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To: M0sby

post 639
Update. After all the diagnostic work the problem is related to King Vanity's narrowing brochial openings and bronchial spasms due to his Cerebral Palsy.

We have for the last ten months changed our lifestyle. With medications and keeping his enviroment quiet breathing is under control, yet must be assessed and treated through out the day.

The RNC was to much and sent him into broncial spasms he gets overly excited and the spasticity overflow clamps down on him lungs. He can stiffen up like a 2 by 4 piece of wood.

So as I have for 25 yrs new game plan and work around the problem.

He is more sedated in order to make it humanly possible to get him into his wheelchair.

His social activity and outings are very much about quiet not over exciting functions.

My heart broke as he is very social that is his life and now having to slow down to preserve his quality of life hurt me like I have not hurt in many years.

He visits the locally owned grocery store where everyone visits in town and that has to be limited to no more than an hour or he gets into breathing complications.

No more smoke filled Casinoes and Comedy clubs as it is overtaxing on his neurological/nervous system.

He still loves politics and everyone asks him for his opinion.

The local paper came out and did a human interest story on him and his dogs after he tried to put his eldest Labrador who we had to put down, knew it was coming, under the human Obits.

We are going to do a thread on how he almost pulled that stunt off as soon as the article comes out in the paper.

He is a prankster big time, so bottom line nothing about his spirit has changed just the pace at which his physical being must perform. Sloooooow Down Son.

We added two Yellow Lab puppies over the last year which keeps me,mom, careprover, busy and active as a hobby and gets me out of the room where I do his around the clock medical care.

He has visitors to the house but a few jockey to be his best gal so I keep them apart. No cat fights!

He is excepting his slowing down the upside is with not running around town all the time he has two long hot showers a week. Spa day if you will since it takes a few hours to do that routine.

We are blessed to have thought ahead and our home is totally WC friendly.

15yrs we have lived here in our home.

It is a peaceful rural property on the Yaquina Bay.

Thanks to all who keeps us in their Prayers.

I have learned that now being homebound, except for my respite days so I can take a break, that a strong prayer life is essential to my mental health.

I am glad we travelled throughout the last 25yrs and that he has lived an active life.

However he plans on going to 100 so we must both take care of our health.

I am looking into if God forbid I die that we can donate our home to a group home, private run and that would open a space for another guy who is severly disabled to come live independantly in Chris' home and he can stay put.

He is so wild with uncontrolled movements other facilities will not except him, he must maintain a life in his own home with a 24 hr nursing staff. Not easy.

Other than slowing down I am healthy, but these things must be dealt with.

God Bless all.


1,186 posted on 10/13/2004 10:29:45 PM PDT by oceanperch ( Mt. St. Helens is nothing compared to the stuff Kerry spews.)
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To: oceanperch
I have learned that now being homebound, except for my respite days so I can take a break, that a strong prayer life is essential to my mental health.

Your ability to do everything for Chris, 24/7, and plan ahead for his future, makes you one in a million, maybe ten million. That's true and pure love. God bless you and Chris!

1,204 posted on 10/14/2004 9:04:00 PM PDT by lakey
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