video at link (2:25)
video at link (2:25)
Is it just me, or does she resemble Chelsea Clinton?
I saw a special on this disease. Horrific. ANY injury is “healed” by creating more bone.
It’s not even like a cure could save these people once all of the extra bones mass is there and immobilizing and crushing you.
I’m so sorry for this young lady. She is literally smiling through the pain. If having this disorder is her fate, she’s with the right sort of mother, who offers the girl support and encouragement to do whatever she still can physically do.
There is still a lot about genetic disease that is not known.
At very least, I hope a treatment is found for her most acute levels of discomfort. Found within the next few years.
From what I’ve discovered, the United States leads in genetic research, followed closely by Oxford and Cambridge in the U.K. and later China. China is not known to be the best at providing enough supporting data for it’s conclusions.
Prayers for the young lady.
A friend of mine from North Haven, Ct has a daughter with FOP. She’s now 37 and a really inspirational person.
(I wish the word "awesome" hadn't become so cheapened of late.)
JAW-DROPPING courage.
I'm sure she must pray. A lot.
Good Lord, this sounds like a disease from science fiction. I could not imagine anything more dreadful than this. She seems to be so strong and of good cheer based on the interview...bless her.
And in other “news” Thanksgiving will be on Monday this year.
That used to be called “petrification” or “Ossification” and there were examples in circus sideshows and PT Barnum provided at least one with a living.
Bookmarked.
Isn’t this the theme of the movie ‘Mask’ starring Cher about 40 years ago? It seems that it was just his head that was going extra bone.