I lay down and fall asleep instantly. I awake and feel alright until the spell or event hits me again.

I need your prayers that I will find the answers for the treatment of these events so that I may have a somewhat normal life. Thanks for your prayers and for all the prayers you all send to others who have problems and God really does answers them.

1 posted on 03/29/2014 7:44:22 PM PDT by TEARUNNER14
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To: TEARUNNER14

God Bless you!


2 posted on 03/29/2014 7:46:35 PM PDT by MeshugeMikey ( "Never, never, never give up". Winston Churchill)
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To: TEARUNNER14

And if anyone out there has had a similar experience please freepmail me and let me know how you resolved your problem. Thanks!


3 posted on 03/29/2014 7:47:17 PM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: TEARUNNER14

Have you had an EEG?


4 posted on 03/29/2014 7:48:58 PM PDT by SWAMPSNIPER (The Second Amendment, a Matter of Fact, Not a Matter of Opinion)
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To: MeshugeMikey

Thanks! I’m starting to have another spell so I must go lay down and I wiil be away fur awhile.


5 posted on 03/29/2014 7:49:34 PM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: TEARUNNER14

prayers for you


6 posted on 03/29/2014 7:50:01 PM PDT by aMorePerfectUnion
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To: TEARUNNER14

Prayers said.


7 posted on 03/29/2014 7:50:20 PM PDT by jodster36
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To: TEARUNNER14

I will pray for you; please trust in the Lord and ask Him for wisdom and guidance.


8 posted on 03/29/2014 7:58:16 PM PDT by credo 2
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To: TEARUNNER14

It is not something I have ever heard of but you might try to do research on the internet if your Doctor can’t figure it out.

I remember a kid had some kind of serious neurological disease and his Father did his own research and discovered there was a not well known treatment for it known as a sippy diet. It was a diet very high in fat and in fact it worked.

Make sure you have a good Doctor then trust him.


9 posted on 03/29/2014 8:01:01 PM PDT by yarddog (Romans 8: verses 38 and 39. "For I am persuaded".)
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To: TEARUNNER14

If you think you are having complex parti seizures see a neurologist.
DONT drive or do anything where loosing conciousness cod harm you.


10 posted on 03/29/2014 8:11:59 PM PDT by Kozak ("It may be dangerous to be America's enemy, but to be America's friend is fatal" Henry Kissinger)
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To: TEARUNNER14

There is an answer. Don’t stop looking until you find it. When something like this happens, there is always a corresponding blessing. God will give guidance to all who ask and are willing to receive.


11 posted on 03/29/2014 8:13:07 PM PDT by Bookwoman ("...and I am unanimous in this...")
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To: TEARUNNER14
It's going to take some detective work. Get you a portable voice recorder and carry it with you. When you feel the seizure coming on describe what you were doing several minutes prior and up to the seizure onset. If you want to later you can write it down but this gives the most accurate info you need. What you are looking for in this is triggering activities bringing on the seizures. This can help you determine if it is optic triggered or auditory or even both.

It can be serious but there are also lots of seizure activities that although disabling are harmless as such but make doing things you did before difficult.

Are you more sensitive to sounds now or have trouble say watching TV? Do you become anxious from such? The High you talk of is it like being disconnected from your surroundings? For example you may think to yourself what am I doing, how did it get here if out somewhere? A loss of time perspective as well? What about any other physical symptoms such as tremors or spasms associated with it?

People who have had serious medical events even everyday run of the mill surgery like gall bladder etc can come out from being put under with some neurological issues they didn't have before. The most common is anxiety and Panic Attacks.

I have seizures often daily what is called Stimulus induced Myoclonic Seizures. It comes from sensory processing damage in my auditory and optic translation both in my Inner Ear and brain. I can spasm violently for several seconds which is actually a seizure and as many as several a minute or none a day on a good day. It hit me in 1994 and I've had it over 20 years now. Yea unless I head off the seizures I get weak usually not to the point of sleep but basically my day is shot. Over time I learned to head a lot of it off via medication or the one relaxation method that works for me which is my acoustic guitar.

You need a good Neurologist that won't give up. The more they can't find something wrong the closer I'd look into Vestibular and sensory processing damage which often will not show up on CAT Scans, EEG, or MRI's.

One other thing. As a child did you have chronic ear infections or allergies? This can bring on what I'm saying especially after a life changing event like the one you speak of. The brain has reached a point it can only juggle so many task at one time and overloading it results in crash much like a computer or in this case seizure and the brain reboots.

12 posted on 03/29/2014 8:16:13 PM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: TEARUNNER14

Prayers that you find answers, but most of all that you find relief!


13 posted on 03/29/2014 8:30:16 PM PDT by Mastador1 (I'll take a bad dog over a good politician any day!)
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To: TEARUNNER14

14 posted on 03/29/2014 9:01:04 PM PDT by BlessedBeGod (Democrats are Cruz'n for a Bruisin' in 2016.)
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To: TEARUNNER14

If they are seizures, help is probably available - friend of my daughter at work had seizures for years - had several driving accidents and eventually lost his license - got with a good doctor who put him in the hospital under observation, wired him up, and took him off of all meds - within a few days he had another seizure which they were able to document and find the locus of the attack - eventually went in with electronic probes and were able to destroy the site of the abnormality - he’s doing fine now, and probably will get his driver’s license soon - a good neurologist is a good place to start if possible.....


15 posted on 03/29/2014 9:04:21 PM PDT by Intolerant in NJ
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To: cva66snipe; TEARUNNER14

cva66snipe and TEARUNNER14

Thanks for sharing your respective experiences.

I have had ME/CFS for 13 years with debilitating orthostatic intolerance. In the past few months I have experienced increasingly frequent events that seem to me to be mini-seizures or migraines. The attacks last about two minutes and are preceded by an aura/prodrome and there is a ten minute postdrome afterwords.

cva66snipe:

Like you, in the past few weeks I have had to warn my family that if I am Skyping with them or talking on the phone and I suddenly am unable to talk or talk with a slur and begin slumping that I can still hear them and that if they wait about 2 minutes I will revive enough to continue.

I feel like lying down but I already am forced to lie down every 3 hour for about 40 minutes due to my orthostatic intolerance.

From what I read I could be having either:

1. a simple partial seizure with a slight tic of a yawning jaw contraction, or

http://en.wikipedia.org/wiki/Simple_partial_seizure

2. a type of migraine called “cortical spreading depression.” This is not psychiatric depression but depression of the little spikes in your EEG, from what I understand.

http://en.wikipedia.org/wiki/Cortical_spreading_depression

I am scheduled for an EEG a week from Tuesday and will also be seeing a ear, nose and throat specialist to try to obtain an Rx for a VNG test.

http://en.wikipedia.org/wiki/Videonystagmography

“Videonystagmography (VNG) is a technology for testing inner ear and central motor functions, a process known as vestibular assessment. It involves the use of infrared goggles to trace eye movements during visual stimulation and positional changes. VNG can determine whether dizziness is caused by inner ear disease, particularly benign paroxysmal positional vertigo (BPPV), as opposed to some other cause such as low blood pressure or anxiety.”


16 posted on 03/29/2014 9:15:10 PM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: TEARUNNER14

Prayers for you but you need to schedule an appointment with a neurologist as soon as possible. They will probably order an EEG.Don’t be surprised if it comes back normal. EEG’s are notorious For not showing any seizure activity.

I was DX’ed last October with partial seizures that had been going on for 3 1/2 years. They started within 24 hours of having a stroke. On meds and feeling much better most days.


17 posted on 03/29/2014 9:22:46 PM PDT by muggs (Hope and Change = Hoax and Chains)
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To: Seizethecarp

What type of aura do you have? I have olfactory auras. If an aura doesn’t progress to another type of seizure, the aura is a seizure. You may want to check out the following web site.

http://www.coping-with-epilepsy.com/forums/


18 posted on 03/29/2014 9:29:57 PM PDT by muggs (Hope and Change = Hoax and Chains)
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To: muggs

Thanks for the link. If my EEG results in an epilepsy diagnosis I will check it out.

My cognitive function freezes and I can’t remember my train of thought and I stop speaking in the middle of a sentence. My hands and arms freeze in whatever position they are in when it begins. My eyes seem to jump to a new focus point and I am disoriented as to why I am suddenly looking there.

When the “actual” seizure or migraine starts (not sure which yet) I get this squeezing sensation that moves over my brain and becomes intense between my eye making me want to squint with my eyes shut tight. At this point I cannot speak or can only slur my words. I can only move a little bit and can’t get up.

I do have a history of several episodes of “scintillating scotoma”-type aura without the headache, mercifully.


19 posted on 03/29/2014 9:59:44 PM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: Seizethecarp
I have seen sort of what you are talking about but it involves persons who have either suffered strokes or spinal cord disruption such as injury or disorder. In these cases Inner Ear function is lost early on and siting up can cause the patient to pass out. It takes a Tilt Table to regain sitting up say in a chair. I saw my wife go through that 28 years ago. She's a quadriplegic and after onset it caused her to sometimes pass out when placed upright sitting up. Actually she still has bouts with that.

For my answers I got them from an unlikely source. A researcher who was studying Anxiety Disorders {which they had diagnosed this as being}, ADD ADHD, Dyslexia, and even TMJ as related to such things as chronic ear infections, sinus allergies etc

His theory was cerebellar-vestibular damage was creating a rash of issues. I found ha book called Phobia Free which had clinical descriptions and medical histories. It was like reading This is your life LOL.

In my case I obviously born with some damage. As a toddler through adult I had severe sinus allergies. As a kid and as an adult I have poor coordination. I have have ADD ADHD type symptoms but not ADD nor ADHD. I have severe concentration issues many days especially with abrupt weather changes. I have trouble understand people talking to me and that was before my hearing loss began now at over 50%.

My first attack or seizure happened on the interstate on a weekend getaway with my wife. We had been to a flee market and were headed home which was 50 miles away.

Out of the blue I felt flush. I didn't know where I was, why I was where I was, how long I had been driving {five minutes at that point} or where the heck we were going. My wife looked at me and yelled what's wrong with you? I reckon I had some sorta blank look. All I could muster was saying Nothing I'm fine.

After about 30 minutes my senses began to return and I was weak and worn out but able to still function. BY the next evening I could barely work. I took a few weeks off. They ran all text they had back then and it showed nothing. I was becoming more and more sensitive to noises though and was having spasms in my upper torso from it.

I went back to work then took two weeks vacation we had planned. When I came back I had been working about a week. I went on a trouble call to an apartment on the healthcare complex I worked at. I finished up and decided to eat supper. I was in my shop leaning back against the double door {the locked side} and someone behind me in the hall yelled. It started all over. That was my last night working. For two straight days all I could do was answer yes and no questions. I knew what was going on but could not engage my brain to my body. I could walk, eat, etc but that was about it. I was diagnose as having General Anxiety Disorder.

A Social Security Disability examiner saw me and said I've seen it but it has no clinical name and there is no cure. It won't kill you but you will be limited in a lot of things. It took nearly five years to put all the pieces of the puzzle together and it took connecting my childhood problems even single eye vision and poor coordination and when I read the book it all came together finally.

To complicate matters I developed PTSD at the same time. That part I got over in time in therapy. Lot's of stuff happened to me in about a 10 year time frame that wasn't the easiest things to deal with.

The Sensory Processing System controls your survival portion of the brain as well. It can release some very overwhelming impulses. If your response isn't one the brain wants to see then conflict occurs.

20 posted on 03/29/2014 10:18:41 PM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: cva66snipe
TO ALL: I RELATE TO JUST ABOUT EVERYTHING SAID HERE AND I VERY MUCH APPRECIATE ALL COMMENTS!

For all your information I have been to numerous neurologists, had the MRI's, CATSCANS, EEG's, blood tests, urine tests, electrical heart test and all came back normal.

My wife had this Internal Doctor make an appointment for me to see a specialist at Winchester Hospital and hopefully I will get some resolve and a med for the problem.

And, by the way, I have been given psych drugs and they put me through a serotonin storm and I lost fifty pounds over that and wound up in the hospital for a week.

I am hopeful that God will show me the results of what I need to do!

21 posted on 03/30/2014 2:16:19 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: Seizethecarp
Thanks for the Wikipedia read. It is absolutely phenomenal as to what I am going through. I know that these events that occur with me, once they start, they seem to trigger more events until I completely drained and then have to lay down. It also suppresses my appetite and I walk around like I am on a high. It seems like my head in the upper half of my brain is going through this unsurreal event. My wife I told her I felt that I was faking these events, but I am not.

I believe that I will soon get the help I need from Winchester Hospital in Virginia next week.

22 posted on 03/30/2014 3:44:33 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: TEARUNNER14
Yikes if this is what I am saying it is Serotonin altering medications can make matters worse. I have seen personally what SSRI's can do to a person with Sensory Impairment. There is a possible adverse reaction called Serotonin Syndrome and it can be anywhere from mild to fatal. It would be in an extreme case like be given LSD. I can produce psychotic hallucinations in some cases. It happened to my wife and the for a few days thought she was Tess on Touched By an Angel.

What brings on the issue is it migrates in some persons with neurological issues from the stomach where it should be to the brain where it wreaks havoc.

If the sensory processing system is already being overtaxed and producing seizures then it makes no sense to give a person Serotonin Enhancing Meds. Doctors write scripts for antidepressants because it is an accepted by all medication. The medication I take and have taken for over 20 years without any of the problems the media and everyone swore I would develop is Xanax. Benzodiazepine class drugs meaning ones like Valium, Xanax, Librium, Clonoplin etc seem to work best because they actually tone down the sensory processing system to a more functional level.

It doesn't have to be Xanax but rather I mention it because that is what works for me. My wife is a 28 year user. The main thing is for both patient and doctor to understand to use a steady in the bloodstream Low Dosage in our case a half MG 4 times a day. There are some extended Benzo that can make taking one or two pills a day possible. The goal is a minimal but consistent level in the blood stream. Anti car sickness medications also help some patients out.

If you have any history even as a child of chronic ear infectios, ear injury, Chronic Tonsil inflammation, sinus allergies etc this can damage the Vestibular System. Many actually most Vestibular Patients do not ever know they are such as the brain compensates for it. It's when the compensation increases and the brain is also trying to deal with issues like stress this seems to manifest itself in a rather abrupt manner. It's often misdiagnosed as Panic attacks, Anxiety Disorders etc. What is not being addressed is the anxiety is a secondary condition caused by the neurological primary issue such as sensory damage or Inner Ear issues etc.

Not so long ago you heard of persons having Inner Ear Infections and it would nearly drive them nuts. The older General Practitioners the cradle to grave doctors would catch it. Today if a patient went to a doctor with a bad Inner Ear infection where they were crying because noises were too loud many doctors would say Shrink time. This tends to run in families. My cousin had it but not the spasms. My dads sister had it and my dad had a milder case of it.

Before it got real bad I was having issues doing simple task. My brain did not want to engage in a task. I'd have a paper to sign and I could not read it nor for that matter get my body to sign it for say a minute then it was like the signal came through. I was also having issues in things like climbing stairs. One time I could go right up. Next time by the third step I'd be so weak I could not take another step. I'd stand their and literally tell my body to expend more energy.

Look for tell tale signs that point to Vestibular. The Inner Ear coordinates balance. Does your feet hurt? Do you wear shoes out faster then most person by breaking the sides over? Do you have ringing in the ears or do storm fronts cause sharp pain in the ears? A lot of information can be obtained by an extensive medical history work up.

I hope this helps you some. I'm not a doctor but I am a care giver and I put the knowledge I learned when my wife went quad plus what I have read up about afterward and figured out what the doctors couldn't about me. Vestibular research especially in relation to anxiety and even seizures is still rather limited but more and more studies are coming out confirming the connection.

23 posted on 03/30/2014 3:44:55 AM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: cva66snipe
Xanax, Librium, Clonoplin

Yes! I been on Xanax, clonoplin and other drugs and they seem to intensify my events. It really is a scary feeling and sometimes I feel like I can't breathe. Xanax does work fair, but I still go through hell with these events and they seem to really have gotten worse and I hate it. I wouldn't wish this on no one except Obama so he can try out his new health care system. Maybe they will screw him on his insurance. lol

24 posted on 03/30/2014 4:01:25 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: TEARUNNER14
I needs to clear something up in my post. Although my wife has taken Xanax 28 years about 13 years ago a shrink gave her Zoloft and Trazodone for clinical depression and PTSD. She went psychotic. What was their answer? Increase dosage or rather they tried too.

Thank GOD for the Internet. I did something two ER's and six doctors treating her neglected to do. I looked up her medications +adverse reactions. I had the answer in a matter of a couple of minutes as to what was happening. I took it too the hospital and the doctors said that's pure rubbish. It was their pharmacology professors article on it. The Xanax she took likely saved her life as it is the class of medication used for antidote to Serotonin Syndrome.

When I first starting having trouble they put me on 2 mg Xanax twice a day which meant it worked about 16 hours a day. A smart doctor a shrink I began seeing after firing several others realized what was happening when I showed him what I thought was happening to me. This was about two years after onset. He stopped the antidepressants and cut the Xanax to a half a MG 4 times a day and I had lots of improvement. My Primary Care doctor writes it for me now. He's an Internal Medicine Specialist.

25 posted on 03/30/2014 4:05:14 AM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: TEARUNNER14

Just make sure you put your driver’s license away until you get it figured out.


26 posted on 03/30/2014 4:10:57 AM PDT by AppyPappy
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To: TEARUNNER14
Yes! I been on Xanax, clonoplin and other drugs and they seem to intensify my events. It really is a scary feeling and sometimes I feel like I can't breathe. Xanax does work fair, but I still go through hell with these events and they seem to really have gotten worse and I hate it. I wouldn't wish this on no one except Obama so he can try out his new health care system. Maybe they will screw him on his insurance. lol

Too much of it or too high a dose can do it. It sounds like they are going to have to pin point where the problem is before they can get the meds right. One thing helping me is I'm also on two antihistamines. you might also have conflicting damage where one damaged or impaired portion is making the impaired other area worse.

27 posted on 03/30/2014 4:14:47 AM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: TEARUNNER14

Seriously get you a small pocket size recorder and start saying what you were doing a few minutes leading up to your attacks. Is it usually in the same room for example and if so what type of lighting? Find the triggers and you have it half whipped.


28 posted on 03/30/2014 4:21:35 AM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: AppyPappy
Just make sure you put your driver’s license away until you get it figured out.

That is the funny part of this whole situation is my driving. It seems as long as I am focused on driving these events don't bother me. Only occasionally, and I focus harder and my driving seems ok and even to my wife who has problems, she don't mind my driving. Her driving scares me because she needs eye surgery for her left eye because her other one already had it done. Doctors already advised me and they cleared me unless things get worse. And things are starting to get worse. So, I'm going to have to trust my wife and be scared by her driving.

29 posted on 03/30/2014 4:30:23 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: TEARUNNER14

Prayers that you are successfully diagnosed and treated.


30 posted on 03/30/2014 4:33:53 AM PDT by fieldmarshaldj (Resist We Much)
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To: TEARUNNER14

Do the attacks usually happen at home? If so think about any changes even in your neighborhood such a machinery running etc. Have the put up a wind turbine near your home?


31 posted on 03/30/2014 4:35:41 AM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: cva66snipe

“Out of the blue I felt flush. I didn’t know where I was, why I was where I was, how long I had been driving {five minutes at that point} or where the heck we were going. My wife looked at me and yelled what’s wrong with you? I reckon I had some sorta blank look. All I could muster was saying Nothing I’m fine.”

This is exactly what has been happening to me with increasing frequency. Fifteen years ago it was once a year and I would go to the emergency room. Now it is almost hourly with several episodes an hour in the AM.

Prayers for you and all who suffer with neurological uncertainty...and unfortunate certainty as well!

BTW, my PCP for four years up until this week has been telling me that I am just depressed! Finally this week he admitted to my wife that I might have a rare neurological condition and is supportive of me getting further testing.


32 posted on 03/30/2014 8:43:04 AM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: TEARUNNER14

“It is absolutely phenomenal as to what I am going through. I know that these events that occur with me, once they start, they seem to trigger more events until I completely drained and then have to lay down.”

You might want to consider regularly scheduled preemptive lie-downs during the day, which is what I do.

I started with one lie-down every day at the same time ten years ago and that has gradually increased to four.

You may have developed comorbid ME/CFS and if you push yourself past your stamina tolerance you will get a relapse!

To avoid relapses you must pace yourself, as they have come to call it.


33 posted on 03/30/2014 8:46:51 AM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: All

One of the latest theories at to the cause of ME/CFS is chronic inflammation caused by viral infection of the vagus nerve which is undetectable in the blood.

http://chronicfatigue.about.com/b/2013/07/10/vagus-nerve-infection-chronic-fatigue-syndrome.htm

I flunked two tilt-table tests which showed a rare condition of orthostatic hypertension (yes, that is hypertension, not hypotension) before syncope. My BP rises by 30 points as the tilt-table progresses and I believe this triggered a seizure-like episode during the test right before I feinted dead-away (had syncope).

My diagnosis as a result of these test of “neutrally-mediated syncope” is another name for vasovagal syncope, which means your vagus nerve is messed up!

It is possible that my increasing incidence of seizure-like episodes is being triggered by my increasing intolerance of orthostatic stress (stress of sitting or standing).


34 posted on 03/30/2014 9:54:15 AM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: cva66snipe
Have the put up a wind turbine near your home?

There are a bunch of windmills for electric behind where I live, but it really don't have that much effect because when I go back to our original home, I still have these effects. My wife and I are staying temporarily in another town because I can't handle a woodburner anymore and we are closer to doctors and hospitals.

35 posted on 03/30/2014 10:40:33 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: Seizethecarp
From what I've read the "Brain Fog" episodes in themselves are not dangerous but can definitely scare the living crap out of you the first few ones. It's been years now since I've got to that point. I learned the triggering was optic and auditory in my case. At home I limit my exposure to things I know that will trigger it. If I'm out driving and feel an attack coming on a pill goes under my tounge every 15-20 minutes until I'm either home or it stops. I still have the upper torso spasms and I learned if I can control them I can head off the Brian Fog.

The limiting exposure goes against the protocol for treating Anxiety Disorder but in this case you can't desensitize yourself to the triggers because this is a non phobic condition. I shop usually late at night. I wear sunglasses outside in the daytime especially driving. I'm careful about what type of TV shows I watch. I avoid high action or shows even cartoons where there is a lot of strobing effect.

The Inner Ear is the coordinator for more than auditory processing it also coordinates balance and optical senses. A person like myself can have a fear of heights which I do and it grew worse with age. So is a phobia? No not in a true sense. My brain knows my balance is poor and sees high places as a danger. It demands an appropriate response {getting to a safer point} if not the brain triggers a more demanding alert.

As far as sensory bombardment places like Walmart, Lowes, Home Depot, a movie theatre, can set me off. Any [place with sudden loud noises. I also have problems at home in things like family gatherings. In a place where many are talking at once I hear everybody and understand nobody. Same thing eating out in places like Cracker Barrel where I take my hearing aids out. LOL.

I used to also work on my own vehicles. I can no loner lay underneath a vehicle. I get vertigo. I've started using a cane for balance when walking. I had to get orthopedic insoles for my shoes to stop foot pain because a lifetime of walking off balance added to club and Flat feet will others allow me only to walk short distances and I'd wear our any shoes in less than a month.

Like I said some of it I was born with like Club feet and one eye functional vision. I can use both eyes never at the same time though. They discovered my eyes issue when I was 8 and at age 12 I spent two years in Occupational Therapy learning to deal with the eye and coordination issues. It worked good enough that I passed two military entrance physicals. A few years back I started going to the VA for Hearing Aids. The doctor looked at my history shook his head and asked how did you ever pass the entrance physical? I said really I didn't realize it was serious. They checked left eye then right eye no problem. LOL. But it went into what I have now when I was about 36 years old. I was also under some stress. In ten years time I had lost my first wife to a heart attack when she was 23. I met a woman at work and began dating and she went quadriplegic on a date. She's now my wife. My step daughter was involved in a serious wreck where when I got to the scene I thought she was dead. I was later in a wreck with a car rear ending me and I though the persons baby in the front seat was dead. Plus several more things and I had PTSD. The two combined made each other worse and had hit at the same time.

36 posted on 03/30/2014 10:54:31 AM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: cva66snipe

“The Inner Ear is the coordinator for more than auditory processing it also coordinates balance and optical senses.”

I can’t believe how hard it has been to convince my docs to order a VNG study to screen for balance disorders! As I said, I hope that ends this week.

My heart goes out to you for your life-long challenges. I had 50 years of high functioning before “creeping decrepitude” set in (now morphing into galloping decrepitude, as my sister exclaimed the other day).

My first neurologist looked at my history of having a serious unidentified viral infection in 1952 at the height of the polio epidemics and reviewed the significant research done by Dr. Bruno in the late 1990’s showing that a lot of polio and polio-like viral damage of that era never resulted in paralysis but DID result in extensive loss of neurons in the brain. This is a type of post-polio/post enterovirus syndrome.

He said that I may have had a significant percentage of my total neurons wiped out so that I would run out of excess neurons that a person normally relies on to have high function as 5% of remaining neurons are lost each year after age 25, IIRC.

I live in a three-level retirement community (independent, assisted and nursing) and the 90-year-olds blow by me on the walkway these days.

But I am still ambulatory and thank God for each day that I am.


37 posted on 03/30/2014 11:24:46 AM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: cva66snipe
Zoloft and Trazodone

I took Prozac and Celexia and that is what gave me my serotonin storm. It was pure hell for those two weeks and it also made me to pass out and also to conjure up some fantastic hallucinations that were pretty bizzare'

38 posted on 03/30/2014 11:36:17 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: TEARUNNER14

I thank everyone of you for your prayers and input. I know now that God has revealed to my wife and I exactly what I am going through. I told my wife I know now that the two neurologist were on the wrong track and the internal medicine doctor was right, but wrong meds. Hopefully, the appointment next week will produce better results for me.


39 posted on 03/30/2014 11:47:59 AM PDT by TEARUNNER14 (AS A FORMER FETUS, I RESENT ABORTIONS!)
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To: Seizethecarp
Polio would do it and yes a lot of cases were milder and as such often went unnoticed. My wife born in 1950 has classic Polio deformities that show up when a physical therapist measures her limbs. We think this was the likely culprit in her later becoming a quad at age 35. The doctors called it Transverse Myelitis.

Before we met she was under a lot of stress and let herself get run down opening the door for it.

I take it with humor. My dad used to tell me that I did real good for an 80 year old man or whatever age he was when he would say it.

Given the choices of what I thought it was like a stroke. MS, MD, Brain tumor, or similar I consider myself lucky this is what I have. It left me with most of my physical strength which allows me to lift my wife and get her up etc. My sister 5 years my senior is 61. She's in a nursing home with Dementia and has had several strokes to boot.

40 posted on 03/30/2014 1:32:05 PM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: TEARUNNER14
I took Prozac and Celexia and that is what gave me my serotonin storm. It was pure hell for those two weeks and it also made me to pass out and also to conjure up some fantastic hallucinations that were pretty bizzare'

My wife needed some dental work actually a full mouth extraction due to long term blood pressure meds. A previous dentist nearly killed her giving her Mepraghan for what was a basic one tooth extraction. It made he hypothermic and induced a Coma. A few years later she needed the extractions but was terrified so she went to a shrink. He prescribed the Zoloft and Trazodone. She was on it maybe two months when Serotonin Syndrome hit.

She was highly agitated so I made an emergency appointment with her shrink. His remedy was up the Zoloft. By the time we got home she was seeing the devil. I took her to an ER. The doctor didn't do any blood work, ignored her history, and called the state to send her to a mental hospital. I found her slumped in her wheelchair in an exam room unconscious and a rentacop outside her door. I yelled get someone in here Stat. In walks the doctor and just stands there. I said what type of mental disorder causes this she has a coronary history help her. He just stood there. I said you stupid **** help her again he did nothing. My dad was there so I told him get the van to the entrance I'm getting her out of her.

I took her to a level one facility across town. She was still unconscious They worked on her immediately and got her conscious. They asked me what happened and I told the doctor. He immediately switched from being a doctor to being a patient dumper saying he was calling the state to commit her to a mental hospital. He too took no blood, no CT, no MRI. The state came and I told them she wasn't going anywhere. They agreed and admitted her to the hospital.

At first they took her off all meds but Ativan which was the only right thing they did. 48 hours later she was herself. In walks Dr Shrink who never saw her before. After a minute he says I agree with her shrink up the Zoloft. Nurse walks in next day at non and gives her the pill. By 1:00PM she was out of it talking out of her head. You'd think they would get a clue. Nope. Next day my dad was there and I left to go shower and get some rest. I stopped by the chapel and said a prayer then went home. I went online and typed in Zoloft +Trazodone +Adverse reactions and hat instant hits on Serotonin Syndrome.

I was careful to get a reliable and respected source and printed it. I called my dad and said I found the problem don't let them give her another pill.

I got back to the hospital and talked to the nursing supervisor for the floor I said read this. She glanced at it and shrugged. I said call the doctor {it was theirs not ours} this can be fatal. She said the house doctors can not be disturbed he will be here tomorrow. I said OK then these are my orders and you must comply. No pills but Xanax or Ativan non whatsoever without my permission.

Next morning their house doctor came in madder than a hornet calling me out to the hall and asked why did you stop our orders. I said just read this paper. He glanced at it and said that is pure rubbish. I said OK read me the name of the author and his position. It was his professor. He stammered and said well I guess that might be. Now can we transfer her to a mental institute. I said you mention that one more time and I'm coming after you.

Then next morning she was OK again but somewhat amnesic. The next day the MRI got done. Two bleeders in the brain one old likely years before the other very recent due to the Serotonin Syndrome.

Our primary doctor not the one we have now saw her and said Oh My God what did they do. She had beat herself black and blue. Hospital protocol did not allow our primary care doctor to have any input nor was she contacted. This was about 12-13 years ago. On both of our medical records we have no antidepressants or Serotonin elevating medications allowed., I realize now due to the meds I was given initially I was having early symptoms of it also.

Doctors are literally terrified of Benzo's but will not think twice nor do what should be an extensive neurological history before passing out antidepressants like candy. Benzos can not give you Serotonin Syndrome they are the treatment to stop it.

41 posted on 03/30/2014 2:03:03 PM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: cva66snipe

It sounds like you wife may have had the most damaging type of post-polio syndrome the Dr. Bruno has researched. I am having some cognitive difficulty tonight so I won’t try to paraphrase it other to say that the repairs that the body makes to restore muscle function after childhood polio can break down in middle age, especially if exercise is pushed to try to overcome increasing disability, unfortunately.

Here are some links to Dr. Richard Bruon’s work on post-polio syndrome from which he suffers:

MP3: “DR. RICHARD L. BRUNO ANSWERS QUESTIONS ABOUT POST POLIO SYNDROME”

http://www.myragoldick.com/3084/dr-richard-l-bruno-answers-questions-about-post-polio-syndrome/

“Parallels Between Post-Polio Fatigue and Chronic
Fatigue Syndrome: A Common Pathophysiology?”

http://www.cfids-cab.org/cfs-inform/Postpolio/bruno.etal98.txt

Here is his book:

“The Polio Paradox: What You Need to Know”

http://www.amazon.com/The-Polio-Paradox-What-Need/dp/0446690694

Here is a page with numerous links on post-polio including many interesting ones on Dr. Bruno’s work:

http://www.cfids-cab.org/cfs-inform/Postpolio/postpolio.html


42 posted on 03/30/2014 6:38:22 PM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: cva66snipe

“Given the choices of what I thought it was like a stroke. MS, MD, Brain tumor, or similar I consider myself lucky this is what I have.”

I agree! Every day that I am still ambulatory and do not have untreatable pain and am not terminal I am thankful!

I, too, have a wife with severe medical issues. Four times last year she was so psychotic that she had to be hospitalized, and she is a retired RN to boot...who used to work on a psych ward! Life is a character-building experience and we have to count our blessings every day.


43 posted on 03/30/2014 6:42:04 PM PDT by Seizethecarp (Defend aircraft from "runway kill zone" mini-drone helicopter swarm attacks: www.runwaykillzone.com)
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To: Seizethecarp

My wife before quad hit her was a CNA in a nursing home. I worked in Maintenance and that’s how we met. I took a facility transfer I was offered after I had lost my first wife. They needed a HVAC mechanic and Electrician at another nursing home and where I was at had two guys doing that already. I could do both jobs at the other place.


44 posted on 03/30/2014 7:53:39 PM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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To: Seizethecarp

BTW thanks for the links. Transverse Milieus and Polio are similar and some even suggest it can be from Polio Relapse. It destroys or damages the Myelin Nerve Sheaves among other things. Transverse is auto immune and as such non contagious.


45 posted on 03/30/2014 7:57:42 PM PDT by cva66snipe ((Two Choices left for U.S. One Nation Under GOD or One Nation Under Judgment? Which one say ye?))
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