Posted on 03/29/2014 7:44:22 PM PDT by TEARUNNER14
I need prayer for my events that I am having in my life. These events are not a vanity. They could result in a life or death situation.
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I need your prayers that I will find the answers for the treatment of these events so that I may have a somewhat normal life. Thanks for your prayers and for all the prayers you all send to others who have problems and God really does answers them.
God Bless you!
And if anyone out there has had a similar experience please freepmail me and let me know how you resolved your problem. Thanks!
Have you had an EEG?
Thanks! I’m starting to have another spell so I must go lay down and I wiil be away fur awhile.
prayers for you
Prayers said.
I will pray for you; please trust in the Lord and ask Him for wisdom and guidance.
It is not something I have ever heard of but you might try to do research on the internet if your Doctor can’t figure it out.
I remember a kid had some kind of serious neurological disease and his Father did his own research and discovered there was a not well known treatment for it known as a sippy diet. It was a diet very high in fat and in fact it worked.
Make sure you have a good Doctor then trust him.
If you think you are having complex parti seizures see a neurologist.
DONT drive or do anything where loosing conciousness cod harm you.
There is an answer. Don’t stop looking until you find it. When something like this happens, there is always a corresponding blessing. God will give guidance to all who ask and are willing to receive.
It can be serious but there are also lots of seizure activities that although disabling are harmless as such but make doing things you did before difficult.
Are you more sensitive to sounds now or have trouble say watching TV? Do you become anxious from such? The High you talk of is it like being disconnected from your surroundings? For example you may think to yourself what am I doing, how did it get here if out somewhere? A loss of time perspective as well? What about any other physical symptoms such as tremors or spasms associated with it?
People who have had serious medical events even everyday run of the mill surgery like gall bladder etc can come out from being put under with some neurological issues they didn't have before. The most common is anxiety and Panic Attacks.
I have seizures often daily what is called Stimulus induced Myoclonic Seizures. It comes from sensory processing damage in my auditory and optic translation both in my Inner Ear and brain. I can spasm violently for several seconds which is actually a seizure and as many as several a minute or none a day on a good day. It hit me in 1994 and I've had it over 20 years now. Yea unless I head off the seizures I get weak usually not to the point of sleep but basically my day is shot. Over time I learned to head a lot of it off via medication or the one relaxation method that works for me which is my acoustic guitar.
You need a good Neurologist that won't give up. The more they can't find something wrong the closer I'd look into Vestibular and sensory processing damage which often will not show up on CAT Scans, EEG, or MRI's.
One other thing. As a child did you have chronic ear infections or allergies? This can bring on what I'm saying especially after a life changing event like the one you speak of. The brain has reached a point it can only juggle so many task at one time and overloading it results in crash much like a computer or in this case seizure and the brain reboots.
Prayers that you find answers, but most of all that you find relief!
If they are seizures, help is probably available - friend of my daughter at work had seizures for years - had several driving accidents and eventually lost his license - got with a good doctor who put him in the hospital under observation, wired him up, and took him off of all meds - within a few days he had another seizure which they were able to document and find the locus of the attack - eventually went in with electronic probes and were able to destroy the site of the abnormality - he’s doing fine now, and probably will get his driver’s license soon - a good neurologist is a good place to start if possible.....
cva66snipe and TEARUNNER14
Thanks for sharing your respective experiences.
I have had ME/CFS for 13 years with debilitating orthostatic intolerance. In the past few months I have experienced increasingly frequent events that seem to me to be mini-seizures or migraines. The attacks last about two minutes and are preceded by an aura/prodrome and there is a ten minute postdrome afterwords.
cva66snipe:
Like you, in the past few weeks I have had to warn my family that if I am Skyping with them or talking on the phone and I suddenly am unable to talk or talk with a slur and begin slumping that I can still hear them and that if they wait about 2 minutes I will revive enough to continue.
I feel like lying down but I already am forced to lie down every 3 hour for about 40 minutes due to my orthostatic intolerance.
From what I read I could be having either:
1. a simple partial seizure with a slight tic of a yawning jaw contraction, or
http://en.wikipedia.org/wiki/Simple_partial_seizure
2. a type of migraine called “cortical spreading depression.” This is not psychiatric depression but depression of the little spikes in your EEG, from what I understand.
http://en.wikipedia.org/wiki/Cortical_spreading_depression
I am scheduled for an EEG a week from Tuesday and will also be seeing a ear, nose and throat specialist to try to obtain an Rx for a VNG test.
http://en.wikipedia.org/wiki/Videonystagmography
“Videonystagmography (VNG) is a technology for testing inner ear and central motor functions, a process known as vestibular assessment. It involves the use of infrared goggles to trace eye movements during visual stimulation and positional changes. VNG can determine whether dizziness is caused by inner ear disease, particularly benign paroxysmal positional vertigo (BPPV), as opposed to some other cause such as low blood pressure or anxiety.”
Prayers for you but you need to schedule an appointment with a neurologist as soon as possible. They will probably order an EEG.Don’t be surprised if it comes back normal. EEG’s are notorious For not showing any seizure activity.
I was DX’ed last October with partial seizures that had been going on for 3 1/2 years. They started within 24 hours of having a stroke. On meds and feeling much better most days.
What type of aura do you have? I have olfactory auras. If an aura doesn’t progress to another type of seizure, the aura is a seizure. You may want to check out the following web site.
http://www.coping-with-epilepsy.com/forums/
Thanks for the link. If my EEG results in an epilepsy diagnosis I will check it out.
My cognitive function freezes and I can’t remember my train of thought and I stop speaking in the middle of a sentence. My hands and arms freeze in whatever position they are in when it begins. My eyes seem to jump to a new focus point and I am disoriented as to why I am suddenly looking there.
When the “actual” seizure or migraine starts (not sure which yet) I get this squeezing sensation that moves over my brain and becomes intense between my eye making me want to squint with my eyes shut tight. At this point I cannot speak or can only slur my words. I can only move a little bit and can’t get up.
I do have a history of several episodes of “scintillating scotoma”-type aura without the headache, mercifully.
For my answers I got them from an unlikely source. A researcher who was studying Anxiety Disorders {which they had diagnosed this as being}, ADD ADHD, Dyslexia, and even TMJ as related to such things as chronic ear infections, sinus allergies etc
His theory was cerebellar-vestibular damage was creating a rash of issues. I found ha book called Phobia Free which had clinical descriptions and medical histories. It was like reading This is your life LOL.
In my case I obviously born with some damage. As a toddler through adult I had severe sinus allergies. As a kid and as an adult I have poor coordination. I have have ADD ADHD type symptoms but not ADD nor ADHD. I have severe concentration issues many days especially with abrupt weather changes. I have trouble understand people talking to me and that was before my hearing loss began now at over 50%.
My first attack or seizure happened on the interstate on a weekend getaway with my wife. We had been to a flee market and were headed home which was 50 miles away.
Out of the blue I felt flush. I didn't know where I was, why I was where I was, how long I had been driving {five minutes at that point} or where the heck we were going. My wife looked at me and yelled what's wrong with you? I reckon I had some sorta blank look. All I could muster was saying Nothing I'm fine.
After about 30 minutes my senses began to return and I was weak and worn out but able to still function. BY the next evening I could barely work. I took a few weeks off. They ran all text they had back then and it showed nothing. I was becoming more and more sensitive to noises though and was having spasms in my upper torso from it.
I went back to work then took two weeks vacation we had planned. When I came back I had been working about a week. I went on a trouble call to an apartment on the healthcare complex I worked at. I finished up and decided to eat supper. I was in my shop leaning back against the double door {the locked side} and someone behind me in the hall yelled. It started all over. That was my last night working. For two straight days all I could do was answer yes and no questions. I knew what was going on but could not engage my brain to my body. I could walk, eat, etc but that was about it. I was diagnose as having General Anxiety Disorder.
A Social Security Disability examiner saw me and said I've seen it but it has no clinical name and there is no cure. It won't kill you but you will be limited in a lot of things. It took nearly five years to put all the pieces of the puzzle together and it took connecting my childhood problems even single eye vision and poor coordination and when I read the book it all came together finally.
To complicate matters I developed PTSD at the same time. That part I got over in time in therapy. Lot's of stuff happened to me in about a 10 year time frame that wasn't the easiest things to deal with.
The Sensory Processing System controls your survival portion of the brain as well. It can release some very overwhelming impulses. If your response isn't one the brain wants to see then conflict occurs.
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