Posted on 11/20/2003 10:39:47 PM PST by Texas Termite
Edited on 11/22/2003 8:52:31 AM PST by Admin Moderator. [history]
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(UPDATES IN RED)
103 posted on 11/22/2003 11:22 AM EST by Texas Termite (I love my Freeper Family!)
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I didn't think you'd forgotten. A new house, huh? THAT'S cool!!!
M0sby,Thank you for the updates,so beautiful to keep all of us up to date and we do pray and we do read.
A God bless bump from here...
Thanks for the ping!
Remember my post to you that I dreamed TT was going to have a little sister?
Wow It was Nana! (kidding)
The P word is in the air!
Hmmmmmmmmmmmm.........
post 639
Update. After all the diagnostic work the problem is related to King Vanity's narrowing brochial openings and bronchial spasms due to his Cerebral Palsy.
We have for the last ten months changed our lifestyle. With medications and keeping his enviroment quiet breathing is under control, yet must be assessed and treated through out the day.
The RNC was to much and sent him into broncial spasms he gets overly excited and the spasticity overflow clamps down on him lungs. He can stiffen up like a 2 by 4 piece of wood.
So as I have for 25 yrs new game plan and work around the problem.
He is more sedated in order to make it humanly possible to get him into his wheelchair.
His social activity and outings are very much about quiet not over exciting functions.
My heart broke as he is very social that is his life and now having to slow down to preserve his quality of life hurt me like I have not hurt in many years.
He visits the locally owned grocery store where everyone visits in town and that has to be limited to no more than an hour or he gets into breathing complications.
No more smoke filled Casinoes and Comedy clubs as it is overtaxing on his neurological/nervous system.
He still loves politics and everyone asks him for his opinion.
The local paper came out and did a human interest story on him and his dogs after he tried to put his eldest Labrador who we had to put down, knew it was coming, under the human Obits.
We are going to do a thread on how he almost pulled that stunt off as soon as the article comes out in the paper.
He is a prankster big time, so bottom line nothing about his spirit has changed just the pace at which his physical being must perform. Sloooooow Down Son.
We added two Yellow Lab puppies over the last year which keeps me,mom, careprover, busy and active as a hobby and gets me out of the room where I do his around the clock medical care.
He has visitors to the house but a few jockey to be his best gal so I keep them apart. No cat fights!
He is excepting his slowing down the upside is with not running around town all the time he has two long hot showers a week. Spa day if you will since it takes a few hours to do that routine.
We are blessed to have thought ahead and our home is totally WC friendly.
15yrs we have lived here in our home.
It is a peaceful rural property on the Yaquina Bay.
Thanks to all who keeps us in their Prayers.
I have learned that now being homebound, except for my respite days so I can take a break, that a strong prayer life is essential to my mental health.
I am glad we travelled throughout the last 25yrs and that he has lived an active life.
However he plans on going to 100 so we must both take care of our health.
I am looking into if God forbid I die that we can donate our home to a group home, private run and that would open a space for another guy who is severly disabled to come live independantly in Chris' home and he can stay put.
He is so wild with uncontrolled movements other facilities will not except him, he must maintain a life in his own home with a 24 hr nursing staff. Not easy.
Other than slowing down I am healthy, but these things must be dealt with.
God Bless all.
post 639
Update. After all the diagnostic work the problem is related to King Vanity's narrowing brochial openings and bronchial spasms due to his Cerebral Palsy.
We have for the last ten months changed our lifestyle. With medications and keeping his enviroment quiet breathing is under control, yet must be assessed and treated through out the day.
The RNC was to much and sent him into broncial spasms he gets overly excited and the spasticity overflow clamps down on him lungs. He can stiffen up like a 2 by 4 piece of wood.
So as I have for 25 yrs new game plan and work around the problem.
He is more sedated in order to make it humanly possible to get him into his wheelchair.
His social activity and outings are very much about quiet not over exciting functions.
My heart broke as he is very social that is his life and now having to slow down to preserve his quality of life hurt me like I have not hurt in many years.
He visits the locally owned grocery store where everyone visits in town and that has to be limited to no more than an hour or he gets into breathing complications.
No more smoke filled Casinoes and Comedy clubs as it is overtaxing on his neurological/nervous system.
He still loves politics and everyone asks him for his opinion.
The local paper came out and did a human interest story on him and his dogs after he tried to put his eldest Labrador who we had to put down, knew it was coming, under the human Obits.
We are going to do a thread on how he almost pulled that stunt off as soon as the article comes out in the paper.
He is a prankster big time, so bottom line nothing about his spirit has changed just the pace at which his physical being must perform. Sloooooow Down Son.
We added two Yellow Lab puppies over the last year which keeps me,mom, careprover, busy and active as a hobby and gets me out of the room where I do his around the clock medical care.
He has visitors to the house but a few jockey to be his best gal so I keep them apart. No cat fights!
He is excepting his slowing down the upside is with not running around town all the time he has two long hot showers a week. Spa day if you will since it takes a few hours to do that routine.
We are blessed to have thought ahead and our home is totally WC friendly.
15yrs we have lived here in our home.
It is a peaceful rural property on the Yaquina Bay.
Thanks to all who keeps us in their Prayers.
I have learned that now being homebound, except for my respite days so I can take a break, that a strong prayer life is essential to my mental health.
I am glad we travelled throughout the last 25yrs and that he has lived an active life.
However he plans on going to 100 so we must both take care of our health.
I am looking into if God forbid I die that we can donate our home to a group home, private run and that would open a space for another guy who is severly disabled to come live independantly in Chris' home and he can stay put.
He is so wild with uncontrolled movements other facilities will not except him, he must maintain a life in his own home with a 24 hr nursing staff. Not easy.
Other than slowing down I am healthy, but these things must be dealt with.
God Bless all.
BTTT!!!!!
BTTT!!!!!!!
Other than the heart problem he looks perfect. In fact I'd say he's the cutest damn kid I've ever seen:) He weighed 7 lb 8 oz and was born at 10:12 a.m. on 10/12/04. Thanks for your prayers.
Hi Clink..
Little Jack has our prayers as we begin our day today.
Dear God, please place Your healing hands on Jack. Today he has surgery for his little heart. Guide those who treat him that they may find the way to make his heart strong and healthy. Give this child a long and healthy life in order that he may serve You. Console and give strength to his entire family. Remind them to be positive because as little as he is, he draws his strength from them.
Bless Jack with Your mercy and love.
In Jesus' name we pray. Amen
Our love and best wishes for our new little friend Jack.
*TT*, Beth & Nana
Hi OP...
God love you! He knew what He was doing when He blessed you with your beloved son. Few would do as you have. Truly, you are the symbol of "a Mother's Love". You and Chris are a love story that is so sweet and tender. Thank you for sharing it with us.
We pray for both of you in our daily prayers...and will continue to do so.
*TT*, Beth & Nana
Thanks for the prayer plug!
My husband and oldest daughter left for Louisville about 5 hours ago. I am staying home with the little ones because we didn't see the point in dragging them over 700 miles one way when they don't understand what is going on. Besides, our 2 y.o. son's behavior as of late leaves much to be desired sometimes.
The coroner determined that my husband's grandfather suffered a massive heart attack. Even if they had found him while it was happening or if he had been in the hospital, it would have been too late. It was a combination of the cancer and other health problems that contributed to his death. His long suffering is over, and he died as he wished--at home and not in a hospital.
Our sympathy to your husband and your family in the loss of their grandfather. He is at peace now, without pain.
We hope your little one is doing well. Mommy says I must be approaching two too, because I've learned to throw "fits" when I want something and don't get my way! Shamie, shamie!
Hugs to you Okies....
*TT*, Beth & Nana
Oh, Termite, you make me laugh :)
My Steven is 2 (last month) and he is the Master of Temper Tantrums! If you need lessons, see him lol.
Brooke is going to be 4 months old on Sunday--we can hardly believe it! She is so 'girly' and sweet. She sleeps through the night (most of the time). She has almost mastered rolling onto her belly from her back. Next step--solids :)
Well, it's time to get the little ones to bed. Then Mommy gets some quiet time! Nighty Night!
Auntie Okies
Thinking of you and KV...and keeping you in my prayers...
Thank you for the update!
I will put in in the next official update, so no one will miss it.
YOU ARE DOING A GREAT JOB!
I am glad you have respite..I DID RESPITE for years...I can't imagine it the other way around...GOD BLESS!!!
CLink...Thank you for the info..of COURSE we will pray!
I will PING some of the regulars...and then EVERYONE with the next update!!!
Blessings to your Jack...I love the little ones so...
Thinking of oyu and keeping you in my prayers...
Sincerely,
M0sby
Thinking of you so much...We have a LOT in common these days..
Please post your replies to Clink
Clink, prayers for the new baby! God's hand on everything that happens with him now.
M0sby, thank you for the ping
Blessings,
trussell
If you want on/off my prayer ping list, please let me know. All requests happily honored.
Prayer ping...see post 1190.
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